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13-08-2020

Risk models for predicting the health-related quality of life of caregivers of youth with gastrointestinal concerns

Auteurs: Mary K. Lynch, Kathryn A. Thompson, Reed A. Dimmitt, Margaux J. Barnes, Burel R. Goodin

Gepubliceerd in: Quality of Life Research | Uitgave 12/2020

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Abstract

Purpose

To determine the usefulness of cumulative and additive risk models in predicting the healthy-related quality of life (HRQOL) of caregivers of youth with chronic gastrointestinal conditions.

Methods

203 caregivers (82.8% mothers; 77.3% white) of youth (M = 11.27 years; 44.3% female; 78.8% White) completed self-report questionnaires focused on potential environmental, child health, and family risk factors that could impact caregiver HRQOL. Cumulative risk models, evaluating overall combined risk level, as well as an additive risk model, exploring individual risk variables, were evaluated.

Results

Higher levels of cumulative risk were associated with poorer caregiver HRQOL after controlling for child and caregiver sex. A linear cumulative risk model was a better fit than a quadratic cumulative risk model for predicting caregiver HRQOL, while an additive model identified child HRQOL, child pain interference and family functioning as the most individually impactful risk variables.

Conclusion

This study illustrates the usefulness of both additive and cumulative risk approaches in identifying caregivers at risk for poor HRQOL. Provision of appropriate referrals and interventions based on the caregiver’s risk factors can help protect caregiver quality of life and, in turn, benefit the care children with chronic conditions receive at home.
Literatuur
1.
go back to reference Hatzmann, J., Heymans, H. S. A., Ferrer-i-Carbonell, A., van Praag, B. M. S., & Grootenhuis, M. A. (2008). Hidden consequences of success in pediatrics: Parental health-related quality of life—results from the Care Project. Pediatrics, 122(5), e1030–e1038.PubMed Hatzmann, J., Heymans, H. S. A., Ferrer-i-Carbonell, A., van Praag, B. M. S., & Grootenhuis, M. A. (2008). Hidden consequences of success in pediatrics: Parental health-related quality of life—results from the Care Project. Pediatrics, 122(5), e1030–e1038.PubMed
3.
go back to reference Fielding, D., Moore, B., Dewey, M., Ashley, P., McKendrick, T., & Pinkerton, P. (1985). Children with end-stage renal failure: Psychological effects on patients, siblings and parents. Journal of Psychosomatic Research, 29(5), 457–465.PubMed Fielding, D., Moore, B., Dewey, M., Ashley, P., McKendrick, T., & Pinkerton, P. (1985). Children with end-stage renal failure: Psychological effects on patients, siblings and parents. Journal of Psychosomatic Research, 29(5), 457–465.PubMed
5.
go back to reference Hunfeld, J. A., Perquin, C. W., Duivenvoorden, H. J., Hazebroek-Kampschreur, A. A., Passchier, J., van Suijlekom-Smit, L. W., et al. (2001). Chronic pain and its impact on quality of life in adolescents and their families. Journal of Pediatric Psychology, 26(3), 145–153.PubMed Hunfeld, J. A., Perquin, C. W., Duivenvoorden, H. J., Hazebroek-Kampschreur, A. A., Passchier, J., van Suijlekom-Smit, L. W., et al. (2001). Chronic pain and its impact on quality of life in adolescents and their families. Journal of Pediatric Psychology, 26(3), 145–153.PubMed
6.
go back to reference Varni, J. W., Sherman, S. A., Burwinkle, T. M., Dickinson, P. E., & Dixon, P. (2004). The PedsQL™ family impact module: preliminary reliability and validity. Health and Quality of Life Outcomes, 2(1), 55.PubMedPubMedCentral Varni, J. W., Sherman, S. A., Burwinkle, T. M., Dickinson, P. E., & Dixon, P. (2004). The PedsQL™ family impact module: preliminary reliability and validity. Health and Quality of Life Outcomes, 2(1), 55.PubMedPubMedCentral
7.
go back to reference Kunz, J. H., Greenley, R. N., & Howard, M. (2011). Maternal, paternal, and family health-related quality of life in the context of pediatric inflammatory bowel disease. Quality of Life Research, 20(8), 1197–1204.PubMed Kunz, J. H., Greenley, R. N., & Howard, M. (2011). Maternal, paternal, and family health-related quality of life in the context of pediatric inflammatory bowel disease. Quality of Life Research, 20(8), 1197–1204.PubMed
