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Gepubliceerd in: Quality of Life Research 3/2013

01-04-2013 | Brief Communication

Cross-cultural adaptation, reliability, and validity of the Turkish version of PedsQL 3.0 Arthritis Module: a quality-of-life measure for patients with juvenile idiopathic arthritis in Turkey

Gepubliceerd in: Quality of Life Research | Uitgave 3/2013

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Abstract

Purpose

The aim of this study was to describe the cultural adaptation, validity, and reliability of a Turkish version of the pediatric quality-of-life inventory (PedsQL) 3.0 Arthritis Module in a population with juvenile idiopathic arthritis (JIA).

Methods

A total of 169 patients with JIA and their parents were enrolled in the study. The Turkish version of the childhood health assessment questionnaire (CHAQ) was used to evaluate the validity of related domains in the PedsQL 3.0 Arthritis Module. Both the PedsQL 3.0 Arthritis Module and CHAQ were filled out by children over 8 years of age and by the parents of children 2–7 years of age.

Results

Internal reliability was poor to excellent (Cronbach’s alpha coefficients 0.56–0.84 for self-reporting and 0.63–0.82 for parent reporting), and interobserver reliability varied from good to excellent (intraclass correlation coefficient (ICC) 0.79–0.91 for self-reporting and 0.80–0.88 for parent reporting) for the total scores of the PedsQL 3.0 Arthritis Module. Parent–child concordance for all scores was moderate to excellent (ICC 0.42–0.92). The PedsQL 3.0 Arthritis Module and CHAQ were highly positively correlated, with coefficients from 0.21 to 0.76, indicating concurrent validity.

