Skip to main content
Top
Gepubliceerd in:

01-12-2014

Emotional vitality in family caregivers: content validation of a theoretical framework

Auteurs: Skye P. Barbic, Nancy E. Mayo, Carole L. White, Susan J. Bartlett

Gepubliceerd in: Quality of Life Research | Uitgave 10/2014

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

Emotional vitality may play an important role in determining whether informal caregivers are able to successfully adopt and persist in their roles. This study describes a content validation of a conceptual model of emotional vitality in informal caregivers.

Methods

A secondary content analysis was performed on transcripts of 30 caregivers who were interviewed about their quality of life in relation to assuming the role of informal caregiver for a family member who had experienced a recent stroke. Caregivers discussed changes in their own health, relationships, roles, finances, participation, and mood after assuming the caregiving role. Using a thematic inductive approach, two raters independently coded the presence and frequency of physical, emotional, and social impacts associated with the caregiving role in order to further develop and validate a conceptual model of caregiver emotional vitality.

Results

The interviews provided information that affirmed the relevance of four themes relevant to caregiver emotional vitality previously identified: physical health and well-being; mood regulation; sense of control/mastery of new skills; and participation in meaningful activity. An additional theme of support and recognition from others also emerged.

Conclusions

Adopting the informal caregiving role results in major impacts to the caregiver’s physical, emotional, and social health. Five core domains appear to meaningfully contribute to emotional vitality of caregivers and may influence their ability to persist in this role over time. Many of the factors that influence emotional vitality in caregivers are potentially modifiable. This new model offers new opportunities for rehabilitation specialists and allied health professionals to develop skill-building interventions that may help caregivers successfully adapt and thrive in the caregiving role.
Literatuur
1.
go back to reference Crooks, V. A., et al. (2011). Family caregivers’ ideal expectations of Canada’s compassionate care benefit. Health and Social Care in the Community, 20(2), 172–180.PubMedCrossRef Crooks, V. A., et al. (2011). Family caregivers’ ideal expectations of Canada’s compassionate care benefit. Health and Social Care in the Community, 20(2), 172–180.PubMedCrossRef
2.
go back to reference Bialon, L. N., & Coke, S. (2012). A study on caregiver burden: Stressors, challenges, and possible solutions. American Journal of Palliative Care, 29(3), 210–218.CrossRef Bialon, L. N., & Coke, S. (2012). A study on caregiver burden: Stressors, challenges, and possible solutions. American Journal of Palliative Care, 29(3), 210–218.CrossRef
3.
go back to reference Health Canada. (2000). National profile of caregivers in Canada: Report. Health Canada. (2000). National profile of caregivers in Canada: Report.
4.
go back to reference Hollander, M. J., Liu, G., & Chappell, N. L. (2009). Who cares and how much? The imputed economic contribution of the Canadian healthcare system of middle-aged and older unpaid caregivers providing care to the elderly. Healthcare Quarterly, 12(2), 42–49.PubMedCrossRef Hollander, M. J., Liu, G., & Chappell, N. L. (2009). Who cares and how much? The imputed economic contribution of the Canadian healthcare system of middle-aged and older unpaid caregivers providing care to the elderly. Healthcare Quarterly, 12(2), 42–49.PubMedCrossRef
5.
go back to reference Burman, M. E. (2012). Family caregiver expectations and management of the stroke trajectory. Rehabilitation Nursing, 26(33), 96–99. Burman, M. E. (2012). Family caregiver expectations and management of the stroke trajectory. Rehabilitation Nursing, 26(33), 96–99.
6.
