Skip to main content
Top
Gepubliceerd in:

28-07-2015

How dead is dead? Qualitative findings from participants of combined traditional and lead-time time trade-off valuations

Auteurs: Fatima Al Sayah, Ana Mladenovic, Kathryn Gaebel, Feng Xie, Jeffrey A. Johnson

Gepubliceerd in: Quality of Life Research | Uitgave 1/2016

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

The EuroQol Valuation Technology (EQ-VT) uses traditional time trade-off (tTTO) for health states better than dead and lead-time TTO (LT-TTO) for states worse than dead to elicit a value (−1.0 to +1.0) for each health state. In the Canadian EQ-5D-5L Valuation study which used the EQVT platform, we observed an unexpected peak in frequency of “0” values and few negative values, particularly in the range of 0 to −0.5. To better understand this finding, we sought to explore respondents’ thought processes while valuing a health state, and their understanding of the tTTO and LT-TTO exercises.

Methods

Qualitative semi-structured interviews were conducted with EQVT task respondents. Questions focused on valuations of health states as: (a) Same as dead in tTTO, (b) Worse than dead in tTTO but changed to same as dead in LT-TTO, (c) Worse than dead in LT-TTO, and (d) Worse than dead in LT-TTO with trading off all 10 years. Data were analyzed using content and thematic analysis.

Results

Mean age of participants (N = 70) was 40 ± 18.1 years, 60 % female, and 76 % Caucasian. Participants provided similar reasons for valuing a health state same as or worse than dead. Many participants expressed confusion about worse than dead valuations, distinction between same as and worse than dead, and the transition from tTTO to LT-TTO. A few indicated that the addition of 10 years of full health in the LT-TTO influenced their valuations.

