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28-02-2019 | Original Paper

A Study of Asian Children Who are Diagnosed with Autism Spectrum Disorder and Available Support Services in Auckland, New Zealand

Auteurs: Myint Htut, Elsie Ho, Janine Wiles

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2020

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Abstract

This study reviews the demographic characteristics of Asian children diagnosed with autism spectrum disorder (ASD) in Auckland, New Zealand, the support services they can access, and how more equitable access to health services can be provided. We examined government and non-government support services for Asian children diagnosed with ASD and their families. The findings reflect the complexities of navigating and accessing health, disability, education and social support services. Analysis of Ministry of Health Disability Support Services (DSSs) data suggest that Asians in New Zealand are underrepresented in utilizing DSSs. Drawing on Andersen’s health care utilization model, suggestions for more equitable access to health, disability, education and social support include culturally and linguistically appropriate health care and social policies.
Literatuur
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Arlington, TX: APA.CrossRef American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Arlington, TX: APA.CrossRef
go back to reference Andersen, R. (1968). A behavioral model of families’ use of health services. Research Series No. 25. Chicago: Center for Health Administration Studies, University of Chicago. Andersen, R. (1968). A behavioral model of families’ use of health services. Research Series No. 25. Chicago: Center for Health Administration Studies, University of Chicago.
go back to reference Andersen, R. (1995). Revisiting the behavioral model and access to medical care: Does it matter? Journal of Health and Social Behaviour, 9, 1–15.CrossRef Andersen, R. (1995). Revisiting the behavioral model and access to medical care: Does it matter? Journal of Health and Social Behaviour, 9, 1–15.CrossRef
go back to reference Andersen, R., Davison, P., & Baumeister, S. (2011). Improving access to care. In R. Andersen, T. Rice & G. Kominski (Eds.), Changing the US health care system: Key issues in health services policy and management (pp. 33–69). San Francisco: Wiley. Andersen, R., Davison, P., & Baumeister, S. (2011). Improving access to care. In R. Andersen, T. Rice & G. Kominski (Eds.), Changing the US health care system: Key issues in health services policy and management (pp. 33–69). San Francisco: Wiley.
go back to reference Andersen, R., & Newman, J. (2005). Societal and individual determinants of medical care utilization in the United States. The Milbank Quarterly, 83(4), 1–28. Andersen, R., & Newman, J. (2005). Societal and individual determinants of medical care utilization in the United States. The Milbank Quarterly, 83(4), 1–28.
go back to reference Auckland Council. (2014). Auckland Profile: Initial results from the 2013 Census. Auckland: Social and Economic Research Team, Research, Investigations and Monitoring Unit. Auckland Council. (2014). Auckland Profile: Initial results from the 2013 Census. Auckland: Social and Economic Research Team, Research, Investigations and Monitoring Unit.
go back to reference Bevan-Brown, J., & Moldovanu, A. (2016). The role of culture in the perception, assessment, diagnosis, treatment and education of children and young people with autism spectrum disorder. In J. Bevan-Brown & V. Dharan (Eds.), Autism spectrum disorder in Aotearoa New Zealand: Promising practices and interesting issues (pp. 155–168). Wellington: NZCER Press. Bevan-Brown, J., & Moldovanu, A. (2016). The role of culture in the perception, assessment, diagnosis, treatment and education of children and young people with autism spectrum disorder. In J. Bevan-Brown & V. Dharan (Eds.), Autism spectrum disorder in Aotearoa New Zealand: Promising practices and interesting issues (pp. 155–168). Wellington: NZCER Press.
go back to reference Bevan-Brown, J., & Dharan, V. (Eds.) (2016). Autism spectrum disorder in Aotearoa New Zealand: promising practices & interesting issues (pp. 155-168). Wellington: NZCER Press. Bevan-Brown, J., & Dharan, V. (Eds.) (2016). Autism spectrum disorder in Aotearoa New Zealand: promising practices & interesting issues (pp. 155-168). Wellington: NZCER Press.
