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Journal of Autism and Developmental Disorders

Gepubliceerd in:

11-08-2022 | Original Paper

Mapping the Dilemmas Parents Face with Disclosing Autism Diagnosis to their Child

Auteurs: Nitsan Almog, Orit Kassel, Nili Levy, Tamir Gabai

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 10/2023

Abstract

The diagnosis of autism is often delivered solely to the parents, a practice that forces them to confront the dilemma of whether, when and how they should disclose it to the child. The present study seeks to probe deeper into the phenomenon of diagnosis disclosure and lead to a clearer understanding of the dilemmas parents? face. This article presents an analysis of a focus group and an online survey conducted with parents. The analysis produced a model that maps parents’ dilemmas regarding diagnosis disclosure to their child. The dilemmas, found to be complex and interconnected, concern the invisible nature of autism, the word autism and stigma, time motif, child’s environment, the act of disclosure itself, and the child’s personal narrative.

vorige artikel Probabilistic Learning of Cue-Outcome Associations is not Influenced by Autistic Traits

volgende artikel Differential Maturation of Auditory Cortex Activity in Young Children with Autism and Typical Development

Alleen toegankelijk voor geautoriseerde gebruikers

In Israel, parents can choose whether the child’s personal tutor will serve as the class tutor, meaning that the rest of the class, and sometimes even the educational staff, don’t know that the tutor is there to assist a specific child (“covert” tutor / assistant). Parents often choose this option to avoid stigmatizing the child in school. In some cases, the children themselves don’t know that the tutor in the class is there to assist and support them.

ALUT -The Israeli Society for Children and Adults with Autism, one of the first parent NGOs in Israel.

Jonathan’s self-presentation appears in this article with his consent under his first name and in the wording that he chose.

For example – occupational therapy, social skills group etc.

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Titel: Mapping the Dilemmas Parents Face with Disclosing Autism Diagnosis to their Child
Auteurs: Nitsan Almog
Orit Kassel
Nili Levy
Tamir Gabai
Publicatiedatum: 11-08-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 10/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05711-y

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