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21-03-2018 | Uitgave 8/2018

Quality of Life Research 8/2018

Documenting an epidemic of suffering: low health-related quality of life among transgender youth

Tijdschrift:
Quality of Life Research > Uitgave 8/2018
Auteurs:
Yuanshu Zou, Rhonda Szczesniak, Alexis Teeters, Lee Ann E. Conard, Daniel H. Grossoehme
Belangrijke opmerkingen

Electronic supplementary material

The online version of this article (https://​doi.​org/​10.​1007/​s11136-018-1839-y) contains supplementary material, which is available to authorized users.

Abstract

Purpose

To quantify HRQOL of TGN patients using the PedsQL 4.0 generic core scales, and to compare reported HRQOL of TGN adolescents with published data from comparison populations.

Methods

Transgender children and adolescents (N = 142; 68% natal females) ages 6–23 years (M = 15.9, SD = 3.7) attending an outpatient clinic for TGN care at an academic pediatric hospital and caregivers of children and adolescents (N = 95) completed the PedsQL 4.0 generic core scales. Scores were compared with published scores for healthy adolescents and adolescents with 10 chronic diseases.

Results

TGN youth reported significantly lower overall HRQOL (more than twice the clinically meaningful difference) compared to youth without chronic disease. Total self-reported TGN HRQOL (M(SD), 65.72(17.40)) was lower than all chronic disease comparison groups except for rheumatology and cerebral palsy. TGN youth reported physical functioning (M(SD), 75.33(22.87)) lower than or similar to chronically ill comparisons, but higher than rheumatology and cerebral palsy groups. Psychosocial functioning (M(SD), 59.87(17.83)) was lower than all comparison samples and similar to youth with cerebral palsy. Results were similar for parent proxy-reports of TGN youth HRQOL (LS means: 68.75; 95% CI 65.87–71.61 vs 66.16; 95% CI 62.87–69.45; p = 0.12).

Conclusions

TGN youth reported low HRQOL across all domains; most were significantly lower than healthy peers or peers with chronic diseases. Clinicians should understand the magnitude of TGN youth’s low HRQOL and offer them and their caregivers resources to maximize their ability to achieve their full potential for healthy and productive lives.

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Extra materiaal
Supplementary material 1 (XLSX 31 KB)
11136_2018_1839_MOESM1_ESM.xlsx
Supplementary material 2 (DOCX 41 KB)
11136_2018_1839_MOESM2_ESM.docx
Literatuur
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