Top

Optie A:

Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
Optie B:

Deel de link per e-mail
Link delen

vorige artikel Measurement properties of rheumatoid arthritis-...

volgende artikel Assessing the validity of single-item life sati...

Tip

Swipe om te navigeren naar een ander artikel

01-12-2014 | Review | Uitgave 10/2014

Measurement properties of questionnaires assessing participation in children and adolescents with a disability: a systematic review

Tijdschrift:: Quality of Life Research > Uitgave 10/2014

Auteurs:: Linda Rainey, Ruth van Nispen, Carlijn van der Zee, Ger van Rens

Extra’s

» Toegang tot de volledige tekst krijgen

Belangrijke opmerkingen

Electronic supplementary material

The online version of this article (doi:10.1007/s11136-014-0743-3) contains supplementary material, which is available to authorized users.

Abstract

Purpose

To critically appraise the measurement properties of questionnaires measuring participation in children and adolescents (0–18 years) with a disability.

Methods

Bibliographic databases were searched for studies evaluating the measurement properties of self-report or parent-report questionnaires measuring participation in children and adolescents (0–18 years) with a disability. The methodological quality of the included studies and the results of the measurement properties were evaluated using a checklist developed on consensus-based standards.

Results

The search strategy identified 3,977 unique publications, of which 22 were selected; these articles evaluated the development and measurement properties of eight different questionnaires. The Child and Adolescent Scale of Participation was evaluated most extensively, generally showing moderate positive results on content validity, internal consistency, reliability and construct validity. The remaining questionnaires also demonstrated positive results. However, at least 50 % of the measurement properties per questionnaire were not (or only poorly) assessed.

Conclusions

Studies of high methodological quality, using modern statistical methods, are needed to accurately assess the measurement properties of currently available questionnaires. Moreover, consensus is required on the definition of the construct ‘participation’ to determine content validity and to enable meaningful interpretation of outcomes.

Log in om toegang te krijgen

Hier inloggen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Podotherapeut Totaal

Binnen de bundel kunt u gebruik maken van boeken, tijdschriften, e-learnings, web-tv's en uitlegvideo's. BSL Podotherapeut Totaal is overal toegankelijk; via uw PC, tablet of smartphone.

Meer informatie

Supplementary material 1 (PDF 136 kb)

11136_2014_743_MOESM1_ESM.pdf

Petrenchik, T. M., & King, G. A. (2011). Pathways to positive development: Childhood participation in everyday places and activities. In S. Bazyk (Ed.), Mental health promotion, prevention, and intervention in children and youth: A guiding framework for occupational therapy (pp. 71–94). Bethesda, MD: American Occupational Therapy Association.

McManus, V., Corcoran, P., & Perry, I. J. (2008). Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in south west Ireland. BMC Pediatrics, 8(50), 1–10.

Law, M. (2002). Participation in the occupations of everyday life. American Journal of Occupational Therapy, 56, 640–649. PubMedCrossRef

Simpkins, S. D., Ripke, M., Huston, A. C., & Eccles, J. S. (2005). Predicting participation and outcomes in out-of-school activities: Similarities and differences across social ecologies. New Directions for Youth Development, 105, 51–69. PubMedCrossRef

King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M. K., & Young, N. L. (2003). A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Physical and Occupational Therapy in Pediatrics, 23, 63–90. PubMedCrossRef

Coster, W., & Khetani, M. A. (2008). Measuring participation of children with disabilities: Issues and challenges. Disability and Rehabilitation, 30, 639–648. PubMedCrossRef

WHO. (2007). International classification of functioning, disability and health for children and youth (ICF-CY). Geneva: World Health Organization.

Whiteneck, G., & Dijkers, M. P. (2009). Difficult to measure constructs: Conceptual and methodological issues concerning participation and environmental factors. Archives of Physical Medicine and Rehabilitation, 90(supplement), 1.

Eyssen, I. C., Steultjens, M. P., Dekker, J., & Terwee, C. B. (2011). A systematic review of instruments assessing participation: Challenges in defining participation. Archives of Physical Medicine and Rehabilitation, 92, 983–997. PubMedCrossRef

10.

McConachie, H., Colver, A. F., Forsyth, R. J., Jarvis, S. N., & Parkinson, K. N. (2006). Participation of disabled children: How should it be characterised and measured? Disability and Rehabilitation, 28, 1157–1164. PubMedCrossRef

11.

