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Journal of Autism and Developmental Disorders

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11-08-2021 | Original Paper

Aging on the Autism Spectrum: Self-care Practices and Reported Impact on Well-Being

Auteurs: Danielle A. Waldron, Caitlin Coyle, John Kramer

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2022

Abstract

The population aging on the Autism Spectrum (AS) faces disproportionate physical and mental health comorbidities. This research describes self-care practices, including physical activity (PA), nutrition, and spirituality, and the impact of these practices on the health and well-being of older adults on the AS. Researchers conducted semi-structured interviews (N = 30) with older adults (age 50+ years) on the AS on the following topics: health, employment, relationships, and services/supports. Data were analyzed using Dedoose software and a constant comparative method. Participants described self-reported health benefits of their PA. Participants who engaged with organizations reported receiving instrumental support and fulfillment. Several themes emerged regarding socialization and routines in self-care in older adults on the AS, which may inform interventions.

vorige artikel Infant Effortful Control Mediates Relations Between Nondirective Parenting and Internalising-Related Child Behaviours in an Autism-Enriched Infant Cohort

volgende artikel First Psychometric Properties of the Dutch Interview for Diagnostic Assessment of Autism Spectrum Disorder in Adult Males Without Intellectual Disability

Alleen toegankelijk voor geautoriseerde gebruikers

Allison, D. B., Basile, V. C., & MacDonald, R. B. (1991). Brief report: Comparative effects of antecedent exercise and lorazepam on the aggressive behavior of an autistic man. Journal of Autism and Developmental Disorders, 21(1), 89–94. https://doi.org/10.1007/BF02207001 CrossRefPubMed

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Association. CrossRef

Autism Speaks. (2017). Autism and health: A special report by autism speaks. (pp. 1–37).

Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Dowling, N. F., et al. (2018). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 Sites, United States, 2014. MMWR Surveillance Summaries, 67(6), 1–23. https://doi.org/10.15585/mmwr.ss6706a1 CrossRefPubMedCentral

Caldwell-Harris, C., Murphy, C. F., Velazquez, T., & McNamara, P. (2011). Religious belief systems of persons with high functioning autism. In Proceedings of the Annual Meeting of the Cognitive Science Society (Vol. 33, No. 33).

CDC. (2017). Life expectancy. Retrieved January 25, 2018 from https://www.cdc.gov/nchs/fastats/life-expectancy.htm

Clarke, T., Tickle, A., & Gillott, A. (2016). Substance use disorder in Asperger syndrome: An investigation into the development and maintenance of substance use disorder by individuals with a diagnosis of Asperger syndrome. International Journal of Drug Policy, 27, 154–163. https://doi.org/10.1016/j.drugpo.2015.06.003 CrossRefPubMed

Conner, C. M., & White, S. W. (2018). Brief report: Feasibility and preliminary efficacy of individual mindfulness therapy for adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(1), 290–300. https://doi.org/10.1007/s10803-017-3312-0 CrossRefPubMed

Croen, L. A., Zerbo, O., Qian, Y., Massolo, M. L., Rich, S., Sidney, S., & Kripke, C. (2015). The health status of adults on the autism spectrum. Autism, 19(7), 814–823. https://doi.org/10.1177/1362361315577517 CrossRefPubMed

Curtin, C., Anderson, S. E., Must, A., & Bandini, L. (2010). The prevalence of obesity in children with autism: A secondary data analysis using nationally representative data from the National Survey of Children’s Health. BMC Pediatrics, 10(1), 11. https://doi.org/10.1186/1471-2431-10-11 CrossRefPubMedPubMedCentral

Elliott, R. O., Dobbin, A. R., Rose, G. D., & Soper, H. V. (1994). Vigorous, aerobic exercise versus general motor training activities: Effects on maladaptive and stereotypic behaviors of adults with both autism and mental retardation. Journal of Autism and Developmental Disorders, 24(5), 565–576. https://doi.org/10.1007/BF02172138 CrossRefPubMed

García-Villamisar, D. A., & Dattilo, J. (2010). Effects of a leisure programme on quality of life and stress of individuals on the AS. Journal of Intellectual Disability Research, 54(7), 611–619. https://doi.org/10.1111/j.1365-2788.2010.01289.x CrossRefPubMed

Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. Aldine.

Guan, J., & Li, G. (2017). Injury mortality in individuals with autism. American Journal of Public Health, 107(5), 791–793. https://doi.org/10.2105/AJPH.2017.303696 CrossRefPubMedPubMedCentral

Hillier, A., Murphy, D., & Ferrara, C. (2011). A pilot study: Short-term reduction in salivary cortisol following low level physical exercise and relaxation among adolescents and young adults on the Autism spectrum. Stress and Health, 27(5), 395–402. https://doi.org/10.1002/smi.1391 CrossRef

Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., Larsson, H., Lichtenstein, P., & Bölte, S. (2016). Premature mortality in autism spectrum disorder. The British Journal of Psychiatry, 208(3), 232–238. https://doi.org/10.1192/bjp.bp.114.160192 CrossRefPubMed

Howlin, P. (2000). Outcome in adult life for more able individuals with autism or Asperger syndrome. Autism, 4, 63–83. https://doi.org/10.1177/1362361300004001005 CrossRef

