Skip to main content
Top
Gepubliceerd in:

30-09-2022 | Original Paper

The Relation of Parental Expressed Emotion, Parental Affiliate Stigma, and Typically-developing Sibling Internalizing Behavior in Families with a Child with ASD

Auteurs: Aurora H. Brinkman, Tammy D. Barry, Rebecca A. Lindsey

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2023

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Caregivers of children with autism spectrum disorder (ASD) experience greater stress, expressed emotion (EE), and affiliate stigma than caregivers of children without ASD. Siblings of children with ASD often experience greater negative functioning than siblings of individuals without ASD. The current study found significant interrelations among symptom severity and externalizing behavior in children with ASD; parental stress, affiliate stigma, and EE; and TD sibling internalizing behavior. In addition, certain subcomponents of affiliate stigma predicted unique variance in EE and TD sibling internalizing behavior. Findings may increase understanding of psychosocial functioning in families with children with ASD and allow clinicians to improve outcomes for all family members. Limitations of the study included self-report data, limited sample diversity, and a cross-sectional design.
Literatuur
go back to reference Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109(3), 237–254PubMedCrossRef Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109(3), 237–254PubMedCrossRef
go back to reference Aubé, B., Follenfant, A., Goudeau, S., & Derguy, C. (2021). Public stigma of autism spectrum disorder at school: Implicit attitudes matter. Journal of Autism and Developmental Disorders, 51(5), 1584–1597PubMedCrossRef Aubé, B., Follenfant, A., Goudeau, S., & Derguy, C. (2021). Public stigma of autism spectrum disorder at school: Implicit attitudes matter. Journal of Autism and Developmental Disorders, 51(5), 1584–1597PubMedCrossRef
go back to reference Arzeen, N., Irshad, E., Arzeen, S., & Shah, S. M. (2020). Stress, depression, anxiety, and coping strategies of parents of intellectually disabled and non-disabled children. Journal of Medical Sciences, 28(4), 380–383CrossRef Arzeen, N., Irshad, E., Arzeen, S., & Shah, S. M. (2020). Stress, depression, anxiety, and coping strategies of parents of intellectually disabled and non-disabled children. Journal of Medical Sciences, 28(4), 380–383CrossRef
go back to reference Bader, S. H., & Barry, T. D. (2014). A longitudinal examination of the relation between parental expressed emotion and externalizing behaviors in children and adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(11), 2820–2831PubMedCrossRef Bader, S. H., & Barry, T. D. (2014). A longitudinal examination of the relation between parental expressed emotion and externalizing behaviors in children and adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(11), 2820–2831PubMedCrossRef
go back to reference Bader, S. H., Barry, T. D., & Hann, J. A. (2015). The relation between parental expressed emotion and externalizing behaviors in children and adolescents with an autism spectrum disorder. Focus on Autism and Other Developmental Disabilities, 30(1), 23–34CrossRef Bader, S. H., Barry, T. D., & Hann, J. A. (2015). The relation between parental expressed emotion and externalizing behaviors in children and adolescents with an autism spectrum disorder. Focus on Autism and Other Developmental Disabilities, 30(1), 23–34CrossRef
go back to reference Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., & Dowling, N. F. (2018). Prevalence of autism spectrum disorder among children aged 8 Years—Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2014. Centers for Disease Control Morbidity and Mortality Weekly Report Surveillance Summaries, 67(6), 1–23 Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., & Dowling, N. F. (2018). Prevalence of autism spectrum disorder among children aged 8 Years—Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2014. Centers for Disease Control Morbidity and Mortality Weekly Report Surveillance Summaries, 67(6), 1–23
