Swipe om te navigeren naar een ander artikel
The online version of this article (doi:10.1186/s13047-017-0193-6) contains supplementary material, which is available to authorized users.
Up to 50% of people with rheumatoid arthritis (RA) have foot symptoms at diagnosis, hence early foot health intervention is recommended and this should include patient education. This study identifies, for the first time, the foot health education (FHE) needs of people with RA.
An online survey of people with RA (n = 543) captured quantitative data in relation to the aims, methods of delivery, content, timing and accessibility of FHE.
The majority concurred about the aims of FHE. Verbal delivery and websites were the most common methods. Written and verbal FHE were perceived to be the most effective methods. The point of diagnosis was the preferred time to receive it. Lack of access to FHE included minimal focus on foot health during consultations by both health practitioners and patients with RA. Participant gender, age, disease duration and living situation had a statistically significant influence on the results.
Foot health education is rarely considered within the medical consultation. There is a lack of patient and/or health professional awareness of this need with a detrimental impact on foot health. Patients require health professionals to identify their foot education health needs. Tailored foot health education should begin at initial diagnosis.
Additional file 1: Rheumatoid Arthritis foot health education survey for patients (PDF 148 kb)13047_2017_193_MOESM1_ESM.pdf
Additional file 2: P-values arising from statistical analyses of participants’ survey responses by section, in relation to gender, age, disease duration and living situation. * - Denotes significance at the 5% level. (DOCX 80 kb)13047_2017_193_MOESM2_ESM.docx
Barn R, Turner DE, Rafferty D, Sturrock RD, Woodburn J. Tibialis posterior tenosynovitis and associated pes plano valgus in rheumatoid arthritis: electromyography, multisegment foot kinematics, and ultrasound features. Arthritis Care Res (Hoboken). 2013;65:495–502. doi: 10.1002/acr.21859. CrossRef
Hooper L, Bowen CJ, Gates L, Culliford DJ, Ball C, Edwards CJ, et al. Prognostic indicators of foot-related disability in patients with rheumatoid arthritis: results of a prospective three-year study. Arthritis Care Res (Hoboken). 2012;64:1116–24. doi: 10.1002/acr.21672.
Woodburn J, Helliwell PS, Barker S. Three-dimensional kinematics at the ankle joint complex in rheumatoid arthritis patients with painful valgus deformity of the rearfoot. Rheumatology (Oxford). 2002;41:1406–12. CrossRef
Firth J. Lower limb ulceration in rheumatoid arthritis. Nurs Times. 2008;104:38–40. PubMed
National Institute of Clinical Excellence (NICE). Rheumatoid arthritis: the management of rheumatoid arthritis in adults. London 2009. ( https://www.nice.org.uk/guidance/cg79) accessed 30 Jun 2016.
Podiatric Rheumatic Care Association (PRCA). Standards of care for people with musculoskeletal foot health problems. PRCA 2008. ( http://www.prcassoc.org.uk/standards-project) accessed 30 Jun 2016.
Fautrel B, Pham T, Gossec L, Combe B, Flipo R, Goupille P, et al. Role and modalities of information and education in the management of patients with rheumatoid arthritis: development of recommendations for clinical practice based on published evidence and expert opinion. Joint Bone Spine. 2005;72:163–70. CrossRefPubMed
Steward K, Land M. Perceptions of patients and professionals on rheumatoid arthritis care. A consultancy report by the Kings Fund for the Rheumatology Futures Group. London: The Kings Fund; 2009.
Beatty P. The dynamics of cognitive interviewing. In: Presser S, Rothgeb J, Couper M, Lessler J, Martin M, Martin J, et al., eds. Methods for testing and evaluating questionnaires. New York: John Wiley and Sons Inc; 2004.
Willis G. Cognitive Interviewing. A Tool for Improving Questionnaire Design. Thousand Oaks: Sage Publishing Inc; 2005.
Reja U, Manfreda K, Hlebec V, Vehovar V. Open-ended versus closed-ended questions in web questionnaires: advances in methodology and statistics. Metodoloski zvezki. 2003;19:159–77.
Sue V, Ritter L. Conducting Online Surveys. 2nd ed. Thousand Oaks: Sage Publications, Inc; 2012.
Redmond AC, Waxman R, Helliwell PS. Provision of foot health services in rheumatology in the UK. Rheumatology (Oxford). 2006;45:571–6. CrossRef
Drăgoi RG, Ndosi M, Sadlonova M, Hill J, Duer M, Graninger W, et al. Patient education, disease activity and physical function: can we be more targeted? A cross sectional study among people with rheumatoid arthritis, psoriatic arthritis and hand osteoarthritis. Arthritis Res Ther. 2013;15:R156. doi: 10.1186/ar4339. CrossRefPubMedPubMedCentral
Hill J, Tennant A, Adebajo A. Further development of an educational needs assessment tool (ENAT) for patients with rheumatoid arthritis. Arthritis Rheum. 2004;50:S274–5.
Hill J, Bird H. The development and evaluation of a drug information leaflet for patients with rheumatoid arthritis. Rheumatology (Oxford). 2003;42:66–70. CrossRef
Local Government Association. Making every contact count: taking every opportunity to improve health and well-being. London: Local Government Association; 2014. http://www.local.gov.uk/documents/10180/5854661/Making+every+contact+count+−+taking+every+opportunity+to+improve+health+and+wellbeing/c23149f0-e2d9-4967-b45c-fc69c86b5424. Accessed 01 Aug 2016.
- A survey of people with foot problems related to rheumatoid arthritis and their educational needs
Andrea S. Graham
Anita E. Williams
- BioMed Central