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Gepubliceerd in: Quality of Life Research 10/2010

01-12-2010

Reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in adolescents

Auteurs: Parisa Amiri, Emad M. Ardekani, Sara Jalali-Farahani, Farhad Hosseinpanah, James W. Varni, Fazlollah Ghofranipour, Ali Montazeri, Fereidoun Azizi

Gepubliceerd in: Quality of Life Research | Uitgave 10/2010

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Abstract

Objective

The objective of this study was to investigate the reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™ 4.0) Generic Core Scales in adolescents

Methods

After linguistic validation, the Iranian version of the PedsQL™ 4.0 was completed by 848 healthy and 26 chronically ill adolescents aged 13–18 years and their parents.

Results

The internal consistency as measured by Cronbach’s alpha coefficients exceeded the minimum reliability standard of .70. No floor effects were observed. Ceiling effects detected ranged from 1.5% for adolescent self-report total scale score to 42.2% for self-report social functioning. All monotrait-multimethod correlations were higher than multitrait-multimethod correlations. The intraclass correlation coefficients (ICC) between adolescent self-report and parent proxy-report showed good to excellent agreement. Exploratory factor analysis supported mainly comparable results with the original US English dialect version. The results of the confirmatory factor analysis for 5-factor models for both self-report and proxy-report indicated acceptable fit for the proposed models. Regarding gender and health status, as hypothesized from previous studies, girls reported lower health-related quality of life than boys on the total score, physical and emotional functioning, and healthy adolescents reported significantly higher health-related quality of life than those with chronic illnesses.