go back to reference Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2011). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47(2), 551–561PubMedPubMedCentralCrossRef Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2011). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47(2), 551–561PubMedPubMedCentralCrossRef
go back to reference Bourke-Taylor, H. M., Joyce, K. S., Grzegorczyn, S., & Tirlea, L. (2021). Mental health and health behaviour changes for mothers of children with a disability: Effectiveness of a health and wellbeing workshop.Journal of Autism and Developmental Disorders,1–14 Bourke-Taylor, H. M., Joyce, K. S., Grzegorczyn, S., & Tirlea, L. (2021). Mental health and health behaviour changes for mothers of children with a disability: Effectiveness of a health and wellbeing workshop.Journal of Autism and Developmental Disorders,1–14
go back to reference Carr, T., & Lord, C. (2013). Longitudinal study of perceived negative impact in African American and Caucasian mothers of children with autism spectrum disorder. Autism, 17(4), 405–417PubMedCrossRef Carr, T., & Lord, C. (2013). Longitudinal study of perceived negative impact in African American and Caucasian mothers of children with autism spectrum disorder. Autism, 17(4), 405–417PubMedCrossRef
go back to reference Chan, K. K. S., & Lam, C. B. (2018). Self-stigma among parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 48, 44–52CrossRef Chan, K. K. S., & Lam, C. B. (2018). Self-stigma among parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 48, 44–52CrossRef
go back to reference Chan, K. K. S., Yip, C. C. H., & Leung, D. C. K. (2022). Longitudinal impact of self-stigma content and process on parental warmth and hostility among parents of children with autism spectrum disorder.Journal of Autism and Developmental Disorders,1–9(e-publication ahead of print). Chan, K. K. S., Yip, C. C. H., & Leung, D. C. K. (2022). Longitudinal impact of self-stigma content and process on parental warmth and hostility among parents of children with autism spectrum disorder.Journal of Autism and Developmental Disorders,1–9(e-publication ahead of print).
go back to reference Cheung, R. Y., Leung, S. S., & Mak, W. W. (2019). Role of mindful parenting, affiliate stigma, and parents’ well-being in the behavioral adjustment of children with autism spectrum disorder: Testing parenting stress as a mediator. Mindfulness, 10, 2352–2362CrossRef Cheung, R. Y., Leung, S. S., & Mak, W. W. (2019). Role of mindful parenting, affiliate stigma, and parents’ well-being in the behavioral adjustment of children with autism spectrum disorder: Testing parenting stress as a mediator. Mindfulness, 10, 2352–2362CrossRef
go back to reference Chien, W. T., Yeung, F. K., & Chan, A. H. (2014). Perceived stigma of patients with severe mental illness in Hong Kong: Relationships with patients’ psychosocial conditions and attitudes of family caregivers and health professionals. Administration and Policy in Mental Health and Mental Health Services Research, 41, 237–251PubMedCrossRef Chien, W. T., Yeung, F. K., & Chan, A. H. (2014). Perceived stigma of patients with severe mental illness in Hong Kong: Relationships with patients’ psychosocial conditions and attitudes of family caregivers and health professionals. Administration and Policy in Mental Health and Mental Health Services Research, 41, 237–251PubMedCrossRef
go back to reference Chu, S. Y., Park, H., Lee, J., Shaharuddin, K. K. B., & Gan, C. H. (2020). Self-stigma and its associations with stress and quality of life among Malaysian parents of children with autism. Child: Care Health and Development, 46(4), 485–494PubMedCrossRef Chu, S. Y., Park, H., Lee, J., Shaharuddin, K. K. B., & Gan, C. H. (2020). Self-stigma and its associations with stress and quality of life among Malaysian parents of children with autism. Child: Care Health and Development, 46(4), 485–494PubMedCrossRef