go back to reference Birkin, C., Anderson, A., Seymour, F., & Moore, D. (2008). A parent-focused early intervention program for autism: Who gets access? Journal of Intellectual and Developmental Disability, 33(2), 108–116.PubMedCrossRef Birkin, C., Anderson, A., Seymour, F., & Moore, D. (2008). A parent-focused early intervention program for autism: Who gets access? Journal of Intellectual and Developmental Disability, 33(2), 108–116.PubMedCrossRef
go back to reference Bromley, J., Hare, D., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism, 8(4), 409–423.PubMedCrossRef Bromley, J., Hare, D., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism, 8(4), 409–423.PubMedCrossRef
go back to reference Charman, T. (2008). Autism spectrum disorders. Psychiatry, 7(8), 331–334.CrossRef Charman, T. (2008). Autism spectrum disorders. Psychiatry, 7(8), 331–334.CrossRef
go back to reference Daley, T. (2004). From symptom recognition to diagnosis: Children with autism in urban India. Social Science and Medicine, 58(7), 1323–1335.PubMedCrossRef Daley, T. (2004). From symptom recognition to diagnosis: Children with autism in urban India. Social Science and Medicine, 58(7), 1323–1335.PubMedCrossRef
go back to reference Dyches, T., Wilder, L., Sudweeks, R., Obiakor, F., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disabilities, 34(2), 211–222.CrossRef Dyches, T., Wilder, L., Sudweeks, R., Obiakor, F., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disabilities, 34(2), 211–222.CrossRef
go back to reference Elsabbagh, M., Divan, G., Koh, Y., Kim, Y., Kauchali, S., Marcín, C., et al. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5(3), 160–179.PubMedPubMedCentralCrossRef Elsabbagh, M., Divan, G., Koh, Y., Kim, Y., Kauchali, S., Marcín, C., et al. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5(3), 160–179.PubMedPubMedCentralCrossRef
go back to reference Floyd, F., & Gallagher, E. (1997). Parental stress, care demands, and use of support services for school-age children with disabilities and behaviour problems. Family Relations, 46(4), 359–371.CrossRef Floyd, F., & Gallagher, E. (1997). Parental stress, care demands, and use of support services for school-age children with disabilities and behaviour problems. Family Relations, 46(4), 359–371.CrossRef
go back to reference Fung, F., & Roseberry-McKibbin, C. (1999). Service delivery considerations in working with clients from Cantonese-speaking backgrounds. American Journal of Speech–Language Pathology, 8(4), 309–318.CrossRef Fung, F., & Roseberry-McKibbin, C. (1999). Service delivery considerations in working with clients from Cantonese-speaking backgrounds. American Journal of Speech–Language Pathology, 8(4), 309–318.CrossRef
go back to reference Khanlou, N., Haque, N., Sheehan, S., & Jones, G. (2015). “It is an issue of not knowing where to go”: Service providers’ perspectives on challenges in accessing social support and services by immigrant mothers of children with disabilities. Journal of Immigrant and Minority Health, 17(6), 1840–1847.PubMedCrossRef Khanlou, N., Haque, N., Sheehan, S., & Jones, G. (2015). “It is an issue of not knowing where to go”: Service providers’ perspectives on challenges in accessing social support and services by immigrant mothers of children with disabilities. Journal of Immigrant and Minority Health, 17(6), 1840–1847.PubMedCrossRef
go back to reference Kim, W., & Keefe, R. (2010). Barriers to healthcare among Asian Americans. Social Work in Public Health, 25(3–4), 286–295.PubMedCrossRef Kim, W., & Keefe, R. (2010). Barriers to healthcare among Asian Americans. Social Work in Public Health, 25(3–4), 286–295.PubMedCrossRef
go back to reference Kim, Y., Leventhal, B., Koh, Y., Fombonne, E., Laska, E., Lim, E., et al. (2011). Prevalence of autism spectrum disorders in a total population sample. American Journal of Psychiatry, 168(9), 904–912.PubMedCrossRef Kim, Y., Leventhal, B., Koh, Y., Fombonne, E., Laska, E., Lim, E., et al. (2011). Prevalence of autism spectrum disorders in a total population sample. American Journal of Psychiatry, 168(9), 904–912.PubMedCrossRef
go back to reference Kogan, M., Strickland, B., Blumberg, S., Singh, G., Perrin, J., & van Dyck, P. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States 2005–2006. Pediatrics, 122(6), e1149–e1158.PubMedCrossRef Kogan, M., Strickland, B., Blumberg, S., Singh, G., Perrin, J., & van Dyck, P. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States 2005–2006. Pediatrics, 122(6), e1149–e1158.PubMedCrossRef
