Skip to main content
Top
Gepubliceerd in:

30-06-2021 | Original Paper

Restricted Eating in Preschoolers with Autism: Mother Stressors and Solutions

Auteurs: Karen Burkett, Marissa-Li Haggard, Dawn Van Rafelghem, Karen Harpster

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2022

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Feeding interventions for children with Autism Spectrum Disorder (ASD) focus solely on the child, not the family milieu. This qualitative study aimed to understand mothers’ perspectives on managing restricted eating among preschoolers with ASD. Focus groups were conducted with eleven mothers of preschoolers with ASD. Audio recordings were transcribed, and data analyzed for themes. Mothers experienced stressors balancing priorities of adequate nutrition with family mealtime demands and found solutions in support from other mothers, strategies from a wide array of sources, and resorting to trial and error to improve eating. Healthcare practitioners should explore and consider family stressors, competing demands, and coping skills when recommending mealtime interventions for optimal child and family well-being.
Literatuur
go back to reference Ausderau, K. K., & Juarez, M. (2013). The impact of autism spectrum disorders and eating challenges on family mealtimes. ICAN: Infant, Child, & Adolescent Nutrition, 5(5), 315–323. Ausderau, K. K., & Juarez, M. (2013). The impact of autism spectrum disorders and eating challenges on family mealtimes. ICAN: Infant, Child, & Adolescent Nutrition, 5(5), 315–323.
go back to reference Baker-Ericzén, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204.CrossRef Baker-Ericzén, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204.CrossRef
go back to reference Bazeley, P., & Jackson, K. (2013). Qualitative data analysis with NVivo. SAGE publications limited. Bazeley, P., & Jackson, K. (2013). Qualitative data analysis with NVivo. SAGE publications limited.
go back to reference Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17(4), 208–215.CrossRef Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17(4), 208–215.CrossRef
go back to reference Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism, 8(4), 409–423.CrossRef Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism, 8(4), 409–423.CrossRef
go back to reference Côté-Arsenault, D. (2013). Focus groups. Routledge international handbook of qualitative nursing research. (pp. 337–348). Routledge. Côté-Arsenault, D. (2013). Focus groups. Routledge international handbook of qualitative nursing research. (pp. 337–348). Routledge.
go back to reference Curtin, C., Hubbard, K., Anderson, S. E., Mick, E., Must, A., & Bandini, L. G. (2015). Food selectivity, mealtime behavior problems, spousal stress, and family food choices in children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(10), 3308–3315.CrossRef Curtin, C., Hubbard, K., Anderson, S. E., Mick, E., Must, A., & Bandini, L. G. (2015). Food selectivity, mealtime behavior problems, spousal stress, and family food choices in children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(10), 3308–3315.CrossRef
go back to reference Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–52.CrossRef Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–52.CrossRef
go back to reference Eisenberg, M. E., Olson, R. E., Neumark-Sztainer, D., Story, M., & Bearinger, L. H. (2004). Correlations between family meals and psychosocial well-being among adolescents. Archives of Pediatrics & Adolescent Medicine, 158(8), 792–796.CrossRef Eisenberg, M. E., Olson, R. E., Neumark-Sztainer, D., Story, M., & Bearinger, L. H. (2004). Correlations between family meals and psychosocial well-being among adolescents. Archives of Pediatrics & Adolescent Medicine, 158(8), 792–796.CrossRef
go back to reference Estes, A., Munson, J., Rogers, S. J., Greenson, J., Winter, J., & Dawson, G. (2015). Long-term outcomes of early intervention in 6-year-old children with autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 54(7), 580–587.CrossRef Estes, A., Munson, J., Rogers, S. J., Greenson, J., Winter, J., & Dawson, G. (2015). Long-term outcomes of early intervention in 6-year-old children with autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 54(7), 580–587.CrossRef
go back to reference Gronski, M., & Doherty, M. (2020). Interventions within the scope of occupational therapy practice to improve activities of daily living, rest, and sleep for children ages 0–5 years and their families: A systematic review. American Journal of Occupational Therapy, 74(2), 11–33. https://doi.org/10.5014/ajot.2020.039545CrossRef Gronski, M., & Doherty, M. (2020). Interventions within the scope of occupational therapy practice to improve activities of daily living, rest, and sleep for children ages 0–5 years and their families: A systematic review. American Journal of Occupational Therapy, 74(2), 11–33. https://​doi.​org/​10.​5014/​ajot.​2020.​039545CrossRef