8.
go back to reference Warschburger, P., Buchholz, H. T., & Petermann, F. (2004). Psychological adjustment in parents of young children with atopic dermatitis: which factors predict parental quality of life? British Journal of Dermatology, 150(2), 304–311.PubMed Warschburger, P., Buchholz, H. T., & Petermann, F. (2004). Psychological adjustment in parents of young children with atopic dermatitis: which factors predict parental quality of life? British Journal of Dermatology, 150(2), 304–311.PubMed
9.
go back to reference Feeley, C. A., Turner-Henson, A., Christian, B. J., Avis, K. T., Heaton, K., Lozano, D., et al. (2014). Sleep quality, stress, caregiver burden, and quality of life in maternal caregivers of young children with bronchopulmonary dysplasia. Journal of Pediatric Nursing, 29(1), 29–38.PubMed Feeley, C. A., Turner-Henson, A., Christian, B. J., Avis, K. T., Heaton, K., Lozano, D., et al. (2014). Sleep quality, stress, caregiver burden, and quality of life in maternal caregivers of young children with bronchopulmonary dysplasia. Journal of Pediatric Nursing, 29(1), 29–38.PubMed
10.
go back to reference Hatzmann, J., Valstar, M. J., Bosch, A. M., Wijburg, F. A., Heymans, H. S. A., & Grootenhuis, M. A. (2009). Predicting health-related quality of life of parents of children with inherited metabolic diseases. Acta Paediatrica, 98(7), 1205–1210.PubMed Hatzmann, J., Valstar, M. J., Bosch, A. M., Wijburg, F. A., Heymans, H. S. A., & Grootenhuis, M. A. (2009). Predicting health-related quality of life of parents of children with inherited metabolic diseases. Acta Paediatrica, 98(7), 1205–1210.PubMed
11.
go back to reference van den Tweel, X. W., Hatzmann, J., Ensink, E., van der Lee, J. H., Peters, M., Fijnvandraat, K., et al. (2008). Quality of life of female caregivers of children with sickle cell disease: A survey. Haematologica, 93(4), 588–593.PubMed van den Tweel, X. W., Hatzmann, J., Ensink, E., van der Lee, J. H., Peters, M., Fijnvandraat, K., et al. (2008). Quality of life of female caregivers of children with sickle cell disease: A survey. Haematologica, 93(4), 588–593.PubMed
12.
go back to reference Majnemer, A., Shevell, M., Rosenbaum, P., Law, M., & Poulin, C. (2007). Determinants of life quality in school-age children with cerebral palsy. Journal of Pediatrics, 151(5), 470–475.PubMed Majnemer, A., Shevell, M., Rosenbaum, P., Law, M., & Poulin, C. (2007). Determinants of life quality in school-age children with cerebral palsy. Journal of Pediatrics, 151(5), 470–475.PubMed
13.
go back to reference Calvano, C., & Warschburger, P. (2018). Quality of life among parents seeking treatment for their child’s functional abdominal pain. Quality of Life Research, 27(10), 2557–2570.PubMed Calvano, C., & Warschburger, P. (2018). Quality of life among parents seeking treatment for their child’s functional abdominal pain. Quality of Life Research, 27(10), 2557–2570.PubMed
14.
go back to reference Jastrowski Mano, K. E., Khan, K. A., Ladwig, R. J., & Weisman, S. J. (2011). The impact of pediatric chronic pain on parents’ health-related quality of life and family functioning: reliability and validity of the PedsQL 4.0 Family Impact Module. Journal of pediatric psychology, 36(5), 517–527.PubMed Jastrowski Mano, K. E., Khan, K. A., Ladwig, R. J., & Weisman, S. J. (2011). The impact of pediatric chronic pain on parents’ health-related quality of life and family functioning: reliability and validity of the PedsQL 4.0 Family Impact Module. Journal of pediatric psychology, 36(5), 517–527.PubMed
15.
go back to reference Greenley, R. N., & Cunningham, C. (2008). Parent quality of life in the context of pediatric inflammatory bowel disease. Journal of Pediatric Psychology, 34(2), 129–136.PubMed Greenley, R. N., & Cunningham, C. (2008). Parent quality of life in the context of pediatric inflammatory bowel disease. Journal of Pediatric Psychology, 34(2), 129–136.PubMed
16.
