Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften E-learning Web-tv Video Audio
Tips voor Mijn BSL
UITGEBREID ZOEKEN
Inloggen
Top
Journal of Autism and Developmental Disorders
Gepubliceerd in: Journal of Autism and Developmental Disorders 6/2020

28-02-2019 | Original Paper

A Study of Asian Children Who are Diagnosed with Autism Spectrum Disorder and Available Support Services in Auckland, New Zealand

Auteurs: Myint Htut, Elsie Ho, Janine Wiles

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2020

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

This study reviews the demographic characteristics of Asian children diagnosed with autism spectrum disorder (ASD) in Auckland, New Zealand, the support services they can access, and how more equitable access to health services can be provided. We examined government and non-government support services for Asian children diagnosed with ASD and their families. The findings reflect the complexities of navigating and accessing health, disability, education and social support services. Analysis of Ministry of Health Disability Support Services (DSSs) data suggest that Asians in New Zealand are underrepresented in utilizing DSSs. Drawing on Andersen’s health care utilization model, suggestions for more equitable access to health, disability, education and social support include culturally and linguistically appropriate health care and social policies.
volgende artikel Barriers to and Facilitators of Successful Early School Transitions for Children with Autism Spectrum Disorders and Other Developmental Disabilities: A Systematic Review
Literatuur
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Arlington, TX: APA.CrossRef
Andersen, R. (1968). A behavioral model of families’ use of health services. Research Series No. 25. Chicago: Center for Health Administration Studies, University of Chicago.
Andersen, R. (1995). Revisiting the behavioral model and access to medical care: Does it matter? Journal of Health and Social Behaviour, 9, 1–15.CrossRef
Andersen, R., Davison, P., & Baumeister, S. (2011). Improving access to care. In R. Andersen, T. Rice & G. Kominski (Eds.), Changing the US health care system: Key issues in health services policy and management (pp. 33–69). San Francisco: Wiley.
Andersen, R., & Newman, J. (2005). Societal and individual determinants of medical care utilization in the United States. The Milbank Quarterly, 83(4), 1–28.
Auckland Council. (2014). Auckland Profile: Initial results from the 2013 Census. Auckland: Social and Economic Research Team, Research, Investigations and Monitoring Unit.
Bevan-Brown, J., & Moldovanu, A. (2016). The role of culture in the perception, assessment, diagnosis, treatment and education of children and young people with autism spectrum disorder. In J. Bevan-Brown & V. Dharan (Eds.), Autism spectrum disorder in Aotearoa New Zealand: Promising practices and interesting issues (pp. 155–168). Wellington: NZCER Press.
Bevan-Brown, J., & Dharan, V. (Eds.) (2016). Autism spectrum disorder in Aotearoa New Zealand: promising practices & interesting issues (pp. 155-168). Wellington: NZCER Press.
Birkin, C., Anderson, A., Seymour, F., & Moore, D. (2008). A parent-focused early intervention program for autism: Who gets access? Journal of Intellectual and Developmental Disability, 33(2), 108–116.PubMedCrossRef
Bromley, J., Hare, D., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism, 8(4), 409–423.PubMedCrossRef
Charman, T. (2008). Autism spectrum disorders. Psychiatry, 7(8), 331–334.CrossRef
Daley, T. (2004). From symptom recognition to diagnosis: Children with autism in urban India. Social Science and Medicine, 58(7), 1323–1335.PubMedCrossRef
Dyches, T., Wilder, L., Sudweeks, R., Obiakor, F., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disabilities, 34(2), 211–222.CrossRef
Elsabbagh, M., Divan, G., Koh, Y., Kim, Y., Kauchali, S., Marcín, C., et al. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5(3), 160–179.PubMedPubMedCentralCrossRef