go back to reference Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.CrossRef Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.CrossRef
go back to reference Kodak, T., & Piazza, C. C. (2008). Assessment and behavioral treatment of feeding and sleeping disorders in children with autism spectrum disorders. Child and Adolescent Psychiatric Clinics of North America, 17(4), 887–905.CrossRef Kodak, T., & Piazza, C. C. (2008). Assessment and behavioral treatment of feeding and sleeping disorders in children with autism spectrum disorders. Child and Adolescent Psychiatric Clinics of North America, 17(4), 887–905.CrossRef
go back to reference Krueger, R., & Casey, M. (2014). Focus Groups: A practical guide for applied health research. Sage Publications. Krueger, R., & Casey, M. (2014). Focus Groups: A practical guide for applied health research. Sage Publications.
go back to reference Lázaro, C. P., & Pondé, M. P. (2017). Narratives of mothers of children with autism spectrum disorders: Focus on eating behavior. Trends in Psychiatry and Psychotherapy, 39(3), 4–11.CrossRef Lázaro, C. P., & Pondé, M. P. (2017). Narratives of mothers of children with autism spectrum disorders: Focus on eating behavior. Trends in Psychiatry and Psychotherapy, 39(3), 4–11.CrossRef
go back to reference Ledford, J. R., & Gast, D. L. (2006). Feeding problems in children with autism spectrum disorders: A review. Focus on Autism and Other Developmental Disabilities, 21(3), 153–166.CrossRef Ledford, J. R., & Gast, D. L. (2006). Feeding problems in children with autism spectrum disorders: A review. Focus on Autism and Other Developmental Disabilities, 21(3), 153–166.CrossRef
go back to reference Lindly, O., Thorburn, S., Heisler, K., Reyes, N., & Zuckerman, K. (2017). Parent disclosure of complementary health approaches used for children with autism spectrum disorder: Barriers and facilitators. Complementary Therapies in Medicine, 35, 47–52.CrossRef Lindly, O., Thorburn, S., Heisler, K., Reyes, N., & Zuckerman, K. (2017). Parent disclosure of complementary health approaches used for children with autism spectrum disorder: Barriers and facilitators. Complementary Therapies in Medicine, 35, 47–52.CrossRef
go back to reference Lockner, D. W., Crowe, T. K., & Skipper, B. J. (2008). Dietary intake and parents’ perception of mealtime behaviors in preschool-age children with autism spectrum disorder and in typically developing children. Journal of the American Dietetic Association, 108(8), 1360–1363.CrossRef Lockner, D. W., Crowe, T. K., & Skipper, B. J. (2008). Dietary intake and parents’ perception of mealtime behaviors in preschool-age children with autism spectrum disorder and in typically developing children. Journal of the American Dietetic Association, 108(8), 1360–1363.CrossRef
go back to reference Ludlow, A., Skelly, C., & Rohleder, P. (2012). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702–711.CrossRef Ludlow, A., Skelly, C., & Rohleder, P. (2012). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702–711.CrossRef
go back to reference Marshall, J., Ware, R., Ziviani, J., Hill, R., & Dodrill, P. (2015). Efficacy of interventions to improve feeding difficulties in children with autism spectrum disorders: A systematic review and meta-analysis. Child: Care, Health and Development, 41(2), 278–302.CrossRef Marshall, J., Ware, R., Ziviani, J., Hill, R., & Dodrill, P. (2015). Efficacy of interventions to improve feeding difficulties in children with autism spectrum disorders: A systematic review and meta-analysis. Child: Care, Health and Development, 41(2), 278–302.CrossRef
go back to reference McFarland, M., & Wehbe-Alamah, H. (2015). Leininger’s Culture Care Diversity and Universality: A worldwide nursing theory. (3rd ed.). Jones & Bartlett. McFarland, M., & Wehbe-Alamah, H. (2015). Leininger’s Culture Care Diversity and Universality: A worldwide nursing theory. (3rd ed.). Jones & Bartlett.
go back to reference Peters-Scheffer, N., Didden, R., Korzilius, H., & Sturmey, P. (2011). A meta-analytic study on the effectiveness of comprehensive ABA-based early intervention programs for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 60–69.CrossRef Peters-Scheffer, N., Didden, R., Korzilius, H., & Sturmey, P. (2011). A meta-analytic study on the effectiveness of comprehensive ABA-based early intervention programs for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 60–69.CrossRef