go back to reference Hommel, K. A., Mackner, L. M., Denson, L. A., & Crandall, W. V. (2008). Treatment regimen adherence in pediatric gastroenterology. Journal of Pediatric Gastroenterology and Nutrition, 47(5), 526.PubMedPubMedCentral Hommel, K. A., Mackner, L. M., Denson, L. A., & Crandall, W. V. (2008). Treatment regimen adherence in pediatric gastroenterology. Journal of Pediatric Gastroenterology and Nutrition, 47(5), 526.PubMedPubMedCentral
17.
go back to reference Engstrom, I. (1992). Mental health and psychological functioning in children and adolescents with inflammatory bowel disease: a comparison with children having other chronic illnesses and with healthy children. Journal of Child Psychology and Psychiatry, 33(3), 563–582.PubMed Engstrom, I. (1992). Mental health and psychological functioning in children and adolescents with inflammatory bowel disease: a comparison with children having other chronic illnesses and with healthy children. Journal of Child Psychology and Psychiatry, 33(3), 563–582.PubMed
18.
go back to reference Hodges, K., Kline, J. J., Barbero, G., & Woodruff, C. (1985). Anxiety in children with recurrent abdominal pain and their parents. Psychosomatics, 26(11), 859.PubMed Hodges, K., Kline, J. J., Barbero, G., & Woodruff, C. (1985). Anxiety in children with recurrent abdominal pain and their parents. Psychosomatics, 26(11), 859.PubMed
19.
go back to reference Varni, J. W., Bendo, C. B., Nurko, S., Shulman, R. J., Self, M. M., Franciosi, J. P., et al. (2015). Health-related quality of life in pediatric patients with functional and organic gastrointestinal diseases. Journal of Pediatric, 166(1), 85–90. Varni, J. W., Bendo, C. B., Nurko, S., Shulman, R. J., Self, M. M., Franciosi, J. P., et al. (2015). Health-related quality of life in pediatric patients with functional and organic gastrointestinal diseases. Journal of Pediatric, 166(1), 85–90.
20.
go back to reference Warschburger, P., Hänig, J., Friedt, M., Posovszky, C., Schier, M., & Calvano, C. (2014). Health-related quality of life in children with abdominal pain due to functional or organic gastrointestinal disorders. Journal of Pediatric Psychology, 39(1), 45–54.PubMed Warschburger, P., Hänig, J., Friedt, M., Posovszky, C., Schier, M., & Calvano, C. (2014). Health-related quality of life in children with abdominal pain due to functional or organic gastrointestinal disorders. Journal of Pediatric Psychology, 39(1), 45–54.PubMed
21.
go back to reference Stein, R. E., & Jessop, D. J. (1982). A noncategorical approach to chronic childhood illness. Public Health Reports, 97(4), 354.PubMedPubMedCentral Stein, R. E., & Jessop, D. J. (1982). A noncategorical approach to chronic childhood illness. Public Health Reports, 97(4), 354.PubMedPubMedCentral
22.
go back to reference Bronfenbrenner, U. (1979). The ecology of human development. Cambridge, CA: Harvard University Press. Bronfenbrenner, U. (1979). The ecology of human development. Cambridge, CA: Harvard University Press.
23.
go back to reference Bronfenbrenner, U. (1977). Toward an experimental ecology of human development. American Psychologist, 32(7), 513. Bronfenbrenner, U. (1977). Toward an experimental ecology of human development. American Psychologist, 32(7), 513.
24.
go back to reference Klassen, A. F., Klaassen, R., Dix, D., Pritchard, S., Yanofsky, R., O'Donnell, M., et al. (2008). Impact of caring for a child with cancer on parents’ health-related quality of life. Journal of Clinical Oncology, 26(36), 5884–5889.PubMed Klassen, A. F., Klaassen, R., Dix, D., Pritchard, S., Yanofsky, R., O'Donnell, M., et al. (2008). Impact of caring for a child with cancer on parents’ health-related quality of life. Journal of Clinical Oncology, 26(36), 5884–5889.PubMed
25.
go back to reference McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders, 44(12), 3101–3118.PubMed McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders, 44(12), 3101–3118.PubMed
26.
