Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

15-05-2021 | Original Paper

Parental Views of Families of Children with Autism Spectrum Disorder and Developmental Disorders During the COVID-19 Pandemic

Auteur: Bekir Fatih Meral

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2022

Abstract

The COVID-19 pandemic, the infection caused by the novel coronavirus detected in December 2019 by World Health Organization (WHO), has detrimentally impacted human life in a variety of areas. Many concepts including outbreak, pandemic, and quarantine have been an inseparable part of our lives. This kind of dialectic change naturally affects persons with autism spectrum disorder (ASD) and developmental disorders (DD) and their families. The present study using a mixed-method evaluation aims to reveal the impacts of the COVID-19 pandemic on the family functioning of children specifically with ASD in Turkey. This study promises a holistic understanding of how the lockdown depending on the COVID -19 pandemic affects families and their children with ASD with positive and negative sides.

vorige artikel Theory of Mind and Moral Decision-Making in the Context of Autism Spectrum Disorder

volgende artikel Effect of a Focused Social and Communication Intervention on Preterm Children with ASD: A Pilot Study

Abdel-Khalek, A. M. (2006). Measuring happiness with a single-item scale. Social Behavior and Personality, 34(2), 139–150. https://doi.org/10.2224/sbp.2006.34.2.139CrossRef

Aishworiya, R., & Kang, Y. Q. (2020). Including Children with developmental disabilities in the equation during this covid-19 pandemic. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-020-04670-6CrossRefPubMedCentral

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Author.

Bazeley, P. (2012). Integrative analysis strategies for mixed data sources. American Behavioral Scientist, 56(6), 814–828. https://doi.org/10.1177/0002764211426330

Boulter, C., Freeston, M., South, M., & Rodgers, J. (2014). Intolerance of uncertainty as a framework for understanding anxiety in children and adolescents with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(6), 1391–1402. https://doi.org/10.1007/s10803-013-2001-x

Boyatzis, R. E. (1998). Transforming qualitative information: Thematic analysis and code development. Sage Publications, Inc.

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oaCrossRef

Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. Sage.

Centers for Disease Control and Prevention (2020a). Implementation of mitigation strategies for community COVID-19 transmission. Atlanta, GA: US. Department of Health and Human Services, Centers for Disease Control and Prevention (CDC), 2020. https://www.cdc.gov/coronavirus/2019-ncov/community/community-mitigation.html

CDC (2020b) Pandemic Severity Assessment Framework (PSAF) and Pandemic Severity Index. https://www.cdc.gov/flu/pandemic-resources/national-strategy/severity-assessment-framework.html

Coryn, C. L. S., Schröter, D. C., & McCowen, R. H. (2014). A Mixed Methods study of some of the factors associated with successful school strategies for native Hawaiian students in the state of Hawai’i. Journal of Mixed Methods Research, 8(4), 377–395. https://doi.org/10.1177/1558689814546695CrossRef

Coyne, L. W., Gould, E. R., Grimaldi, M., Wilson, K. G., Baffuto, G., & Biglan, A. (2020). First things first: parent psychological flexibility and self-compassion during COVID-19. Behavior Analysis in Practice, 6, 1–7. https://doi.org/10.1007/s40617-020-00435-wCrossRef

Creswell, J. W. (2010). Mapping the developing landscape of mixed methods research. In A. Tashakkori & C. Teddlie (Eds.), SAGE handbook of mixed methods in social & behavioral science (pp. 45–69). Sage.

Creswell, J. W., Plano Clark, V. L., Gutmann, M. L., & Hanson, W. E. (2003). Advanced mixed methods research designs. In A. Tashakkori & C. Teddlie (Eds.), Handbook of mixed methods in social and behavioral research (pp. 209–240). Sage.

Creswell, J. W., & Plano Clark, V. L. (2006). Designing and Conducting Mixed Methods Research. Sage.

Creswell, J. W., & Plano Clark, V. (2011). Designing and conducting mixed methods research. Sage.