Conclusion

The findings support the initial reliability and validity of the Iranian version of the PedsQL™ 4.0 as a generic instrument to measure HRQOL of adolescents in Iran.
Literatuur
1.
go back to reference World Health Organization. (1948). Constitution of the World Health Organization: Basic document. Geneva, Switzerland: World Health Organization. World Health Organization. (1948). Constitution of the World Health Organization: Basic document. Geneva, Switzerland: World Health Organization.
2.
go back to reference Varni, J. W., & Limbers, C. A. (2009). The Pediatric Quality of Life Inventory: Measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatric Clinics of North America, 56(4), 843–863. CrossRefPubMed Varni, J. W., & Limbers, C. A. (2009). The Pediatric Quality of Life Inventory: Measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatric Clinics of North America, 56(4), 843–863. CrossRefPubMed
3.
go back to reference Varni, J. W., Burwinkle, T. M., Limbers, C. A., & Szer, I. S. (2007). The PedsQL as a patient-reported outcome in children and adolescents with fibromyalgia: An analysis of OMERACT domains. Health Quality Life Outcomes, 5, 9. CrossRef Varni, J. W., Burwinkle, T. M., Limbers, C. A., & Szer, I. S. (2007). The PedsQL as a patient-reported outcome in children and adolescents with fibromyalgia: An analysis of OMERACT domains. Health Quality Life Outcomes, 5, 9. CrossRef
4.
go back to reference Varni, J. W., Limbers, C., & Burwinkle, T. M. (2007). Literature review: Health-related quality of life measurement in pediatric oncology: Hearing the voices of the children. Journal of Pediatric Psychology, 32, 1151–1163. CrossRefPubMed Varni, J. W., Limbers, C., & Burwinkle, T. M. (2007). Literature review: Health-related quality of life measurement in pediatric oncology: Hearing the voices of the children. Journal of Pediatric Psychology, 32, 1151–1163. CrossRefPubMed
5.
go back to reference Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812. CrossRefPubMed Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812. CrossRefPubMed
6.
go back to reference Iannaccone, S. T., Hynan, L. S., Morton, A., Buchanan, R., Limbers, C. A., & Varni, J. W. (2009). The PedsQL™ in pediatric patients with spinal muscular atrophy: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ generic core scales and neuromuscular module. Neuromuscular Disorders, 19(12), 805–812. CrossRefPubMed Iannaccone, S. T., Hynan, L. S., Morton, A., Buchanan, R., Limbers, C. A., & Varni, J. W. (2009). The PedsQL™ in pediatric patients with spinal muscular atrophy: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ generic core scales and neuromuscular module. Neuromuscular Disorders, 19(12), 805–812. CrossRefPubMed
7.
go back to reference Varni, J. W., Limbers, C. A., Burwinkle, T. M., Bryant, W. P., & Wilson, D. P. (2008). The ePedsQL TM in type 1 and type 2 diabetes: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory internet administration. Diabetes Care, 31(4), 672–677. CrossRefPubMed Varni, J. W., Limbers, C. A., Burwinkle, T. M., Bryant, W. P., & Wilson, D. P. (2008). The ePedsQL TM in type 1 and type 2 diabetes: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory internet administration. Diabetes Care, 31(4), 672–677. CrossRefPubMed
8.
go back to reference Goldstein, S. L., Graham, N., Warady, B. A., Seikaly, M., McDonald, R., Burwinkle, T. M., et al. (2008). Measuring health-related quality of life in children with ESRD: Performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory™ (PedsQL™). American Journal of Kidney Diseases, 51(2), 285–297. CrossRefPubMed Goldstein, S. L., Graham, N., Warady, B. A., Seikaly, M., McDonald, R., Burwinkle, T. M., et al. (2008). Measuring health-related quality of life in children with ESRD: Performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory™ (PedsQL™). American Journal of Kidney Diseases, 51(2), 285–297. CrossRefPubMed
9.
go back to reference Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health Quality Life Outcomes, 5, 43. CrossRef Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health Quality Life Outcomes, 5, 43. CrossRef
10.
go back to reference Palmer, S. N., Meeske, K. A., Katz, E. R., Burwinkle, T. M., & Varni, J. W. (2007). The PedsQL™ brain tumor module: Initial reliability and validity. Pediatric Blood & Cancer, 49(3), 287–293. CrossRef Palmer, S. N., Meeske, K. A., Katz, E. R., Burwinkle, T. M., & Varni, J. W. (2007). The PedsQL™ brain tumor module: Initial reliability and validity. Pediatric Blood & Cancer, 49(3), 287–293. CrossRef
11.
