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Gepubliceerd in: Huisarts en wetenschap 1/2016

01-01-2016 | Beschouwing

Omgaan met hoop in de palliatieve zorg

Auteurs: dr. Erik Olsman, prof.dr. Dick Willems, prof.dr. Carlo Leget

Gepubliceerd in: Huisarts en wetenschap | Uitgave 1/2016

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Samenvatting

Olsman E, Willems D, Leget C. Omgaan met hoop in de palliatieve zorg. Huisarts Wet 2016;59(1):14-6.
Hoop is belangrijk in de palliatieve fase. Hoop kan huisartsen voor een lastig dilemma plaatsen, bijvoorbeeld wanneer de patiënt valse, dat wil zeggen niet-realistische hoop koestert. Patiënten en zorgverleners benaderen het thema ‘hoop’ echter niet uitsluitend vanuit een realistisch perspectief, maar ook vanuit een functioneel en een narratief perspectief: om de situatie aan te kunnen en omdat het past bij een levensverhaal. Als de huisarts deze perspectieven alledrie in het oog weet te houden, komt dat de communicatie in de laatste levensfase ten goede. De balans tussen hoop, hopeloosheid en wanhoop – de dynamiek van hoop – hangt samen met veranderingen in de fysieke conditie. Huisartsen kunnen zulke veranderingen in de palliatieve fase gebruiken als aangrijpingspunt om het thema ‘hoop’ aan de orde te stellen. Tot slot moeten huisartsen vanuit de relationele ethiek van hoop een balans zien te vinden tussen het aanspreken van hoopgevende elementen (empowerment) enerzijds en de erkenning van verlies en lijden (compassie) anderzijds. Een goede relationele ethiek van hoop vraagt verder dat de huisarts ook zijn eigen hoop en lijden onder ogen ziet.
Literatuur
1.
go back to reference Kylmä J, Duggleby W, Cooper D, Molander G. Hope in palliative care: an integrative review. Palliat Support Care 2009;7:365-77. PubMedCrossRef Kylmä J, Duggleby W, Cooper D, Molander G. Hope in palliative care: an integrative review. Palliat Support Care 2009;7:365-77. PubMedCrossRef
2.
go back to reference Sinclair S, Pereira J, Raffin S. A thematic review of the spirituality literature within palliative care. J Palliat Med 2006;9:464-79. PubMedCrossRef Sinclair S, Pereira J, Raffin S. A thematic review of the spirituality literature within palliative care. J Palliat Med 2006;9:464-79. PubMedCrossRef
3.
go back to reference Granek L, Barrera M, Shaheed J, Nicholas D, Beaune L, D’Agostino N, et al. Trajectory of parental hope when a child has difficult-to-treat cancer: a prospective qualitative study. Psycho-Oncology 2013;22:2436-44. PubMedCrossRef Granek L, Barrera M, Shaheed J, Nicholas D, Beaune L, D’Agostino N, et al. Trajectory of parental hope when a child has difficult-to-treat cancer: a prospective qualitative study. Psycho-Oncology 2013;22:2436-44. PubMedCrossRef
4.
go back to reference Madan S, Pakenham KI. The stress-buffering effects of hope on adjustment to multiple sclerosis. Int J Behav Med 2014;21:877-90. PubMedCrossRef Madan S, Pakenham KI. The stress-buffering effects of hope on adjustment to multiple sclerosis. Int J Behav Med 2014;21:877-90. PubMedCrossRef
5.
go back to reference Duggleby W, Wright K. The hope of professional caregivers caring for persons at the end of life. J Hospice Palliat Nurs 2007;9:42-9. CrossRef Duggleby W, Wright K. The hope of professional caregivers caring for persons at the end of life. J Hospice Palliat Nurs 2007;9:42-9. CrossRef
6.
go back to reference Feudtner C, Santucci G, Feinstein JA, Snyder CR, Rourke MT, Kang TI. Hopeful thinking and level of comfort regarding providing pediatric palliative care: a survey of hospital nurses. Pediatrics 2007;119:e186-92. PubMedCrossRef Feudtner C, Santucci G, Feinstein JA, Snyder CR, Rourke MT, Kang TI. Hopeful thinking and level of comfort regarding providing pediatric palliative care: a survey of hospital nurses. Pediatrics 2007;119:e186-92. PubMedCrossRef
7.
go back to reference Garland EL, Bruce A, Stajduhar K. Exposing barriers to end-of-life communication in heart failure: an integrative review. Can J Cardiovasc Nurs 2013;23:12-8. PubMed Garland EL, Bruce A, Stajduhar K. Exposing barriers to end-of-life communication in heart failure: an integrative review. Can J Cardiovasc Nurs 2013;23:12-8. PubMed
8.
go back to reference Schulman-Green D, McCorkle R, Cherlin E, Johnson-Hurzeler R, Bradley EH. Nurses’ communication of prognosis and implications for hospice referral: A study of nurses caring for terminally ill hospitalized patients. Am J Crit Care 2005;14:64-70. PubMed Schulman-Green D, McCorkle R, Cherlin E, Johnson-Hurzeler R, Bradley EH. Nurses’ communication of prognosis and implications for hospice referral: A study of nurses caring for terminally ill hospitalized patients. Am J Crit Care 2005;14:64-70. PubMed
9.
