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Quality of Life Research

Gepubliceerd in:

24-04-2023

Patients’ perspectives on irritable bowel syndrome: a qualitative analysis based on social media in China

Auteurs: Shaopeng Sun, Jiajia Chen, Heng Li, Yijie Lou, Lixia Chen, Bin Lv

Gepubliceerd in: Quality of Life Research | Uitgave 9/2023

Abstract

Aim

To explore the perspectives, experience, and concerns of patients with irritable bowel syndrome (IBS) in China.

Methods

We used data mining to investigate posts shared in Baidu Tieba concerned with IBS; we collected the data through the crawler code, and mined the cleaned data’s themes based on Latent Dirichlet allocation (LDA) and the Grounded theory.

Results

We found 5746 network posts related to IBS. LDA analysis generated 20 topics, and grounded theory analysis established eight topics. Combining the two methods, we finally arranged the topics according to five concepts: difficulty in obtaining disease information; serious psychosocial problems; dissatisfied with the treatment; lack of social support; and low quality of life.

Conclusion

Social media research improved patient-centric understanding of patients’ experiences and perceptions. Our study may facilitate doctor-patient communication and assist in the formulation of medical policies.

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Titel: Patients’ perspectives on irritable bowel syndrome: a qualitative analysis based on social media in China
Auteurs: Shaopeng Sun
Jiajia Chen
Heng Li
Yijie Lou
Lixia Chen
Bin Lv
Publicatiedatum: 24-04-2023
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 9/2023
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-023-03417-x

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