go back to reference Uzark, K., Jones, K., Slusher, J., Limbers, C. A., Burwinkle, T. M., & Varni, J. W. (2008). Quality of life in children with heart disease as perceived by children and parents. Pediatrics, 121(5), e1060–e1067. CrossRefPubMed Uzark, K., Jones, K., Slusher, J., Limbers, C. A., Burwinkle, T. M., & Varni, J. W. (2008). Quality of life in children with heart disease as perceived by children and parents. Pediatrics, 121(5), e1060–e1067. CrossRefPubMed
12.
go back to reference Varni, J. W., Burwinkle, T. M., Berrin, S. J., Sherman, S. A., Artavia, K., Malcarne, V. L., et al. (2006). The PedsQL™ in pediatric cerebral palsy: Reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module. Developmental Medicine and Child Neurology, 48(6), 442–449. CrossRefPubMed Varni, J. W., Burwinkle, T. M., Berrin, S. J., Sherman, S. A., Artavia, K., Malcarne, V. L., et al. (2006). The PedsQL™ in pediatric cerebral palsy: Reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module. Developmental Medicine and Child Neurology, 48(6), 442–449. CrossRefPubMed
13.
go back to reference Varni, J. W., Burwinkle, T. M., Rapoff, M. A., Kamps, J. L., & Olson, N. (2004). The PedsQL™ in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory™ generic core scales and asthma module. Journal of Behavioral Medicine, 27(3), 297–318. CrossRefPubMed Varni, J. W., Burwinkle, T. M., Rapoff, M. A., Kamps, J. L., & Olson, N. (2004). The PedsQL™ in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory™ generic core scales and asthma module. Journal of Behavioral Medicine, 27(3), 297–318. CrossRefPubMed
14.
go back to reference Varni, J. W., Seid, M., Smith Knight, T., Burwinkle, T., Brown, J., & Szer, I. S. (2002). The PedsQL TM in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory TM Generic Core Scales and Rheumatology Module. Arthritis and Rheumatism, 46(3), 714–725. CrossRefPubMed Varni, J. W., Seid, M., Smith Knight, T., Burwinkle, T., Brown, J., & Szer, I. S. (2002). The PedsQL TM in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory TM Generic Core Scales and Rheumatology Module. Arthritis and Rheumatism, 46(3), 714–725. CrossRefPubMed
15.
go back to reference Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, P. (2002). The PedsQL TM in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory TM generic core scales, multidimensional fatigue scale, and cancer module. Cancer, 94(7), 2090–2106. CrossRefPubMed Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, P. (2002). The PedsQL TM in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory TM generic core scales, multidimensional fatigue scale, and cancer module. Cancer, 94(7), 2090–2106. CrossRefPubMed
16.
go back to reference Varni, J. W., Seid, M., & Rode, C. A. (1999). The PedsQL™: Measurement model for the Pediatric Quality of Life Inventory™. Medical Care, 37(2), 126–139. CrossRefPubMed Varni, J. W., Seid, M., & Rode, C. A. (1999). The PedsQL™: Measurement model for the Pediatric Quality of Life Inventory™. Medical Care, 37(2), 126–139. CrossRefPubMed
17.
go back to reference Varni, J. W., Limbers, C. A., Burwinkle, T. M., Bryant, W. P., & Wilson, D. P. (2008). The ePedsQL in type 1 and type 2 diabetes: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory internet administration. Diabetes Care, 31(4), 672–677. CrossRefPubMed Varni, J. W., Limbers, C. A., Burwinkle, T. M., Bryant, W. P., & Wilson, D. P. (2008). The ePedsQL in type 1 and type 2 diabetes: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory internet administration. Diabetes Care, 31(4), 672–677. CrossRefPubMed
18.
go back to reference Varni, J. W., Burwinkle, T. M., & Seid, M. (2006). The PedsQL TM 4.0 as a school population health measure: Feasibility, reliability, and validity. Quality Life Research, 15(2), 203–215. CrossRef Varni, J. W., Burwinkle, T. M., & Seid, M. (2006). The PedsQL TM 4.0 as a school population health measure: Feasibility, reliability, and validity. Quality Life Research, 15(2), 203–215. CrossRef
19.
go back to reference Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D. (2003). The PedsQL TM 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3(6), 329–341. CrossRefPubMed Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D. (2003). The PedsQL TM 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3(6), 329–341. CrossRefPubMed
20.
go back to reference Reinfjell, T., Diseth, T. H., Veenstra, M., & Vikan, A. (2006). Measuring health-related quality of life in young adolescents: Reliability and validity in the Norwegian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales. Health and Quality of Life Outcomes, 4, 61. CrossRefPubMed Reinfjell, T., Diseth, T. H., Veenstra, M., & Vikan, A. (2006). Measuring health-related quality of life in young adolescents: Reliability and validity in the Norwegian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales. Health and Quality of Life Outcomes, 4, 61. CrossRefPubMed
