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Journal of Autism and Developmental Disorders

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01-12-2013 | Original Paper

Children’s Compliance with American Academy of Pediatrics’ Well-Child Care Visit Guidelines and the Early Detection of Autism

Auteurs: Amy M. Daniels, David S. Mandell

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2013

Abstract

This study estimated compliance with American Academy of Pediatrics (AAP) guidelines for well-child care and the association between compliance and age at diagnosis in a national sample of Medicaid-enrolled children with autism (N = 1,475). Mixed effects linear regression was used to assess the relationship between compliance and age at diagnosis. Mean age at diagnosis was 37.4 (SD 8.4) months, and mean compliance was 55 % (SD 33 %). Children whose care was compliant with AAP guidelines were diagnosed 1.6 months earlier than children who received no well-child care. Findings support that the timely receipt of well-child care may contribute to earlier detection. Additional research on the contribution of compliance, well-child visit components and provider characteristics on the timely diagnosis of autism is needed.

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American Academy of Pediatrics. (2008). Recommendations for preventive pediatric health care. Retrieved November 25, 2009 from http://practice.aap.org/content.aspx?aid=1599.

American Academy of Pediatrics. (2010). Bright Futures: Coding for pediatric preventive care 2010. Retrieved January 1, 2011 from http://www.herrinpediatricclinic.com/parent/files/PracticeMgmt/Coding%20for%20Ped%20Care.pdf.

Autism and Developmental Disabilities Monitoring Network Surveillance Year 2000 Principal Investigators, & Centers for Disease Control and Prevention. (2007). Prevalence of autism spectrum disorders—autism and developmental disabilities monitoring network, six sites, United States, 2000. MMWR. Surveillance Summaries: Morbidity and Mortality Weekly Report. Surveillance Summaries / CDC, 56(1), 1–11.

Autism and Developmental Disabilities Monitoring Network Surveillance Year 2002 Principal Investigators, & Centers for Disease Control and Prevention. (2007). Prevalence of autism spectrum disorders—autism and developmental disabilities monitoring network, 14 sites, United States, 2002. MMWR. Surveillance Summaries: Morbidity and Mortality Weekly Report. Surveillance Summaries / CDC, 56(1), 12–28.

Autism and Developmental Disabilities Monitoring Network Surveillance Year 2006 Principal Investigators, & Centers for Disease Control and Prevention (CDC). (2009). Prevalence of autism spectrum disorders—autism and developmental disabilities monitoring network, United States, 2006. MMWR. Surveillance Summaries: Morbidity and Mortality Weekly Report. Surveillance Summaries / CDC, 58(10), 1–20.

Autism and Developmental Disabilities Monitoring Network Surveillance Year 2008 Principal Investigators, & Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders—autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002), 61(3), 1–19.

Brown, J., Melinkovich, P., Gitterman, B., & Ricketts, S. (1993). Missed opportunities in preventive pediatric health care. Immunizations or well-child care visits? American Journal of Diseases of Children, 147(10), 1081–1084.PubMedCrossRef

Byrd, R. S., Hoekelman, R. A., & Auinger, P. (1999). Adherence to AAP guidelines for well-child care under managed care. American Academy of Pediatrics. Pediatrics, 104(3 Pt 1), 536–540.PubMedCrossRef

Centers for Medicaid & Medicaid Services. (2009). Medicaid analystic eXtract (MAX) general information Medicaid data sources. Retrieved November 25, 2009 from http://www.cms.hhs.gov/medicaiddatasourcesgeninfo/07_maxgeneralinformation.asp.

Chakrabarti, S., & Fombonne, E. (2001). Pervasive developmental disorders in preschool children. JAMA: The Journal of the American Medical Association, 285(24), 3093–3099.CrossRef

Chamak, B., Bonniau, B., Oudaya, L., & Ehrenberg, A. (2011). The autism diagnostic experiences of French parents. Autism, 15, 183–197.CrossRef

Chen, C. Y., Liu, C. Y., Su, W. C., Huang, S. L., & Lin, K. M. (2008). Urbanicity-related variation in help-seeking and services utilization among preschool-age children with autism in Taiwan. Journal of Autism and Developmental Disorders, 38(3), 489–497.PubMedCrossRef

Chung, P. J., Lee, T. C., Morrison, J. L., & Schuster, M. A. (2006). Preventive care for children in the United States: Quality and barriers. Annual Review of Public Health, 27, 491–515.PubMedCrossRef

Committee on Practice and Ambulatory Medicine. (2000). American academy of pediatrics: Recommendations for preventive pediatric health care. Pediatrics, 105(3), 645–646.CrossRef

Council on Children With Disabilities, Section on Developmental Behavioral Pediatrics, Bright Futures Steering Committee, & Medical Home Initiatives for Children With Special Needs Project Advisory Committee. (2006). Identifying infants and young children with developmental disorders in the medical home: An algorithm for developmental surveillance and screening. Pediatrics, 118(1), 405–420.CrossRef