go back to reference Cameron, J. I., et al. (2011). Stroke survivor depressive symptoms are associated with family caregiver depression during the first 2 years poststroke. Stroke, 42, 302–306.PubMedCrossRef Cameron, J. I., et al. (2011). Stroke survivor depressive symptoms are associated with family caregiver depression during the first 2 years poststroke. Stroke, 42, 302–306.PubMedCrossRef
7.
go back to reference Cameron, J.I., et al ( 2013) Stroke family caregivers’ support needs change across the care continuum: A qualitative study using the timing it right framework. Disability and Rehabilitation, 35(4): 315–324 Cameron, J.I., et al ( 2013) Stroke family caregivers’ support needs change across the care continuum: A qualitative study using the timing it right framework. Disability and Rehabilitation, 35(4): 315–324
8.
go back to reference Elliott, T.R. and M. Parker (2012) Family caregivers and health care providers: Developing partnerships for a continuum of care and support. Multiple Dimensions of Caregiving and Disability p. 135–152. Elliott, T.R. and M. Parker (2012) Family caregivers and health care providers: Developing partnerships for a continuum of care and support. Multiple Dimensions of Caregiving and Disability p. 135–152.
9.
go back to reference Mason, D. (2008). Supporting family caregivers. American Journal of Nursing, 108(9), 7.CrossRef Mason, D. (2008). Supporting family caregivers. American Journal of Nursing, 108(9), 7.CrossRef
10.
go back to reference Grant, J. S., et al. (2004). Caregiving problems and feelings experienced by family caregivers of stroke survivors the first month after discharge. International Journal of Rehabilitation Research, 27, 105–111.PubMedCrossRef Grant, J. S., et al. (2004). Caregiving problems and feelings experienced by family caregivers of stroke survivors the first month after discharge. International Journal of Rehabilitation Research, 27, 105–111.PubMedCrossRef
11.
go back to reference van den Heuvel, E. T., et al. (2001). Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clinical Rehabilitation, 15(6), 669–677.PubMedCrossRef van den Heuvel, E. T., et al. (2001). Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clinical Rehabilitation, 15(6), 669–677.PubMedCrossRef
12.
go back to reference Vitaliano, P. P., Zhang, J., & Scanlan, J. M. (2003). Is caregiving hazardous to one’s physical health? A meta-analysis. Psychological Bulletin, 129, 946–972.PubMedCrossRef Vitaliano, P. P., Zhang, J., & Scanlan, J. M. (2003). Is caregiving hazardous to one’s physical health? A meta-analysis. Psychological Bulletin, 129, 946–972.PubMedCrossRef
13.
go back to reference Han, B., & Haley, W. E. (1999). Family caregiving for patients with stroke. Stroke, 30, 1478–1485.PubMedCrossRef Han, B., & Haley, W. E. (1999). Family caregiving for patients with stroke. Stroke, 30, 1478–1485.PubMedCrossRef
14.
go back to reference Penninx, B. W., Guralnik, J. M., & Bandeen-Roche, K. (2000). The protective effect of emotional vitality on adverse health outcomes in disabled older women. Journal of American Geriatrics Society, 48, 1359–1366. Penninx, B. W., Guralnik, J. M., & Bandeen-Roche, K. (2000). The protective effect of emotional vitality on adverse health outcomes in disabled older women. Journal of American Geriatrics Society, 48, 1359–1366.
16.
go back to reference Rigby, H., Gubitz, G., & Philipps, S. (2009). A systematic review of caregiver burden following stroke. International Journal of Stroke, 4(4), 282–295.CrossRef Rigby, H., Gubitz, G., & Philipps, S. (2009). A systematic review of caregiver burden following stroke. International Journal of Stroke, 4(4), 282–295.CrossRef
17.
go back to reference Schultz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality: The caregiver health effects study. JAMA, 282, 2215–2219.CrossRef Schultz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality: The caregiver health effects study. JAMA, 282, 2215–2219.CrossRef
18.