go back to reference Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451.CrossRef Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451.CrossRef
go back to reference Reichow, B. (2012). Overview of meta-analyses on early intensive behavioral intervention for young children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(4), 512–520.CrossRef Reichow, B. (2012). Overview of meta-analyses on early intensive behavioral intervention for young children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(4), 512–520.CrossRef
go back to reference Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620.CrossRef Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620.CrossRef
go back to reference Rogers, L. G., Magill-Evans, J., & Rempel, G. R. (2012). Mothers’ challenges in feeding their children with Autism Spectrum Disorder—Managing more than just picky eating. Journal of Developmental and Physical Disabilities, 24(1), 19–33.CrossRef Rogers, L. G., Magill-Evans, J., & Rempel, G. R. (2012). Mothers’ challenges in feeding their children with Autism Spectrum Disorder—Managing more than just picky eating. Journal of Developmental and Physical Disabilities, 24(1), 19–33.CrossRef
go back to reference Ryan, S. (2010). ‘Meltdowns’, surveillance and managing emotions; going out with children with autism. Health & Place, 16(5), 868–875.CrossRef Ryan, S. (2010). ‘Meltdowns’, surveillance and managing emotions; going out with children with autism. Health & Place, 16(5), 868–875.CrossRef
go back to reference Smolak, L., Levine, M. P., & Schermer, F. (1999). Parental input and weight concerns among elementary school children. International Journal of Eating Disorders, 25(3), 263–271.CrossRef Smolak, L., Levine, M. P., & Schermer, F. (1999). Parental input and weight concerns among elementary school children. International Journal of Eating Disorders, 25(3), 263–271.CrossRef
go back to reference Suarez, M. A., Atchison, B. J., & Lagerwey, M. (2014). Phenomenological examination of the mealtime experience for mothers of children with autism and food selectivity. American Journal of Occupational Therapy, 68(1), 102–107.CrossRef Suarez, M. A., Atchison, B. J., & Lagerwey, M. (2014). Phenomenological examination of the mealtime experience for mothers of children with autism and food selectivity. American Journal of Occupational Therapy, 68(1), 102–107.CrossRef
go back to reference Thullen, M., & Bonsall, A. (2017). Co-parenting quality, parenting stress, and feeding challenges in families with a child diagnosed with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(3), 878–886.CrossRef Thullen, M., & Bonsall, A. (2017). Co-parenting quality, parenting stress, and feeding challenges in families with a child diagnosed with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(3), 878–886.CrossRef
go back to reference Twachtman-Reilly, J., Amaral, S. C., & Zebrowski, P. P. (2008). Addressing feeding disorders in children on the autism spectrum in school-based settings: Physiological and behavioral issues. Language, Speech, and Hearing Services in Schools, 39, 261.CrossRef Twachtman-Reilly, J., Amaral, S. C., & Zebrowski, P. P. (2008). Addressing feeding disorders in children on the autism spectrum in school-based settings: Physiological and behavioral issues. Language, Speech, and Hearing Services in Schools, 39, 261.CrossRef
go back to reference Warren, Z., McPheeters, M. L., Sathe, N., Foss-Feig, J. H., Glasser, A., & Veenstra-VanderWeele, J. (2011). A systematic review of early intensive intervention for autism spectrum disorders. Pediatrics, 127(5), e1303–e1311.CrossRef Warren, Z., McPheeters, M. L., Sathe, N., Foss-Feig, J. H., Glasser, A., & Veenstra-VanderWeele, J. (2011). A systematic review of early intensive intervention for autism spectrum disorders. Pediatrics, 127(5), e1303–e1311.CrossRef
go back to reference Wertheim, E. H. (2002). Parent influences in the transmission of eating and weight related values and behaviors. Eating Disorders, 10(4), 321–334.CrossRef Wertheim, E. H. (2002). Parent influences in the transmission of eating and weight related values and behaviors. Eating Disorders, 10(4), 321–334.CrossRef
Metagegevens
Titel
Restricted Eating in Preschoolers with Autism: Mother Stressors and Solutions
Auteurs
Karen Burkett
Marissa-Li Haggard
Dawn Van Rafelghem
Karen Harpster
Publicatiedatum
30-06-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05078-6

Andere artikelen Uitgave 6/2022

Journal of Autism and Developmental Disorders 6/2022 Naar de uitgave