Conclusions

We demonstrated the reliability and validity of quality-of-life measurement using the Turkish version of the PedsQL 3.0 Arthritis Module in our sociocultural context. The PedsQL 3.0 Arthritis Module can be utilized as a tool for the evaluation of quality of life in patients with JIA aged 2–18 years.
Literatuur
2.
go back to reference Weiss, J. E., & Ilowite, N. T. (2005). Juvenile idiopathic arthritis. Pediatric Clinics of North America, 52, 413–442.PubMedCrossRef Weiss, J. E., & Ilowite, N. T. (2005). Juvenile idiopathic arthritis. Pediatric Clinics of North America, 52, 413–442.PubMedCrossRef
3.
go back to reference Campbell, S. K., Palisano, R. J., & Vander Linden, D. W. (2006). Physical therapy for children (3rd ed.). Philadelphia: WB Saunders. Campbell, S. K., Palisano, R. J., & Vander Linden, D. W. (2006). Physical therapy for children (3rd ed.). Philadelphia: WB Saunders.
4.
go back to reference Fayers, P. M., & Machin, D. (2007). Quality of life: Assessment, analysis, and interpretation of patient-reported outcomes. England: Wiley. Fayers, P. M., & Machin, D. (2007). Quality of life: Assessment, analysis, and interpretation of patient-reported outcomes. England: Wiley.
5.
go back to reference Varni, J. W., Seid, M., Knight, T. S., Burwinkle, T., Brown, J., & Szer, H. S. (2002). The PedsQL in pediatric rheumatology reliability, validity, and responsiveness of the pediatric quality of life inventory generic core scales and rheumatology module. Arthritis and Rheumatism, 46, 714–725.PubMedCrossRef Varni, J. W., Seid, M., Knight, T. S., Burwinkle, T., Brown, J., & Szer, H. S. (2002). The PedsQL in pediatric rheumatology reliability, validity, and responsiveness of the pediatric quality of life inventory generic core scales and rheumatology module. Arthritis and Rheumatism, 46, 714–725.PubMedCrossRef
6.
go back to reference Harding, L. (2001). Children’s quality of life assessment: A review of generic and health-related quality of life measures completed by children and adolescents. Clinical Psychology & Psychotherapy, 8, 79–96.CrossRef Harding, L. (2001). Children’s quality of life assessment: A review of generic and health-related quality of life measures completed by children and adolescents. Clinical Psychology & Psychotherapy, 8, 79–96.CrossRef
7.
go back to reference Anderson, R., Aaronson, N., & Wilkin, D. (1993). Critical review of the international assessments of health-related quality of life. Quality of Life Research, 2, 369–395.PubMedCrossRef Anderson, R., Aaronson, N., & Wilkin, D. (1993). Critical review of the international assessments of health-related quality of life. Quality of Life Research, 2, 369–395.PubMedCrossRef
8.
go back to reference Eiser, C., & Morse, R. (2001). A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84, 205–211.PubMedCrossRef Eiser, C., & Morse, R. (2001). A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84, 205–211.PubMedCrossRef
10.
go back to reference Petty, R. E., Southwood, T. R., Manners, P., Baum, J., Glass, D. N., Goldenberg, J., et al. (2004). International league of associations for rheumatology classification of juvenile idiopathic arthritis: Second revision, Edmonton, 2001. Journal of Rheumatology, 31, 390–392.PubMed Petty, R. E., Southwood, T. R., Manners, P., Baum, J., Glass, D. N., Goldenberg, J., et al. (2004). International league of associations for rheumatology classification of juvenile idiopathic arthritis: Second revision, Edmonton, 2001. Journal of Rheumatology, 31, 390–392.PubMed
11.
go back to reference Sprangers, M. A. G., Cull, A., Bjordal, K., Groenvold, M., & Aaronson, N. K. (1993). The European organization for research and treatment of cancer approach to quality of life assessment: Guidelines for developing questionnaire modules. Quality of Life Research, 2, 287–295.PubMedCrossRef Sprangers, M. A. G., Cull, A., Bjordal, K., Groenvold, M., & Aaronson, N. K. (1993). The European organization for research and treatment of cancer approach to quality of life assessment: Guidelines for developing questionnaire modules. Quality of Life Research, 2, 287–295.PubMedCrossRef
12.
go back to reference Varni, J. W., Thompson, K. L., & Hanson, V. (1987). The Varni/Thompson pediatric pain questionnaire. I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain, 28, 27–38.PubMedCrossRef Varni, J. W., Thompson, K. L., & Hanson, V. (1987). The Varni/Thompson pediatric pain questionnaire. I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain, 28, 27–38.PubMedCrossRef
13.
go back to reference Varni, J. W., Waldron, S. A., Gragg, R. A., Rapoff, M. A., Bernstein, B. H., & Lindsley, C. B. (1996). Development of the Waldron/Varni pediatric pain coping inventory. Pain, 67, 141–150.PubMedCrossRef Varni, J. W., Waldron, S. A., Gragg, R. A., Rapoff, M. A., Bernstein, B. H., & Lindsley, C. B. (1996). Development of the Waldron/Varni pediatric pain coping inventory. Pain, 67, 141–150.PubMedCrossRef
14.
go back to reference Thompson, K. L., & Varni, J. W. (1986). A developmental cognitive-biobehavioral approach to pediatric pain assessment. Pain, 25, 82–96.CrossRef Thompson, K. L., & Varni, J. W. (1986). A developmental cognitive-biobehavioral approach to pediatric pain assessment. Pain, 25, 82–96.CrossRef
15.
go back to reference Ozdogan, H., Ruperto, N., Kasapçopur, O., Bakkaloglu, A., Arisoy, N., Ozen, S., et al. (2001). The Turkish version of the childhood health assessment questionnaire (CHAQ) and the child health questionnaire (CHQ). Clinical and Experimental Rheumatology, 19, 158–162. Ozdogan, H., Ruperto, N., Kasapçopur, O., Bakkaloglu, A., Arisoy, N., Ozen, S., et al. (2001). The Turkish version of the childhood health assessment questionnaire (CHAQ) and the child health questionnaire (CHQ). Clinical and Experimental Rheumatology, 19, 158–162.
16.
go back to reference Beaton, D. E., Bombardier, C., Guillemin, F., & Ferraz, M. B. (2000). Guidelines for the process of cross-cultural adaptation of self-report measures. Spine, 25, 3186–3191.PubMedCrossRef Beaton, D. E., Bombardier, C., Guillemin, F., & Ferraz, M. B. (2000). Guidelines for the process of cross-cultural adaptation of self-report measures. Spine, 25, 3186–3191.PubMedCrossRef
17.
go back to reference Guillemin, F., Bombardier, D., & Beaton, D. (1993). Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines. Journal of Clinical Epidemiology, 46, 1417–1432.PubMedCrossRef Guillemin, F., Bombardier, D., & Beaton, D. (1993). Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines. Journal of Clinical Epidemiology, 46, 1417–1432.PubMedCrossRef
18.
go back to reference Trapanotto, M., Giorgino, D., Zulian, F., Benini, F., & Varni, J. W. (2009). The Italian version of the PedsQL in children with rheumatic diseases. Clinical and Experimental Rheumatology, 27, 373–380.PubMed Trapanotto, M., Giorgino, D., Zulian, F., Benini, F., & Varni, J. W. (2009). The Italian version of the PedsQL in children with rheumatic diseases. Clinical and Experimental Rheumatology, 27, 373–380.PubMed
19.
go back to reference Davis, E., Nicolas, C., Waters, E., Cook, K., Gibbs, L., Gosch, A., et al. (2007). Parent-proxy and child self-reported health-related quality of life: Using qualitative methods to explain the discordance. Quality of Life Research, 16, 863–871.PubMedCrossRef Davis, E., Nicolas, C., Waters, E., Cook, K., Gibbs, L., Gosch, A., et al. (2007). Parent-proxy and child self-reported health-related quality of life: Using qualitative methods to explain the discordance. Quality of Life Research, 16, 863–871.PubMedCrossRef
Metagegevens
Titel
Cross-cultural adaptation, reliability, and validity of the Turkish version of PedsQL 3.0 Arthritis Module: a quality-of-life measure for patients with juvenile idiopathic arthritis in Turkey
Publicatiedatum
01-04-2013
Gepubliceerd in
Quality of Life Research / Uitgave 3/2013
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-012-0180-0

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