Swipe om te navigeren naar een ander artikel
We examined access to autism-related services among Palestinians (N = 24) raising children with autism spectrum disorder (ASD) in the West Bank. Using qualitative methods, we identified five primary interview themes. Poor screening, diagnostic, and psychoeducational practices were prevalent, as parents reported service providers minimized parental concerns and communicated ineffectively with the caregivers regarding treatment options. Geographic barriers and financial burdens prevented many families from seeking or maintaining services. Limited service availability was a dominant barrier: parents reported limited or denied access to education, community-based services, and ASD-specific interventions. Consequently, several families noted their children did not receive any services whatsoever. Research, practices and policies to address the shortage of services for children with ASD are urgently needed in the West Bank.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Anastas, J. W. (2004). Quality in qualitative evaluation: Issues and possible answers. Research on Social Work Practice, 14(1), 57–65. CrossRef
Ansari, Z. A. (2002). Parental acceptance-rejection of disabled children in non-urban Pakistan. North American Journal of Psychology, 4(1), 121.
Centers for Disease Control and Prevention. (2014). Data and statistics. Retrieved from http://www.cdc.gov/ncbddd/autism/data.html
Corbin, J. M., & Strauss, A. L. (2008). Basics of qualitative research: Techniques and procedures for developing grounded theory. Los Angeles: Sage.
Dukmak, S. (2009). Rehabilitation services in the United Arab Emirates as perceived by parents of children with disabilities. Journal of Rehabilitation, 75(4), 27–34.
Habash, M., & Fteiha, M. (2015). Study of beliefs of parents of children with autism regarding complementary and traditional medicine in 4 Middle-East countries. Poster session at the International Meeting of Autism Research, Salt Lake City, UT.
Hamdan, M., & Al-Akhras, N. (2009). House-to-house survey of disabilities in rural communities in the north of the West Bank. Eastern Mediterranean Health Journal, 15(6), 1496–1503. PubMed
Harami, G., Henley, D., & Greer, C. (2010). Development of a disability programme in West Bank and Gaza strip. The Lancet. Abstract retrieved from http://www.thelancet.com/pb/assets/raw/Lancet/abstracts/palestine/S0140673610608501.pdf
Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158. doi: 10.1542/peds.2008-1057. CrossRefPubMed
McIntyre, D. I., Thiede, M., & Birch, S. (2009). Access as a policy-relevant concept in low- and middle-income countries. Health Economics, Policy and Law, 4(2), 179. CrossRef
Murphy, M. A., & Ruble, L. A. (2012). A comparative study of rurality and urbanicity on access to and satisfaction with services for children with autism spectrum disorders. Rural Special Education Quarterly, 31(3), 3–11.
Palestinian Central Bureau of Statistics. (2011). Disability survey, 2011. Ramallah: Palestinian Ministry of Social Affairs.
QSR International. (2012). NVivo (10th edn.) QSR International.
Seif Eldin, A., Habib, D., Noufal, A., Farrag, S., Bazaid, K., Al-Sharbati, M., & Gaddour, N. (2008). Use of M-CHAT for a multinational screening of young children with autism in the Arab countries. International Review of Psychiatry, 20(3), 281–289. doi: 10.1080/09540260801990324. CrossRefPubMed
State of Palestine Ministry of Health. (2012). Public health policy for Palestinian children. Nablus: State of Palestine Ministry of Health.
State of Palestine Ministry of Health. (2014). National health strategy 2014–2016. Nablus: State of Palestine Ministry of Health.
United Nations. (2012). The humanitarian impact of Israeli settlement policies. East Jerusalem: United Nations Office for the Coordination of Humanitarian Affairs.
United Nations Relief and Works Agency. (2012). Socio-economic and food security survey. Retrieved from http://www.unrwa.org/sites/default/files/Socio-Economic%20%26%20Food%20Security%20Survey.pdf
United Nations Relief and Works Agency (UNRWA). (2014). Where we work: West Bank. Retrieved from http://www.unrwa.org/where-we-work/west-bank
United States Central Intelligence Agency [CIA]. (2014). The world factbook: West Bank. Retrieved from https://www.cia.gov/library/publications/the-world-factbook/geos/we.html
Vohra, R., Madhavan, S., Sambamoorthi, U., & St Peter, C. (2014). Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions. Autism: The International Journal of Research and Practice, 18(7), 815–826. doi: 10.1177/1362361313512902. CrossRef
World Bank. (2006). The role and performance of Palestinian NGOs in health, education and agriculture. Retrieved from http://unispal.un.org/pdfs/NGOreportDec06.pdf
World Bank. (2013). West Bank and Gaza: Area C and the future of the Palestinian economy (No. AUS2922). Washington, DC: World Bank.
World Bank. (2015). Data: West Bank and Gaza. Retrieved from http://data.worldbank.org/country/west-bank-gaza
World Health Organization. (2013). Right to health: Barriers to health access in the occupied Palestinian territory, 2011 and 2012 (No. WHO-EM/OPT/004/E). Geneva: World Health Organization.
Young, W. C. (1997). Families and the handicapped in northern Jordan. Journal of Comparative Family Studies, 28(2), 151–169.
Zeglam, A. M., & Maound, A. J. (2012). Prevalence of autistic spectrum disorders in Tripoli, Libya: The need for more research and planned services. Eastern Mediterranean Health Journal, 18(2), 184–188. PubMed
- “On the Sidelines”: Access to Autism-Related Services in the West Bank
- Springer US