Floyd, F., & Gallagher, E. (1997). Parental stress, care demands, and use of support services for school-age children with disabilities and behaviour problems. Family Relations, 46(4), 359–371.CrossRef
Fung, F., & Roseberry-McKibbin, C. (1999). Service delivery considerations in working with clients from Cantonese-speaking backgrounds. American Journal of Speech–Language Pathology, 8(4), 309–318.CrossRef
Khanlou, N., Haque, N., Sheehan, S., & Jones, G. (2015). “It is an issue of not knowing where to go”: Service providers’ perspectives on challenges in accessing social support and services by immigrant mothers of children with disabilities. Journal of Immigrant and Minority Health, 17(6), 1840–1847.PubMedCrossRef
Kim, W., & Keefe, R. (2010). Barriers to healthcare among Asian Americans. Social Work in Public Health, 25(3–4), 286–295.PubMedCrossRef
Kim, Y., Leventhal, B., Koh, Y., Fombonne, E., Laska, E., Lim, E., et al. (2011). Prevalence of autism spectrum disorders in a total population sample. American Journal of Psychiatry, 168(9), 904–912.PubMedCrossRef
Kogan, M., Strickland, B., Blumberg, S., Singh, G., Perrin, J., & van Dyck, P. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States 2005–2006. Pediatrics, 122(6), e1149–e1158.PubMedCrossRef
Kohler, F. (1999). Examining the services received by young children with autism and their families a survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14(3), 150–158.CrossRef
Kramer, E., Kwong, K., Lee, E., & Chung, H. (2002). Cultural factors influencing the mental health of Asian Americans. Western Journal of Medicine, 176(4), 227–234.PubMedPubMedCentral
Lam, C., Tsang, H., Corrigan, P., & Lee, Y. (2010). Chinese lay theory and mental illness stigma: Implications for research practices. Journal of Rehabilitation, 76(1), 35–40.
Lam, J. (2013). The experience of Asian American mothers raising children with autistic disorder. Doctoral Dissertation, John F. Kennedy University.
Lang, R., Sigafoos, J., van der Meer, L., O’Reilly, M., Lancioni, G., & Didden, R. (2013). Early signs and early behavioral intervention of challenging behavior. In R. Hastings & J. Rojahn (Eds.), Challenging behavior. International review of research in developmental disability (Vol (44, pp. 1–35). London: Elsevier.
Lauritsen, M. (2013). Autism spectrum disorders. European Child and Adolescent Psychiatry, 22, 37.CrossRef
Lord, C., Cook, E. H., Leventhal, B. L., & Amaral, D. G. (2000). Autism spectrum disorders. Neuron, 28(2), 355–363.PubMedCrossRef
Manning-Courtney, P., Murray, D., Currans, K., Johnson, H., Bing, N., Kroeger-Geoppinger, K., et al. (2013). Autism spectrum disorders. Current Problems in Pediatric and Adolescent Health Care, 43(1), 2–11.PubMedCrossRef
Matson, J., Matheis, M., Burns, C., Esposito, G., Venuti, P., et al. (2017). Examining cross-cultural differences in autism spectrum disorder: A multinational comparison from Greece, Italy, Japan, Poland, and the United States. European Psychiatry, 42, 70–76.PubMedCrossRef
Matson, J., Worley, J., Fodstad, J., Chung, K., Suh, D., Jhin, H., et al. (2011). A multinational study examining the cross cultural differences in reported symptoms of autism spectrum disorders: Israel, South Korea, the United Kingdom, and the United States of America. Research in Autism Spectrum Disorders, 5(4), 1598–1604.CrossRef
Ministries of Health and Education. (2016). New Zealand autism spectrum disorder guideline. Wellington: Authors.
Ministry of Health. (2015). Demographic information of clients using the Ministry of Health’s disability support services as at September 2013. Wellington: Author.
Ministry of Health. (2016b). Socrates Database on ASD people who are registered with MOH DSS in the Auckland region as at September 2016. Wellington: Taikura Trust.