Cuypers, M., Schalk, B. W. M., Koks-Leensen, M. C. J., Nägele, M. E., Bakker-van Gijssel, E. J., Naaldenberg, J., & Leusink, G. L. (2020). Mortality of people with intellectual disabilities during the 2017/2018 influenza epidemic in the Netherlands: potential implications for the COVID-19 pandemic. Journal of Intellectual Disability Research, 64(7), 482–488. https://doi.org/10.1111/jir.12739CrossRefPubMedPubMedCentral

DeSalvo, K. B., Fisher, W. P., Tran, K., Bloser, N., Merrill, W., & Peabody, J. (2006). Assessing measurement properties of two single-item general health measures. Quality of Life Research: an International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation, 15, 191–201. https://doi.org/10.1007/s11136-005-0887-2CrossRef

Eldevik, S., Hastings, R. P., Hughes, J. C., Jahr, E., Eikeseth, S., & Cross, S. (2009). Meta-analysis of early intensive behavioral intervention for children with autism. Journal of Clinical Child & Adolescent Psychology, 38, 439–450CrossRef

Eshraghi, A. A., Li, C., Alessandri, M., Messinger, D. S., Eshraghi, R. S., Mittal, R., & Armstrong, F. D. (2020). COVID-19: overcoming the challenges faced by individuals with autism and their families. The Lancet Psychiatry, 7(6), 481–483. https://doi.org/10.1016/S2215-0366(20)30197-8CrossRefPubMedPubMedCentral

Fetters, M. D., Curry, L. A., & Creswell, J. W. (2013). Achieving integration in mixed methods designs-principles and practices. Health Services Research, 48(6pt2), 2134–2156. https://doi.org/10.1111/1475-6773.12117

Fetters, M. D. & Molina-Azorin, J. F. (2020). Call for papers for a special issue on COVID-19 and novel mixed methods methodological approaches during catastrophic social changes. Journal of Mixed Methods Research, 14(3), 281–287. https://doi.org/10.1177/1558689820920098

Findler, L., Jacoby, A. K., & Gabis, L. (2016). Subjective happiness among mothers of children with disabilities; The role of stress, attachment, guilt and social support. Research in Developmental Disabilities, 55, 44–54. https://doi.org/10.1016/j.ridd.2016.03.006CrossRefPubMed

Fontanesi, L., Marchetti, D., Mazza, C., Di Giandomenico, S., Roma, P., & Verrocchio, M. C. (2020). The effect of the COVID-19 lockdown on parents: a call to adopt urgent measures. Psychological Trauma: Theory, Research, Practice, and Policy, 12, S79-81. https://doi.org/10.1037/tra0000672CrossRef

Gardner, D. G., Cummings, L. L., Dunham, R. B., & Pierce, J. L. (1998). Single-item versus multiple-item measurement scales: An empirical comparison. Educational and Psychological Measurement, 58, 898–915. https://doi.org/10.1177/0013164498058006003CrossRef

Glidden, L. M., Billings, F. J., & Jobe, B. M. (2006). Personality, coping style and well-being of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 949–962. https://doi.org/10.1111/j.1365-2788.2006.00929.xCrossRefPubMed

Guetterman, T. C., Fetters, M. D., & Creswell, J. W. (2015). Integrating quantitative and qualitative results in health science mixed methods research through joint displays. Annals of Family Medicine, 13(6), 554–561. https://doi.org/10.1370/afm.1865CrossRefPubMedPubMedCentral

Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107, 116–127CrossRefPubMed

Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., Espinosa, F. D., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9(4), 377–391. https://doi.org/10.1177/1362361305056078CrossRefPubMed

Hume, K., Waters, V., Sam, A., Steinbrenner, J., Perkins, Y., Dees, B., Tomaszewski, B., Rentschler, L., Szendrey, S., McIntyre, N., White, M., Nowell, S., & Odom, S. (2020). Supporting individuals with autism through uncertain times. Chapel Hill, NC: School of Education and Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill. Retrieved from: https://afirm.fpg.unc.edu/supporting-individuals-autism-through-uncertain-times

IBM Corp. (2013). IBM SPSS Statistics for Windows, Version 22.0. IBM Corp.

