Swipe om te navigeren naar een ander artikel
The aim of this study was to describe the cultural adaptation, validity, and reliability of a Turkish version of the pediatric quality-of-life inventory (PedsQL) 3.0 Arthritis Module in a population with juvenile idiopathic arthritis (JIA).
A total of 169 patients with JIA and their parents were enrolled in the study. The Turkish version of the childhood health assessment questionnaire (CHAQ) was used to evaluate the validity of related domains in the PedsQL 3.0 Arthritis Module. Both the PedsQL 3.0 Arthritis Module and CHAQ were filled out by children over 8 years of age and by the parents of children 2–7 years of age.
Internal reliability was poor to excellent (Cronbach’s alpha coefficients 0.56–0.84 for self-reporting and 0.63–0.82 for parent reporting), and interobserver reliability varied from good to excellent (intraclass correlation coefficient (ICC) 0.79–0.91 for self-reporting and 0.80–0.88 for parent reporting) for the total scores of the PedsQL 3.0 Arthritis Module. Parent–child concordance for all scores was moderate to excellent (ICC 0.42–0.92). The PedsQL 3.0 Arthritis Module and CHAQ were highly positively correlated, with coefficients from 0.21 to 0.76, indicating concurrent validity.
We demonstrated the reliability and validity of quality-of-life measurement using the Turkish version of the PedsQL 3.0 Arthritis Module in our sociocultural context. The PedsQL 3.0 Arthritis Module can be utilized as a tool for the evaluation of quality of life in patients with JIA aged 2–18 years.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Campbell, S. K., Palisano, R. J., & Vander Linden, D. W. (2006). Physical therapy for children (3rd ed.). Philadelphia: WB Saunders.
Fayers, P. M., & Machin, D. (2007). Quality of life: Assessment, analysis, and interpretation of patient-reported outcomes. England: Wiley.
Varni, J. W., Seid, M., Knight, T. S., Burwinkle, T., Brown, J., & Szer, H. S. (2002). The PedsQL in pediatric rheumatology reliability, validity, and responsiveness of the pediatric quality of life inventory generic core scales and rheumatology module. Arthritis and Rheumatism,46, 714–725. PubMedCrossRef
Harding, L. (2001). Children’s quality of life assessment: A review of generic and health-related quality of life measures completed by children and adolescents. Clinical Psychology & Psychotherapy,8, 79–96. CrossRef
Petty, R. E., Southwood, T. R., Manners, P., Baum, J., Glass, D. N., Goldenberg, J., et al. (2004). International league of associations for rheumatology classification of juvenile idiopathic arthritis: Second revision, Edmonton, 2001. Journal of Rheumatology,31, 390–392. PubMed
Thompson, K. L., & Varni, J. W. (1986). A developmental cognitive-biobehavioral approach to pediatric pain assessment. Pain,25, 82–96. CrossRef
Ozdogan, H., Ruperto, N., Kasapçopur, O., Bakkaloglu, A., Arisoy, N., Ozen, S., et al. (2001). The Turkish version of the childhood health assessment questionnaire (CHAQ) and the child health questionnaire (CHQ). Clinical and Experimental Rheumatology,19, 158–162.
Trapanotto, M., Giorgino, D., Zulian, F., Benini, F., & Varni, J. W. (2009). The Italian version of the PedsQL in children with rheumatic diseases. Clinical and Experimental Rheumatology,27, 373–380. PubMed
- Cross-cultural adaptation, reliability, and validity of the Turkish version of PedsQL 3.0 Arthritis Module: a quality-of-life measure for patients with juvenile idiopathic arthritis in Turkey
S. N. Baydogan
- Springer Netherlands