Abstract
Disclosure of serostatus and predictors of disclosure were examined among youth living with HIV (YLH). Disclosure patterns, sociodemographic characteristics, sexual and substance-use risk history, and current health status were examined among 350 youth living with HIV aged 13–23 years (27% African-American, 38% Latino; 72% male) who had AIDS (n = 35), were symptomatic (n = 108), or asymptomatic (n = 201). Most youth disclosed their serostatus to family (87%); unexpectedly, young men (93%) were more likely to disclose to friends than were young women (79%). Being younger at diagnosis was significantly associated with disclosure to family; young men disclosed more often to friends. Most youth disclosed to all their sexual partners (69%); higher rates of disclosure to sexual partners were associated with having fewer partners and being African-American. Condom use was significantly associated with disclosure for young women, and tended to be related for young men. Although many YLH disclose their serostatus to their partners, condom use is not increased. Interventions are needed to increase condom use among YLH, as well as to encourage disclosure to partners by the 30% of YLH who do not disclose.
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REFERENCES
Angel, R., and Thoits, P. (1987). The impact of culture on the cognitive structure of illness. Culture, Medicine and Psychiatry, 11, 465–494.
Boxer, A. M., Cook, J. A., and Herdt, G. (1991). Double jeopardy: Identity transitions and parent-child relations among gay and lesbian youth. In K. Pillemer and K. McCartney (Eds.), Parent-child relations throughout life (pp. 59–92). Hillsdale, NJ: Erlbaum.
Centers for Disease Control and Prevention. (1997). U.S. HIV and AIDS cases reported through December 1997. HIV/AIDS Surveillance Report, No. 9.
Conway, K. (1985–86). Coping with the stress of medical problems among Black and White elderly. International Journal of Aging and Human Development, 21, 39–48.
Croteau, J. M., Nero, C. I., and Prosser, D. J. (1993). Social and cultural sensitivity in group-specific HIV and AIDS programming. Journal of Counseling and Development, 71, 290–296.
D'Augelli, A. R., and Hershberger, S. L. (1993). Lesbian, gay, and bisexual youth in community settings: Personal challenges and mental health problems. American Journal of Community Psychology, 21, 421–448.
Forsberg, A., King, G., Delaronde, S., and Geary, M. (1996). Maintaining safer sex behaviors in HIV infected adolescents with hemophilia. AIDS Care, 8, 80–85.
Geary, M. K., King, G., Forsberg, A. D., Delaronde, S. R., and Parsons, J. (1996). Hemophilia Behavioral Evaluative Intervention Project Staff: Issues of disclosure and condom use in adolescents with hemophilia and HIV. Pediatric AIDS and HIV Infection: Fetus to Adolescent, 7, 418–423.
Goldsmith, M. (1993). Invisible epidemic now becoming visible as HIV/AIDS pandemic reaches adolescents. Journal of the American Medical Association, 270, 16–19.
Gordon, R. (1997, August 3). Same-sex marriage draws hot debate: Mayor Brown takes on antigay crusaders in Bar Association battle. San Francisco Examiner, p. B1.
Gruen, R., Calderwood, M., Meyer-Bahlburg, H., and Ehrhardt, A. (1989). Psychosexual assessment in AIDS research. In Abstracts of the Fifth International Conference on AIDS (p. 739). Ottawa, Ontario, Canada.
Gwadz, M., and Rotheram-Borus, M. J. (1992). Tracking high risk adolescents longitudinally. AIDS Education and Prevention, 4, 69–82.
Harter, S., Margold, D. B., Whitesell, N. R., and Cobbs, G. (1996). A model of the effects of perceived parent and peer support on adolescent false self-behavior. Child Development, 67, 360–374.
Hays, R. B., McKusick, L., Pollack, L., Hilliard, R., Hoff, C., and Coates, T. J. (1993). Disclosing HIV seropositivity to significant others. AIDS, 7, 425–431.
Herek, G. M., and Capitanio, J. P. (1993). Public reactions to AIDS in the United States: A second decade of stigma. American Journal of Public Health, 83, 574–577.
Jourard, S. M. (1964). The transport self: Self-disclosure and well-being. Princeton, NJ: Van Nostrand.
King, G., Delaronde, S., Dinoi, R., and Forsberg, A. (1996). Substance use, coping, and safer sex practices among adolescents with hemophilia and human immunodeficiency virus. Journal of Adolescent Health, 18, 435–441.
Mansergh, G., Marks, G., and Simoni, J. M. (1995). Self-disclosure of HIV infection among men who vary in time since seropositive diagnosis and symptomatic status. AIDS, 9, 639–644.
Mark, E. W., and Alper, T. G. (1985). Women, men, and intimacy motivation. Psychology of Women Quarterly, 9, 81–88.
Marks, G., Bundek, N. I., Richardson, J. L., Ruiz, M. S., Maldonado, N., and Mason, H. R. C. (1992). Self-disclosure of HIV infection: Preliminary results from a sample of Hispanic men. Health Psychology, 11, 300–306.
McGoldrick, M., Garcia-Preto, N., Hines, P. M., and Lee, E. (1989). Ethnicity and women. In M. McGoldrick, C. M. Anderson, and F. Walsh (Eds.), Women in families: A framework for family therapy (pp. 169–199). New York: Norton.
Nuss, R., Smith, P. S., Cotton, D., and Kisker, T. (1995). Difficult communication in HIV-positive adolescents with hemophilia. Haemophilia, 1, 126–130.
Perry, S. W., Card, C. A. L., Moffatt, M., Ashman, T., Fishman, B., and Jacobsberg, L. B. (1994). Self-disclosure of HIV infection to sexual partners after repeated counseling. AIDS Education and Prevention, 6, 403–411.
Rotheram-Borus, M. J., Koopman, C., and Rosario, M. (1992). Developmentally tailoring prevention programs: Matching strategies to adolescents' serostatus. In R. J. DiClemente (Ed.), Adolescents and AIDS: A generation in jeopardy (pp. 212–229). Thousand Oaks, CA: Sage.
Rotheram-Borus, M. J., Murphy, D. A., Coleman, C. L., Kennedy, M., Reid, H. M., Cline, T. R., Birnbaum, J. M., Futterman, D., Levin, L., Schneir, A., Chabon, B., O'Keefe, Z., and Kipke, M. (1997). Risk acts, health care, and medical adherence among HIV+ youths in care over time. AIDS and Behavior, 1, 43–52.
Savin-Williams, R. C. (1996). Self-labeling and disclosure among gay, lesbian, and bisexual youths. In J. Laird and R. J. Green (Eds.), Lesbians and gays in couples and families: A handbook for therapists (pp. 153–182). San Francisco, CA: Jossey-Bass.
Simoni, J. M., Mason, H. R. C., Marks, G., Ruiz, M. S., Reed, D., and Richardson, J. L. (1995). Women's self-disclosure of HIV infection: Rates, reasons, and reactions. Journal of Consulting and Clinical Psychology, 63, 474–478.
Stempel, R. R., Moulton, J. M., and Moss, A. R. (1995). Self-disclosure of HIV-1 antibody test results: The San Francisco General Hospital cohort. AIDS Education and Prevention, 7, 116–123.
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Lee, M., Rotheram-Borus, M.J. & O'Hara, P. Disclosure of Serostatus Among Youth Living with HIV. AIDS Behav 3, 33–40 (1999). https://doi.org/10.1023/A:1025415418759
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DOI: https://doi.org/10.1023/A:1025415418759