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11-07-2015 | Brief Communication | Uitgave 1/2016

How does the EQ-5D perform when measuring quality of life in dementia against two other dementia-specific outcome measures?

Tijdschrift:: Quality of Life Research > Uitgave 1/2016

Auteurs:: Elisa Aguirre, Sujin Kang, Zoe Hoare, Rhiannon Tudor Edwards, Martin Orrell

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Abstract

Purpose

This study aimed to assess and compare the psychometric performance of the EQ-5D in relation to other dementia-specific measures, the QoL-AD and DEMQoL, within a psychosocial intervention study.

Methods

Two hundred and seventy-two people with dementia completed the EQ-5D, DEMQoL and QoL-AD. Convergent and discriminant validity of the measures were assessed, and inter-rater reliability was tested by comparing the self-reported and proxy scores of the measures. Internal consistency was tested using Cronbach’s alpha.

Results

Results satisfy convergent validity amongst the three outcome measures. EQ-5D, DEMQoL and QoL-AD total scores were shown to be significantly correlated with each other (p < 0.001) in both participants with dementia and proxy reports. Results also satisfied discriminant validity for participant EQ-5D, DEMQoL and QoL-AD total scores. In relation to reliability between self and proxy scores, the EQ-5D showed higher reliability scores between participant and proxy total scores for mild and moderate level of cognitive impairment and performed better than the dementia-specific measures. Reliability assessed through Cronbach’s alpha was satisfactory, indicating adequate internal consistency of all three measures.

Conclusions

The results suggest that the EQ-5D might have advantages over other dementia-specific measures, and it could be used routinely and as a stand-alone measure of quality of life in dementia research.

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Meer informatie

Woods, R. T., Bruce, E., Edwards, R. T., Hounsome, B., Keady, J., Moniz-Cook, E. D., et al. (2009). Reminiscence groups for people with dementia and their family carers: Pragmatic eight-centre randomised trial of joint reminiscence and maintenance versus usual treatment: A protocol. Trials, 10(1), 64. PubMedPubMedCentralCrossRef

Aguirre, E., Spector, A., Hoe, J., Russell, I. T., Knapp, M., Woods, R. T., & Orrell, M. (2010). Maintenance cognitive stimulation therapy (CST) for dementia: A single-blind, multi-centre, randomized controlled trial of maintenance CST vs. CST for dementia. Trials, 11(1), 46. PubMedPubMedCentralCrossRef

Charlesworth, G., Burnell, K., Beecham, J., Hoare, Z., Hoe, J., Wenborn, J., et al. (2011). Peer support for family carers of people with dementia, alone or in combination with group reminiscence in a factorial design: Study protocol for a randomised controlled trial. Trials, 12(205). doi: 10.1186/1745-6215-12-205.

Orrell, M., Yates, L. A., Burns, A., Russell, I., Woods, R. T., Hoare, Z., et al. (2012). Individual cognitive stimulation therapy for dementia (iCST): Study protocol for a randomized controlled trial. Trials, 13(1), 172. PubMedPubMedCentralCrossRef

Ettema, T. P., Dröes, R. M., Lange, J. D., Mellenbergh, G. J., & Ribbe, M. W. (2005). A review of quality of life instruments used in dementia. Quality of Life Research, 14(3), 675–686. PubMedCrossRef

Ettema, T. P., Dröes, R. M., de Lange, J., Ooms, M. E., Mellenbergh, G. J., & Ribbe, M. W. (2005). The concept of quality of life in dementia in the different stages of the disease. International Psychogeriatrics, 17(03), 353–370. PubMedCrossRef

Ready, R. E., Ott, B. R., & Grace, J. (2004). Patient versus informant perspectives of quality of life in mild cognitive impairment and Alzheimer’s disease. International Journal of Geriatric Psychiatry, 19(3), 256–265. PubMedCrossRef

Moniz-Cook, E., Vernooij-Dassen, M., Woods, R., et al. (2008). A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging and Mental Health, 12, 14–25. PubMedCrossRef

Sullivan, P. W., Slejko, J. F., Sculpher, M. J., & Ghushchyan, V. (2011). Catalogue of EQ-5D scores for the United Kingdom. Medical Decision Making, 31(6), 800–804. PubMedCrossRef

10.

