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31-10-2022 | Original Paper

Autism Comes to the Pediatric Hospital: Perspectives of Child Life Specialists

Auteurs: Priscilla Burnham Riosa, Amanpreet Randhawa, Barbara Muskat

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2024

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Abstract

The hospital setting may be especially difficult for pediatric patients on the autism spectrum and their families compared to those not on the spectrum. Child life specialists are healthcare professionals specifically trained to support parents and their children and help prepare them for hospital procedures. Because of this specialized skill set, these professionals likely have a wealth of expertise to share relevant to caring for autistic patients. This study aimed to understand 21 child life specialists’ experiences working with patients on the spectrum. Our findings highlighted the following themes: Parents are the Experts, Proactive and Individualized Care, Disclosure, and Hospital-Wide Suggestions to Improve Patient Care. We discuss the practice implications of these findings on the healthcare experiences of pediatric patients on the spectrum.
Voetnoten
1
Throughout the manuscript, we interchange the terminology “autistic patients” and “patient on the autism spectrum” (except in participant narratives) to acknowledge and respect the diversity of terminology perspectives (i.e., person-first vs. identity-first language) of this debate. For further reading on the critical discussion of language use, see Bottema-Beutel et al., (2021), Botha et al. (2021), Bury et al., (2020), Kapp et al., (2013), and Kenny et al., (2016), among others.
 
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Metagegevens
Titel
Autism Comes to the Pediatric Hospital: Perspectives of Child Life Specialists
Auteurs
Priscilla Burnham Riosa
Amanpreet Randhawa
Barbara Muskat
Publicatiedatum
31-10-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 1/2024
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-022-05776-9