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17-11-2018

Implementing patient-reported outcome measures in clinical practice: a companion guide to the ISOQOL user’s guide

Auteurs: Eric K. H. Chan, Todd C. Edwards, Kirstie Haywood, Sean P. Mikles, Louise Newton

Gepubliceerd in: Quality of Life Research | Uitgave 3/2019

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Abstract

Purpose

The use of patient-reported outcome (PRO) measures in clinical practice is increasing. Following the creation of a ‘User’s Guide to Implementing PRO Assessment in Clinical Practice’ by the International Society for Quality of Life Research (ISOQOL), volunteers from ISOQOL sought to create a Companion Guide to assist health care providers with the scientific and practical considerations involved in implementing and using PRO measures in clinical care by using information from real-world case studies. This paper summarizes the key issues presented in the Companion Guide.

Methods

Ten respondents, who were members of the ISOQOL’s CP-SIG and worked in various clinical areas, participated in a survey or telephone interview. Participants were from Canada (n = 2), Denmark (n = 1), England (n = 2), Holland (n = 1), and the United States (n = 4).

Results

Based on the information provided by respondents, a Companion Guide was produced, organized according to the nine questions presented in the User’s Guide. An additional section for key take-home messages was also provided. This guide provides examples of issues and considerations related to the implementation of PRO measures in clinical practice.

Conclusions

Respondents provided insight into their experiences and emphasized that PRO initiatives were likely to be more successful if there is purposeful, designed integration into clinical practice, meaningful substantive engagement with all stakeholders and access to necessary organizational resources. The ability to leverage existing technology as well as realistic and stakeholder consensus-driven expectations for planning and timing were also key to the successful implementation of PRO measures.
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Metagegevens
Titel
Implementing patient-reported outcome measures in clinical practice: a companion guide to the ISOQOL user’s guide
Auteurs
Eric K. H. Chan
Todd C. Edwards
Kirstie Haywood
Sean P. Mikles
Louise Newton
Publicatiedatum
17-11-2018
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 3/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-018-2048-4