The EuroQol Group. (1990). EuroQol—a new facility for the measurement of health related quality of life. Health Policy, 16, 199–208.

11.

Kunz, S. (2010). Psychometric properties of the EQ-5D in a study of people with mild to moderate dementia. Quality of Life Research, 19(3), 425–434. PubMedCrossRef

12.

Aggarwal, R., Wilke, C. T., Pickard, A. S., Vats, V., Mikolaitis, R., Fogg, L., et al. (2009). Psychometric properties of the EuroQol-5D and Short Form-6D in patients with systemic lupus erythematosus. Journal of Rheumatology, 36(6), 1209–1216. PubMedCrossRef

13.

Öster, C., Willebrand, M., Dyster-Aas, J., Kildal, M., & Ekselius, L. (2005). Validation of the EQ-5D questionnaire in burn injured adults. Burns, 35(5), 723–732. CrossRef

14.

Zhao, F. L., Yue, M., Yang, H., Wang, T., Wu, J. H., & Li, S. C. (2010). Validation and comparison of EuroQol and short form 6D in chronic prostatitis patients. Value in Health, 13(5), 649–656. PubMedCrossRef

15.

Diaz-Redondo, A., Rodriguez-Blazquez, C., Ayala, A., Martinez-Martin, P., & Forjaz, M. J. (2014). EQ-5D rated by proxy in institutionalized older adults with dementia: Psychometric pros and cons. Geriatrics & Gerontology International, 14(2), 346–353. CrossRef

16.

Hounsome, N., Orrell, M., & Tudor Edwards, R. (2011). EQ-5D as a quality of life measure in people with dementia and their carers: Evidence and key issues. Value in Health, 14(2), 390–399. PubMedCrossRef

17.

Ankri, J., Beaufils, B., Novella, J. L., Morrone, I., Guillemin, F., Jolly, D., et al. (2003). Use of the EQ-5D among patients suffering from dementia. Journal of Clinical Epidemiology, 56(11), 1055–1063. PubMedCrossRef

18.

Logsdon, R. G., Gibbons, L. E., McCurry, S. M., & Teri, L. (1999). Quality of life in Alzheimer’s disease: Patient and caregiver reports. Journal of Mental Health and Aging, 64(3), 510–519.

19.

Spector, A., Thorgrimsen, L., Woods, B. O. B., Royan, L., Davies, S., Butterworth, M., & Orrell, M. (2003). Efficacy of an evidence-based cognitive stimulation therapy programme for people with dementia Randomised controlled trial. British Journal of Psychiatry, 183(3), 248–254. PubMedCrossRef

20.

Orrell, M., Aguirre, E., Spector, A., Hoare, Z., Streater, A., Woods, B., et al. (2014). Maintenance cognitive stimulation therapy (CST) for dementia: A single-blind, multi-centre, randomized controlled trial of maintenance CST vs. CST for dementia. BMJ, 204(6), 454–461.

21.

Hoe, J., Hancock, G., Livingston, G., & Orrell, M. (2006). Quality of life of people with dementia in residential care homes. British Journal of Psychiatry, 188(5), 460–464. PubMedCrossRef

22.

Thorgrimsen, L., Selwood, A., Spector, A., et al. (2003). Whose quality of life is it anyway? The validity and reliability of the quality of life-Alzheimer’s disease (QoL-AD) scale. Alzheimer Disease and Associated Disorders, 17, 201–208. PubMedCrossRef

23.

Smith, S. C., Lamping, D. L., Banerjee, S., Harwood, R., Foley, B., Smith, P., et al. (2005). Measurement of health-related quality of life for people with dementia: Development of a new instrument (DEMQoL) and an evaluation of current methodology. Health Technology, (Winchester, England), 9(10), 1–93.

