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Gepubliceerd in: Journal of Child and Family Studies 2/2017

25-11-2016 | Original Paper

Peer-Delivered Models for Caregivers of Children and Adults with Health Conditions: A Review

Auteurs: Mary Acri, Shirley Zhang, Joshua G. Adler, Geetha Gopalan

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 2/2017

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Abstract

Peer-delivered health models may hold important benefits for family members, yet their prevalence, components, and outcomes are unknown. We conducted a review of peer-delivered services for families of children and adults with serious health problems. Studies of interventions published between 2000 and 2016 were included if the intervention contained a component for family members. Of 88 studies that were assessed for their eligibility, five met criteria. Familial components included information about the health condition and management, strategies to enhance communication and stress, and the provision of emotional support. Outcomes were largely favorable, including reductions in distress and symptoms of trauma, enhanced quality of life, and positive perceptions of the peer therapeutic alliance. Peer-delivered services for family members may hold important benefits to caregivers; however, the research base remains thin. A research agenda to develop and examine these models is discussed.
Literatuur
go back to reference Acri, M., Hooley, C.D., Richardson, N., & Moaba, L.B. (2016). Peer models in mental health for caregivers and families. Community Mental Health Journal, 1–9. Acri, M., Hooley, C.D., Richardson, N., & Moaba, L.B. (2016). Peer models in mental health for caregivers and families. Community Mental Health Journal, 1–9.
go back to reference Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: A clinical review. The Journal of the American Medical Association, 311(10), 1052–1060.CrossRefPubMed Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: A clinical review. The Journal of the American Medical Association, 311(10), 1052–1060.CrossRefPubMed
go back to reference Allicock, M., Carr, C., Johnson, L. S., Smith, R., Lawrence, M., Kaye, L., et al. (2014). Implementing a one-on-one peer support program for cancer survivors using a motivational interviewing approach: Results and lessons learned. Journal of Cancer Education, 29(1), 91–98.CrossRefPubMedPubMedCentral Allicock, M., Carr, C., Johnson, L. S., Smith, R., Lawrence, M., Kaye, L., et al. (2014). Implementing a one-on-one peer support program for cancer survivors using a motivational interviewing approach: Results and lessons learned. Journal of Cancer Education, 29(1), 91–98.CrossRefPubMedPubMedCentral
go back to reference Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217.PubMedPubMedCentral Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217.PubMedPubMedCentral
go back to reference Brown, R. T., Wiener, L., Kupst, M. J., Brennan, T., Behrman, R., Compas, B. E., et al. (2008). Single parents of children with chronic illness: An understudied phenomenon. Journal of Pediatric Psychology, 33(4), 408–421.CrossRefPubMed Brown, R. T., Wiener, L., Kupst, M. J., Brennan, T., Behrman, R., Compas, B. E., et al. (2008). Single parents of children with chronic illness: An understudied phenomenon. Journal of Pediatric Psychology, 33(4), 408–421.CrossRefPubMed
go back to reference Chambers, S. K., Schover, L., Halford, K., Ferguson, M., Gardiner, R. A., Occhipinti, S., et al. (2013). ProsCan for couples: A feasibility study for evaluating peer support within a controlled research design. Psycho‐Oncology, 22(2), 475–479.PubMed Chambers, S. K., Schover, L., Halford, K., Ferguson, M., Gardiner, R. A., Occhipinti, S., et al. (2013). ProsCan for couples: A feasibility study for evaluating peer support within a controlled research design. Psycho‐Oncology, 22(2), 475–479.PubMed
go back to reference Davidson, L., Bellamy, C., Guy, K., & Miller, R. (2012). Peer support among persons with severe mental illnesses: A review of evidence and experience. World psychiatry: official journal of the World Psychiatric Association (WPA), 11(2), 123–128.CrossRef Davidson, L., Bellamy, C., Guy, K., & Miller, R. (2012). Peer support among persons with severe mental illnesses: A review of evidence and experience. World psychiatry: official journal of the World Psychiatric Association (WPA), 11(2), 123–128.CrossRef
go back to reference Davidson, L., Chinman, M., Sells, D., & Rowe, M. (2006). Peer support among adults with serious mental illness: A report from the field. Schizophrenia Bulletin, 32(3), 443–450.CrossRefPubMedPubMedCentral Davidson, L., Chinman, M., Sells, D., & Rowe, M. (2006). Peer support among adults with serious mental illness: A report from the field. Schizophrenia Bulletin, 32(3), 443–450.CrossRefPubMedPubMedCentral
