Swipe om te navigeren naar een ander artikel
This prospective case–cohort study compared subjective well-being (SWB) among mothers whose children had various degrees of congenital heart defects (CHD) with mothers of children without CHD (controls).
Nationwide CHD registry data were linked to data collected from the Norwegian Mother and Child Cohort Study at gestational week 30, 6 months, and 36 months postpartum. A total of 175 mothers of children with mild, moderate, and severe CHD were identified in a cohort of 44,144 mothers. The SWB index was operationalized by means of three subscales: a cognitive aspect, positive affect, and negative affect.
Mothers of children with severe CHD reported significantly lower SWB than the controls at 6 months postpartum (p = .003), with further decrease in SWB at 36 months postpartum (p = .001). SWB levels in the mild and moderate CHD group did not deviate significantly from controls.
The findings suggest a pattern in which all stressors concerning the severely ill child lead to significant deterioration of maternal well-being. Having a child with mild or moderate CHD, which is a less severe and shorter-term stressor, did not reduce mothers’ well-being.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Boneva, R. S., Botto, L. D., Moore, C. A., Yang, Q., Correa, A., & Erickson, J. D. (2001). Mortality associated with congenital heart defects in the United States: trends and racial disparities, 1979–1997. Circulation, 2001(103), 2376–2381. CrossRef
Hoffman, J. I. E., & Kaplan, S. (2000). The incidence of congenital heart disease. Journal of the American College of Cardiology, 39, 1890–1900. CrossRef
Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2007). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care Health and Development, 33, 180–187. CrossRef
Diener, E. (2009). Subjective Well-Being. In E. Diener (Ed.), The science of well-being (pp. 11–58). Netherlands: Springer. CrossRef
Diener, E. (1994). Assessing subjective well-being: Progress and opportunities. Social Indicators Research, 31, 103–157. CrossRef
Diener, E., Suh, E. M., Lucas, R. E., & Smith, H. L. (1999). Subjective well-being: Three decades of progress. Psychological Bulletin, 125, 276–302. CrossRef
Diener, E., & Suh, E. (1997). Measuring quality of life: Economic, social, and subjective indicators. Social Indicators Research, 40, 189–216. CrossRef
Røysamb, E. (2006). Personality and well-being. In M. E. Vollrath (Ed.), Handbook of personality and health (pp. 115–134). New York: Wiley. CrossRef
Korkelia, J. (2000). Measuring aspects of mental health. National Research and Development Centre for Welfare and Health (Stakes): Helsinki.
Pavot, W., & Diener, E. (1993). Review of the satisfaction with life scale. Psychological Assessment, 5, 164–172. CrossRef
Dempster, A. P., Laird, N. M., & Rubin, D. B. (1977). Maximum likelihood from incomplete data via the EM algorithm. Journal of the Royal Statistical Society: Series B, 39, 1–38.
Tabachnick B. G., & Fidell, L. S. (2007). Using multivariate statistics. (5 ed.). Boston, MA: Pearson/Allyn and Bacon.
Brandlistuen, R. E., Stene-Larsen, K., Holmstrøm, H., Landolt, M. A., Eskedal, L. T., & Vollrath, M. E. (2011). Symptoms of communication and social impairment in toddlers with congenital heart defects. Child: Care Health and Development, 37, 37–43. CrossRef
Clemente, C., Barnes, J., Shinebourne, E., & Stein, A. (2001). Are infant behavioural feeding difficulties associated with congenital heart disease? Child: Care Health and Development, 27, 47–59. CrossRef
Stene-Larsen, K., Brandlistuen, R. E., Holmstrøm, H., Landolt, M. A., Eskedal, L. T., Engdahl, B., et al. (2011). Longitudinal analysis of emotional problems in children with congenital heart defects: A follow-up from age 6 to 36 months. Journal of Developmental and Behavioral Pediatrics, 32, 461–464. PubMedCrossRef
Tandberg, B. S., Ystrøm, E., Vollrath, M. E., & Holmstrøm, H. (2010). Feeding infants with CHD with breast milk: Norwegian mother and child cohort study. Acta Paediatrica, 2010(99), 373–378. CrossRef
Leiter, V., Krauss, M. W., Anderson, B., & Wells, N. (2004). The consequences of caring—Effects of mothering a child with special needs. Journal of Family Issues, 25, 379–403. CrossRef
Uzark, K., & Jones, K. (2003). Parenting stress and children with heart disease. Journal of Pediatric Health Care, 17, 163–168. PubMed
Hobbs, D. F. (1968). Transition to parenthood: A replication and an extension. Journal of Marriage and Family, 30, 413–417. CrossRef
Mclanahan, S., & Adams, J. (1987). Parenthood and psychological well-being. Annual Review of Sociology, 13, 237–257. CrossRef
Antonovsky, A. (1987). Unraveling the mystery of health—How people manage stress and stay well. London: Jossey-Bass.
Spijkerboer, A. W., Helbing, W. A., Bogers, A. J. J. C., Van Domburg, R. T., Verhulst, F. C., & Utens, E. M. W. J. (2007). Long-term psychological distress, and styles of coping, in parents of children and adolescents who underwent invasive treatment for congenital cardiac disease. Cardiology in the Young, 17, 638–645. PubMedCrossRef
Huppert, F., Marks, N., Clark, A., Siegrist, J., Stutzer, A., Vittersø, J., et al. (2009). Measuring well-being across Europe: Description of the ESS well-being module and preliminary findings. Social Indicators Research, 91, 301–315. CrossRef
- Well-being in mothers of children with congenital heart defects: a 3-year follow-up
Maria T. Grønning Dale
Markus A. Landolt
Leif T. Eskedal
Margarete E. Vollrath
- Springer Netherlands