24.

Mulhern, B., Rowen, D., Brazier, J., Smith, S., Romeo, R., Tait, R., et al. (2013). Development of DEMQOL-U and DEMQOL-Proxy-U: Generation of preference-based indices from DEMQOL and DEMQOL-Proxy for use in economic evaluation. Health Technology Assessment, 17, 1–160. CrossRef

25.

American Psychiatric Association, & American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (DSM) (pp. 143–147). Washington, DC: American psychiatric association.

26.

Hughes, C. P., Berg, L., Danziger, W. L., Coben, L. A., & Martin, R. L. (1982). A new clinical scale for the staging of dementia. British Journal of Psychiatry, 140(6), 566–572. PubMedCrossRef

27.

Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). ‘Mini Mental State’: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198. PubMedCrossRef

28.

Tombaugh, T. N., & McIntyre, N. J. (1992). The mini-mental state examination: A comprehensive review. Journal of the American Geriatrics Society, 40(9), 922–935. PubMedCrossRef

29.

Cohen, J. (1988). Statistical power analysis for the behavioural sciences (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum Publishers.

30.

Nunnally, J. C., & Bernstein, I. H. (1994). Psychometric theory (3rd ed.). New York, NY: McCraw-Hill.

31.

Ratcliffe, J., Laver, K., Couzner, L., Cameron, I. D., Gray, L., & Crotty, M. (2010). Not just about costs: The role of health economics in facilitating decision making in aged care. Age and Ageing, 39(4), 426–429. PubMedCrossRef

32.

Bryan, S., Hardyman, W., Bentham, P., Buckley, A., & Laight, A. (2005). Proxy completion of EQ-5D in patients with dementia. Quality of Life Research, 14(1), 107–118. PubMedCrossRef

33.

Sheehan, B. D., Lall, R., Stinton, C., Mitchell, K., Gage, H., Holland, C., & Katz, J. (2012). Patient and proxy measurement of quality of life among general hospital in-patients with dementia. Aging & Mental Health, 16(5), 603–607. CrossRef

34.

Coucill, W., Bryan, S., Bentham, P., Buckley, A., & Laight, A. (2001). EQ-5D in patients with dementia an investigation of inter-rater agreement. Medical Care, 39(8), 760–771. PubMedCrossRef

35.

Reamy, A. M., Kim, K., Zarit, S. H., & Whitlatch, C. J. (2011). Understanding discrepancy in perceptions of values: Individuals with mild to moderate dementia and their family caregivers. The Gerontologist, 51(4), 473–483. PubMedPubMedCentralCrossRef

36.

Bullinger, M., Anderson, R., Cella, D., & Aaronson, N. (1993). Developing and evaluating cross-cultural instruments from minimum requirements to optimal models. Quality of Life Research, 2(6), 451–459. PubMedCrossRef

37.

Tavakol, M., & Dennick, R. (2011). Making sense of Cronbach’s alpha. International Journal of Medical Education, 2, 53–55. PubMedCentralCrossRef

38.

Streiner, D. (2003). Starting at the beginning: An introduction to coefficient alpha and internal consistency. Journal of Personality Assessment, 80, 99–103. PubMedCrossRef

39.

Ready, R. E. (2011). Measuring quality of life in dementia. Quality of Life Measurement in Neurodegenerative and Related Conditions, 8, 82–94. CrossRef

Titel: How does the EQ-5D perform when measuring quality of life in dementia against two other dementia-specific outcome measures?
Auteurs:: Elisa Aguirre
Sujin Kang
Zoe Hoare
Rhiannon Tudor Edwards
Martin Orrell
Publicatiedatum: 11-07-2015
DOI: https://doi.org/10.1007/s11136-015-1065-9
Uitgeverij: Springer International Publishing
Tijdschrift: Quality of Life Research An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - Official Journal of the International Society of Quality of Life Research
Uitgave 1/2016
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649

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Abstract

Purpose

Methods

Results

Conclusions

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