Morrier, M., Hess, K., & Heflin, J. (2008). Ethnic disproportionality in students with autism spectrum disorders. Multicultural Education, 16(1), 31–38.
Myers, S., & Johnson, C. (2007). Management of children with autism spectrum disorders. Pediatrics, 120(5), 1162–1182.PubMedCrossRef
New Zealand Guidelines Group. (2010). What does ASD look like? A resource to help identify autism spectrum disorder. Wellington: New Zealand Guidelines Group.
Ravindran, N., & Myers, B. J. (2012). Cultural influences on perceptions of health, illness, and disability: A review and focus on autism. Journal of Child and Family Studies, 21(2), 311–319.CrossRef
Rebhan, D. (2011). Health Care Utilization: Understanding and applying theories and models of health care seeking behavior (pp. 1–19). Cleveland, OH: Case Western Reserve University.
Reilly, O., & Wicks, K. (2016). The complete autism handbook: The essential resource guide for autism spectrum disorder in Australia and New Zealand. Sydney: Ventura Press.
Rice, C., Rosanoff, M., Dawson, G., Durkin, M., Croen, L., Singer, A., & Yeargin-Allsop, M. (2012). Evaluating changes in the prevalence of Autism Spectrum Disorders. Public Health Reviews, 34(17), 1–22.PubMedPubMedCentral
Shea, M., & Yeh, C. (2008). Asian American students’ cultural values, stigma, and relational self-construal: Correlates of attitudes towards professional help seeking. Journal of Mental Health Counseling, 30(2), 157–173.CrossRef
Sun, X., & Allison, C. (2010). A review of the prevalence of autism spectrum disorder in Asia. Research in Autism Spectrum Disorders, 4(2), 156–167.CrossRef
Taylor, B., Jick, H., & McLaughlin, D. (2013). Prevalence and incidence rates of autism in the UK: Time trend from 2004 to 2010 in children aged 8 years. British Medical Journal Open, 3, 1–6.
Thomas, K., Morrissey, J., & McLaurin, C. (2007). Use of autism-related services by families and children. Journal of Autism and Developmental Disorders, 37(5), 818–829.PubMedCrossRef
Waldman, B., Wong, A., Perlman, S., & Garey, M. (2016). Asian children with autism and other disability in Asian and the US. Exceptional Parent, 46(2), 14–16.
Welterlin, A., & LaRue, R. (2007). Serving the needs of immigrant families of children with autism. Disability and Society, 22(7), 747–760.CrossRef
Wieder, S., & Foley, G. M. (2018). The DIR (developmental, individual difference, relationship-based) model; a parent-mediated approach to interdisciplinary assessment and comprehensive intervention. In E. Hollander, R. Hagerman & D. Fein (Eds.), Autism spectrum disorder (pp. 231–252). Washington, DC: American Psychiatric Association Press.
Zhang, J., Wheeler, J., & Richey, D. (2006). Cultural validity in assessment instruments for children with autism from a Chinese cultural perspective. International Journal of Special Education, 21(1), 109–114.
Metagegevens
Titel
A Study of Asian Children Who are Diagnosed with Autism Spectrum Disorder and Available Support Services in Auckland, New Zealand
Auteurs
Myint Htut
Elsie Ho
Janine Wiles
Publicatiedatum
28-02-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-019-03936-y

Andere artikelen Uitgave 6/2020

Journal of Autism and Developmental Disorders 6/2020 Naar de uitgave

OriginalPaper

The UCLA PEERS School-Based Program: Treatment Outcomes for Improving Social Functioning in Adolescents and Young Adults with Autism Spectrum Disorder and Those with Cognitive Deficits

OriginalPaper

Effects of Cognitive Behavioral Therapy for Reducing Anxiety in Children with High Functioning ASD: A Systematic Review and Meta-Analysis

Original Paper

Comparing Rates of Diagnosis Using DSM-IV-TR Versus DSM-5 Criteria for Autism Spectrum Disorder

Original Paper

Blindness and Autism: Parents’ Perspectives on Diagnostic Challenges, Support Needs and Support Provision

OriginalPaper

Needs of Grandparents of Preschool-Aged Children with ASD in Sweden

Original Paper

Visual Disengagement: Genetic Architecture and Relation to Autistic Traits in the General Population