Top

Gepubliceerd in:

29-11-2022 | Original Paper

Mothers’ Perceptions of the Sibling Relationship When One Child has Autism Spectrum Disorder

Auteurs: Jesseca Perlman, Nina Howe

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 3/2023

Abstract

This mixed method study examined maternal perceptions of their children’s sibling relationship when one child has autism spectrum disorder (ASD) and one is typically developing. Six mothers completed a questionnaire and semi-structured interview pertaining to their perceptions of the quality of the sibling relationship, the children’s development, adjustment, and impact on one another. Mothers spoke kindly of both children and offered positive and negative perceptions of the sibling relationship. Mothers perceived that sibling influence was bi-directional, in that both children affect the behaviors and interests of one another, regardless of diagnosis and birth order. Typically developing siblings were described as very involved and caring towards their sibling; however, siblings and parents seem to experience day-to-day challenges associated with family relationships and dynamics. Findings highlight the need for services to address the individual needs of parents and siblings in response to having a child with ASD.

vorige artikel Experiences of Parents of Children with ASD: Implications for Inclusive Parental Engagement

Alleen toegankelijk voor geautoriseerde gebruikers

Allison, M., & Campbell, M. (2015). Mothers’ perceptions of the quality of childhood sibling relationships affected by disability. Australian Educational and Developmental Psychologist, 32(1), 56–70. https://doi.org/10.1017/edp.2015.8.CrossRef

Barroso, N. E., Mendez, L., Graziano, P. A., & Bagner, D. M. (2018). Parenting stress through the lens of different clinical groups: A systematic review & meta-analysis. Journal of Abnormal Child Psychology, 46(3), 449–461. https://doi.org/10.1007/s10802-017-0313-6.CrossRefPubMedPubMedCentral

Ben-Itzchak, E., Zukerman, G., & Zachor, D. (2016). Having older siblings is associated with less severe social communication symptoms in young children with autism spectrum disorder. Journal of Abnormal Child Psychology, 44(8), 1613–1620. https://doi.org/10.1007/s108020160133-0.CrossRefPubMed

Bloch, J., & Weinstein, J. (2009). Families of young children with autism. Social Work in Mental Health, 8(1), 23–40. https://doi.org/10.1080/15332980902932342.CrossRef

American Psychiatric Association. (2013). The diagnostic and statistical manual of mental disorders. 5th ed. Washington DC: author.CrossRef

Braconnier, M., Coffman, M., Kelso, N., & Wolf, J. (2018). Sibling relationships: Parent-child agreement and contributions of siblings with and without ASD. Journal of Autism and Developmental Disorders, 48, 1612–1622. https://doi.org/10.1007/s10803-017-3393-9.CrossRefPubMed

Bratlinger, E., Jiminez, R., Klinger, J., Pugach, M., & Richardson, V. (2005). Qualitative studies in special education. Exceptional Children, 71(4), 195–207. https://doi.org/10.1177/001440290507100205.CrossRef

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa.CrossRef

Buhrmester, D. (1992). The developmental course of sibling and peer relationships. In F. Boer & J. Dunn (Eds.), Children’s sibling relationships: Developmental and clinical issues (pp. 19–40). Hillsdale, NJ: Erlbaum.

Buist, K., Deković, M., & Prinzie, P. (2013). Sibling relationship quality and psychopathology of children and adolescents: a meta-analysis. Clinical Psychology Review, 33(1), 97–106. https://doi.org/10.1016/j.cpr.2012.10.007.CrossRefPubMed

Cridland, E., Jones, S., Magee, C., & Caputi, P. (2014). Family-focused autism spectrum disorder research: A review of the utility of family systems approaches. Autism: The International Journal of Research and Practice, 18(3), 213–222. https://doi.org/10.1177/1362361312472261.CrossRefPubMed

Diener, M., Anderson, L., Wright, C., & Dunn, M. (2015). Sibling relationships of children with Autism Spectrum Disorder in the context of everyday life and a strength-based program. Journal of Child and Family Studies, 24(4), 1060–1072. https://doi.org/10.1007/s10826-014-9915-6.CrossRef

Dirks, M., Persram, R., Recchia, H., & Howe, N. (2015). Sibling relationships as sources of risk and resilience in the development and maintenance of internalizing and externalizing problems during childhood and adolescence. Clinical Psychology Review, 42, 145–155. https://doi.org/10.1016/j.cpr.2015.07.003.CrossRefPubMed

Dunn, J. (1988). The beginning of social understanding. Oxford: Blackwell.CrossRef

