Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften Toetsvragen Web-tv Video Audio
Tips voor Mijn BSL
Inloggen
Top
Quality of Life Research
Gepubliceerd in:

11-07-2015 | Brief Communication

How does the EQ-5D perform when measuring quality of life in dementia against two other dementia-specific outcome measures?

Auteurs: Elisa Aguirre, Sujin Kang, Zoe Hoare, Rhiannon Tudor Edwards, Martin Orrell

Gepubliceerd in: Quality of Life Research | Uitgave 1/2016

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

Purpose

This study aimed to assess and compare the psychometric performance of the EQ-5D in relation to other dementia-specific measures, the QoL-AD and DEMQoL, within a psychosocial intervention study.

Methods

Two hundred and seventy-two people with dementia completed the EQ-5D, DEMQoL and QoL-AD. Convergent and discriminant validity of the measures were assessed, and inter-rater reliability was tested by comparing the self-reported and proxy scores of the measures. Internal consistency was tested using Cronbach’s alpha.

Results

Results satisfy convergent validity amongst the three outcome measures. EQ-5D, DEMQoL and QoL-AD total scores were shown to be significantly correlated with each other (p < 0.001) in both participants with dementia and proxy reports. Results also satisfied discriminant validity for participant EQ-5D, DEMQoL and QoL-AD total scores. In relation to reliability between self and proxy scores, the EQ-5D showed higher reliability scores between participant and proxy total scores for mild and moderate level of cognitive impairment and performed better than the dementia-specific measures. Reliability assessed through Cronbach’s alpha was satisfactory, indicating adequate internal consistency of all three measures.