go back to reference Herzer, M., Godiwala, N., Hommel, K. A., Driscoll, K., Mitchell, M., Crosby, L. E., et al. (2010). Family functioning in the context of pediatric chronic conditions. Journal of Developmental and Behavioral Pediatrics, 31(1), 26.PubMedPubMedCentral Herzer, M., Godiwala, N., Hommel, K. A., Driscoll, K., Mitchell, M., Crosby, L. E., et al. (2010). Family functioning in the context of pediatric chronic conditions. Journal of Developmental and Behavioral Pediatrics, 31(1), 26.PubMedPubMedCentral
27.
go back to reference Everhart, R. S., Fiese, B. H., & Smyth, J. M. (2008). A cumulative risk model predicting caregiver quality of life in pediatric asthma. Journal of Pediatric Psychology, 33(8), 809–818.PubMedPubMedCentral Everhart, R. S., Fiese, B. H., & Smyth, J. M. (2008). A cumulative risk model predicting caregiver quality of life in pediatric asthma. Journal of Pediatric Psychology, 33(8), 809–818.PubMedPubMedCentral
28.
go back to reference Koinis-Mitchell, D., McQuaid, E. L., Seifer, R., Kopel, S. J., Esteban, C., Canino, G., et al. (2007). Multiple urban and asthma-related risks and their association with asthma morbidity in children. Journal of Pediatric Psychology, 32(5), 582–595.PubMed Koinis-Mitchell, D., McQuaid, E. L., Seifer, R., Kopel, S. J., Esteban, C., Canino, G., et al. (2007). Multiple urban and asthma-related risks and their association with asthma morbidity in children. Journal of Pediatric Psychology, 32(5), 582–595.PubMed
29.
go back to reference Lorant, V., Deliège, D., Eaton, W., Robert, A., Philippot, P., & Ansseau, M. (2003). Socioeconomic inequalities in depression: A meta-analysis. American Journal of Epidemiology, 157(2), 98–112.PubMed Lorant, V., Deliège, D., Eaton, W., Robert, A., Philippot, P., & Ansseau, M. (2003). Socioeconomic inequalities in depression: A meta-analysis. American Journal of Epidemiology, 157(2), 98–112.PubMed
30.
go back to reference Bourdeau, T. L., Mullins, L. L., Carpentier, M. Y., Colletti, C. J. M., & Wolfe-Christensen, C. (2007). An examination of parenting variables and child self-care behavior across disease groups. Journal of Developmental and Physical Disabilities, 19(2), 125–134. Bourdeau, T. L., Mullins, L. L., Carpentier, M. Y., Colletti, C. J. M., & Wolfe-Christensen, C. (2007). An examination of parenting variables and child self-care behavior across disease groups. Journal of Developmental and Physical Disabilities, 19(2), 125–134.
31.
go back to reference Defenderfer, E. K., Rybak, T. M., Davies, W. H., & Berlin, K. S. (2017). Predicting parent health-related quality of life: Evaluating conceptual models. Quality of Life Research, 26(6), 1405–1415.PubMed Defenderfer, E. K., Rybak, T. M., Davies, W. H., & Berlin, K. S. (2017). Predicting parent health-related quality of life: Evaluating conceptual models. Quality of Life Research, 26(6), 1405–1415.PubMed
32.
go back to reference Barakat, L. P., Patterson, C. A., Weinberger, B. S., Simon, K., Gonzalez, E. R., & Dampier, C. (2007). A prospective study of the role of coping and family functioning in health outcomes for adolescents with sickle cell disease. Journal of Pediatric Hematology, 29(11), 752–760. Barakat, L. P., Patterson, C. A., Weinberger, B. S., Simon, K., Gonzalez, E. R., & Dampier, C. (2007). A prospective study of the role of coping and family functioning in health outcomes for adolescents with sickle cell disease. Journal of Pediatric Hematology, 29(11), 752–760.
33.
go back to reference Cushner-Weinstein, S., Dassoulas, K., Salpekar, J. A., Henderson, S. E., Pearl, P. L., Gaillard, W. D., et al. (2008). Parenting stress and childhood epilepsy: the impact of depression, learning, and seizure-related factors. Epilepsy & Behavior, 13(1), 109–114. Cushner-Weinstein, S., Dassoulas, K., Salpekar, J. A., Henderson, S. E., Pearl, P. L., Gaillard, W. D., et al. (2008). Parenting stress and childhood epilepsy: the impact of depression, learning, and seizure-related factors. Epilepsy & Behavior, 13(1), 109–114.
34.
go back to reference Jones, D. J., Forehand, R., Brody, G., & Armistead, L. (2002). Psychosocial adjustment of African American children in single-mother families: A test of three risk models. Journal of Marriage and Family, 64(1), 105–115. Jones, D. J., Forehand, R., Brody, G., & Armistead, L. (2002). Psychosocial adjustment of African American children in single-mother families: A test of three risk models. Journal of Marriage and Family, 64(1), 105–115.