Croen, L. A., Najjar, D. V., Ray, T., Lotspeich, L., & Bernal, P. (2006). A comparison of health care utilization and costs of children with and without autism spectrum disorders in a large group-model health plan. Pediatrics, 118, 1203–1211.CrossRef

Crystal, S., Akincigil, A., Bilder, S., & Walkup, J. T. (2007). Studying prescription drug use and outcomes with Medicaid claims data: Strengths, limitations, and strategies. Medical Care, 45(10 Supl 2), S58–S65.PubMedCrossRef

Daley, T. C. (2004). From symptom recognition to diagnosis: Children with autism in urban India. Social Science & Medicine, 58(7), 1323–1335.CrossRef

Data Accountability Center. (2012). Data accountability center, individuals with disabilities education act (IDEA) data. Retrieved January 12, 2011 from https://www.ideadata.org/default.asp.

Fernell, E., & Gillberg, C. (2010). Autism spectrum disorder diagnoses in Stockholm preschoolers. Research in Developmental Disabilities, 31(3), 680–685.PubMedCrossRef

Fombonne, E., Heavey, L., Smeeth, L., Rodrigues, L. C., Cook, C., Smith, P. G., et al. (2004). Validation of the diagnosis of autism in general practitioner records. BMC Public Health, 4, 5.PubMedCrossRef

Fountain, C., King, M. D., & Bearman, P. S. (2011). Age of diagnosis for autism: Individual and community factors across 10 birth cohorts. Journal of Epidemiology and Community Health, 65(6), 503–510.PubMedCrossRef

Freed, G. L., Clark, S. J., Pathman, D. E., & Schectman, R. (1999). Influences on the receipt of well-child visits in the first two years of life. Pediatrics, 103(4 Pt 2), 864–869.PubMed

Gadomski, A., Jenkins, P., & Nichols, M. (1998). Impact of a Medicaid primary care provider and preventive care on pediatric hospitalization. Pediatrics, 101(3), E1.PubMedCrossRef

Goin-Kochel, R. P., Mackintosh, V. H., & Myers, B. J. (2006). How many doctors does it take to make an autism spectrum diagnosis? Autism: The International Journal of Research and Practice, 10(5), 439–451.CrossRef

Guevara, J. P., Gerdes, M., Localio, R., Huang, Y. V., Pinto-Martin, J., Minkovitz, C. S., et al. (2013). Effectiveness of developmental screening in an urban setting. Pediatrics, 131(1), 30–37.PubMedCrossRef

Gupta, V. B., Hyman, S. L., Johnson, C. P., Bryant, J., Byers, B., Kallen, R., et al. (2007). Identifying children with autism early? Pediatrics, 119(1), 152–153.PubMedCrossRef

Gurney, J. G., McPheeters, M. L., & Davis, M. M. (2006). Parental report of health conditions and health care use among children with and without autism: National survey of children’s health. Archives of Pediatrics and Adolescent Medicine, 160(8), 825–830.PubMedCrossRef

Hakim, R. B., & Bye, B. V. (2001). Effectiveness of compliance with pediatric preventive care guidelines among Medicaid beneficiaries. Pediatrics, 108(1), 90–97.PubMedCrossRef

Hakim, R. B., & Ronsaville, D. S. (2002). Effect of compliance with health supervision guidelines among US infants on emergency department visits. Archives of Pediatrics and Adolescent Medicine, 156(10), 1015–1020.PubMedCrossRef

Howlin, P. (2008). Identifying effective interventions for young children with autism spectrum disorders. Journal of Intellectual Disability Research: JIDR, 52(10), 817.CrossRef

Howlin, P., & Asgharian, A. (1999). The diagnosis of autism and Asperger syndrome: Findings from a survey of 770 families. Developmental Medicine and Child Neurology, 41(12), 834–839.PubMedCrossRef

Howlin, P., Magiati, I., & Charman, T. (2009). Systematic review of early intensive behavioral interventions for children with autism. American Journal on Intellectual and Developmental Disabilities, 114(1), 23–41.PubMedCrossRef

Johnson, C. P. (2008). Recognition of autism before age 2 years. Pediatrics in Review / American Academy of Pediatrics, 29(3), 86–96.PubMedCrossRef

Johnson, C. P., Myers, S. M., & The Council on Children with Disabilities. (2007). Clinical report—Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120(5), 1183–1215.PubMedCrossRef

Kaiser Family Foundation. (2009). Kaiser state health facts. Retrieved November 25, 2009 from http://www.statehealthfacts.org/index.jsp.