go back to reference Cotton, S. M., McCann, T. V., Gleeson, J. F., Crisp, K., Murphy, B. P., & Lubman, D. I. (2013). Coping strategies in careers of young people with a first episode of psychosis. Schizophrenia Research, 146(1–3), 118–124PubMedCrossRef Cotton, S. M., McCann, T. V., Gleeson, J. F., Crisp, K., Murphy, B. P., & Lubman, D. I. (2013). Coping strategies in careers of young people with a first episode of psychosis. Schizophrenia Research, 146(1–3), 118–124PubMedCrossRef
go back to reference Corrigan, P. W., Druss, B. G., & Perlick, D. A. (2014). The impact of mental illness stigma on seeking and participating in mental health care. Psychological Science in the Public Interest, 15(2), 37–70PubMedCrossRef Corrigan, P. W., Druss, B. G., & Perlick, D. A. (2014). The impact of mental illness stigma on seeking and participating in mental health care. Psychological Science in the Public Interest, 15(2), 37–70PubMedCrossRef
go back to reference Corrigan, P. W., & Miller, F. E. (2004). Shame, blame, and contamination: A review of the impact of mental illness stigma on family members. Journal of Mental Health, 13(6), 537–548CrossRef Corrigan, P. W., & Miller, F. E. (2004). Shame, blame, and contamination: A review of the impact of mental illness stigma on family members. Journal of Mental Health, 13(6), 537–548CrossRef
go back to reference Delvecchio, E., Di Riso, D., Chessa, D., Salcuni, S., Mazzeschi, C., & Laghezza, L. (2014). Expressed emotion, parental stress, and family dysfunction among parents of nonclinical Italian children. Journal of Child and Family Studies, 23(6), 989–999CrossRef Delvecchio, E., Di Riso, D., Chessa, D., Salcuni, S., Mazzeschi, C., & Laghezza, L. (2014). Expressed emotion, parental stress, and family dysfunction among parents of nonclinical Italian children. Journal of Child and Family Studies, 23(6), 989–999CrossRef
go back to reference Falk, N. H., Norris, K., & Quinn, M. G. (2014). The factors predicting stress, anxiety and depression in the parents of children with autism. Journal of Autism and Developmental Disorders, 44(12), 3185–3203PubMedCrossRef Falk, N. H., Norris, K., & Quinn, M. G. (2014). The factors predicting stress, anxiety and depression in the parents of children with autism. Journal of Autism and Developmental Disorders, 44(12), 3185–3203PubMedCrossRef
go back to reference Feinberg, M. E., Solmeyer, A. R., & McHale, S. M. (2012). The third rail of family systems: Sibling relationships, mental and behavioral health, and preventive intervention in childhood and adolescence. Clinical Child and Family Psychology Review, 15(1), 43–57PubMedPubMedCentralCrossRef Feinberg, M. E., Solmeyer, A. R., & McHale, S. M. (2012). The third rail of family systems: Sibling relationships, mental and behavioral health, and preventive intervention in childhood and adolescence. Clinical Child and Family Psychology Review, 15(1), 43–57PubMedPubMedCentralCrossRef
go back to reference Georgiades, S., Tait, P. A., McNicholas, P. D., Duku, E., Zwaigenbaum, L., Smith, I. M., & Szatmari, P. (2022). Trajectories of symptom severity in children with autism: Variability and turning points through the transition to school. Journal of Autism and Developmental Disorders, 52(1), 392–401PubMedCrossRef Georgiades, S., Tait, P. A., McNicholas, P. D., Duku, E., Zwaigenbaum, L., Smith, I. M., & Szatmari, P. (2022). Trajectories of symptom severity in children with autism: Variability and turning points through the transition to school. Journal of Autism and Developmental Disorders, 52(1), 392–401PubMedCrossRef
go back to reference Goddard, E., Macdonald, P., Sepulveda, A. R., Naumann, U., Landau, S., Schmidt, U., & Treasure, J. (2011). Cognitive interpersonal maintenance model of eating disorders: Intervention for careers. The British Journal of Psychiatry, 199(3), 225–231PubMedCrossRef Goddard, E., Macdonald, P., Sepulveda, A. R., Naumann, U., Landau, S., Schmidt, U., & Treasure, J. (2011). Cognitive interpersonal maintenance model of eating disorders: Intervention for careers. The British Journal of Psychiatry, 199(3), 225–231PubMedCrossRef
