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Journal of Autism and Developmental Disorders

Gepubliceerd in:

10-01-2023 | Original Paper

Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care

Auteurs: Amy S. Weitlauf, Alexandra Miceli, Alison Vehorn, Yewande Dada, Theodora Pinnock, Joyce W. Harris, Jeffrey Hine, Zachary Warren

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2024

Abstract

Purpose: Despite advances in screening and awareness, Black and multiracial families continue to experience challenges when seeking an autism diagnosis for their children. Methods: We surveyed 400 Black and multiracial families of young children with autism from an existing research database in the United States about their retrospective diagnostic experiences. We gathered quantitative and qualitative data and engaged in iterative coding to understand timing and content of first concerns, families’ experiences of care providers and systems, and the impact of race and culture on accessing care. Results: Families provided examples of early developmental concern and described provider, systemic, and cultural barriers and facilitators to care. Families also provided insight into the influence of culture and made recommendations on how the medical system could better care for Black and multiracial families of children with autism. Conclusions: Results add to a growing body of literature supporting the need for culturally sensitive and accessible care related to developmental monitoring, diagnosis, and follow-up care for Black and multiracial children.

vorige artikel Factors Predicting Poor Mental and Physical Health in Parents of Children with Autism Spectrum Disorder: Results from 2016 to 2019 National Survey of Children’s Health

volgende artikel Factors Impacting Parental Quality of Life in Preschool Children on the Autism Spectrum

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Titel: Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care
Auteurs: Amy S. Weitlauf
Alexandra Miceli
Alison Vehorn
Yewande Dada
Theodora Pinnock
Joyce W. Harris
Jeffrey Hine
Zachary Warren
Publicatiedatum: 10-01-2023
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 3/2024
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05861-z

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