Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 6/2022

07-07-2021 | Original Paper

Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access During the Transition to Adulthood for Youth with ASD

Auteurs: Julie Lounds Taylor, Florencia Pezzimenti, Meghan M. Burke, Leann Smith DaWalt, Chung eun Lee, Carol Rabideau

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2022

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Many youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. The present study describes the development, feasibility and acceptability of a new intervention designed to teach parents of transition-aged youth with ASD about the adult service system and the most effective ways to access services and supports. As part of a randomized-controlled trial, the intervention—named ASSIST—was delivered to 91 participants in three states in the U.S. Results suggested that ASSIST is feasible and acceptable to participants. Though intended to be an in-person group-based program, due to COVID-19 restrictions ASSIST was primarily delivered online. Results and discussion explore the trade-offs and implications of these different treatment delivery modalities in relation to ASSIST.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
go back to reference Ballaban-Gil, K., & Rapin, L., Tuchman, T., & Shinnar, S. (1996). Longitudinal examination of the behavioral, language, and social changes in a population of adolescent and young adults with autistic disorder. Pediatric Neurology, 15(3), 217–223.CrossRef Ballaban-Gil, K., & Rapin, L., Tuchman, T., & Shinnar, S. (1996). Longitudinal examination of the behavioral, language, and social changes in a population of adolescent and young adults with autistic disorder. Pediatric Neurology, 15(3), 217–223.CrossRef
go back to reference Billstedt, E., Gillberg, C., & Gillberg, C. (2005). Autism after adolescence: Population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35(3), 351–360.CrossRef Billstedt, E., Gillberg, C., & Gillberg, C. (2005). Autism after adolescence: Population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35(3), 351–360.CrossRef
go back to reference The Case for Inclusion 2020: Key Findings Report. (2020). caseforinclusion.org The Case for Inclusion 2020: Key Findings Report. (2020). caseforinclusion.org
go back to reference The Case For Inclusion Report: 2019. (2019). caseforinclusion.org The Case For Inclusion Report: 2019. (2019). caseforinclusion.org
go back to reference Fixsen, D., Naoom, S., Blase, K., Friedman, R., Wallace, F. (2005). Implementation research: A synthesis of the literature. University of South Florida, Louis de la Parte Florida Mental Health Institute, National Implementation Research Network (FMHI Publication #231). Fixsen, D., Naoom, S., Blase, K., Friedman, R., Wallace, F. (2005). Implementation research: A synthesis of the literature. University of South Florida, Louis de la Parte Florida Mental Health Institute, National Implementation Research Network (FMHI Publication #231).
go back to reference Lyons, J., Cappadocia, M. C., & Weiss, J. A. (2011). Brief report: Social characteristics of students with autism spectrum disorders across classroom settings [Article]. Journal on Developmental Disabilities, 17(1), 77–82. Lyons, J., Cappadocia, M. C., & Weiss, J. A. (2011). Brief report: Social characteristics of students with autism spectrum disorders across classroom settings [Article]. Journal on Developmental Disabilities, 17(1), 77–82.
go back to reference Nguyen, M. H., Gruber, J., Fuchs, J., Marler, W., Hunsaker, A., & Hargittai, E. (2020). Changes in digital communication during the COVID-19 global pandemic: Implications for digital inequality and future research. Social Media + Society, 6(3), 2056305120948255. https://doi.org/10.1177/2056305120948255 Nguyen, M. H., Gruber, J., Fuchs, J., Marler, W., Hunsaker, A., & Hargittai, E. (2020). Changes in digital communication during the COVID-19 global pandemic: Implications for digital inequality and future research. Social Media + Society, 6(3), 2056305120948255. https://​doi.​org/​10.​1177/​2056305120948255​
go back to reference Residential Information Systems Project. (2020). How many people with intellectual or developmental disabilities live in the United States? https.//risp.umn.edu Residential Information Systems Project. (2020). How many people with intellectual or developmental disabilities live in the United States? https.//risp.umn.edu
go back to reference Rutter, M., Bailey, A., & Lord, C. (2003). SCQ: Social communication questionnaire. Westerna Psychological Services. Rutter, M., Bailey, A., & Lord, C. (2003). SCQ: Social communication questionnaire. Westerna Psychological Services.
go back to reference Taylor, J. L., Hodapp, R. M., Burke, M. M., Waitz-Kudla, S. N., & Rabideau, C. (2017b). Effects of a parent-training intervention on service access and employment for youth with ASD. International Meeting for Autism Research, San Francisco, CA. Taylor, J. L., Hodapp, R. M., Burke, M. M., Waitz-Kudla, S. N., & Rabideau, C. (2017b). Effects of a parent-training intervention on service access and employment for youth with ASD. International Meeting for Autism Research, San Francisco, CA.
go back to reference West, E. A., Travers, J. C., Kemper, T. D., Liberty, L. M., Cote, D. L., McCollow, M. M., & Stansberry Brusnahan, L. L. (2016). Racial and ethnic diversity of participants in research supporting evidence-based practices for learners with autism spectrum disorder. The Journal of Special Education, 50(3), 151–163. https://doi.org/10.1177/0022466916632495CrossRef West, E. A., Travers, J. C., Kemper, T. D., Liberty, L. M., Cote, D. L., McCollow, M. M., & Stansberry Brusnahan, L. L. (2016). Racial and ethnic diversity of participants in research supporting evidence-based practices for learners with autism spectrum disorder. The Journal of Special Education, 50(3), 151–163. https://​doi.​org/​10.​1177/​0022466916632495​CrossRef
Metagegevens
Titel
Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access During the Transition to Adulthood for Youth with ASD
Auteurs
Julie Lounds Taylor
Florencia Pezzimenti
Meghan M. Burke
Leann Smith DaWalt
Chung eun Lee
Carol Rabideau
Publicatiedatum
07-07-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05128-z

Andere artikelen Uitgave 6/2022

Journal of Autism and Developmental Disorders 6/2022 Naar de uitgave