21.
go back to reference Uneri, O. S., Agaoglu, B., Coskun, A., & Memik, N. C. (2008). Validity and reliability of Pediatric Quality of Life Inventory TM for 2- to 4-year-old and 5- to 7-year-old Turkish children. Quality Life Research, 17(2), 307–315. CrossRef Uneri, O. S., Agaoglu, B., Coskun, A., & Memik, N. C. (2008). Validity and reliability of Pediatric Quality of Life Inventory TM for 2- to 4-year-old and 5- to 7-year-old Turkish children. Quality Life Research, 17(2), 307–315. CrossRef
22.
go back to reference Upton, P., Eiser, C., Cheung, I., Hutchings, H. A., Jenney, M., Maddocks, A., et al. (2005). Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales. Health Quality Life Outcomes, 3, 22. CrossRef Upton, P., Eiser, C., Cheung, I., Hutchings, H. A., Jenney, M., Maddocks, A., et al. (2005). Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales. Health Quality Life Outcomes, 3, 22. CrossRef
23.
go back to reference Chen, X., Origasa, H., Ichida, F., Kamibeppu, K., & Varni, J. W. (2007). Reliability and validity of the Pediatric Quality of Life Inventory TM (PedsQL TM) Short Form 15 Generic Core Scales in Japan. Quality Life Research, 16(7), 1239–1249. CrossRef Chen, X., Origasa, H., Ichida, F., Kamibeppu, K., & Varni, J. W. (2007). Reliability and validity of the Pediatric Quality of Life Inventory TM (PedsQL TM) Short Form 15 Generic Core Scales in Japan. Quality Life Research, 16(7), 1239–1249. CrossRef
24.
go back to reference Klatchoian, D. A., Len, C. A., Terreri, M. T., Silva, M., Itamoto, C., Ciconelli, R. M., et al. (2008). Quality of life of children and adolescents from Sao Paulo: Reliability and validity of the Brazilian version of the Pediatric Quality of Life Inventory TM version 4.0 Generic Core Scales. Jornal de Pediatria, 84(4), 308–315. CrossRefPubMed Klatchoian, D. A., Len, C. A., Terreri, M. T., Silva, M., Itamoto, C., Ciconelli, R. M., et al. (2008). Quality of life of children and adolescents from Sao Paulo: Reliability and validity of the Brazilian version of the Pediatric Quality of Life Inventory TM version 4.0 Generic Core Scales. Jornal de Pediatria, 84(4), 308–315. CrossRefPubMed
25.
go back to reference Gkoltsiou, K., Dimitrakaki, C., Tzavara, C., Papaevangelou, V., Varni, J. W., & Tountas, Y. (2008). Measuring health-related quality of life in Greek children: Psychometric properties of the greek version of the Pediatric Quality of Life Inventory TM 4.0 generic core scales. Quality Life Research, 17(2), 299–305. CrossRef Gkoltsiou, K., Dimitrakaki, C., Tzavara, C., Papaevangelou, V., Varni, J. W., & Tountas, Y. (2008). Measuring health-related quality of life in Greek children: Psychometric properties of the greek version of the Pediatric Quality of Life Inventory TM 4.0 generic core scales. Quality Life Research, 17(2), 299–305. CrossRef
26.
go back to reference Bisegger, C., Cloetta, B., von Bisegger, U., Abel, T., Ravens-Sieberer, U., & The European Kidscreen. (2005). Health-related quality of life: Gender differences in childhood and adolescence. Sozial-und Präventivmedizin/Social and Preventive Medicine, 50(5), 281–291. CrossRef Bisegger, C., Cloetta, B., von Bisegger, U., Abel, T., Ravens-Sieberer, U., & The European Kidscreen. (2005). Health-related quality of life: Gender differences in childhood and adolescence. Sozial-und Präventivmedizin/Social and Preventive Medicine, 50(5), 281–291. CrossRef
29.
go back to reference McHorney, C. A., Ware, J. E., Lu, J. F. R., & Sherbourne, C. D. (1994). The MOS 36-Item short-form health survey (SF-36).3. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Medical Care, 32(1), 40–66. CrossRefPubMed McHorney, C. A., Ware, J. E., Lu, J. F. R., & Sherbourne, C. D. (1994). The MOS 36-Item short-form health survey (SF-36).3. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Medical Care, 32(1), 40–66. CrossRefPubMed
30.
go back to reference McHorney, C. A., & Tarlov, A. R. (1995). Individual-patient monitoring in clinical practice: Are available health status surveys adequate? Quality Life Research, 4(4), 293–307. CrossRef McHorney, C. A., & Tarlov, A. R. (1995). Individual-patient monitoring in clinical practice: Are available health status surveys adequate? Quality Life Research, 4(4), 293–307. CrossRef
31.