Ferraiolo, S., & Harris, S. (2010). The impact of autism on siblings. Social Work in Mental Health, 8(1), 41–53. https://doi.org/10.1080/15332980902932409.CrossRef

Habelrih, E., Hicks, R., & Vanstone, D. (2018). A study of the wellbeing of siblings of children with autism spectrum disorders: Sibling efficacy, positive and negative affect, and coping strategies. International Journal of Psychological Studies, 10(2), 102–113. https://doi.org/10.5539/ijps.v10n2p102.CrossRef

Hastings, R., & Petalas, M. (2014). Self-reported behavior problems and sibling relationship quality by siblings of children with autism spectrum disorder. Child: Care, Health, and Development, 40(6), 833–939. https://doi.org/10.1111/cch.12131.CrossRefPubMed

Hays, D., & Singh, A. (2012). Qualitative Inquiry in Clinical and Educational Settings. New York, NY: The Guilford Press.

Howe, N., Ross, H., & Recchia, H. (2011). Sibling relations in early childhood. In C. Hart & P. K. Smith (Eds.), Wiley-Blackwell handbook of childhood social development (2nd ed., pp. 356–372). Wiley-Blackwell.

Jones, E., Fiana, T., Stewart, J., Sheikh, R., Neil, N., & Fienup, D. (2019). When one sibling has ASD: Adjustment and sibling relationship. Journal of Child and Family Studies, 28(5), 1272–1282. https://doi.org/10.1007/s10826-01901374-z.CrossRef

Kaminsky, L., & Dewey, D. (2001). Siblings’ relationships of children with autism. Journal of Autism and Developmental Disorders, 31(4), 399–410. https://doi.org/10.1023/A:1010664603039.CrossRefPubMed

Kiely, B., Adesman, A., Rapoport, E., & Gutman, A. (2020). Patterns and outcomes of diagnosis disclosure to youth with Autism Spectrum Disorder. Journal of Developmental and Behavioral Pediatrics, 41(6), 443–451. https://doi.org/10.1097/DBP.0000000000000802.CrossRefPubMed

King, N. (2004). Using templates in the thematic analysis of text. In C. Cassell & G. Symon (eds.), Essential Guide to Qualitative Methods in Organizational Research. London, UK: Sage.

Kinnear, S., Link, B., Ballan, M., & Fischbach, R. (2016). Understanding the experience of stigma for parents of children with Autism Spectrum Disorder and the role stigma plays in families’ lives. Journal of Autism and Developmental Disorders, 46(3), 942–953. https://doi.org/10.1007/s10803-015-2637-9.CrossRefPubMed

Knott, F., Lewis, C., & Williams, T. (2007). Sibling interactions of children with autism: Development over 12 months. Journal of Autism and Developmental Disorders, 37(10), 1987–1995. https://doi.org/10.1007/s10803-006-0347-z.CrossRefPubMed

Korkmaz, B. (2011). Theory of mind and neurodevelopmental disorders of childhood. Pediatric Research, 69(5), 101–108. https://doi.org/10.1203/PDR.0b013e318212c177.CrossRef

Kramer, L., & Baron, L. (1995). Parental perceptions of children’s sibling relationships. Family Relations, 44(1), 95–103. https://doi.org/10.2307/584746.CrossRef

Kramer, L., Conger, K., Rogers, C., & Ravindran, N. (2019). Siblings. In B. Fiese, M. Celano, K. Deater-Deckard, E. Jouriles, & M. Whisman (Eds.), APA handbook of contemporary family psychology: Foundations, methods, and contemporary issues across the lifespan (pp. 521–538). American Psychiatric Association

Macks, R., & Reeve, R. (2007). The adjustment of non-disabled siblings of children with autism. Journal of Autism and Developmental Disorders, 37(6), 1060–1067. https://doi.org/10.1007/s108030060249-0.CrossRefPubMed

Mascha, K., & Boucher, J. (2006). Preliminary investigation of a qualitative method of examining siblings’ experiences of living with a child with ASD. The British Journal of Developmental Disabilities, 52, 19–28. https://doi.org/10.1179/096979506799103659.CrossRef

Matthews, N., & Goldberg, W. (2018). Theory of mind in children with and without autism spectrum disorder: Associations with the sibling constellation. Autism, 22(3), 311–321. https://doi.org/10.1177/1362361316674438.CrossRefPubMed

Meirsschaut, M., Roeyers, H., & Warreyn, P. (2010). Parenting in families with a child with autism spectrum disorder and a typically developing child: Mother’s experiences and cognitions. Research in Autism Spectrum Disorders, 4(4), 661–669. https://doi.org/10.1016/j.rasd.2010.01.002.CrossRef