go back to reference Perkins, M., et al. (2012). Caregiving strain and all-cause mortality: Evidence from the REGARDS study. Journal of Gerontology, 68(4), 504–512.CrossRef Perkins, M., et al. (2012). Caregiving strain and all-cause mortality: Evidence from the REGARDS study. Journal of Gerontology, 68(4), 504–512.CrossRef
19.
go back to reference Legg, L. A., et al. (2013). Is informal caregiving independently associated with poor health? A population-based study. Journal of Epidemiology and Community Health, 65(1), 95–97.CrossRef Legg, L. A., et al. (2013). Is informal caregiving independently associated with poor health? A population-based study. Journal of Epidemiology and Community Health, 65(1), 95–97.CrossRef
20.
go back to reference Roth, D. L., et al. (2009). Family caregiving and emotional strain: Associations with quality of life in a large national smaple of middle-aged and older adults. Quality of Life Research, 18, 679–688.PubMedCentralPubMedCrossRef Roth, D. L., et al. (2009). Family caregiving and emotional strain: Associations with quality of life in a large national smaple of middle-aged and older adults. Quality of Life Research, 18, 679–688.PubMedCentralPubMedCrossRef
21.
go back to reference Kubzansky, L. D., & Thurston, R. C. (2007). Emotional vitality and incident coronary heart disease: Benefits of healthy psychological functioning. Archives of General Psychiatry, 64, 1393–1401.PubMedCrossRef Kubzansky, L. D., & Thurston, R. C. (2007). Emotional vitality and incident coronary heart disease: Benefits of healthy psychological functioning. Archives of General Psychiatry, 64, 1393–1401.PubMedCrossRef
22.
go back to reference Rozanski, A., & Kubzansky, L. D. (2005). Psychological functioning and physical health: a paradigm of flexibility. Psychosomatic Medicine, 67(supp), S47–S53.PubMedCrossRef Rozanski, A., & Kubzansky, L. D. (2005). Psychological functioning and physical health: a paradigm of flexibility. Psychosomatic Medicine, 67(supp), S47–S53.PubMedCrossRef
23.
go back to reference Penninx, B. W., et al. (1998). Emotional vitality among disabled older women: The women’s health and aging study. Journal of the American Geriatrics Society, 46(7), 807–815.PubMed Penninx, B. W., et al. (1998). Emotional vitality among disabled older women: The women’s health and aging study. Journal of the American Geriatrics Society, 46(7), 807–815.PubMed
24.
25.
go back to reference Richman, L. S., et al. (2009). The relationship between mental vitality and cardiovascular health. Psychology and Health, 24(8), 919–932.PubMedCrossRef Richman, L. S., et al. (2009). The relationship between mental vitality and cardiovascular health. Psychology and Health, 24(8), 919–932.PubMedCrossRef
27.
go back to reference Forstmeier, S., & Maercker, A. (2008). Motivational reserve: Lifetime motivational abilities contribute to cognitive and emotional health in old age. Psychology and Aging, 23(4), 886–899.PubMedCrossRef Forstmeier, S., & Maercker, A. (2008). Motivational reserve: Lifetime motivational abilities contribute to cognitive and emotional health in old age. Psychology and Aging, 23(4), 886–899.PubMedCrossRef
28.
go back to reference Tugade, M. M., Fredrickson, B. L., & Barrett, L. F. (2004). Psychological resilience and positive emotional granularity: Examining the benefits of positive emotions on coping and health. Journal of Personality, 72(6), 1161–1190.PubMedCentralPubMedCrossRef Tugade, M. M., Fredrickson, B. L., & Barrett, L. F. (2004). Psychological resilience and positive emotional granularity: Examining the benefits of positive emotions on coping and health. Journal of Personality, 72(6), 1161–1190.PubMedCentralPubMedCrossRef
29.
go back to reference Ferguson, A. D., et al. (2004). Psychological factors after traumatic amputation in landmine survivors: The Bridge between physical healing and full recovery. Disability and Rehabilitation, 26(14–15), 931–938.PubMedCrossRef Ferguson, A. D., et al. (2004). Psychological factors after traumatic amputation in landmine survivors: The Bridge between physical healing and full recovery. Disability and Rehabilitation, 26(14–15), 931–938.PubMedCrossRef