Conclusions

The transition from tTTO to LT-TTO in the EQVT was confusing to participants, whereby some health state valuations around this transition appeared to be arbitrary.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
1.
go back to reference Torrance, G. W. (1986). Measurement of health state utilities for economic appraisal: A review. Journal of Health Economics, 5, 1–30.PubMedCrossRef Torrance, G. W. (1986). Measurement of health state utilities for economic appraisal: A review. Journal of Health Economics, 5, 1–30.PubMedCrossRef
2.
go back to reference Devlin, N. J., Tsuchiya, A., Buckingham, K., & Tilling, C. (2011). A uniform time trade off method for states better and worse than dead: Feasibility study of the ‘lead time’ approach. Health Economics, 20(3), 348–361.PubMedCrossRef Devlin, N. J., Tsuchiya, A., Buckingham, K., & Tilling, C. (2011). A uniform time trade off method for states better and worse than dead: Feasibility study of the ‘lead time’ approach. Health Economics, 20(3), 348–361.PubMedCrossRef
3.
go back to reference Attema, A. E., Versteegh, M. M., Oppe, M., Brouwer, W. B., & Stolk, E. A. (2013). Lead time TTO: Leading to better health state valuations? Health Economics, 22(4), 376–392.PubMedCrossRef Attema, A. E., Versteegh, M. M., Oppe, M., Brouwer, W. B., & Stolk, E. A. (2013). Lead time TTO: Leading to better health state valuations? Health Economics, 22(4), 376–392.PubMedCrossRef
4.
go back to reference Augustovski, F., Rey-Ares, L., Irazola, V., Oppe, M., & Devlin, N. J. (2013). Lead versus lag-time trade-off variants: Does it make any difference? The European Journal of Health Economics, 14(Suppl 1), S25–S31.PubMedCrossRef Augustovski, F., Rey-Ares, L., Irazola, V., Oppe, M., & Devlin, N. J. (2013). Lead versus lag-time trade-off variants: Does it make any difference? The European Journal of Health Economics, 14(Suppl 1), S25–S31.PubMedCrossRef
5.
go back to reference Tilling, C., Devlin, N., Tsuchiya, A., & Buckingham, K. (2010). Protocols for time tradeoff valuations of health states worse than dead: A literature review. Medical Decision Making, 30(5), 610–619.PubMedCrossRef Tilling, C., Devlin, N., Tsuchiya, A., & Buckingham, K. (2010). Protocols for time tradeoff valuations of health states worse than dead: A literature review. Medical Decision Making, 30(5), 610–619.PubMedCrossRef
6.
go back to reference Xie, F., Pullenayegum, E., Gaebel, K., Bansback, N., Bryan, B., Ohinmaa, A., et al. A time trade-off-derived value set of EQ-5D-5L for Canada. Medical Care (in press). Xie, F., Pullenayegum, E., Gaebel, K., Bansback, N., Bryan, B., Ohinmaa, A., et al. A time trade-off-derived value set of EQ-5D-5L for Canada. Medical Care (in press).
7.
go back to reference Oppe, M., Devlin, N. J., van Hout, B., Krabbe, P. F. M., & de Charro, F. (2014). A programme of methodological research to arrive at the new international EQ-5D-5L valuation protocol. Value Health, 17(4), 445–453.PubMedCrossRef Oppe, M., Devlin, N. J., van Hout, B., Krabbe, P. F. M., & de Charro, F. (2014). A programme of methodological research to arrive at the new international EQ-5D-5L valuation protocol. Value Health, 17(4), 445–453.PubMedCrossRef
8.
go back to reference Dolan, P., & Roberts, J. (2002). To what extent can we explain time trade-off values from other information about respondents. Social Science and Medicine, 54, 919–929.PubMedCrossRef Dolan, P., & Roberts, J. (2002). To what extent can we explain time trade-off values from other information about respondents. Social Science and Medicine, 54, 919–929.PubMedCrossRef
9.
go back to reference San Miguel, F., Ryan, M., & Amaya-Amaya, M. (2005). ‘Irrational’ stated preferences: A quantitative and qualitative investigation. Health Economics, 14, 307–322.CrossRef San Miguel, F., Ryan, M., & Amaya-Amaya, M. (2005). ‘Irrational’ stated preferences: A quantitative and qualitative investigation. Health Economics, 14, 307–322.CrossRef
10.
go back to reference Mulhern, B., Tsuchiya, A., Brazier, J., & Rowen, D. (2012). How do respondents perceive health state valuation exercises? A ‘think aloud’ study investigating time trade off and discrete choice experiments. Paper for presentation at EuroQol Plenary 2012. Mulhern, B., Tsuchiya, A., Brazier, J., & Rowen, D. (2012). How do respondents perceive health state valuation exercises? A ‘think aloud’ study investigating time trade off and discrete choice experiments. Paper for presentation at EuroQol Plenary 2012.
11.
go back to reference Jansen, S. J., Stiggelbout, A. M., Wakker, P, P., Nooij, M. A., Noordijk, E. M., & Kievit, J. (2000). Unstable preferences: A shift in valuation or an effect of the elicitation procedure. Medical Decision Making, 20(1), 62–71. Jansen, S. J., Stiggelbout, A. M., Wakker, P, P., Nooij, M. A., Noordijk, E. M., & Kievit, J. (2000). Unstable preferences: A shift in valuation or an effect of the elicitation procedure. Medical Decision Making, 20(1), 62–71.
12.
go back to reference Macran, S., & Kind, P. (2001). “Death” and the valuation of health-related quality of life. Medical Care, 39(3), 217–227.PubMedCrossRef Macran, S., & Kind, P. (2001). “Death” and the valuation of health-related quality of life. Medical Care, 39(3), 217–227.PubMedCrossRef
