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01-08-2015 | Original Paper | Uitgave 8/2015

Journal of Autism and Developmental Disorders 8/2015

Cultural Adaptation and Translation of Outreach Materials on Autism Spectrum Disorder

Tijdschrift:
Journal of Autism and Developmental Disorders > Uitgave 8/2015
Auteurs:
Roy R. Grinker, Christina D. Kang-Yi, Chloe Ahmann, Rinad S. Beidas, Adrienne Lagman, David S. Mandell
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Electronic supplementary material

The online version of this article (doi:10.​1007/​s10803-015-2397-6) contains supplementary material, which is available to authorized users.
Previous communication with Dr. Volkmar about two reviewers unlikely to offer unbiased evaluations.

Abstract

In order to connect with families and influence treatment trajectories, outreach materials should address cultural perceptions of the condition, its causes, and post-diagnostic care. This paper describes the cultural adaptation and translation of the Autism Speaks First 100 Days Kit into Korean for the purpose of improving autism spectrum disorder (ASD) diagnosis, assessment, and interventions. The goal of this study is to describe a methodology for future cross-cultural adaptations and translations of outreach materials on ASD, using the Autism Speaks First 100 Days Kit as an exemplar. The research involved two stages of qualitative interviews: unstructured individual and group interviews with 19 Korean child health and education professionals in Queens, NY, followed by structured cultural consensus modeling interviews with 23 Korean mothers, with and without children with ASD, in Queens, NY and the greater Washington, DC area. We conclude that a systematic approach to cultural translation of outreach materials is feasible. Cultural consensus modeling yielded information about numerous barriers to care, had a demonstrable effect on the translation of the kit, and was efficient when employed with coherent segments of a relatively homogeneous population and focused on a single condition.

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Extra materiaal
Supplementary material 1 (DOC 69 kb)
10803_2015_2397_MOESM1_ESM.doc
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