Conclusions

The results suggest that the EQ-5D might have advantages over other dementia-specific measures, and it could be used routinely and as a stand-alone measure of quality of life in dementia research.
vorige artikel How dead is dead? Qualitative findings from participants of combined traditional and lead-time time trade-off valuations
volgende artikel Evaluating quality of life outcomes following joint replacement: psychometric evaluation of a short form of the WHOQOL-Bref
Literatuur
1.
Woods, R. T., Bruce, E., Edwards, R. T., Hounsome, B., Keady, J., Moniz-Cook, E. D., et al. (2009). Reminiscence groups for people with dementia and their family carers: Pragmatic eight-centre randomised trial of joint reminiscence and maintenance versus usual treatment: A protocol. Trials, 10(1), 64.PubMedPubMedCentralCrossRef
2.
Aguirre, E., Spector, A., Hoe, J., Russell, I. T., Knapp, M., Woods, R. T., & Orrell, M. (2010). Maintenance cognitive stimulation therapy (CST) for dementia: A single-blind, multi-centre, randomized controlled trial of maintenance CST vs. CST for dementia. Trials, 11(1), 46.PubMedPubMedCentralCrossRef
3.
Charlesworth, G., Burnell, K., Beecham, J., Hoare, Z., Hoe, J., Wenborn, J., et al. (2011). Peer support for family carers of people with dementia, alone or in combination with group reminiscence in a factorial design: Study protocol for a randomised controlled trial. Trials, 12(205). doi:10.​1186/​1745-6215-12-205.
4.
Orrell, M., Yates, L. A., Burns, A., Russell, I., Woods, R. T., Hoare, Z., et al. (2012). Individual cognitive stimulation therapy for dementia (iCST): Study protocol for a randomized controlled trial. Trials, 13(1), 172.PubMedPubMedCentralCrossRef
5.
Ettema, T. P., Dröes, R. M., Lange, J. D., Mellenbergh, G. J., & Ribbe, M. W. (2005). A review of quality of life instruments used in dementia. Quality of Life Research, 14(3), 675–686.PubMedCrossRef
6.
Ettema, T. P., Dröes, R. M., de Lange, J., Ooms, M. E., Mellenbergh, G. J., & Ribbe, M. W. (2005). The concept of quality of life in dementia in the different stages of the disease. International Psychogeriatrics, 17(03), 353–370.PubMedCrossRef
7.
Ready, R. E., Ott, B. R., & Grace, J. (2004). Patient versus informant perspectives of quality of life in mild cognitive impairment and Alzheimer’s disease. International Journal of Geriatric Psychiatry, 19(3), 256–265.PubMedCrossRef
8.
Moniz-Cook, E., Vernooij-Dassen, M., Woods, R., et al. (2008). A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging and Mental Health, 12, 14–25.PubMedCrossRef
9.
Sullivan, P. W., Slejko, J. F., Sculpher, M. J., & Ghushchyan, V. (2011). Catalogue of EQ-5D scores for the United Kingdom. Medical Decision Making, 31(6), 800–804.PubMedCrossRef
10.
The EuroQol Group. (1990). EuroQol—a new facility for the measurement of health related quality of life. Health Policy, 16, 199–208.
11.
Kunz, S. (2010). Psychometric properties of the EQ-5D in a study of people with mild to moderate dementia. Quality of Life Research, 19(3), 425–434.PubMedCrossRef
12.
Aggarwal, R., Wilke, C. T., Pickard, A. S., Vats, V., Mikolaitis, R., Fogg, L., et al. (2009). Psychometric properties of the EuroQol-5D and Short Form-6D in patients with systemic lupus erythematosus. Journal of Rheumatology, 36(6), 1209–1216.PubMedCrossRef
13.
Öster, C., Willebrand, M., Dyster-Aas, J., Kildal, M., & Ekselius, L. (2005). Validation of the EQ-5D questionnaire in burn injured adults. Burns, 35(5), 723–732.CrossRef
14.
Zhao, F. L., Yue, M., Yang, H., Wang, T., Wu, J. H., & Li, S. C. (2010). Validation and comparison of EuroQol and short form 6D in chronic prostatitis patients. Value in Health, 13(5), 649–656.PubMedCrossRef
15.
Diaz-Redondo, A., Rodriguez-Blazquez, C., Ayala, A., Martinez-Martin, P., & Forjaz, M. J. (2014). EQ-5D rated by proxy in institutionalized older adults with dementia: Psychometric pros and cons. Geriatrics & Gerontology International, 14(2), 346–353.CrossRef
16.
Hounsome, N., Orrell, M., & Tudor Edwards, R. (2011). EQ-5D as a quality of life measure in people with dementia and their carers: Evidence and key issues. Value in Health, 14(2), 390–399.PubMedCrossRef
17.
Ankri, J., Beaufils, B., Novella, J. L., Morrone, I., Guillemin, F., Jolly, D., et al. (2003). Use of the EQ-5D among patients suffering from dementia. Journal of Clinical Epidemiology, 56(11), 1055–1063.PubMedCrossRef
18.
Logsdon, R. G., Gibbons, L. E., McCurry, S. M., & Teri, L. (1999). Quality of life in Alzheimer’s disease: Patient and caregiver reports. Journal of Mental Health and Aging, 64(3), 510–519.
19.
Spector, A., Thorgrimsen, L., Woods, B. O. B., Royan, L., Davies, S., Butterworth, M., & Orrell, M. (2003). Efficacy of an evidence-based cognitive stimulation therapy programme for people with dementia Randomised controlled trial. British Journal of Psychiatry, 183(3), 248–254.PubMedCrossRef
20.