13.
go back to reference Mulhern, B., Longworth, L., Brazier, J., Rowen, D., Bansback, N., Devlin, N., et al. (2013). Binary choice health state valuation and mode of administration: head-to-head comparison of online and CAPI. Value Health, 16(1), 104–113.PubMedPubMedCentralCrossRef Mulhern, B., Longworth, L., Brazier, J., Rowen, D., Bansback, N., Devlin, N., et al. (2013). Binary choice health state valuation and mode of administration: head-to-head comparison of online and CAPI. Value Health, 16(1), 104–113.PubMedPubMedCentralCrossRef
14.
go back to reference Edelaar-Peeters, Stiggelbout, A. M., & Van Den Hout, W. B. (2014). Qualitative and quantitative analysis of interviewer help answering the time tradeoff. Medical Decision Making, 34(5), 655–665. Edelaar-Peeters, Stiggelbout, A. M., & Van Den Hout, W. B. (2014). Qualitative and quantitative analysis of interviewer help answering the time tradeoff. Medical Decision Making, 34(5), 655–665.
15.
go back to reference Devlin, N. J., Hansen, P., & Selai, C. (2004). Understanding health state valuations: A qualitative analysis of respondents’ comments. Quality of Life Research, 13(7), 1265–1277.PubMedCrossRef Devlin, N. J., Hansen, P., & Selai, C. (2004). Understanding health state valuations: A qualitative analysis of respondents’ comments. Quality of Life Research, 13(7), 1265–1277.PubMedCrossRef
16.
go back to reference Stalmeier, P. F., Busschbach, J. J., Lamers, L. M., & Krabbe, P. F. (2005). The gap effect: Discontinuities of preferences around dead. Health Economics, 14(7), 679–685.PubMedCrossRef Stalmeier, P. F., Busschbach, J. J., Lamers, L. M., & Krabbe, P. F. (2005). The gap effect: Discontinuities of preferences around dead. Health Economics, 14(7), 679–685.PubMedCrossRef
17.
go back to reference Xie, F., Pullenayegum, E., Li, H., Al Sayah, F., Gaebel, K., Ohinmaa, A., et al. Too easy to be reliable? Test-retest reliability of the TTO and DCE tasks in the EuroQol Group Valuation Technology (under review). Xie, F., Pullenayegum, E., Li, H., Al Sayah, F., Gaebel, K., Ohinmaa, A., et al. Too easy to be reliable? Test-retest reliability of the TTO and DCE tasks in the EuroQol Group Valuation Technology (under review).
18.
go back to reference Herdman, M., Gudex, C., Lloyd, A., Janssen, M., Kind, P., Parkin, D., et al. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Quality of Life Research, 20(10), 1727–1736.PubMedPubMedCentralCrossRef Herdman, M., Gudex, C., Lloyd, A., Janssen, M., Kind, P., Parkin, D., et al. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Quality of Life Research, 20(10), 1727–1736.PubMedPubMedCentralCrossRef
19.
go back to reference Janssen, B. M., Oppe, M., Versteegh, M. M., & Stolk, E. A. (2013). Introducing the composite time trade-off: A test of feasibility and face validity. The European Journal of Health Economics, 14(Suppl 1), S5–S13. Janssen, B. M., Oppe, M., Versteegh, M. M., & Stolk, E. A. (2013). Introducing the composite time trade-off: A test of feasibility and face validity. The European Journal of Health Economics, 14(Suppl 1), S5–S13.
20.
go back to reference Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.PubMedCrossRef Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.PubMedCrossRef
21.
go back to reference Fereday, J., & Muir-Cochrane, E. (2005). Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development. International Journal of Qualitative Methods, 5(1), 81–92. Fereday, J., & Muir-Cochrane, E. (2005). Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development. International Journal of Qualitative Methods, 5(1), 81–92.
22.
go back to reference QSR International Pty Ltd. NVivo qualitative data analysis software. 10 ed2012. QSR International Pty Ltd. NVivo qualitative data analysis software. 10 ed2012.
23.
go back to reference Ryan, M., Watson, V., & Entwistle, V. (2009). Rationalising the ‘irrational’: A think aloud study of discrete choice experiment responses. Health Economics, 18(3), 321–336.PubMedCrossRef Ryan, M., Watson, V., & Entwistle, V. (2009). Rationalising the ‘irrational’: A think aloud study of discrete choice experiment responses. Health Economics, 18(3), 321–336.PubMedCrossRef
24.
go back to reference Luo, N., Li, M., Stolk, E. A., & Devlin, N. J. (2013). The effects of lead time and visual aids in TTO valuation: A study of the EQ-VT framework. The European Journal of Health Economics, 14(Suppl 1), S15–S24.PubMedCrossRef Luo, N., Li, M., Stolk, E. A., & Devlin, N. J. (2013). The effects of lead time and visual aids in TTO valuation: A study of the EQ-VT framework. The European Journal of Health Economics, 14(Suppl 1), S15–S24.PubMedCrossRef
Metagegevens
Titel
How dead is dead? Qualitative findings from participants of combined traditional and lead-time time trade-off valuations
Auteurs
Fatima Al Sayah
Ana Mladenovic
Kathryn Gaebel
Feng Xie
Jeffrey A. Johnson
Publicatiedatum
28-07-2015
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 1/2016
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-1073-9