go back to reference Kohler, F. (1999). Examining the services received by young children with autism and their families a survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14(3), 150–158.CrossRef Kohler, F. (1999). Examining the services received by young children with autism and their families a survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14(3), 150–158.CrossRef
go back to reference Kramer, E., Kwong, K., Lee, E., & Chung, H. (2002). Cultural factors influencing the mental health of Asian Americans. Western Journal of Medicine, 176(4), 227–234.PubMedPubMedCentral Kramer, E., Kwong, K., Lee, E., & Chung, H. (2002). Cultural factors influencing the mental health of Asian Americans. Western Journal of Medicine, 176(4), 227–234.PubMedPubMedCentral
go back to reference Lam, C., Tsang, H., Corrigan, P., & Lee, Y. (2010). Chinese lay theory and mental illness stigma: Implications for research practices. Journal of Rehabilitation, 76(1), 35–40. Lam, C., Tsang, H., Corrigan, P., & Lee, Y. (2010). Chinese lay theory and mental illness stigma: Implications for research practices. Journal of Rehabilitation, 76(1), 35–40.
go back to reference Lam, J. (2013). The experience of Asian American mothers raising children with autistic disorder. Doctoral Dissertation, John F. Kennedy University. Lam, J. (2013). The experience of Asian American mothers raising children with autistic disorder. Doctoral Dissertation, John F. Kennedy University.
go back to reference Lang, R., Sigafoos, J., van der Meer, L., O’Reilly, M., Lancioni, G., & Didden, R. (2013). Early signs and early behavioral intervention of challenging behavior. In R. Hastings & J. Rojahn (Eds.), Challenging behavior. International review of research in developmental disability (Vol (44, pp. 1–35). London: Elsevier. Lang, R., Sigafoos, J., van der Meer, L., O’Reilly, M., Lancioni, G., & Didden, R. (2013). Early signs and early behavioral intervention of challenging behavior. In R. Hastings & J. Rojahn (Eds.), Challenging behavior. International review of research in developmental disability (Vol (44, pp. 1–35). London: Elsevier.
go back to reference Lauritsen, M. (2013). Autism spectrum disorders. European Child and Adolescent Psychiatry, 22, 37.CrossRef Lauritsen, M. (2013). Autism spectrum disorders. European Child and Adolescent Psychiatry, 22, 37.CrossRef
go back to reference Lord, C., Cook, E. H., Leventhal, B. L., & Amaral, D. G. (2000). Autism spectrum disorders. Neuron, 28(2), 355–363.PubMedCrossRef Lord, C., Cook, E. H., Leventhal, B. L., & Amaral, D. G. (2000). Autism spectrum disorders. Neuron, 28(2), 355–363.PubMedCrossRef
go back to reference Manning-Courtney, P., Murray, D., Currans, K., Johnson, H., Bing, N., Kroeger-Geoppinger, K., et al. (2013). Autism spectrum disorders. Current Problems in Pediatric and Adolescent Health Care, 43(1), 2–11.PubMedCrossRef Manning-Courtney, P., Murray, D., Currans, K., Johnson, H., Bing, N., Kroeger-Geoppinger, K., et al. (2013). Autism spectrum disorders. Current Problems in Pediatric and Adolescent Health Care, 43(1), 2–11.PubMedCrossRef
go back to reference Matson, J., Matheis, M., Burns, C., Esposito, G., Venuti, P., et al. (2017). Examining cross-cultural differences in autism spectrum disorder: A multinational comparison from Greece, Italy, Japan, Poland, and the United States. European Psychiatry, 42, 70–76.PubMedCrossRef Matson, J., Matheis, M., Burns, C., Esposito, G., Venuti, P., et al. (2017). Examining cross-cultural differences in autism spectrum disorder: A multinational comparison from Greece, Italy, Japan, Poland, and the United States. European Psychiatry, 42, 70–76.PubMedCrossRef
go back to reference Matson, J., Worley, J., Fodstad, J., Chung, K., Suh, D., Jhin, H., et al. (2011). A multinational study examining the cross cultural differences in reported symptoms of autism spectrum disorders: Israel, South Korea, the United Kingdom, and the United States of America. Research in Autism Spectrum Disorders, 5(4), 1598–1604.CrossRef Matson, J., Worley, J., Fodstad, J., Chung, K., Suh, D., Jhin, H., et al. (2011). A multinational study examining the cross cultural differences in reported symptoms of autism spectrum disorders: Israel, South Korea, the United Kingdom, and the United States of America. Research in Autism Spectrum Disorders, 5(4), 1598–1604.CrossRef
go back to reference Ministries of Health and Education. (2016). New Zealand autism spectrum disorder guideline. Wellington: Authors. Ministries of Health and Education. (2016). New Zealand autism spectrum disorder guideline. Wellington: Authors.