Colver, A. (2005). A shared framework and language for childhood disability. Developmental Medicine and Child Neurology, 47, 780–784. PubMedCrossRef

12.

Hemmingsson, H., & Jonsson, H. (2005). An occupational perspective on the concept of participation in the International Classification of Functioning, Disability and Health—Some critical remarks. American Journal of Occupational Therapy, 59, 569–576. PubMedCrossRef

13.

Ueda, S., & Okawa, Y. (2003). The subjective dimension of functioning and disability: What is it and what is it for? Disability and Rehabilitation, 25, 596–601. PubMedCrossRef

14.

Forsyth, R., & Jarvis, S. (2002). Participation in childhood. Child: Care, Health and Development, 28, 277–279.

15.

Wade, D. T., & Halligan, P. (2003). New wine in old bottles: The WHO ICF as an explanatory model of human behaviour. Clinical Rehabilitation, 17, 349–354. PubMedCrossRef

16.

Morris, C., Kurinczuk, J. J., & Fitzpatrick, R. (2005). Child or family assessed measures of activity performance and participation for children with cerebral palsy: A structured review. Child: Care, Health and Development, 31, 397–407.

17.

Sakzewski, L., Boyd, R., & Ziviani, J. (2007). Clinimetric properties of participation measures for 5- to 13-year-old children with cerebral palsy: A systematic review. Developmental Medicine and Child Neurology, 49, 232–240. PubMedCrossRef

18.

Ziviani, J., Desha, L., Feeney, R., & Boyd, R. (2010). Measures of participation outcomes and environmental considerations for children with acquired brain injury: A systematic review. Brain Impairment, 11, 93–112. CrossRef

19.

Phillips, R. L., Olds, T., Boshoff, K., & Lane, A. E. (2013). Measuring activity and participation in children and adolescents with disabilities: A literature review of available instruments. Australian Occupational Therapy Journal, 60, 288–300. PubMedCrossRef

20.

Scientific Advisory Committee of the Medical Outcomes Trust. (2002). Assessing health status and quality-of-life instruments: Attributes and review criteria. Quality of Life Research, 11, 193–205. CrossRef

21.

Valderas, J. M., Ferrer, M., Mendivil, J., Garin, O., Rajmil, L., Herdman, M., et al. (2008). Development of EMPRO: A tool for the standardized assessment of patient-reported outcome measures. Value Health, 11, 700–708. PubMedCrossRef

22.

Andresen, E. M. (2000). Criteria for assessing the tools of disability outcomes research. Archives of Physical Medicine and Rehabilitation, 81(2), S15–S20. PubMedCrossRef

23.

Mokkink, L. B., Terwee, C. B., Knol, D. L., et al. (2009). The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: A clarification of its content. BMC Medical Research Methodology, 10, 1–8.

24.

Terwee, C. B., Jansma, E. P., Riphagen, I. I., & de Vet, H. C. W. (2009). Development of a methodological PubMed search filter for finding studies on measurement properties of measurement instruments. Quality of Life Research, 18, 1115–1123. PubMedCentralPubMedCrossRef

25.

Terwee, C. B., Mokkink, L. B., Knol, D. L., Ostelo, R. W. J. G., Bouter, L. M., & de Vet, H. C. W. (2012). Rating the methodological quality in systematic reviews of studies on measurement properties: A scoring system for the COSMIN checklist. Quality of Life Research, 21(4), 651–657. PubMedCentralPubMedCrossRef

26.

Mokkink, L. B., Terwee, C. B., Gibbons, E., et al. (2010). Inter-rater agreement and reliability of the COSMIN (consensus-based standards for the selection of health status measurement instruments) checklist. BMC Medical Research Methodology, 10, 1–11. CrossRef

27.

Terwee, C. B., Bot, S. D. M., de Boer, M. R., et al. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60, 34–42. PubMedCrossRef

28.

Mokkink, L. B., Terwee, C. B., Patrick, D. L., et al. (2010). International consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes: results of the COSMIN study. Journal of Clinical Epidemiology, 63, 737–745. PubMedCrossRef

29.

Law, M., King, G., Petrenchik, T., Kertoy, M., & Anaby, D. (2012). The Assessment of Preschool Children’s Participation: internal consistency and construct validity. Physical and Occupational Therapy in Pediatrics, 32, 272–287. PubMedCrossRef

30.