35.
go back to reference Ackerman, B. P., Izard, C. E., Schoff, K., Youngstrom, E. A., & Kogos, J. (1999). Contextual risk, caregiver emotionality, and the problem behaviors of six-and seven-year-old children from economically disadvantaged families. Child Development, 70(6), 1415–1427.PubMed Ackerman, B. P., Izard, C. E., Schoff, K., Youngstrom, E. A., & Kogos, J. (1999). Contextual risk, caregiver emotionality, and the problem behaviors of six-and seven-year-old children from economically disadvantaged families. Child Development, 70(6), 1415–1427.PubMed
36.
go back to reference Gerard, J. M., & Buehler, C. (2004). Cumulative environmental risk and youth maladjustment: The role of youth attributes. Child Development, 75(6), 1832–1849.PubMed Gerard, J. M., & Buehler, C. (2004). Cumulative environmental risk and youth maladjustment: The role of youth attributes. Child Development, 75(6), 1832–1849.PubMed
37.
go back to reference Horan, J. M., & Widom, C. S. (2015). Cumulative childhood risk and adult functioning in abused and neglected children grown up. Development and Psychopathology, 27(3), 927–941.PubMed Horan, J. M., & Widom, C. S. (2015). Cumulative childhood risk and adult functioning in abused and neglected children grown up. Development and Psychopathology, 27(3), 927–941.PubMed
38.
go back to reference Fontenot, K., Semega, J., & Kollar, M. (2018). Income and poverty in the United States: 2017 (pp. P60–263). Washington, DC: US Census Bureau. Fontenot, K., Semega, J., & Kollar, M. (2018). Income and poverty in the United States: 2017 (pp. P60–263). Washington, DC: US Census Bureau.
39.
go back to reference Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care, 39(8), 800–812.PubMed Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care, 39(8), 800–812.PubMed
40.
go back to reference Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5(1), 2.PubMedPubMedCentral Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5(1), 2.PubMedPubMedCentral
41.
go back to reference Varni, J. W., Stucky, B. D., Thissen, D., DeWitt, E. M., Irwin, D. E., Lai, J.-S., et al. (2010). PROMIS Pediatric Pain Interference Scale: an item response theory analysis of the pediatric pain item bank. The Journal of Pain, 11(11), 1109–1119.PubMedPubMedCentral Varni, J. W., Stucky, B. D., Thissen, D., DeWitt, E. M., Irwin, D. E., Lai, J.-S., et al. (2010). PROMIS Pediatric Pain Interference Scale: an item response theory analysis of the pediatric pain item bank. The Journal of Pain, 11(11), 1109–1119.PubMedPubMedCentral
42.
go back to reference Kashikar-Zuck, S., Carle, A., Barnett, K., Goldschneider, K. R., Sherry, D. D., Mara, C. A., et al. (2016). Longitudinal evaluation of patient reported outcomes measurement information systems (PROMIS) measures in pediatric chronic pain. Pain, 157(2), 339.PubMedPubMedCentral Kashikar-Zuck, S., Carle, A., Barnett, K., Goldschneider, K. R., Sherry, D. D., Mara, C. A., et al. (2016). Longitudinal evaluation of patient reported outcomes measurement information systems (PROMIS) measures in pediatric chronic pain. Pain, 157(2), 339.PubMedPubMedCentral
43.
go back to reference Myers, T. A. (2011). Goodbye, listwise deletion: Presenting hot deck imputation as an easy and effective tool for handling missing data. Communication Methods and Measures, 5(4), 297–310. Myers, T. A. (2011). Goodbye, listwise deletion: Presenting hot deck imputation as an easy and effective tool for handling missing data. Communication Methods and Measures, 5(4), 297–310.
45.
go back to reference Appleyard, K., Egeland, B., van Dulmen, M. H. M., & Alan Sroufe, L. (2005). When more is not better: The role of cumulative risk in child behavior outcomes. Journal of Child Psychology and Psychiatry, 46(3), 235–245.PubMed Appleyard, K., Egeland, B., van Dulmen, M. H. M., & Alan Sroufe, L. (2005). When more is not better: The role of cumulative risk in child behavior outcomes. Journal of Child Psychology and Psychiatry, 46(3), 235–245.PubMed
46.