go back to reference Greenberg, J. S., Seltzer, M. M., Hong, J., & Orsmond, G. I. (2006). Bidirectional effects of expressed emotion and behavior problems and symptoms in adolescents and adults with autism. American Journal on Mental Retardation, 111(4), 229–249PubMedCrossRef Greenberg, J. S., Seltzer, M. M., Hong, J., & Orsmond, G. I. (2006). Bidirectional effects of expressed emotion and behavior problems and symptoms in adolescents and adults with autism. American Journal on Mental Retardation, 111(4), 229–249PubMedCrossRef
go back to reference Griffith, G. M., Hastings, R. P., Petalas, M. A., & Lloyd, T. J. (2015). Mothers’ expressed emotion towards children with autism spectrum disorder and their siblings. Journal of Intellectual Disability Research, 59(6), 580–587PubMedCrossRef Griffith, G. M., Hastings, R. P., Petalas, M. A., & Lloyd, T. J. (2015). Mothers’ expressed emotion towards children with autism spectrum disorder and their siblings. Journal of Intellectual Disability Research, 59(6), 580–587PubMedCrossRef
go back to reference Hale, W. W., Crocetti, E., Nelemans, S. A., Branje, S. J., van Lier, P. A., Koot, H. M., & Meeus, W. H. (2016). Mother and adolescent expressed emotion and adolescent internalizing and externalizing symptom development: A six-year longitudinal study. European Child & Adolescent Psychiatry, 25(6), 615–624CrossRef Hale, W. W., Crocetti, E., Nelemans, S. A., Branje, S. J., van Lier, P. A., Koot, H. M., & Meeus, W. H. (2016). Mother and adolescent expressed emotion and adolescent internalizing and externalizing symptom development: A six-year longitudinal study. European Child & Adolescent Psychiatry, 25(6), 615–624CrossRef
go back to reference Hartman, C. A., De Bildt, A., & Minderaa, R. B. (2013). CSBQ: Children’s Social Behavior Questionnaire. In F. R. Volkmar (Ed.), Encyclopedia of Autism Spectrum Disorders (829 vol., p. 825). New York: SpringerCrossRef Hartman, C. A., De Bildt, A., & Minderaa, R. B. (2013). CSBQ: Children’s Social Behavior Questionnaire. In F. R. Volkmar (Ed.), Encyclopedia of Autism Spectrum Disorders (829 vol., p. 825). New York: SpringerCrossRef
go back to reference Hartman, C. A., Luteijn, E., Serra, M., & Minderaa, R. (2006). Refinement of the Children’s Social Behavior Questionnaire (CSBQ): An instrument that describes the diverse problems seen in milder forms of PDD. Journal of Autism and Developmental Disorders, 36(3), 325–342PubMedCrossRef Hartman, C. A., Luteijn, E., Serra, M., & Minderaa, R. (2006). Refinement of the Children’s Social Behavior Questionnaire (CSBQ): An instrument that describes the diverse problems seen in milder forms of PDD. Journal of Autism and Developmental Disorders, 36(3), 325–342PubMedCrossRef
go back to reference Hastings, R. P., Kovshoff, H., Ward, N. J., Espinosa, D., Brown, F., T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635–644PubMedCrossRef Hastings, R. P., Kovshoff, H., Ward, N. J., Espinosa, D., Brown, F., T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635–644PubMedCrossRef
go back to reference Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9(2), 125–137PubMedCrossRef Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9(2), 125–137PubMedCrossRef
go back to reference Jones, E. A., Fiani, T., Stewart, J. L., Neil, N., McHugh, S., & Fienup, D. M. (2020). Randomized controlled trial of a sibling support group: Mental health outcomes for siblings of children with autism. Autism, 24(6), 1468–1481PubMedCrossRef Jones, E. A., Fiani, T., Stewart, J. L., Neil, N., McHugh, S., & Fienup, D. M. (2020). Randomized controlled trial of a sibling support group: Mental health outcomes for siblings of children with autism. Autism, 24(6), 1468–1481PubMedCrossRef
go back to reference Jones, E. A., Fiani, T., Stewart, J. L., Sheikh, R., Neil, N., & Fienup, D. M. (2019). When one sibling has autism: Adjustment and sibling relationship. Journal of Child and Family Studies, 28(5), 1272–1282CrossRef Jones, E. A., Fiani, T., Stewart, J. L., Sheikh, R., Neil, N., & Fienup, D. M. (2019). When one sibling has autism: Adjustment and sibling relationship. Journal of Child and Family Studies, 28(5), 1272–1282CrossRef
go back to reference Kanter, J., Lamb, H. R., & Loeper, C. (1987). Expressed emotion in families: A critical review. Psychiatric Services, 38(4), 374–380CrossRef Kanter, J., Lamb, H. R., & Loeper, C. (1987). Expressed emotion in families: A critical review. Psychiatric Services, 38(4), 374–380CrossRef