Ingvarsson, E. T. (2016). Tutorial: teaching verbal behavior to children with ASD. International Electronic Journal of Elementary Education, 9(2), 433–450

International Wellbeing Group (2013). Personal Wellbeing Index. 5th Ed. Melbourne: Australian Centre on Quality of Life, Deakin University. http://www.acqol.com.au/instruments#measures

Jenkinson, R., Milne, E., & Thompson, A. (2020). The relationship between intolerance of uncertainty and anxiety in autism: A systematic literature review and meta-analysis. Autism, 24(8), 1933–1944. https://doi.org/10.1177/1362361320932437CrossRefPubMedPubMedCentral

Johnson, J. C., & Weller, S. C. (2001). Elicitation techniques for interviewing. In J. F. Gubrium & J. A. Holstein (Eds.), Handbook of interview research: Context & method (pp. 491–514). Sage

Jones, J., & Passey, J. (2004). Family adaptation, coping and resources: parents of children with developmental disabilities and behaviour problems. Journal on Developmental Disabilities, 11(1), 31–46

Joshanloo, M. (2014). Eastern conceptualizations of happiness: fundamental differences with western views. Journal of Happiness Studies, 15(2), 475–493. https://doi.org/10.1007/s10902-013-9431-1CrossRef

Kilic, R., Ataman Hatipoglu, C., & Gunes, C. (2020). Quarantine and its legal dimension. Turkish Journal of Medical Sciences, 50, 544–548. https://doi.org/10.3906/sag-2004-153CrossRefPubMedPubMedCentral

Law on Public Hygiene no.1593 (1930, amended 2018). Law No: 1593; Date of Approval: 04/24/1930; Official Gazette: Date: 05/06/1930, Issue: 1489; Published in the Law Series: 3(11), p.143; Amended 07/02/2018.

Leech, N. L., & Onwuegbuzie, A. J. (2009). A typology of mixed methods research designs. Quality & Quantity, 43, 265–275. https://doi.org/10.1007/s11135-007-9105-3CrossRef

Maenner, M. J., Shaw, K. A., Baio, J., Washington, A., Patrick, M., DiRienzo, M., et al. (2020). Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2016. Centers for Disease Control and Prevention MMWR. Surveillance Summaries, 69(4), 1–12. https://www.cdc.gov/mmwr/volumes/69/ss/ss6904a1.htm?s_cid=ss6904a1_w

Manning, J., Billian, J., Matson, J., Allen, C., & Soares, N. (2020). Perceptions of families of individuals with autism spectrum disorder during the COVID-19 Crisis. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-020-04760-5CrossRefPubMedPubMedCentral

Masters, G. N., Taylor‐Guy, P., Fraillon, J., & Chase, A. (2020). Ministerial Briefing Paper on Evidence of the Likely Impact on Educational Outcomes of Vulnerable Children Learning at Home during COVID‐19. Australian Government Department of Education, Skills and Employment. https://research.acer.edu.au/cgi/viewcontent.cgi?article=1025&context=learning_processes

Mazza, C., Ricci, E., Biondi, S., Colasanti, M., Ferracuti, S., Napoli, C., & Roma, P. (2020). Nationwide survey of psychological distress among Italian people during the COVID-19 pandemic: immediate psychological responses and associated factors. International Journal of Environmental Research and Public Health, 17, 1–14. https://doi.org/10.3390/ijerph17093165CrossRef

McCubbin, H. I. Thompson, A. I. & McCubbin, M. A. (2001). Family resistance and resiliency resources: typologies of patterns of functioning. In H. I. McCubbin, Thompson, A. I., & McCubbin, M. A. (Eds.), Family measures: stress, coping and resiliency. Inventories for research and practice. Honolulu Kamehameha Schools.

Ministry of the Interior of Turkey (2020). Within the Scope of Combating Coronavirus - New Restrictions and Measures Circulars (in Turkish). https://www.icisleri.gov.tr/koronavirus-ile-mucadele-kapsaminda-sokaga-cikma-kisitlamalari---yeni-kisitlama-ve-tedbirler-genelgeleri

Ministry of Health of Turkey (2020). Law on Public Hygiene no.1593 (1930, amended 2018) (in Turkish). https://www.mevzuat.gov.tr/MevzuatMetin/1.3.1593.pdf

Ministry of National Education (2011). Organization of the Turkish Education System-2011. Republic of Turkey Ministry of National Education (MoNE) Strategy Development Department.