go back to reference Ministry of Health. (2015). Demographic information of clients using the Ministry of Health’s disability support services as at September 2013. Wellington: Author. Ministry of Health. (2015). Demographic information of clients using the Ministry of Health’s disability support services as at September 2013. Wellington: Author.
go back to reference Ministry of Health. (2016b). Socrates Database on ASD people who are registered with MOH DSS in the Auckland region as at September 2016. Wellington: Taikura Trust. Ministry of Health. (2016b). Socrates Database on ASD people who are registered with MOH DSS in the Auckland region as at September 2016. Wellington: Taikura Trust.
go back to reference Morrier, M., Hess, K., & Heflin, J. (2008). Ethnic disproportionality in students with autism spectrum disorders. Multicultural Education, 16(1), 31–38. Morrier, M., Hess, K., & Heflin, J. (2008). Ethnic disproportionality in students with autism spectrum disorders. Multicultural Education, 16(1), 31–38.
go back to reference Myers, S., & Johnson, C. (2007). Management of children with autism spectrum disorders. Pediatrics, 120(5), 1162–1182.PubMedCrossRef Myers, S., & Johnson, C. (2007). Management of children with autism spectrum disorders. Pediatrics, 120(5), 1162–1182.PubMedCrossRef
go back to reference New Zealand Guidelines Group. (2010). What does ASD look like? A resource to help identify autism spectrum disorder. Wellington: New Zealand Guidelines Group. New Zealand Guidelines Group. (2010). What does ASD look like? A resource to help identify autism spectrum disorder. Wellington: New Zealand Guidelines Group.
go back to reference Ravindran, N., & Myers, B. J. (2012). Cultural influences on perceptions of health, illness, and disability: A review and focus on autism. Journal of Child and Family Studies, 21(2), 311–319.CrossRef Ravindran, N., & Myers, B. J. (2012). Cultural influences on perceptions of health, illness, and disability: A review and focus on autism. Journal of Child and Family Studies, 21(2), 311–319.CrossRef
go back to reference Rebhan, D. (2011). Health Care Utilization: Understanding and applying theories and models of health care seeking behavior (pp. 1–19). Cleveland, OH: Case Western Reserve University. Rebhan, D. (2011). Health Care Utilization: Understanding and applying theories and models of health care seeking behavior (pp. 1–19). Cleveland, OH: Case Western Reserve University.
go back to reference Reilly, O., & Wicks, K. (2016). The complete autism handbook: The essential resource guide for autism spectrum disorder in Australia and New Zealand. Sydney: Ventura Press. Reilly, O., & Wicks, K. (2016). The complete autism handbook: The essential resource guide for autism spectrum disorder in Australia and New Zealand. Sydney: Ventura Press.