go back to reference Boyd K, Mason B, Kendall M, Barclay S, Chinn D, Thomas K, et al. Advance care planning for cancer patients in primary care: a feasibility study. Brit J Gen Pract 2010;60:e449-58. Boyd K, Mason B, Kendall M, Barclay S, Chinn D, Thomas K, et al. Advance care planning for cancer patients in primary care: a feasibility study. Brit J Gen Pract 2010;60:e449-58.
10.
go back to reference Buiting HM, Rurup ML, Wijsbek H, Van Zuylen L, Den Hartogh G. Understanding provision of chemotherapy to patients with end stage cancer: qualitative interview study. BMJ Support Palliat Care 2011;1:33-41. PubMedCrossRef Buiting HM, Rurup ML, Wijsbek H, Van Zuylen L, Den Hartogh G. Understanding provision of chemotherapy to patients with end stage cancer: qualitative interview study. BMJ Support Palliat Care 2011;1:33-41. PubMedCrossRef
11.
go back to reference Seeber AA, Hijdra A, Vermeulen M, Willems DL. Discussions about treatment restrictions in chronic neurologic diseases: A structured review. Neurology 2012;78:590-7. PubMedCrossRef Seeber AA, Hijdra A, Vermeulen M, Willems DL. Discussions about treatment restrictions in chronic neurologic diseases: A structured review. Neurology 2012;78:590-7. PubMedCrossRef
12.
go back to reference Olsman E. Hope in palliative care: A longitudinal qualitative study [proefschrift]. Amsterdam: AMC/UvA, 2015. Olsman E. Hope in palliative care: A longitudinal qualitative study [proefschrift]. Amsterdam: AMC/UvA, 2015.
13.
go back to reference Olsman E, Leget C, Onwuteaka-Philipsen B, Willems D. Should palliative care patients’ hope be truthful, helpful or valuable? An interpretative synthesis of literature describing healthcare professionals’ perspectives on hope of palliative care patients. Palliat Med 2014;28:59-70. PubMedCrossRef Olsman E, Leget C, Onwuteaka-Philipsen B, Willems D. Should palliative care patients’ hope be truthful, helpful or valuable? An interpretative synthesis of literature describing healthcare professionals’ perspectives on hope of palliative care patients. Palliat Med 2014;28:59-70. PubMedCrossRef
14.
go back to reference Olver IN. Bioethical implications of hope. In: Eliott JA, editor. Interdisciplinary perspectives on hope, New York: Nova Science, 2005. Olver IN. Bioethical implications of hope. In: Eliott JA, editor. Interdisciplinary perspectives on hope, New York: Nova Science, 2005.
15.
go back to reference Olsman E, Leget C, Duggleby W, Willems D. A singing choir: Understanding the dynamics of hope, hopelessness, and despair in palliative care patients. A longitudinal qualitative study. Palliat Support Care 2015;13:1643-50. PubMedCrossRef Olsman E, Leget C, Duggleby W, Willems D. A singing choir: Understanding the dynamics of hope, hopelessness, and despair in palliative care patients. A longitudinal qualitative study. Palliat Support Care 2015;13:1643-50. PubMedCrossRef
16.
go back to reference Corr CA. Coping with dying: lessons that we should and should not learn from the work of Elisabeth Kübler-Ross. Death Stud 1993;17:69-83. CrossRef Corr CA. Coping with dying: lessons that we should and should not learn from the work of Elisabeth Kübler-Ross. Death Stud 1993;17:69-83. CrossRef
17.
go back to reference Robinson CA. ‘Our best hope is a cure’: Hope in the context of advance care planning. Palliat Support Care 2012;10:75-82. PubMedCrossRef Robinson CA. ‘Our best hope is a cure’: Hope in the context of advance care planning. Palliat Support Care 2012;10:75-82. PubMedCrossRef
18.
go back to reference Olsman E, Willems D, Leget C. Solicitude: balancing compassion and empowerment in a relational ethics of hope - an empirical-ethical study in palliative care. Med Health Care Philos 2015 May 6 [Epub ahead of print]. Olsman E, Willems D, Leget C. Solicitude: balancing compassion and empowerment in a relational ethics of hope - an empirical-ethical study in palliative care. Med Health Care Philos 2015 May 6 [Epub ahead of print].
19.
go back to reference Coulehan J. Suffering, hope, and healing. In: Moore RJ, editor. Handbook of pain and palliative care: biobehavioral approaches for the life course, New York: Springer, 2012. Coulehan J. Suffering, hope, and healing. In: Moore RJ, editor. Handbook of pain and palliative care: biobehavioral approaches for the life course, New York: Springer, 2012.
20.
21.
go back to reference Simpson C. When hope makes us vulnerable: A discussion of patient-healthcare provider interactions in the context of hope. Bioethics 2004;18:428-47. PubMedCrossRef Simpson C. When hope makes us vulnerable: A discussion of patient-healthcare provider interactions in the context of hope. Bioethics 2004;18:428-47. PubMedCrossRef
Metagegevens
Titel
Omgaan met hoop in de palliatieve zorg
Auteurs
dr. Erik Olsman
prof.dr. Dick Willems
prof.dr. Carlo Leget
Publicatiedatum
01-01-2016
Uitgeverij
Bohn Stafleu van Loghum
Gepubliceerd in
Huisarts en wetenschap / Uitgave 1/2016
Print ISSN: 0018-7070
Elektronisch ISSN: 1876-5912
DOI
https://doi.org/10.1007/s12445-016-0012-5

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