go back to reference Lindsey, R. A., Saltness, S. R., Lau, A. F., & Barry, T. D. (2020). A longitudinal examination of interactions between autism symptom severity and parenting behaviors in predicting change in child behavior problems. Research in Autism Spectrum Disorders, 70, 1–12CrossRef Lindsey, R. A., Saltness, S. R., Lau, A. F., & Barry, T. D. (2020). A longitudinal examination of interactions between autism symptom severity and parenting behaviors in predicting change in child behavior problems. Research in Autism Spectrum Disorders, 70, 1–12CrossRef
go back to reference Lovell, B., & Wetherell, M. A. (2016). The psychophysiological impact of childhood autism spectrum disorder on siblings. Research in Developmental Disabilities, 49–50, 226–234PubMedCrossRef Lovell, B., & Wetherell, M. A. (2016). The psychophysiological impact of childhood autism spectrum disorder on siblings. Research in Developmental Disabilities, 49–50, 226–234PubMedCrossRef
go back to reference Lovell, B., & Wetherell, M. A. (2019). Affiliate stigma, perceived social support and perceived stress in caregivers of children with autism spectrum disorder: A multiple mediation study. Archives of Psychiatric Nursing, 33(5), 31–35PubMedCrossRef Lovell, B., & Wetherell, M. A. (2019). Affiliate stigma, perceived social support and perceived stress in caregivers of children with autism spectrum disorder: A multiple mediation study. Archives of Psychiatric Nursing, 33(5), 31–35PubMedCrossRef
go back to reference Lovell, B., & Wetherell, M. A. (2020). Exploring the moderating role of benefit finding on the relationship between child problematic behaviours and psychological distress in caregivers of children with ASD. Journal of Autism and Developmental Disorders, 50(2), 617–624PubMedCrossRef Lovell, B., & Wetherell, M. A. (2020). Exploring the moderating role of benefit finding on the relationship between child problematic behaviours and psychological distress in caregivers of children with ASD. Journal of Autism and Developmental Disorders, 50(2), 617–624PubMedCrossRef
go back to reference Lovibond, P. F., & Lovibond, S. H. (1995). The structure of negative emotional states: Comparison of the Depression Anxiety Stress Scales (DASS) with the Beck Depression and Anxiety Inventories. Behaviour Research and Therapy, 33(3), 335–343PubMedCrossRef Lovibond, P. F., & Lovibond, S. H. (1995). The structure of negative emotional states: Comparison of the Depression Anxiety Stress Scales (DASS) with the Beck Depression and Anxiety Inventories. Behaviour Research and Therapy, 33(3), 335–343PubMedCrossRef
go back to reference Luteijn, E., Luteijn, F., Jackson, S., Volkmar, F., & Minderaa, R. (2000). The Children’s Social Behavior Questionnaire for milder variants of PDD problems: Evaluation of the psychometric characteristics. Journal of Autism and Developmental Disorders, 30(4), 317–330PubMedCrossRef Luteijn, E., Luteijn, F., Jackson, S., Volkmar, F., & Minderaa, R. (2000). The Children’s Social Behavior Questionnaire for milder variants of PDD problems: Evaluation of the psychometric characteristics. Journal of Autism and Developmental Disorders, 30(4), 317–330PubMedCrossRef
go back to reference Maenner, M. J., Shaw, K. A., Bakian, A. V., Bilder, D. A., Durkin, M. S., Esler, A., & Cogswell, M. E. (2018). Prevalence and characteristics of autism spectrum disorder among children aged 8 years – Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States. Centers for Disease Control Morbidity and Mortality Weekly Report Surveillance Summaries, 70(11),1–16 Maenner, M. J., Shaw, K. A., Bakian, A. V., Bilder, D. A., Durkin, M. S., Esler, A., & Cogswell, M. E. (2018). Prevalence and characteristics of autism spectrum disorder among children aged 8 years – Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States. Centers for Disease Control Morbidity and Mortality Weekly Report Surveillance Summaries, 70(11),1–16