Keen, D., & Ward, S. (2004). Autistic spectrum disorder: A child population profile. Autism: The International Journal of Research and Practice, 8(1), 39–48.CrossRef

Knapp, M., Romeo, R., & Beecham, J. (2009). Economic cost of autism in the UK. Autism: The International Journal of Research and Practice, 13(3), 317–336.CrossRef

Latif, A. H., & Williams, W. R. (2007). Diagnostic trends in autistic spectrum disorders in the south wales valleys. Autism: The International Journal of Research and Practice, 11(6), 479–487.CrossRef

Levy, S. E., Giarelli, E., Lee, L. C., Schieve, L. A., Kirby, R. S., Cunniff, C., et al. (2010). Autism spectrum disorder and co-occurring developmental, psychiatric, and medical conditions among children in multiple populations of the United States. Journal of Developmental and Behavioral Pediatrics: JDBP, 31(4), 267–275.PubMedCrossRef

Lingam, R., Simmons, A., Andrews, N., Miller, E., Stowe, J., & Taylor, B. (2003). Prevalence of autism and parentally reported triggers in a north east London population. Archives of Disease in Childhood, 88(8), 666–670.PubMedCrossRef

Liptak, G. S., Orlando, M., Yingling, J. T., Theurer-Kaufman, K. L., Malay, D. P., Tompkins, L. A., et al. (2006). Satisfaction with primary health care received by families of children with developmental disabilities. Journal of Pediatric Health Care: Official Publication of National Association of Pediatric Nurse Associates & Practitioners, 20(4), 245–252.CrossRef

Lurie, N., Popkin, M., Dysken, M., Moscovice, I., & Finch, M. (1992). Accuracy of diagnoses of schizophrenia in Medicaid claims. Hospital & Community Psychiatry, 43(1), 69–71.

Mandell, D. S., Listerud, J., Levy, S. E., & Pinto-Martin, J. A. (2002). Race differences in the age at diagnosis among Medicaid-eligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41(12), 1447–1453.PubMedCrossRef

Mandell, D. S., Morales, K. H., Xie, M., Lawer, L. J., Stahmer, A. C., & Marcus, S. C. (2010). Age of diagnosis among Medicaid-enrolled children with autism, 2001–2004. Psychiatric Services (Washington, D.C.), 61(8), 822–829.CrossRef

Mandell, D. S., Novak, M. M., & Zubritsky, C. D. (2005). Factors associated with age of diagnosis among children with autism spectrum disorders. Pediatrics, 116, 1480–1486.PubMedCrossRef

McInerny, T. K., Cull, W. L., & Yudkowsky, B. K. (2005). Physician reimbursement levels and adherence to American Academy of Pediatrics well-visit and immunization recommendations. Pediatrics, 115(4), 833–838.PubMedCrossRef

National Committee for Quality Assurance. (2009). HEDIS 2009 technical specifications for physician measurement. Washington, D.C.: National Committee for Quality Assurance.

Noterdaeme, M., & Hutzelmeyer-Nickels, A. (2010). Early symptoms and recognition of pervasive developmental disorders in Germany. Autism, 14(6), 575–588.PubMedCrossRef

Oosterling, I. J., Wensing, M., Swinkels, S. H., van der Gaag, R. J., Visser, J. C., Woudenberg, T., et al. (2009). Advancing early detection of autism spectrum disorder by applying an integrated two-stage screening approach. Journal of Child Psychology and Psychiatry, and Allied Disciplines.

Oslejskova, H., Kontrova, I., Foralova, R., Dusek, L., & Nemethova, D. (2007). The course of diagnosis in autistic patients: The delay between recognition of the first symptoms by parents and correct diagnosis. Neuro Endocrinology Letters, 28(6), 895–900.PubMed

Ospina, M. B., Krebs Seida, J., Clark, B., Karkhaneh, M., Hartling, L., Tjosvold, L., et al. (2008). Behavioural and developmental interventions for autism spectrum disorder: A clinical systematic review. PLoS One, 3(11), e3755.PubMedCrossRef

Ouellette-Kuntz, H. M., Coo, H., Lam, M., Yu, C. T., Breitenbach, M. M., Hennessey, P. E., et al. (2009). Age at diagnosis of autism spectrum disorders in four regions of Canada. Canadian Journal of Public Health. Revue Canadienne De Sante Publique, 100(4), 268–273.PubMed

Parner, E. T., Schendel, D. E., & Thorsen, P. (2008). Autism prevalence trends over time in Denmark: Changes in prevalence and age at diagnosis. Archives of Pediatrics and Adolescent Medicine, 162(12), 1150–1156.PubMedCrossRef

Perryman, T. (2009). Investigating disparities in the age of diagnosis of autism spectrum disorders. PhD, the University of North Carolina at Chapel Hill.