Chen, C., Chen, C., Shen, I., Liu, I., Kang, L., & Wu, C. (2013). Clinimetric properties of the Assessment of Preschool Children’s Participation in children with cerebral palsy. Research in Developmental Disabilities, 34, 1528–1535. PubMedCrossRef

31.

Bult, M. K., Verschuren, O., Kertoy, M. K., Lindeman, E., Jongmans, M. J., & Ketelaar, M. (2013). Psychometric evaluation of the dutch version of the Assessment of Preschool Children’s Participation (APCP): Construct validity and test–retest reliability. Physical and Occupational Therapy in Pediatrics, 33, 372–383. PubMedCrossRef

32.

Anastasiadi, I., & Tzetzis, G. (2013). Construct validation of the children’s assessment participation and enjoyment (CAPE) and preferences for activities for children (PAC). Journal of Physical Activity and Health, 10, 523–532. PubMed

33.

Ullenhag, A., Almqvist, L., Granlund, M., & Krumlinde-Sundholm, L. (2012). Cultural validity of the Children’s Assessment of Participation and Enjoyment/preferences for activities of children (CAPE/PAC). Scandinavian Journal of Occupational Therapy, 19, 428–438. PubMedCrossRef

34.

Nordtorp, H. L., Nyquist, A., Jahnsen, R., Moser, T., & Strand, L. I. (2013). Reliability of the Norwegian version of the Children’s Assessment of Participation and Enjoyment (CAPE) and preferences for activities of children (PAC). Physical and Occupational Therapy in Pediatrics, 33, 199–212. PubMedCrossRef

35.

Colon, W. I., Rodriguez, C., Ito, M., & Reed, C. N. (2008). Psychometric evaluation of the Spanish version of the Children’s Assessment of Participation and Enjoyment and preferences for activities of children. Occupational Therapy International, 15, 100–113. PubMedCrossRef

36.

Longo, E., Badia, M., Orgaz, B., & Verdugo, M. A. (2014). Cross-cultural validation of the Children’s Assessment of Participation and Enjoyment (CAPE) in Spain. Child: Care, Health And Development, 40, 231–241.

37.

Bult, M. K., Verschuren, O., Gorter, J. W., Jongmans, M. J., Piskur, B., & Ketelaar, M. (2010). Cross- cultural validation and psychometric evaluation of the Dutch language version of the Children’s Assessment of Participation and Enjoyment (CAPE) in children with and without physical disabilities. Clinical Rehabilitation, 24, 843–853. PubMedCrossRef

38.

Potvin, M. C., Snider, L., Prelock, P., Kehayia, E., & Wood-Dauphinee, S. (2013). Children’s Assessment of Participation and Enjoyment/preferences for activities of children: Psychometric properties in a population with high-functioning autism. American Journal of Occupational Therapy, 67, 209–217. PubMedCrossRef

39.

King, G. A., Law, M., King, S., et al. (2006). Measuring children’s participation in recreation and leisure activities: Construct validation of the CAPE and PAC. Child: Care, Health and Development, 33, 28–39.

40.

King, G., Law, M., King, S., Hurley, P., Rosenbaum, P., Hanna, S., et al. (2004). Children’s Assessment of Participation and Enjoyment (CAPE) and preferences for activities of children. San Antonio, TX: PsychCorp.

41.

Hwang, A., Liou, T., Bedell, G., et al. (2013). Psychometric properties of the Child and Adolescent Scale of Participation—Traditional Chinese version. International Journal of Rehabilitation Research, 36, 211–220. PubMedCrossRef

42.

Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342–351. PubMedCrossRef

43.

McDougall, J., Bedell, G., & Wright, V. (2013). The youth report version of the Child and Adolescent Scale of Participation (CASP): Assessment of psychometric properties and comparison with parent report. Child: Care, Health and Development, 39, 512–522.

44.

Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after discharge from inpatient rehabilitation. NeuroRehabilitation, 19, 191–205. PubMed

45.

Rosenberg, L., Jarus, T., & Bart, O. (2010). Development and initial validation of the children’s participation questionnaire (CPQ). Disability and Rehabilitation, 32, 1633–1644. PubMedCrossRef

46.

Lepage, C., Noreau, L., Bernard, P., & Fougeyrollas, P. (1998). Profile of handicap situations in children with cerebral palsy. Scandinavian Journal of Rehabilitation Medicine, 30, 263–272. PubMedCrossRef

47.

