Swipe om te navigeren naar een ander artikel
The aim of this study was to assess the experiences of patients with chronic obstructive pulmonary disease (COPD) while they were completing the St. George’s Respiratory Questionnaire for COPD patients (SGRQ-C), using qualitative research methods.
Twenty Dutch COPD patients were recruited through pulmonary physicians [13 women; mean age = 63.3 years (SD = 11.4)]. A trained interviewer applied the Three-Step Test Interview which allowed the interviewer to follow the thought process of the patient filling out the SGRQ-C. The official Dutch translation of the SGRQ-C was used.
Patients missed a recall period for the Symptoms subscale; were uncertain how to interpret specific words and phrases like “good days”, “games”, and “housework”; were confused by long-item stems that included a list of activities; and were frustrated by the dichotomous format used for the majority of SGRQ-C items (true/false).
Overall, patients were satisfied with the SGRQ-C. Nevertheless, making minor adjustments could further increase its quality. This includes reintroducing a recall period in the first set of items such as used in the previous version and splitting up items consisting of multiple activities. Furthermore, we recommend using the same response format (4 or 5 response categories) for all items.
Kruyen, P. M., Emons, W. H. M., & Sijtsma, K. (2013). Assessing individual change using short tests and questionnaires. Applied Psychological Measurement,. doi: 10.1177/0146621613510061.
Hak, T., Van der Veer, K., & Jansen, H. A. M. (2008). The Three-Step Test-Interview (TSTI): An observation-based method for pretesting self-completion questionnaires. Survey Research Methods, 2, 143–150.
Hak, T., van der Veer, K., & Ommundsen, R. (2006). An application of the Three-Step Test-Interview (TSTI): A validation study of the Dutch and Norwegian versions of the ‘illegal aliens scale’. International Journal of Social Research Methodology, 9(3), 215–227. doi: 10.1080/13645570600656264. CrossRef
Willis, G. B. (2005). Cognitive interviewing: A tool for improving questionnaire design. Thousand Oaks, CA: Sage Publications.
Bode, C., & Jansen, H. (2013). Examining the personal experience of aging scale with the Three Step Test Interview. Methodology, 9(3), 96–103. CrossRef
Karpinski, N. (2005). Validierung von Lebensqualitäts-Assessments bei chronisch–obstruktiven Atemwegserkrankungen [Validation of Quality of Life-Assessments in patients with Chronic Obstructive Pulmonary Disease]. Bremen: University of Bremen.
Fayers, P. M., & Machin, D. (2007). Quality of life: The assessment, analysis and interpretation of patient-reported outcomes (2nd ed.). Chichester: Wiley.
Pool, J. J., Hiralal, S. R., Ostelo, R. W., van der Veer, K., & de Vet, H. C. (2010). Added value of qualitative studies in the development of health related patient reported outcomes such as the Pain Coping and Cognition List in patients with sub-acute neck pain. Manual Therapy, 15(1), 43–47. doi: 10.1016/j.math.2009.05.010. CrossRefPubMed
Embretson, S. E., & Reise, S. (2000). Item response theory for psychologists. Mahwah, NJ: Erlbaum.
Ten Klooster, P. M., Voshaar, M. A. O., Gandek, B., Rose, M., Bjorner, J. B., Taal, E., et al. (2013). Development and evaluation of a crosswalk between the SF-36 physical functioning scale and Health Assessment Questionnaire disability index in rheumatoid arthritis. Health and Quality of Life Outcomes, 11, 199. doi: 10.1186/1477-7525-11-199. CrossRefPubMedPubMedCentral
Voshaar, M. A. O., Ten Klooster, P. M., Taal, E., Wolfe, F., Vonkeman, H., Glas, C. A., et al. (2014). Linking physical function outcomes in rheumatology: Performance of a crosswalk for converting Health Assessment Questionnaire scores to Short Form 36 physical functioning scale scores. Arthritis Care and Research (Hoboken), 66(11), 1754–1758. doi: 10.1002/acr.22357. CrossRef
Van der Linden, W. J., & Glas, C. A. W. (Eds.). (2000). Computerized adaptive testing: Theory and practice. Dordrecht: Kluwer Academic Publishers.
Paap, M. C. S., Bode, C., Lenferink, L. I. M., Groen, L. C., Terwee, C. B., Ahmed, S., et al. (2014). Identifying key domains of health-related quality of life for patients with chronic obstructive pulmonary disease: The patient perspective. Health and Quality of Life Outcomes, 12(1), 106. doi: 10.1186/s12955-014-0106-3. CrossRefPubMedPubMedCentral
Cella, D. F., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., et al. (2010). The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. Journal of Clinical Epidemiology, 63(11), 1179–1194. doi: 10.1016/j.jclinepi.2010.04.011. CrossRefPubMedPubMedCentral
Gaskell, G. (2000). Individual and group interviewing. In M. W. Bauer, & G. Gaskell (Eds.), Qualitative researching with text, image and sound. (pp. 39–57). London: SAGE Publications Ltd.
Jones, P. W. (2005). St George’s Respiratory Questionnaire for COPD patients (SGRQ-C): Manual. London: St George’s University of London.
- Using the Three-Step Test Interview to understand how patients perceive the St. George’s Respiratory Questionnaire for COPD patients (SGRQ-C)
Muirne C. S. Paap
Job van der Palen
- Springer International Publishing