Pittard, W. B., I. I. I., Laditka, J. N., & Laditka, S. B. (2007). Early and periodic screening, diagnosis, and treatment and infant health outcomes in Medicaid-insured infants in South Carolina. The Journal of Pediatrics, 151(4), 414–418.PubMedCrossRef

Ronsaville, D. S., & Hakim, R. B. (2000). Well child care in the United States: Racial differences in compliance with guidelines. American Journal of Public Health, 90(9), 1436–1443.PubMedCrossRef

Rosenberg, R. R., Landa, R. J., Law, J. K., Stuart, E. A., & Law, P. A. (2011). Factors affecting age at initial autism spectrum disorder diagnosis in a national survey. Autism Research and Treatment. doi:10.1155/2011/874619.

Schneider, K. M., Wiblin, R. T., Downs, K. S., & O’Donnell, B. E. (2001). Methods for evaluating the provision of well child care. The Joint Commission Journal on Quality Improvement, 27(12), 673–682.PubMed

Seida, J. K., Ospina, M. B., Karkhaneh, M., Hartling, L., Smith, V., & Clark, B. (2009). Systematic reviews of psychosocial interventions for autism: An umbrella review. Developmental Medicine and Child Neurology, 51(2), 95–104.PubMedCrossRef

Selden, T. M. (2006). Compliance with well-child visit recommendations: Evidence from the medical expenditure panel survey, 2000–2002. Pediatrics, 118(6), e1766–e1778.PubMedCrossRef

Shattuck, P. T., Durkin, M., Maenner, M., Newschaffer, C., Mandell, D. S., Wiggins, L., et al. (2009). Timing of identification among children with an autism spectrum disorder: Findings from a population-based surveillance study. Journal of the American Academy of Child and Adolescent Psychiatry, 48(5), 474–483.PubMedCrossRef

Short, P. F., & Lefkowitz, D. C. (1992). Encouraging preventive services for low-income children. The effect of expanding Medicaid. Medical Care, 30(9), 766–780.PubMedCrossRef

Tebruegge, M., Nandini, V., & Ritchie, J. (2004). Does routine child health surveillance contribute to the early detection of children with pervasive developmental disorders? An epidemiological study in Kent, UK. BMC Pediatrics, 4, 4.PubMedCrossRef

Tom, J. O., Tseng, C. W., Davis, J., Solomon, C., Zhou, C., & Mangione-Smith, R. (2010). Missed well-child care visits, low continuity of care, and risk of ambulatory care-sensitive hospitalizations in young children. Archives of Pediatrics and Adolescent Medicine, 164(11), 1052–1058.PubMedCrossRef

Twyman, K. A., Maxim, R. A., Leet, T. L., & Ultmann, M. H. (2009). Parents’ developmental concerns and age variation of diagnosis of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3, 489–495.CrossRef

US Department of Health & Human Services, Centers for Medicare & Medicaid Services. (2011). State agency responsibilities Medicaid early & periodic screening diagnosis & treatment benefit. Retrieved January 12, 2011 from http://www.cms.gov/MedicaidEarlyPeriodicScrn/03_StateAgencyResponsibilities.asp#TopOfPage.

US Department of Health and Human Services, Health Resources and Services Administration, Bureau of Health Professions. (2005). Area resource file (ARF). Rockville, MD.

Vismara, L. A., & Rogers, S. J. (2010). Behavioral treatments in autism spectrum disorder: What do we know? Annual Review of Clinical Psychology, 6, 447–468.PubMedCrossRef

Walkup, J. T., Boyer, C. A., & Kellermann, S. L. (2000). Reliability of Medicaid claims files for use in psychiatric diagnoses and service delivery. Administration and Policy in Mental Health, 27(3), 129–139.PubMedCrossRef

Wiggins, L. D., Baio, J., & Rice, C. (2006). Examination of the time between first evaluation and first autism spectrum diagnosis in a population-based sample. Journal of Developmental and Behavioral Pediatrics: JDBP, 27(2 Suppl), S79–S87.PubMedCrossRef

Williams, E., Thomas, K., Sidebotham, H., & Emond, A. (2008). Prevalence and characteristics of autistic spectrum disorders in the ALSPAC cohort. Developmental Medicine and Child Neurology, 50(9), 672–677.PubMedCrossRef

Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA: The Journal of the American Medical Association, 289(1), 49–55.CrossRef

Yu, S. M., Bellamy, H. A., Kogan, M. D., Dunbar, J. L., Schwalberg, R. H., & Schuster, M. A. (2002). Factors that influence receipt of recommended preventive pediatric health and dental care. Pediatrics, 110(6), e73.PubMedCrossRef

Titel: Children’s Compliance with American Academy of Pediatrics’ Well-Child Care Visit Guidelines and the Early Detection of Autism
Auteurs: Amy M. Daniels
David S. Mandell
Publicatiedatum: 01-12-2013
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 12/2013
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-013-1831-x

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