Nealy, C. E., O’Hare, L., Powers, J. D., & Swick, D. (2012). The impact of Autism Spectrum Disorders on the family: A qualitative study of mothers’ perspectives. Journal of Family Social Work, 15(3), 187–201. https://doi.org/10.1080/10522158.2012.675624.CrossRef

Nielsen, K., Mandleco, B., Roper, S., Cox, A., Dyches, T., & Marshall, E. (2012). Parental perceptions of sibling relationships in families rearing a child with a chronic condition. Journal of Pediatric Nursing, 27(1), 34–43. https://doi.org/10.1016/j.pedn.2010.08.009.CrossRefPubMed

Oppenheim-Leaf, M., Leaf, J., Dozier, C., Sheldon, J., & Sherman, J. (2012). Teaching typically developing children to promote social play with their siblings with autism. Research in Autism Spectrum Disorders, 6, 777–791. https://doi.org/10.1016/j.rasd.2011.10.010.CrossRef

Perlman, J., & Howe, N. (2020). The Psychosocial Effects of Having a Sibling with Autism Spectrum Disorder. Exceptionality Education International, 30(3), 64–83.CrossRef

Pilowski, T., Yirmiya, N., Doppelt, O., Gross-Tsur, V., & Shalev, R. (2004). Social and emotional adjustment of siblings of children with autism. Journal of Child Psychology and Psychiatry, 45, 855–865. https://doi.org/10.1111/j.1469-7610.2004.00277.x.CrossRef

Potter, C. (2016). I received a leaflet and that is all”: Father experiences of a diagnosis of autism. British Journal of Learning Disabilities, 45(2), 95–105. https://doi.org/10.1111/bld.12179.CrossRef

Richards, L. C., Heathfield, L. T., & Jenson, W. R. (2010). A classwide peer-modeling intervention package to increase on-task behavior. Psychology in the Schools, 47(6), 551–566. https://doi.org/10.1002/pits.20490.CrossRef

Roper, S., Allred, D., Mandleco, B., Freeborn, D., & Dyches, T. (2014). Caregiver burden and sibling relationships in families raising children with disabilities and typically developing children. Families, Systems, & Health, 32(2), 241–246. https://doi.org/10.1037/fsh0000047.CrossRef

Saladaña, J. (2016). The coding manual for qualitative researchers. Sage.

Schreibman, L., O’Neill, R., & Koegel, R. (1983). Behavioral training for siblings of autistic children. Journal of Applied Behavior Analysis, 16(2), 129–138.CrossRefPubMedPubMedCentral

Seligman, M. P., & Csikszentmihalyi, M. (2000). Positive psychology: An introduction. American Psychologist, 55(1), 5–14. https://doi.org/10.1037/0003-066X.55.1.5.CrossRefPubMed

Shivers, C., Jackson, J., & McGregor, C. (2019). Functioning among typically developing siblings of individuals with autism spectrum disorder: A meta-analysis. Clinical child and family psychology review, 22(2), 172–196. https://doi.org/10.1007/s10567-018-0269-2.CrossRefPubMed

Walton, K., & Ingersoll, B. (2015). Psychosocial adjustment and sibling relationships in siblings of children with autism spectrum disorder: Risk and protective factors. Journal of Autism and Developmental Disorders, 45(9), 2764–2778. https://doi.org/10.1007/s10803-015-2440-7.CrossRefPubMed

Ward, B., Tanner, B., Mandleco, B., Dyches, T., & Freeborn, D. (2016). Sibling experiences: Living with young persons with autism spectrum disorders. Pediatric Nursing, 42(2), 69–76.PubMed

Titel: Mothers’ Perceptions of the Sibling Relationship When One Child has Autism Spectrum Disorder
Auteurs: Jesseca Perlman
Nina Howe
Publicatiedatum: 29-11-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Child and Family Studies / Uitgave 3/2023
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI: https://doi.org/10.1007/s10826-022-02495-8

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 3/2023

Supportive Emotion Socialization Mitigates Risk Between Maternal Emotion Regulation Difficulties and Preschooler Emotion Regulation

Relationship between Parent-Child Relationships and Peer Victimization: A Moderated Mediation Model of Self-esteem and Resilience

Mothers’ Attachment Style Predicts Response to Child Distress: The Role of Maternal Emotions and Attributions

Parenting Practices and Rural Chinese Children’s Self-control and Problem Behaviors: A Comparison of Left-behind and Non-left-behind Children

Maternal Education and Children’s School Achievement: The Roles of Values, Parenting, and Behavior Regulation

Associations Between Parenting Behavior and Positive and Negative Affect in Elementary Age Children