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21-06-2015 | Uitgave 12/2015

Quality of Life Research 12/2015

The experience of cancer survivors in community-based psycho-social support activities in Shanghai, China: a qualitative study

Tijdschrift:
Quality of Life Research > Uitgave 12/2015
Auteurs:
Ji-Wei Wang, Tian-Rui Zhang, Qian Shen, Zhi-Qi Yang, Cong Liu, Si-Jia Chen, Jiang Li, Zheng-Nian Luo, Zheng-Ping Yuan, Jin-Ming Yu
Belangrijke opmerkingen
Ji-Wei Wang and Tian-Rui Zhang are both co-first authors for this article.

Abstract

Purpose

Cancer survivors are often embroiled in various physical and psycho-social issues as a consequence of cancer diagnosis and treatment. Psycho-social support activities in the phase of rehabilitation were provided to enhance their quality of life. This study seeks to explore and understand their experience of engagement in Shanghai Cancer Rehabilitation Club (SCRC).

Methods

Sixty-eight participants attended eight semi-structured focus group interviews. Data were transcribed verbatim, and thematic analysis framework was adopted for data analysis.

Results

The participants reported benefits such as psychological support, informational provision and tangible support in the activities. Public services were reported to have restored their dignity and enabled them to rediscover their own meaning of life. Participants also pointed out challenges on functioning and opportunity for development of SCRC.

Conclusions

The psycho-social support activities of SCRC had influenced cancer survivor’s life. Public health resources and supportive policies should be in place to support local self-help cancer rehabilitation groups.

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