30.
go back to reference White, B., Driver, S., & Warren, A. M. (2008). Considering resilience in the rehabilitation of people with traumatic disabilities. Rehabilitation Psychology, 53, 9–17.CrossRef White, B., Driver, S., & Warren, A. M. (2008). Considering resilience in the rehabilitation of people with traumatic disabilities. Rehabilitation Psychology, 53, 9–17.CrossRef
31.
go back to reference Connor, K. M., & Davidson, J. R. (2003). Development of a new resilience scale: The connor-davidson resilience scale (CD-RISC). Depression and Anxiety, 18(2), 76–82.PubMedCrossRef Connor, K. M., & Davidson, J. R. (2003). Development of a new resilience scale: The connor-davidson resilience scale (CD-RISC). Depression and Anxiety, 18(2), 76–82.PubMedCrossRef
32.
go back to reference World Health Organization. (2001). International Classification of Functioning, Disability, and Health. Geneva: Switzerland. World Health Organization. (2001). International Classification of Functioning, Disability, and Health. Geneva: Switzerland.
33.
go back to reference Barbic, S. P., Bartlett, S., & Mayo, N. E. (2013). Emotional vitality: A concept of importance for rehabiliation. Archives of Physical Medicine and Rehabilitation, 94(8), 1547–1554.PubMedCrossRef Barbic, S. P., Bartlett, S., & Mayo, N. E. (2013). Emotional vitality: A concept of importance for rehabiliation. Archives of Physical Medicine and Rehabilitation, 94(8), 1547–1554.PubMedCrossRef
34.
go back to reference White, C., et al. (2004). Towards a model of quality of life for family caregivers of stroke survivors. Quality of Life Research, 13(3), 625–638.PubMedCrossRef White, C., et al. (2004). Towards a model of quality of life for family caregivers of stroke survivors. Quality of Life Research, 13(3), 625–638.PubMedCrossRef
35.
go back to reference Ritchie, J., & Lewis, J. (2003). Qualitative research practice: A guide for social science students and researchers. London: SAGE. Ritchie, J., & Lewis, J. (2003). Qualitative research practice: A guide for social science students and researchers. London: SAGE.
36.
go back to reference Blanes, L., et al. (2007). Health-related quality of life of primary caregivers of persons with paraplegia. Spinal Cord, 45(6), 399–403.PubMedCrossRef Blanes, L., et al. (2007). Health-related quality of life of primary caregivers of persons with paraplegia. Spinal Cord, 45(6), 399–403.PubMedCrossRef
37.
go back to reference Canadian Caregiver Coalition. (2009). The Canadian caregiver strategy—consultation. Canadian Caregiver Coalition. (2009). The Canadian caregiver strategy—consultation.
38.
go back to reference Reinhard, S.C., et al. (2008). Supporting family caregivers in providing care, in patient safety and quality: An evidence-based handbook for nurses.In R.G. Hughes (Ed.), US: Agency for Healthcare and Quality. Reinhard, S.C., et al. (2008). Supporting family caregivers in providing care, in patient safety and quality: An evidence-based handbook for nurses.In R.G. Hughes (Ed.), US: Agency for Healthcare and Quality.
39.
go back to reference Mitchell, G., et al. (2010). A GP caregiver needs toolkit versus usual care in the management of the needs of caregivers of patients with advanced cancer: a randomized controlled trial. Trials, 11, 115–121.PubMedCentralPubMedCrossRef Mitchell, G., et al. (2010). A GP caregiver needs toolkit versus usual care in the management of the needs of caregivers of patients with advanced cancer: a randomized controlled trial. Trials, 11, 115–121.PubMedCentralPubMedCrossRef
Metagegevens
Titel
Emotional vitality in family caregivers: content validation of a theoretical framework
Auteurs
Skye P. Barbic
Nancy E. Mayo
Carole L. White
Susan J. Bartlett
Publicatiedatum
01-12-2014
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 10/2014
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-014-0718-4