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Gepubliceerd in: Journal of Autism and Developmental Disorders 2/2022

31-03-2021 | Original Paper

A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood

Auteurs: Kiah Evans, Larah van der Meer, Matthew J. F. Eggleston, Lauren J. Taylor, Hiran Thabrew, Hannah Waddington, Andrew J. O. Whitehouse

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2022

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Abstract

The diagnostic experiences of autistic adults in New Zealand have not been investigated and little is known globally about autistic adults’ satisfaction with the autism diagnostic process. This study describes the diagnostic experiences of 70 autistic adults living in New Zealand and explores how these experiences are related to satisfaction during three stages of the diagnostic process. The results show that autistic adults were reasonably satisfied with the early query and diagnostic assessment stages, but were dissatisfied with the post-diagnostic support stage, with significant unmet needs. Dissatisfaction during the post-diagnostic support stage was also related to satisfaction during previous stages and poor coordination of supports. Suggestions are made on how to improve the autism diagnostic pathway for autistic adults in New Zealand.
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Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Author. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Author.
go back to reference Arnold, S. R., Huang, Y., Hwang, Y. I., Richdale, A. L., Trollor, J. N., & Lawson, L. P. (2020). “The single most important thing that has happened to me in my life”: Development of the Impact of Diagnosis Scale—Preliminary Revision. Autism in Adulthood, 2(1), 34–41. https://doi.org/10.1089/aut.2019.0059.CrossRef Arnold, S. R., Huang, Y., Hwang, Y. I., Richdale, A. L., Trollor, J. N., & Lawson, L. P. (2020). “The single most important thing that has happened to me in my life”: Development of the Impact of Diagnosis Scale—Preliminary Revision. Autism in Adulthood, 2(1), 34–41. https://​doi.​org/​10.​1089/​aut.​2019.​0059.CrossRef
go back to reference Crow, H., Gage, H., Hampson, S., Hart, J., Kimber, A., Storey, L., & Thomas, H. (2002). Measurement of satisfaction with health care: Implications for practice from a systematic review of the literature. Health technology assessment, 6(32), 1–250.CrossRef Crow, H., Gage, H., Hampson, S., Hart, J., Kimber, A., Storey, L., & Thomas, H. (2002). Measurement of satisfaction with health care: Implications for practice from a systematic review of the literature. Health technology assessment, 6(32), 1–250.CrossRef
go back to reference Ministries of Health and Education. (2016). New Zealand autism spectrum disorder: Guideline. Ministry of Health. Ministries of Health and Education. (2016). New Zealand autism spectrum disorder: Guideline. Ministry of Health.
go back to reference National Institute for Health and Care Excellence. (2012). Autism spectrum disorder in adults: Diagnosis and management [CG142]. Author. National Institute for Health and Care Excellence. (2012). Autism spectrum disorder in adults: Diagnosis and management [CG142]. Author.
go back to reference OECD. (2019). Health at a glance 2019: OECD indicators. OECD Publishing. OECD. (2019). Health at a glance 2019: OECD indicators. OECD Publishing.
go back to reference Portney, L. G., & Watkins, M. P. (2015). Foundations of clinical research: Applications to practice. (3rd ed.). F.A. Davis. Portney, L. G., & Watkins, M. P. (2015). Foundations of clinical research: Applications to practice. (3rd ed.). F.A. Davis.
go back to reference Scattoni, M. L., Micai, M., Ciaramella, A., Salvitti, T., Fulceri, F., Fatta, L. M., Poustka, L., Diehm, R., Iskrov, G., Stefanov, R., Guillon, Q., Rogé, B., Staines, A., Sweeney, M. R., Boilson, A. M., Leósdóttir, T., Saemundsen, E., Moilanen, I., Ebeling, H., … Schendel, D. (2021). Real-world experiences in autistic adult diagnostic services and post-diagnostic support and alignment with services guidelines: Results from the ASDEU study. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-021-04873-5.CrossRefPubMedPubMedCentral Scattoni, M. L., Micai, M., Ciaramella, A., Salvitti, T., Fulceri, F., Fatta, L. M., Poustka, L., Diehm, R., Iskrov, G., Stefanov, R., Guillon, Q., Rogé, B., Staines, A., Sweeney, M. R., Boilson, A. M., Leósdóttir, T., Saemundsen, E., Moilanen, I., Ebeling, H., … Schendel, D. (2021). Real-world experiences in autistic adult diagnostic services and post-diagnostic support and alignment with services guidelines: Results from the ASDEU study. Journal of Autism and Developmental Disorders. https://​doi.​org/​10.​1007/​s10803-021-04873-5.CrossRefPubMedPubMedCentral
go back to reference Scottish Intercollegiate Guidelines Network. (2016). Assessment, diagnosis and interventions for autism spectrum disorders: A national clinical guideline [SIGN 145]. Healthcare Improvement Scotland. Scottish Intercollegiate Guidelines Network. (2016). Assessment, diagnosis and interventions for autism spectrum disorders: A national clinical guideline [SIGN 145]. Healthcare Improvement Scotland.
go back to reference Taylor, L., Eapen, V., Maybery, M. T., Midford, S., Paynter, J., Quarmby, L., Smith, T., Williams, K., & Whitehouse, A. (2016). Diagnostic evaluation for autism spectrum disorder: A survey of health professionals in Australia. British Medical Journal Open, 6(9), 1–8. Taylor, L., Eapen, V., Maybery, M. T., Midford, S., Paynter, J., Quarmby, L., Smith, T., Williams, K., & Whitehouse, A. (2016). Diagnostic evaluation for autism spectrum disorder: A survey of health professionals in Australia. British Medical Journal Open, 6(9), 1–8.
go back to reference Taylor, L., Eggleston, M., Thabrew, H., van der Meer, L., Waddington, H., Whitehouse, A., & Evans, K. (under review). The clinical landscape of autism diagnosis in New Zealand. Autism. Taylor, L., Eggleston, M., Thabrew, H., van der Meer, L., Waddington, H., Whitehouse, A., & Evans, K. (under review). The clinical landscape of autism diagnosis in New Zealand. Autism.
go back to reference Whitehouse, A., Evans, K., Eapen, V., & Wray, J. (2018). A national guideline for the assessment and diagnosis of autism spectrum disorders in Australia. Cooperative Research Centre for Living with Autism. Whitehouse, A., Evans, K., Eapen, V., & Wray, J. (2018). A national guideline for the assessment and diagnosis of autism spectrum disorders in Australia. Cooperative Research Centre for Living with Autism.
go back to reference World Health Organization. (2018). International classification of diseases for mortality and morbidity statistics (ICD-11). (11th ed.). Author. World Health Organization. (2018). International classification of diseases for mortality and morbidity statistics (ICD-11). (11th ed.). Author.
Metagegevens
Titel
A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood
Auteurs
Kiah Evans
Larah van der Meer
Matthew J. F. Eggleston
Lauren J. Taylor
Hiran Thabrew
Hannah Waddington
Andrew J. O. Whitehouse
Publicatiedatum
31-03-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 2/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-04983-0

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