go back to reference Cronbach, L. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16(3), 297–334. CrossRef Cronbach, L. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16(3), 297–334. CrossRef
32.
go back to reference Bartko, J. J. (1966). Intraclass correlation coefficient as a measure of reliability. Psychological Reports, 19(1), 3. PubMed Bartko, J. J. (1966). Intraclass correlation coefficient as a measure of reliability. Psychological Reports, 19(1), 3. PubMed
33.
go back to reference Cohen, J. (1988). Statistical power analysis for the behavioral sciences. New York: Academin Press. Cohen, J. (1988). Statistical power analysis for the behavioral sciences. New York: Academin Press.
34.
go back to reference Bentler, P. M., & Bonett, D. G. (1980). Significance tests and goodness of Fi tin the analysis of covariance structures. Psychological Bulletin, 88(3), 588–606. CrossRef Bentler, P. M., & Bonett, D. G. (1980). Significance tests and goodness of Fi tin the analysis of covariance structures. Psychological Bulletin, 88(3), 588–606. CrossRef
35.
go back to reference Limbers, C. A., Newman, D. A., & Varni, J. W. (2008). Factorial invariance of child self-report across healthy and chronic health condition groups: A confirmatory factor analysis utilizing the PedsQLTM 4.0 Generic Core Scales. Journal of Pediatric Psychology, 33(6), 630–639. CrossRefPubMed Limbers, C. A., Newman, D. A., & Varni, J. W. (2008). Factorial invariance of child self-report across healthy and chronic health condition groups: A confirmatory factor analysis utilizing the PedsQLTM 4.0 Generic Core Scales. Journal of Pediatric Psychology, 33(6), 630–639. CrossRefPubMed
36.
go back to reference Varni, J., Limbers, C., & Newman, D. (2008). Factorial invariance of the PedsQL™ 4.0 generic core scales child self-report across gender: A multigroup confirmatory factor analysis with 11, 356 Children Ages 5 to 18. Applied Research in Quality of Life, 3(2), 137–148. CrossRef Varni, J., Limbers, C., & Newman, D. (2008). Factorial invariance of the PedsQL™ 4.0 generic core scales child self-report across gender: A multigroup confirmatory factor analysis with 11, 356 Children Ages 5 to 18. Applied Research in Quality of Life, 3(2), 137–148. CrossRef
37.
go back to reference Limbers, C. A., Newman, D. A., & Varni, J. W. (2008). Factorial invariance of child self-report across age subgroups: A confirmatory factor analysis of ages 5 to 16 years utilizing the PedsQL TM 4.0 generic core scales. Value Health, 11(4), 659–668. CrossRefPubMed Limbers, C. A., Newman, D. A., & Varni, J. W. (2008). Factorial invariance of child self-report across age subgroups: A confirmatory factor analysis of ages 5 to 16 years utilizing the PedsQL TM 4.0 generic core scales. Value Health, 11(4), 659–668. CrossRefPubMed
38.
go back to reference Varni, J. W., & Limbers, C. A. (2009). The PedsQL (TM) 4.0 generic core scales young adult version feasibility, reliability and validity in a university student population. Journal of Health Psychology, 14(4), 611–622. CrossRefPubMed Varni, J. W., & Limbers, C. A. (2009). The PedsQL (TM) 4.0 generic core scales young adult version feasibility, reliability and validity in a university student population. Journal of Health Psychology, 14(4), 611–622. CrossRefPubMed
39.
go back to reference Avison, W. R., & McAlpine, D. D. (1992). Gender differences in symptoms of depression among adolescents. Journal of Health and Social Behavior, 33(2), 77–96. CrossRefPubMed Avison, W. R., & McAlpine, D. D. (1992). Gender differences in symptoms of depression among adolescents. Journal of Health and Social Behavior, 33(2), 77–96. CrossRefPubMed
40.
go back to reference Rosenfield, S., Vertefuille, J., & McAlpine, D. D. (2000). Gender stratification and mental health: An exploration of dimensions of the self. Social Psychology Quarterly, 63(3), 208–223. CrossRef Rosenfield, S., Vertefuille, J., & McAlpine, D. D. (2000). Gender stratification and mental health: An exploration of dimensions of the self. Social Psychology Quarterly, 63(3), 208–223. CrossRef
41.
go back to reference Eiser, C., & Morse, R. (2001). A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84(3), 205–211. CrossRefPubMed Eiser, C., & Morse, R. (2001). A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84(3), 205–211. CrossRefPubMed
Metagegevens
Titel
Reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in adolescents
Auteurs
Parisa Amiri
Emad M. Ardekani
Sara Jalali-Farahani
Farhad Hosseinpanah
James W. Varni
Fazlollah Ghofranipour
Ali Montazeri
Fereidoun Azizi
Publicatiedatum
01-12-2010
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 10/2010
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-010-9712-7