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Quality of Life Research

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02-05-2023

Parent-youth convergence (and divergence) in reports about pediatric quality of life

Auteurs: Rhonda C. Boyd, Jason D. Jones, Bridget A. Makol, Andres De Los Reyes, Claire E. Hatkevich, Tami D. Benton

Gepubliceerd in: Quality of Life Research | Uitgave 9/2023

Abstract

Purpose

Researchers and service providers typically assess pediatric Health-Related Quality of Life (HRQOL) by collecting independent reports from parents and youth. An emerging body of work indicates that patterns of parent-youth reports yield information germane to understanding youth outcomes. We identified patterns of HRQOL among youth and their parents seeking mental health treatment and examined links between agreement patterns and mental and physical health functioning.

Methods

Participants included 227 youth (mean age = 14.40 years, SD = 2.42; 63% female) and parent dyads presenting at a mood disorders clinic between 2013 and 2020. We assessed HRQOL using parallel youth and parent forms of the Pediatric Quality of Life Inventory Generic Core Scales. We also assessed youth clinical correlates of depression, suicidal ideation, and impairment, as well as health information via electronic health record (e.g., psychotropic medication usage, BMI).

Results

Latent class analysis showed three parent-youth reporting patterns: Low–Low (LL), High-High (HH), and Parent Low-Youth High (PL-YH). Relative to youth in the HH group, youth in the LL and PL-YH groups reported significantly greater depressive symptoms and had higher rates of suicidal ideation and psychotropic medication use. In addition, youth in the LL group reported significantly greater levels of impairment.

Conclusions

Parent-youth patterns of HRQOL reporting can reveal clinically meaningful information and indicate poorer functioning for certain groups (LL, PL-YH) of youth. These findings have implications for improving accuracy of risk assessments that leverage HRQOL data.

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Titel: Parent-youth convergence (and divergence) in reports about pediatric quality of life
Auteurs: Rhonda C. Boyd
Jason D. Jones
Bridget A. Makol
Andres De Los Reyes
Claire E. Hatkevich
Tami D. Benton
Publicatiedatum: 02-05-2023
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 9/2023
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-023-03423-z

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Abstract

Purpose

Methods

Results

Conclusions

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