Morse, J. M. (1991). Approaches to qualitative-quantitative methodological triangulation. Nursing Research, 40, 120–123. https://doi.org/10.1097/00006199-199103000-00014CrossRefPubMed

Moukaddam, N. & Shah, A. (2020). Psychiatrists Beware! The Impact of COVID-19 and Pandemics on Mental Health. Psychiatric Times, 37(3). https://www.psychiatrictimes.com/psychiatrists-beware-impact-coronavirus-pandemics-mental-health

Neece, C., McIntyre, L. L., & Fenning, R. (2020). Examining the impact of COVID-19 in ethnically diverse families with young children with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 64(10), 739–749. https://doi.org/10.1111/jir.12769CrossRefPubMed

Pierce, M., Hope, H., Ford, T., Hatch, S., Hotopf, M., John, A., Kontopantelis, E., Webb, R., Wessely, S., McManus, S., & Abel, K. M. (2020). Mental health before and during the COVID-19 pandemic: a longitudinal probability sample survey of the UK population. Lancet Psychiatry, 7, 883–892. https://doi.org/10.1016/S2215-0366(20)30308-4CrossRefPubMedPubMedCentral

Summers, J.A., Behr, S.K., & Turnbull, A.P. (1988). Positive adaptation and coping strengths of families who have children with disabilities. In G.H.S. Singer & L.K. Irvin (Eds.), Support for caregiving families: Enabling positive adaptation to disability (pp. 27–40). Brookes

Sun, S., Lin, D., & Operario, D. (2020). Need for a population health approach to understand and address psychosocial consequences of COVID-19. Psychological Trauma: Theory, Research, Practice, and Policy, 12(S1), S25–S27. https://doi.org/10.1037/tra0000618CrossRef

Tashakkori, A., & Teddlie, C. (2010). SAGE handbook of mixed methods in social & behavioural science. Sage.CrossRef

Thompson, J. R., & Nygren, M. A. (2020). COVID-19 and the field of intellectual and developmental disabilities: where have we been? where are we? where do we go? Intellectual Developmental Disabilities, 58(4), 257–261. https://doi.org/10.1352/1934-9556-58.4.257CrossRefPubMed

Tufts - Office of The Vice Provost for Research (2020). Waiver Granted Due to Cultural Concerns About Signing A Document. https://viceprovost.tufts.edu/sberirb/forms-and-templates/consent-flowchart/informed-consent/

Tolstoy, L. (1859). Family Happiness. HarperCollins Publishers.

Turnbull, A., Turnbull, H. R., Wehmeyer, M. L., Shogren, K. A. (2020). Exceptional Lives: Practice, Progress, & Dignity in Today's Schools, 9th Edition, Pearson Education, Inc.

Weiss, J. A., & Lunsky, Y. (2010). Service utilization patterns in parents of youth and adults with intellectual disability who experienced psychiatric crisis. Journal of Mental Health Research in Intellectual Disabilities, 3, 145–163. https://doi.org/10.1080/19315864.2010.490617CrossRef

Weiss, J. A., & Lunsky, Y. (2011). The Brief Family Distress Scale: a measure of crisis in caregivers of individuals with autism spectrum disorders. Journal of Child and Family Studies, 20(4), 521–528. https://doi.org/10.1007/s10826-010-9419-yCrossRef

World Health Organization (2020). Campaigns #HealthyAtHome by World Health Organization (WHO). https://www.who.int/campaigns/connecting-the-world-to-combat-coronavirus/healthyathome

Zimmerman, M., Ruggero, C. J., Chelminski, I., Young, D., Posternak, M. A., Friedman, M., et al. (2006). Developing brief scales for use in clinical practice: the reliability and validity of single-item self-report measures of depression symptom severity, psychosocial impairment due to depression, and quality of life. Journal of Clinical Psychiatry, 67, 1536–1541. https://doi.org/10.4088/jcp.v67n1007CrossRef

Zuna, N., Summers, J. A., Turnbull, A. P., Hu, X. & Xu, S. (2010). Theorizing about family quality of life. In: Enhancing Quality of Life for People with Intellectual Disabilities: From Theory to Practice (ed. R. Kober), pp. 241– 78. Springer Publishing

Titel: Parental Views of Families of Children with Autism Spectrum Disorder and Developmental Disorders During the COVID-19 Pandemic
Auteur: Bekir Fatih Meral
Publicatiedatum: 15-05-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 4/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05070-0

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 4/2022

Autistic Traits Moderate Reappraisal Success for Depression and Anxiety Symptoms

Correction to: Effect of a Focused Social and Communication Intervention on Preterm Children with ASD: A Pilot Study

Brief Report: A Preliminary Study of the Relationship between Repetitive Behaviors and Concurrent Executive Function Demands in Children with Autism Spectrum Disorder

Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences

Children with ASD: A Pilot Study

A Psychometric Evaluation of the Quality of Life for Children with Autism Spectrum Disorder Scale