Swipe om te navigeren naar een ander artikel
(a) To compare the agreement between adolescent assessments of their quality of life (QoL) and that of their mothers; (b) to explore how the comparison is influenced by the method of analysis.
Forty-nine adolescents aged 12–18 years who received liver transplants, and their mothers completed the Child Health Questionnaire self (CF87) and parent (PF50) report.
There was wide variation in agreement between adolescent and parent responses depending on the method of analysis used. Analysis with t test showed no differences in physical function (t = 1.42, P = 0.16), role/social-physical (t = 0.07, P = 0.94), mental health (t = 0.55, P = 0.59) and family activities (t = −0.40, P = 0.69). Using Pearson correlation coefficients, there were significant correlations in every domain; however, there were no intraclass correlation or concordance correlation coefficients ≥0.80 suggesting less than strong agreement. Finally, the Bland–Altman comparison indicated wide variation in the 95% limits of agreement ranging from −46 to 58.5.
There was considerable inconsistency in agreement according to the methods of analysis. The wide variation in scores between adolescent and parent assessment of QoL suggests self rather than proxy report should be used as the primary outcome where possible.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Ware, J. E. (2007). The patient-reported outcomes information measurement system (PROMIS) seeks to improve and standardize measures of five generic health related QOL domains. Patient Reported Outcomes Newsletter,38, 1–3.
Department of Health. (2008). Guidance on the routine collection of patient reported outcome measures (PROMS). London: DH Publications.
Waters, E. B., Stewart-Brown, S., & Fitzpatrick, R. (2003). Agreement between adolescent self-report and parent reports of health and well-being: Results of an epidemiological study. Child: Care, Health and Development,297(6), 501–509. CrossRef
Parsons, S. K., Barlow, S. E., Levy, S. L., Supran, S. E., & Kaplan, S. H. (1999). Health-related quality of life in pediatric bone marrow transplant survivors: According to whom? International Journal of Cancer—Supplement,12, 46–51. CrossRef
United Nations. (1989). Convention on the rights of the child. London: HMSO.
Millstein, S. G., Adler, N. E., & Irwin, C. E. (1981). Conceptions of illness in young adolescents. Pediatrics,68(6), 834–839. PubMed
Landgraf, J. M., Abetz, L. N., & Ware, J. E. (1999). Child Health Questionnaire (CHQ). A users manual. Boston: The Health Institute, New England Medical Centre.
Bland, M., & Altman, D. G. (1986). Statistical methods for assessing agreement between two methods of clinical measurement. Lancet, 327(8476), 307–310. CrossRef
Sawyer, M., Antoniou, G., Toogood, I., & Rice, M. (1999). A comparison of parent and adolescent reports describing the health-related quality of life of adolescents treated for cancer. International Journal of Cancer,83(Suppl 12), 39–45. CrossRef
Speyer, E., Herbinet, A., Vuillemin, A., Chastagner, P., & Briancon, S. (2009). Agreement between children with cancer and their parents in reporting the child’s health-related quality of life during a stay at the hospital and at home. Child: Care, Health and Development,35(4), 489–495. CrossRef
Panepinto, J. A., Hoffman, R. G., & Pajewski, N. M. (2010). The effect of parental mental health on proxy reports of health related quality of life in children with sickle cell disease. Pediatric Blood & Cancer,55, 714–721. CrossRef
Lack, C. W., Storch, E. A., Keeley, M. L., Geffken, G. R., Ricketts, E. D., Murphy, T. K., et al. (2009). Quality of life in children and adolescents with obsessive compulsive disorder: Base rates parent-child agreement, and clinical correlates. Social Psychiatry and Epidemiology,44, 935–942. CrossRef
Laaksonen, C. B., Aromaa, M. E., Asanti, R. E., Heinonen, O. J., Koivusilta, L. K., Koski, P. J., et al. (2010). The change in child self-assessed and parent proxy assessed health related quality of life (HRQL) in early adolescence (10–12). Scandinavian Journal of Public Health,38, 9–16. PubMedCrossRef
Upton, P., Eiser, C., Cheung, I., Hutchings, H. A., Jenney, M., Maddock, A., et al. (2005). Measurement properties of the UK-English version of the pediatric quality of life inventory 4.0 (PedsQL) generic scales. Health and Quality of Life Outcomes,5, 22. CrossRef
Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., et al. (2010). COSMIN checklist manual. http://www.cosmin.nl.
Altman, D. G. (1991). Practical statistics for medical research. London: Chapman & Hall.
Bavelas, J. B., & Segal, L. (1982). Family systems theory: Background and implications. The Journal of Communication,32(3), 99–107. CrossRef
Department of Health. (2008). High quality care for all: NHS next stage review. Final report. London: The Stationery Office.
H.M.Government. (2005). Youth matters. London: The Stationery Office.
Taylor, R. M., Franck, L. S., Dhawan, A., Gibson, F. (2010). The stories of young people living with a liver transplant. Qualitative Health Research,20(8), 1076–1090. CrossRef
- Parental assessment of adolescent quality of life: can it replace self-assessment?
Rachel M. Taylor
Linda S. Franck
- Springer Netherlands