go back to reference Gumidyala, A. P., & Greenley, R. N. (2013). Correlates of health-related quality of life in pediatric inflammatory bowel disease: A cumulative risk model approach. Journal of Pediatric Psychology, 39(1), 55–64.PubMed Gumidyala, A. P., & Greenley, R. N. (2013). Correlates of health-related quality of life in pediatric inflammatory bowel disease: A cumulative risk model approach. Journal of Pediatric Psychology, 39(1), 55–64.PubMed
47.
go back to reference Gray, W. N., Graef, D. M., Schuman, S. S., Janicke, D. M., & Hommel, K. A. (2013). Parenting stress in pediatric IBD: Relations with child psychopathology, family functioning, and disease severity. Journal of Developmental and Behavioral Pediatrics, 34(4), 237.PubMedPubMedCentral Gray, W. N., Graef, D. M., Schuman, S. S., Janicke, D. M., & Hommel, K. A. (2013). Parenting stress in pediatric IBD: Relations with child psychopathology, family functioning, and disease severity. Journal of Developmental and Behavioral Pediatrics, 34(4), 237.PubMedPubMedCentral
48.
go back to reference Banez, G. A., & Compas, B. E. (1990). Children's and parents' daily stressful events and psychological symptoms. Journal of Abnormal Child Psychology, 18(6), 591–605.PubMed Banez, G. A., & Compas, B. E. (1990). Children's and parents' daily stressful events and psychological symptoms. Journal of Abnormal Child Psychology, 18(6), 591–605.PubMed
49.
go back to reference Thompson, R. J., Gil, K. M., Burbach, D. J., Keith, B. R., & Kinney, T. R. (1993). Role of child and maternal processes in the psychological adjustment of children with sickle cell disease. Journal of Consulting and Clinical Psychology, 61(3), 468.PubMed Thompson, R. J., Gil, K. M., Burbach, D. J., Keith, B. R., & Kinney, T. R. (1993). Role of child and maternal processes in the psychological adjustment of children with sickle cell disease. Journal of Consulting and Clinical Psychology, 61(3), 468.PubMed
50.
go back to reference Manuel, J. C. (2001). Risk and resistance factors in the adaptation in mothers of children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 26(4), 237–246.PubMed Manuel, J. C. (2001). Risk and resistance factors in the adaptation in mothers of children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 26(4), 237–246.PubMed
51.
go back to reference Bandura, A., Caprara, G. V., Barbaranelli, C., Regalia, C., & Scabini, E. (2011). Impact of family efficacy beliefs on quality of family functioning and satisfaction with family life. Applied Psychology, 60(3), 421–448. Bandura, A., Caprara, G. V., Barbaranelli, C., Regalia, C., & Scabini, E. (2011). Impact of family efficacy beliefs on quality of family functioning and satisfaction with family life. Applied Psychology, 60(3), 421–448.
52.
go back to reference Podsakoff, P. M., MacKenzie, S. B., Lee, J. Y., & Podsakoff, N. P. (2003). Common method biases in behavioral research: A critical review of the literature and recommended remedies. Journal of Applied Psychology, 88(5), 879.PubMed Podsakoff, P. M., MacKenzie, S. B., Lee, J. Y., & Podsakoff, N. P. (2003). Common method biases in behavioral research: A critical review of the literature and recommended remedies. Journal of Applied Psychology, 88(5), 879.PubMed
53.
go back to reference Gold, J. I., Treadwell, M., Weissman, L., & Vichinsky, E. (2011). The mediating effects of family functioning on psychosocial outcomes in healthy siblings of children with sickle cell disease. Pediatric Blood & Cancer, 57(6), 1055–1061. Gold, J. I., Treadwell, M., Weissman, L., & Vichinsky, E. (2011). The mediating effects of family functioning on psychosocial outcomes in healthy siblings of children with sickle cell disease. Pediatric Blood & Cancer, 57(6), 1055–1061.
Metagegevens
Titel
Risk models for predicting the health-related quality of life of caregivers of youth with gastrointestinal concerns
Auteurs
Mary K. Lynch
Kathryn A. Thompson
Reed A. Dimmitt
Margaux J. Barnes
Burel R. Goodin
Publicatiedatum
13-08-2020
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 12/2020
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-020-02601-7

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