go back to reference Rice, C., Rosanoff, M., Dawson, G., Durkin, M., Croen, L., Singer, A., & Yeargin-Allsop, M. (2012). Evaluating changes in the prevalence of Autism Spectrum Disorders. Public Health Reviews, 34(17), 1–22.PubMedPubMedCentral Rice, C., Rosanoff, M., Dawson, G., Durkin, M., Croen, L., Singer, A., & Yeargin-Allsop, M. (2012). Evaluating changes in the prevalence of Autism Spectrum Disorders. Public Health Reviews, 34(17), 1–22.PubMedPubMedCentral
go back to reference Shea, M., & Yeh, C. (2008). Asian American students’ cultural values, stigma, and relational self-construal: Correlates of attitudes towards professional help seeking. Journal of Mental Health Counseling, 30(2), 157–173.CrossRef Shea, M., & Yeh, C. (2008). Asian American students’ cultural values, stigma, and relational self-construal: Correlates of attitudes towards professional help seeking. Journal of Mental Health Counseling, 30(2), 157–173.CrossRef
go back to reference Sun, X., & Allison, C. (2010). A review of the prevalence of autism spectrum disorder in Asia. Research in Autism Spectrum Disorders, 4(2), 156–167.CrossRef Sun, X., & Allison, C. (2010). A review of the prevalence of autism spectrum disorder in Asia. Research in Autism Spectrum Disorders, 4(2), 156–167.CrossRef
go back to reference Taylor, B., Jick, H., & McLaughlin, D. (2013). Prevalence and incidence rates of autism in the UK: Time trend from 2004 to 2010 in children aged 8 years. British Medical Journal Open, 3, 1–6. Taylor, B., Jick, H., & McLaughlin, D. (2013). Prevalence and incidence rates of autism in the UK: Time trend from 2004 to 2010 in children aged 8 years. British Medical Journal Open, 3, 1–6.
go back to reference Thomas, K., Morrissey, J., & McLaurin, C. (2007). Use of autism-related services by families and children. Journal of Autism and Developmental Disorders, 37(5), 818–829.PubMedCrossRef Thomas, K., Morrissey, J., & McLaurin, C. (2007). Use of autism-related services by families and children. Journal of Autism and Developmental Disorders, 37(5), 818–829.PubMedCrossRef
go back to reference Waldman, B., Wong, A., Perlman, S., & Garey, M. (2016). Asian children with autism and other disability in Asian and the US. Exceptional Parent, 46(2), 14–16. Waldman, B., Wong, A., Perlman, S., & Garey, M. (2016). Asian children with autism and other disability in Asian and the US. Exceptional Parent, 46(2), 14–16.
go back to reference Welterlin, A., & LaRue, R. (2007). Serving the needs of immigrant families of children with autism. Disability and Society, 22(7), 747–760.CrossRef Welterlin, A., & LaRue, R. (2007). Serving the needs of immigrant families of children with autism. Disability and Society, 22(7), 747–760.CrossRef
go back to reference Wieder, S., & Foley, G. M. (2018). The DIR (developmental, individual difference, relationship-based) model; a parent-mediated approach to interdisciplinary assessment and comprehensive intervention. In E. Hollander, R. Hagerman & D. Fein (Eds.), Autism spectrum disorder (pp. 231–252). Washington, DC: American Psychiatric Association Press. Wieder, S., & Foley, G. M. (2018). The DIR (developmental, individual difference, relationship-based) model; a parent-mediated approach to interdisciplinary assessment and comprehensive intervention. In E. Hollander, R. Hagerman & D. Fein (Eds.), Autism spectrum disorder (pp. 231–252). Washington, DC: American Psychiatric Association Press.
go back to reference Zhang, J., Wheeler, J., & Richey, D. (2006). Cultural validity in assessment instruments for children with autism from a Chinese cultural perspective. International Journal of Special Education, 21(1), 109–114. Zhang, J., Wheeler, J., & Richey, D. (2006). Cultural validity in assessment instruments for children with autism from a Chinese cultural perspective. International Journal of Special Education, 21(1), 109–114.
Metagegevens
Titel
A Study of Asian Children Who are Diagnosed with Autism Spectrum Disorder and Available Support Services in Auckland, New Zealand
Auteurs
Myint Htut
Elsie Ho
Janine Wiles
Publicatiedatum
28-02-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-019-03936-y

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