go back to reference Mak, W. W. S., & Cheung, R. Y. M. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21(6), 532–545CrossRef Mak, W. W. S., & Cheung, R. Y. M. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21(6), 532–545CrossRef
go back to reference Mak, W. W., & Kwok, Y. T. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science & Medicine, 70(12), 2045–2051CrossRef Mak, W. W., & Kwok, Y. T. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science & Medicine, 70(12), 2045–2051CrossRef
go back to reference Mazumder, R., & Thompson-Hodgetts, S. (2019). Stigmatization of children and adolescents with autism spectrum disorders and their families: A scoping study. Review Journal of Autism and Developmental Disorders, 6(1), 96–107CrossRef Mazumder, R., & Thompson-Hodgetts, S. (2019). Stigmatization of children and adolescents with autism spectrum disorders and their families: A scoping study. Review Journal of Autism and Developmental Disorders, 6(1), 96–107CrossRef
go back to reference McCann, T. V., Songprakun, W., & Stephenson, J. (2015). Effectiveness of guided self-help in decreasing expressed emotion in family caregivers of people diagnosed with depression in Thailand: A randomized controlled trial. Bmc Psychiatry, 15, 258PubMedPubMedCentralCrossRef McCann, T. V., Songprakun, W., & Stephenson, J. (2015). Effectiveness of guided self-help in decreasing expressed emotion in family caregivers of people diagnosed with depression in Thailand: A randomized controlled trial. Bmc Psychiatry, 15, 258PubMedPubMedCentralCrossRef
go back to reference Mello, Rivard, M., Morin, D., Patel, S., & Morin, M. (2021). Symptom severity, internalized and externalized behavioral and emotional problems: Links with parenting stress in mothers of children recently diagnosed with autism. Journal of Autism and Developmental Disorders, 52(6), 2400–2413PubMedCrossRef Mello, Rivard, M., Morin, D., Patel, S., & Morin, M. (2021). Symptom severity, internalized and externalized behavioral and emotional problems: Links with parenting stress in mothers of children recently diagnosed with autism. Journal of Autism and Developmental Disorders, 52(6), 2400–2413PubMedCrossRef
go back to reference Mikami, A. Y., Chong, G. K., Saporito, J. M., & Na, J. J. (2015). Implications of parental affiliate stigma in families of children with ADHD. Journal of Clinical Child and Adolescent Psychology, 44(4), 595–603PubMedCrossRef Mikami, A. Y., Chong, G. K., Saporito, J. M., & Na, J. J. (2015). Implications of parental affiliate stigma in families of children with ADHD. Journal of Clinical Child and Adolescent Psychology, 44(4), 595–603PubMedCrossRef
go back to reference Mohammadi, M., & Zarafshan, H. (2014). Family function, parenting style and broader autism phenotype as predicting factors of psychological adjustment in typically developing siblings of children with autism spectrum disorders. Iranian Journal of Psychiatry, 9(2), 55–63PubMedPubMedCentral Mohammadi, M., & Zarafshan, H. (2014). Family function, parenting style and broader autism phenotype as predicting factors of psychological adjustment in typically developing siblings of children with autism spectrum disorders. Iranian Journal of Psychiatry, 9(2), 55–63PubMedPubMedCentral
go back to reference Muralidharan, A., Kotwicki, R. J., Cowperthwait, C., & Craighead, W. E. (2015). Parental relationships and behavioral approach system dysregulation in young adults with bipolar disorder. Journal of Clinical Psychology, 71(4), 387–401PubMedCrossRef Muralidharan, A., Kotwicki, R. J., Cowperthwait, C., & Craighead, W. E. (2015). Parental relationships and behavioral approach system dysregulation in young adults with bipolar disorder. Journal of Clinical Psychology, 71(4), 387–401PubMedCrossRef
go back to reference Noordhof, A., Krueger, R. F., Ormel, J., Oldehinkel, A. J., & Hartman, C. A. (2015). Integrating autism-related symptoms into the dimensional internalizing and externalizing model of psychopathology. The TRAILS Study. Journal of Abnormal Child Psychology, 43(3), 577–587PubMedCrossRef Noordhof, A., Krueger, R. F., Ormel, J., Oldehinkel, A. J., & Hartman, C. A. (2015). Integrating autism-related symptoms into the dimensional internalizing and externalizing model of psychopathology. The TRAILS Study. Journal of Abnormal Child Psychology, 43(3), 577–587PubMedCrossRef