Fougeyrollas, P., Noreau, L., Bergeron, H., Cloutier, R., Dion, S. A., & St-Michel, G. (1998). Social consequences of long term impairments and disabilities: Conceptual approach and assessment of handicap. International Journal of Rehabilitation Research, 21, 127–141. PubMedCrossRef

48.

Noreau, L., Lepage, C., & Boissiere, L. (2007). Measuring participation in children with disabilities using the Assessment of Life Habits. Developmental Medicine and Child Neurology, 49, 666–671. PubMedCrossRef

49.

Kemps, R. J. J. K., Siebes, R. C., Gorter, J. W., Ketelaar, M., & Jongmans, M. J. (2011). Parental perceptions of participation of preschool children with and without mobility limitations: Validity and reliability of the PART. Disability and Rehabilitation, 33, 1421–1432. PubMedCrossRef

50.

Coster, W., Law, M., Bedell, G., Khetani, M., Cousins, M., & Teplicky, R. (2012). Development of the participation and environment measure for children and youth: conceptual basis. Disability and Rehabilitation, 34, 238–246. PubMedCrossRef

51.

Coster, W., Bedell, G., Law, M., et al. (2011). Psychometric evaluation of the participation and environment measure for children and youth. Developmental Medicine and Child Neurology, 53(11), 1030–1037. PubMedCrossRef

52.

Tuffrey, C., Bateman, B. J., & Colver, A. C. (2013). The Questionnaire of Young People’s Participation (QYPP): A new measure of participation frequency for disabled young people. Child: Care, Health and Development, 39, 500–511.

53.

Dunn, L. (2004). Validation of the CHORES: A measure of school-aged children’s participation in household tasks. Scandinavian Journal of Occupational Therapy, 11, 179–190. CrossRef

54.

Washington, L. A., Wilson, S., Engel, J. M., & Jensen, M. P. (2007). Development and preliminary evaluation of a pediatric measure of community integration: The Pediatric Community Participation Questionnaire (PCPQ). Rehabilitation Psychology, 52, 241–245. CrossRef

55.

Merkies, I. S. J., Schmitz, P. I. M., van der Meché, F. G. A., Samijn, J. P. A., & van Doorn, P. A. (2002). Psychometric evaluation of a new handicap scale in immune-mediated polyneuropathies. Muscle and Nerve, 25, 370–377. PubMedCrossRef

56.

Angst, F. (2011). The new COSMIN guidelines confront traditional concepts of responsiveness. BMC Medical Research Methodology, 11, 1–6. CrossRef

57.

Embretson, S. E., & Reise, S. P. (2000). Item response theory for psychologists. Mahwah, NJ: Erlbaum.

58.

Edwards, M. C. (2009). An introduction to item response theory using the need for cognition scale. Social and Personality Psychology Compass, 3(4), 507–529. CrossRef

59.

Pesudovs, K. (2006). Patient-centered measurement in ophthalmology: a paradigm shift. BMC Ophthalmology, 6, 1–4. CrossRef

Titel: Measurement properties of questionnaires assessing participation in children and adolescents with a disability: a systematic review
Auteurs:: Linda Rainey
Ruth van Nispen
Carlijn van der Zee
Ger van Rens
Publicatiedatum: 01-12-2014
DOI: https://doi.org/10.1007/s11136-014-0743-3
Uitgeverij: Springer International Publishing
Tijdschrift: Quality of Life Research An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - Official Journal of the International Society of Quality of Life Research
Uitgave 10/2014
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Tip

Swipe om te navigeren naar een ander artikel

Electronic supplementary material

Abstract

Purpose

Methods

Results

Conclusions

Log in om toegang te krijgen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Podotherapeut Totaal

Andere artikelen Uitgave 10/2014

A comparison of three methods of assessing differential item functioning (DIF) in the Hospital Anxiety Depression Scale: ordinal logistic regression, Rasch analysis and the Mantel chi-square procedure

Physical activity and health-related quality of life: US adults with and without limitations

The health-related quality of life of Chinese patients with lower urinary tract symptoms in primary care

Prospectively measured 10-year changes in health-related quality of life and comparison with cross-sectional estimates in a population-based cohort of adult women and men

Health status profiles in community-dwelling elderly using self-reported health indicators: a latent class analysis

Conceptualizing disability in US national surveys: application of the World Health Organization’s (WHO) International Classification of Functioning, Disability, and Health (ICF) framework