Kiep, M., Spek, A. A., & Hoeben, L. (2015). Mindfulness-based therapy in adults with an autism spectrum disorder: Do treatment effects last? Mindfulness, 6(3), 637–644. https://doi.org/10.1007/s12671-014-0299-x CrossRef

Leekam, S. R., Nieto, C., Libby, S. J., Wing, L., & Gould, J. (2007). Describing the sensory abnormalities of children and adults with autism. Journal of Autism and Developmental Disorders, 37(5), 894–910. https://doi.org/10.1007/s10803-006-0218-7 CrossRefPubMed

Lochbaum, M., & Crews, D. (2003). Viability of cardiorespiratory and muscular strength programs for the adolescent with autism. Complementary Health Practice Review, 8(3), 225–233. https://doi.org/10.1177/1076167503252917 CrossRef

Maddox, B. B., Trubanova, A., & White, S. W. (2017). Untended wounds: Non-suicidal self-injury in adults with autism spectrum disorder. Autism, 21(4), 412–422. https://doi.org/10.1177/1362361316644731 CrossRefPubMed

Morrison, H., Roscoe, E. M., & Atwell, A. (2011). An evaluation of antecedent exercise on behavior maintained by automatic reinforcement using a three-component multiple schedule. Journal of Applied Behavior Analysis, 44(3), 523–541. https://doi.org/10.1901/jaba.2011.44-523 CrossRefPubMedPubMedCentral

Muller, E., Schuler, A., & Yates, G. (2008). Social challenges and supports from the perspective of individuals with Asperger syndrome and other autism spectrum disabilities. Autism, 12, 173–190. https://doi.org/10.1177/1362361307086664 CrossRefPubMed

Must, A., Eliasziw, M., Phillips, S. M., Curtin, C., Kral, T. V., Segal, M., Bandini, L. G., et al. (2017). The effect of age on the prevalence of obesity among US youth with autism spectrum disorder. Childhood Obesity, 13(1), 25. https://doi.org/10.1089/chi.2016.0079 CrossRefPubMedPubMedCentral

Nadon, G., Feldman, D. E., Dunn, W., & Gisel, E. (2011). Association of sensory processing and eating problems in children with autism spectrum disorders. Autism Research and Treatment, 11, 541926. https://doi.org/10.1155/2011/541926 CrossRef

National Wellness Institute. (n.d.). The Six Dimensions of Wellness. Retrieved January 6, 2020 from https://www.nationalwellness.org/page/Six_Dimensions

NIH. (2018). Autism Spectrum Disorder. Retrieved October 16, 2019 from https://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-AS/index.shtml

Pitetti, K. H., Rendoff, A. D., Grover, T., & Beets, M. W. (2007). The efficacy of a 9-month treadmill walking program on the exercise capacity and weight reduction for adolescents with severe autism. Journal of Autism and Developmental Disorders, 37(6), 997–1006. https://doi.org/10.1007/s10803-006-0238-3 CrossRefPubMed

Sanchez-Reilly, S., Morrison, L. J., Carey, E., Bernacki, R., O’Neill, L., Kapo, J., Periyakoil, V. S., & Thomas, J. D. (2013). Caring for oneself to care for others: Physicians and their self-care. The Journal of Supportive Oncology, 11(2), 75. https://doi.org/10.12788/j.suponc.0003 CrossRefPubMedPubMedCentral

Schreck, K. A., & Williams, K. (2006). Food preferences and factors influencing food selectivity for children with autism spectrum disorders. Research in Developmental Disabilities, 27(4), 353–363. https://doi.org/10.1016/j.ridd.2005.03.005 CrossRefPubMed

Singh, N. N., Lancioni, G. E., Manikam, R., Winton, A. S., Singh, A. N., Singh, J., & Singh, A. D. (2011). A mindfulness-based strategy for self-management of aggressive behavior in adolescents with autism. Research in Autism Spectrum Disorders, 5(3), 1153–1158. https://doi.org/10.1016/j.rasd.2010.12.012 CrossRef

Spek, A. A., Van Ham, N. C., & Nyklíček, I. (2013). Mindfulness-based therapy in adults with an autism spectrum disorder: A randomized controlled trial. Research in Developmental Disabilities, 34(1), 246–253. https://doi.org/10.1016/j.ridd.2012.08.009 CrossRefPubMed

Spek, A. A., van Rijnsoever, W., van Laarhoven, L., & Kiep, M. (2019). Eating problems in men and women with an autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-019-03931-3 CrossRefPubMedCentral

Stancliffe, R. J., & Anderson, L. L. (2017). Factors associated with meeting physical activity guidelines by adults with intellectual and developmental disabilities. Research in Developmental Disabilities, 62, 1–14. https://doi.org/10.1016/j.ridd.2017.01.009 CrossRefPubMed

WSMI. (2018). What is self-care? Retrieved December 12, 2018 from http://www.wsmi.org/about-self-care-and-self-medication/what-is-self-care/

Titel: Aging on the Autism Spectrum: Self-care Practices and Reported Impact on Well-Being
Auteurs: Danielle A. Waldron
Caitlin Coyle
John Kramer
Publicatiedatum: 11-08-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 8/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05229-9

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