go back to reference Parkitny, L., & McAuley, J. (2010). The depression anxiety stress scale (DASS). Journal of Physiotherapy, 56(3), 204PubMedCrossRef Parkitny, L., & McAuley, J. (2010). The depression anxiety stress scale (DASS). Journal of Physiotherapy, 56(3), 204PubMedCrossRef
go back to reference Phillips, M. R., Pearson, V., Li, F., Xu, M., & Yang, L. (2002). Stigma and expressed emotion: A study of people with schizophrenia and their family members in China. The British Journal of Psychiatry, 181, 488–493PubMedCrossRef Phillips, M. R., Pearson, V., Li, F., Xu, M., & Yang, L. (2002). Stigma and expressed emotion: A study of people with schizophrenia and their family members in China. The British Journal of Psychiatry, 181, 488–493PubMedCrossRef
go back to reference Reynolds, C. R., & Kamphaus, R. W. (2015). Behavior assessment system for children, third edition. San Antonio, TX: Pearson Reynolds, C. R., & Kamphaus, R. W. (2015). Behavior assessment system for children, third edition. San Antonio, TX: Pearson
go back to reference Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620PubMedCrossRef Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620PubMedCrossRef
go back to reference Romero-Gonzalez, M., Chandler, S., & Simonoff, E. (2018). The relationship of parental expressed emotion to co-occurring psychopathology in individuals with autism spectrum disorder: A systematic review. Research in Developmental Disabilities, 72, 152–165PubMedCrossRef Romero-Gonzalez, M., Chandler, S., & Simonoff, E. (2018). The relationship of parental expressed emotion to co-occurring psychopathology in individuals with autism spectrum disorder: A systematic review. Research in Developmental Disabilities, 72, 152–165PubMedCrossRef
go back to reference Salleh, N. S., Abdullah, K. L., Yoong, T. L., Jayanath, S., & Husain, M. (2020). Parents’ experiences of affiliate stigma when caring for a child with autism spectrum disorder (ASD): A meta-synthesis of qualitative studies. Journal of Pediatric Nursing, 55, 174–183PubMedCrossRef Salleh, N. S., Abdullah, K. L., Yoong, T. L., Jayanath, S., & Husain, M. (2020). Parents’ experiences of affiliate stigma when caring for a child with autism spectrum disorder (ASD): A meta-synthesis of qualitative studies. Journal of Pediatric Nursing, 55, 174–183PubMedCrossRef
go back to reference Samadi, S. A., & McConkey, R. (2014). The impact on Iranian mothers and fathers who have children with an autism spectrum disorder. Journal of Intellectual Disability Research, 58(3), 243–254PubMedCrossRef Samadi, S. A., & McConkey, R. (2014). The impact on Iranian mothers and fathers who have children with an autism spectrum disorder. Journal of Intellectual Disability Research, 58(3), 243–254PubMedCrossRef
go back to reference Selvakumar, N., & Panicker, A. S. (2020). Stress and coping styles in mothers of children with autism spectrum disorder. Indian Journal of Psychological Medicine, 42(3), 225–232PubMedPubMedCentralCrossRef Selvakumar, N., & Panicker, A. S. (2020). Stress and coping styles in mothers of children with autism spectrum disorder. Indian Journal of Psychological Medicine, 42(3), 225–232PubMedPubMedCentralCrossRef
go back to reference Shivers, C. M., Jackson, J. B., & McGregor, C. M. (2019). Functioning among typically developing siblings of individuals with autism spectrum disorder: A meta-analysis. Clinical Child and Family Psychology Review, 22, 172–196PubMedCrossRef Shivers, C. M., Jackson, J. B., & McGregor, C. M. (2019). Functioning among typically developing siblings of individuals with autism spectrum disorder: A meta-analysis. Clinical Child and Family Psychology Review, 22, 172–196PubMedCrossRef
go back to reference Tomeny, T. S., Barry, T. D., & Bader, S. H. (2012). Are typically-developing siblings of children with an autism spectrum disorder at risk for behavioral, emotional, and social maladjustment? Research in Autism Spectrum Disorders, 6(1), 508–518CrossRef Tomeny, T. S., Barry, T. D., & Bader, S. H. (2012). Are typically-developing siblings of children with an autism spectrum disorder at risk for behavioral, emotional, and social maladjustment? Research in Autism Spectrum Disorders, 6(1), 508–518CrossRef
