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Gepubliceerd in: Neuropraxis 1/2019

15-01-2019 | Artikel

Oefenen met een naaste na een beroerte: ervaringen met het CARE4STROKE-programma

Auteurs: Judith D. M. Vloothuis, Marja F. Depla, Cees M. P. M. Hertogh, Rinske H. M. Nijland, Marijn Mulder, Gert Kwakkel, Erwin E. H. van Wegen

Gepubliceerd in: Neuropraxis | Uitgave 1/2019

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Samenvatting

Oefenen met een naaste (caregiver-mediated exercises, CME) in aanvulling op de reguliere therapie is een nieuwe vorm van oefenen voor patiënten met een beroerte. Deze exploratieve kwalitatieve studie, onderdeel van de CARE4STROKE trial, richt zich op de ervaring van het samen oefenen. De onderzoeksvragen waren: 1) Hoe oefenen patiënt en naaste samen? en 2) Waar leidt het samen oefenen toe, behalve tot meer oefenmomenten? Er vonden semigestructureerde interviews plaats met zeven patiënten en zeven naasten uit de CARE4STROKE-interventiegroep. Analyse vond plaats met inductieve thematische analyse. We vonden drie manieren waarop de patiënt en naaste samen oefenden: 1) de controle lag bij de patiënt; 2) er was sprake van samenwerking; 3) de naaste nam de verantwoordelijkheid (in het verlengde van de rol als mantelzorger). De meerwaarde van het samen oefenen is in drie thema’s in te delen, namelijk: 1) actieve betrokkenheid leidt tot personalisatie, 2) voorbereiding op de thuissituatie en 3) betrokkenheid op elkaar. Geconcludeerd werd dat er verschillende rolverdeling bestaan bij het oefenen met een naaste. Het is van belang dat de fysiotherapeuten die de koppels begeleiden zich bewust zijn wat voor effect CME kan hebben op de belasting van de patiënt of de naaste. De meerwaarde van het samen oefenen reikt verder dan een intensivering van de therapie. Door de actieve betrokkenheid kan samen oefenen leiden tot een individualisering van het behandelplan en een betere voorbereiding op ontslag naar huis.
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Metagegevens
Titel
Oefenen met een naaste na een beroerte: ervaringen met het CARE4STROKE-programma
Auteurs
Judith D. M. Vloothuis
Marja F. Depla
Cees M. P. M. Hertogh
Rinske H. M. Nijland
Marijn Mulder
Gert Kwakkel
Erwin E. H. van Wegen
Publicatiedatum
15-01-2019
Uitgeverij
Bohn Stafleu van Loghum
Gepubliceerd in
Neuropraxis / Uitgave 1/2019
Print ISSN: 1387-5817
Elektronisch ISSN: 1876-5785
DOI
https://doi.org/10.1007/s12474-018-00214-y

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