Orrell, M., Aguirre, E., Spector, A., Hoare, Z., Streater, A., Woods, B., et al. (2014). Maintenance cognitive stimulation therapy (CST) for dementia: A single-blind, multi-centre, randomized controlled trial of maintenance CST vs. CST for dementia. BMJ, 204(6), 454–461.
21.
Hoe, J., Hancock, G., Livingston, G., & Orrell, M. (2006). Quality of life of people with dementia in residential care homes. British Journal of Psychiatry, 188(5), 460–464.PubMedCrossRef
22.
Thorgrimsen, L., Selwood, A., Spector, A., et al. (2003). Whose quality of life is it anyway? The validity and reliability of the quality of life-Alzheimer’s disease (QoL-AD) scale. Alzheimer Disease and Associated Disorders, 17, 201–208.PubMedCrossRef
23.
Smith, S. C., Lamping, D. L., Banerjee, S., Harwood, R., Foley, B., Smith, P., et al. (2005). Measurement of health-related quality of life for people with dementia: Development of a new instrument (DEMQoL) and an evaluation of current methodology. Health Technology, (Winchester, England), 9(10), 1–93.
24.
Mulhern, B., Rowen, D., Brazier, J., Smith, S., Romeo, R., Tait, R., et al. (2013). Development of DEMQOL-U and DEMQOL-Proxy-U: Generation of preference-based indices from DEMQOL and DEMQOL-Proxy for use in economic evaluation. Health Technology Assessment, 17, 1–160.CrossRef
25.
American Psychiatric Association, & American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (DSM) (pp. 143–147). Washington, DC: American psychiatric association.
26.
Hughes, C. P., Berg, L., Danziger, W. L., Coben, L. A., & Martin, R. L. (1982). A new clinical scale for the staging of dementia. British Journal of Psychiatry, 140(6), 566–572.PubMedCrossRef
27.
Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). ‘Mini Mental State’: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198.PubMedCrossRef
28.
Tombaugh, T. N., & McIntyre, N. J. (1992). The mini-mental state examination: A comprehensive review. Journal of the American Geriatrics Society, 40(9), 922–935.PubMedCrossRef
29.
Cohen, J. (1988). Statistical power analysis for the behavioural sciences (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum Publishers.
30.
Nunnally, J. C., & Bernstein, I. H. (1994). Psychometric theory (3rd ed.). New York, NY: McCraw-Hill.
31.
Ratcliffe, J., Laver, K., Couzner, L., Cameron, I. D., Gray, L., & Crotty, M. (2010). Not just about costs: The role of health economics in facilitating decision making in aged care. Age and Ageing, 39(4), 426–429.PubMedCrossRef
32.
Bryan, S., Hardyman, W., Bentham, P., Buckley, A., & Laight, A. (2005). Proxy completion of EQ-5D in patients with dementia. Quality of Life Research, 14(1), 107–118.PubMedCrossRef
33.
Sheehan, B. D., Lall, R., Stinton, C., Mitchell, K., Gage, H., Holland, C., & Katz, J. (2012). Patient and proxy measurement of quality of life among general hospital in-patients with dementia. Aging & Mental Health, 16(5), 603–607.CrossRef
34.
Coucill, W., Bryan, S., Bentham, P., Buckley, A., & Laight, A. (2001). EQ-5D in patients with dementia an investigation of inter-rater agreement. Medical Care, 39(8), 760–771.PubMedCrossRef
35.
Reamy, A. M., Kim, K., Zarit, S. H., & Whitlatch, C. J. (2011). Understanding discrepancy in perceptions of values: Individuals with mild to moderate dementia and their family caregivers. The Gerontologist, 51(4), 473–483.PubMedPubMedCentralCrossRef
36.
Bullinger, M., Anderson, R., Cella, D., & Aaronson, N. (1993). Developing and evaluating cross-cultural instruments from minimum requirements to optimal models. Quality of Life Research, 2(6), 451–459.PubMedCrossRef
37.
38.
Streiner, D. (2003). Starting at the beginning: An introduction to coefficient alpha and internal consistency. Journal of Personality Assessment, 80, 99–103.PubMedCrossRef
39.
Ready, R. E. (2011). Measuring quality of life in dementia. Quality of Life Measurement in Neurodegenerative and Related Conditions, 8, 82–94.CrossRef
Metagegevens
Titel
How does the EQ-5D perform when measuring quality of life in dementia against two other dementia-specific outcome measures?
Auteurs
Elisa Aguirre
Sujin Kang
Zoe Hoare
Rhiannon Tudor Edwards
Martin Orrell
Publicatiedatum
11-07-2015
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 1/2016
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-1065-9

Andere artikelen Uitgave 1/2016

The joint subclinical elevation of CRP and IL-6 is associated with lower health-related quality of life in comparison with no elevation or elevation of only one of the biomarkers

  • Open Access

Validation of the Italian version of the Oxford Ankle Foot Questionnaire for children

  • Brief Communication

The impact of comorbid chronic conditions on quality of life in type 2 diabetes patients

  • Open Access

Development and validation of a carers quality-of-life questionnaire for parkinsonism (PQoL Carers)

Pretreatment quality of life as a prognostic factor for early survival and functional outcomes in patients with head and neck cancer

Relevance of community structures and neighbourhood characteristics for participation of older adults: a qualitative study