go back to reference Tomeny, T. S., Baker, L. K., Barry, T. D., Eldred, S. W., & Rankin, J. A. (2016). Emotional and behavioral functioning of typically-developing sisters of children with autism spectrum disorder: The roles of ASD severity, parental stress, and marital status. Research in Autism Spectrum Disorders, 32, 130–142CrossRef Tomeny, T. S., Baker, L. K., Barry, T. D., Eldred, S. W., & Rankin, J. A. (2016). Emotional and behavioral functioning of typically-developing sisters of children with autism spectrum disorder: The roles of ASD severity, parental stress, and marital status. Research in Autism Spectrum Disorders, 32, 130–142CrossRef
go back to reference Torbet, S., Proeve, M., & Roberts, R. M. (2019). Self-compassion: A protective factor for parents of children with autism spectrum disorder. Mindfulness, 10, 2492–2506CrossRef Torbet, S., Proeve, M., & Roberts, R. M. (2019). Self-compassion: A protective factor for parents of children with autism spectrum disorder. Mindfulness, 10, 2492–2506CrossRef
go back to reference Tudor, M. E., Rankin, J., & Lerner, M. D. (2018). A model of family and child functioning in siblings of youth with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(4), 1210–1227PubMedCrossRef Tudor, M. E., Rankin, J., & Lerner, M. D. (2018). A model of family and child functioning in siblings of youth with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(4), 1210–1227PubMedCrossRef
go back to reference de Weisman, A., Weintraub, M. J., Maura, J., Martinez de Andino, A., & Brown, C. A. (2018). Stigma, expressed emotion, and quality of life in caregivers of individuals with dementia. Family Process, 57(3), 694–706CrossRef de Weisman, A., Weintraub, M. J., Maura, J., Martinez de Andino, A., & Brown, C. A. (2018). Stigma, expressed emotion, and quality of life in caregivers of individuals with dementia. Family Process, 57(3), 694–706CrossRef
go back to reference Werner, S., & Shulman, C. (2013). Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables. Research in Developmental Disabilities, 34(11), 4103–4114PubMedCrossRef Werner, S., & Shulman, C. (2013). Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables. Research in Developmental Disabilities, 34(11), 4103–4114PubMedCrossRef
go back to reference Werner, S., & Shulman, C. (2015). Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability? Journal of Intellectual Disability Research, 59(3), 272–283PubMedCrossRef Werner, S., & Shulman, C. (2015). Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability? Journal of Intellectual Disability Research, 59(3), 272–283PubMedCrossRef
go back to reference Wiedemann, G., Rayki, O., Feinstein, E., & Hahlweg, K. (2002). The Family Questionnaire: Development and validation of a new self-report scale for assessing expressed emotion.Psychiatry Research, 109(3),265–279 Wiedemann, G., Rayki, O., Feinstein, E., & Hahlweg, K. (2002). The Family Questionnaire: Development and validation of a new self-report scale for assessing expressed emotion.Psychiatry Research, 109(3),265–279
go back to reference Zhou, T., Wang, Y., & Yi, C. (2018). Affiliate stigma and depression in caregivers of children with Autism Spectrum Disorders in China: Effects of self-esteem, shame and family functioning. Psychiatry Research, 264, 260–265PubMedCrossRef Zhou, T., Wang, Y., & Yi, C. (2018). Affiliate stigma and depression in caregivers of children with Autism Spectrum Disorders in China: Effects of self-esteem, shame and family functioning. Psychiatry Research, 264, 260–265PubMedCrossRef
Metagegevens
Titel
The Relation of Parental Expressed Emotion, Parental Affiliate Stigma, and Typically-developing Sibling Internalizing Behavior in Families with a Child with ASD
Auteurs
Aurora H. Brinkman
Tammy D. Barry
Rebecca A. Lindsey
Publicatiedatum
30-09-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 12/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-022-05760-3