go back to reference Desai, P. P., Rivera, A. T., & Backes, E. M. (2016). Latino caregiver coping with children’s chronic health conditions: An integrative literature review. Journal of Pediatric Health Care, 30(2), 108–120.CrossRefPubMed Desai, P. P., Rivera, A. T., & Backes, E. M. (2016). Latino caregiver coping with children’s chronic health conditions: An integrative literature review. Journal of Pediatric Health Care, 30(2), 108–120.CrossRefPubMed
go back to reference Dixon, L., McFarlane, W. R., Lefley, H., Lucksted, A., Cohen, M., Falloon, I., et al. (2001). Evidence-based practices for services to families of people with psychiatric disabilities. Psychiatric Services, 52(7), 903–910.CrossRefPubMed Dixon, L., McFarlane, W. R., Lefley, H., Lucksted, A., Cohen, M., Falloon, I., et al. (2001). Evidence-based practices for services to families of people with psychiatric disabilities. Psychiatric Services, 52(7), 903–910.CrossRefPubMed
go back to reference Foster, M., Whitehead, L., & Maybee, P. (2010). Parents’ and health professionals’ perceptions of family centered care for children in hospital, in developed and developing countries: A review of the literature. International Journal of Nursing Studies, 47(9), 1184–1193.CrossRefPubMed Foster, M., Whitehead, L., & Maybee, P. (2010). Parents’ and health professionals’ perceptions of family centered care for children in hospital, in developed and developing countries: A review of the literature. International Journal of Nursing Studies, 47(9), 1184–1193.CrossRefPubMed
go back to reference Hoagwood, K., Cavaleri, M. A., Olin, S., Burns, B., Slaton, E., Gruttadaro, D., et al. (2010). Family support in children’s mental health: A review and synthesis. Clinical Child and Family Psychology Review, 13, 1–45.CrossRefPubMed Hoagwood, K., Cavaleri, M. A., Olin, S., Burns, B., Slaton, E., Gruttadaro, D., et al. (2010). Family support in children’s mental health: A review and synthesis. Clinical Child and Family Psychology Review, 13, 1–45.CrossRefPubMed
go back to reference Hoagwood, K. E., Jensen, P., Acri, M., Olin, S. S., Lewandowski, E., & Herman, R. (2012). Outcome domains in child mental health research since 1996: Have they changed and why does it matter? Journal of the American Academy of Child & Adolescent Psychiatry, 51(12), 1241–1260.CrossRef Hoagwood, K. E., Jensen, P., Acri, M., Olin, S. S., Lewandowski, E., & Herman, R. (2012). Outcome domains in child mental health research since 1996: Have they changed and why does it matter? Journal of the American Academy of Child & Adolescent Psychiatry, 51(12), 1241–1260.CrossRef
go back to reference Laks, J., Goren, A., Dueñas, H., Novick, D., & Kahle‐Wrobleski, K. (2016). Caregiving for patients with alzheimer’s disease or dementia and its association with psychiatric and clinical comorbidities and other health outcomes in Brazil. International Journal of Geriatric Psychiatry, 31(2), 176–185.CrossRefPubMed Laks, J., Goren, A., Dueñas, H., Novick, D., & Kahle‐Wrobleski, K. (2016). Caregiving for patients with alzheimer’s disease or dementia and its association with psychiatric and clinical comorbidities and other health outcomes in Brazil. International Journal of Geriatric Psychiatry, 31(2), 176–185.CrossRefPubMed
go back to reference Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2007). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187. Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2007). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187.
go back to reference Neri, L., Lucidi, V., Catastini, P., & Colombo, C. (2015). Caregiver burden and vocational participation among parents’ of adolescents with CF. Pediatric Pulmonology, 51(3), 243–252. Neri, L., Lucidi, V., Catastini, P., & Colombo, C. (2015). Caregiver burden and vocational participation among parents’ of adolescents with CF. Pediatric Pulmonology, 51(3), 243–252.
go back to reference O’Brien, I., Duffy, A., & Nicholl, H. (2009). Impact of childhood chronic illnesses on siblings: A literature review. British Journal of Nursing, 18(22), 1358–1365CrossRef O’Brien, I., Duffy, A., & Nicholl, H. (2009). Impact of childhood chronic illnesses on siblings: A literature review. British Journal of Nursing, 18(22), 1358–1365CrossRef
go back to reference Phillips, S. S., Ragas, D. M., Hajjar, N., Tom, L. S., Dong, X., & Simon, M. A. (2016). Leveraging the experiences of informal caregivers to create future healthcare workforce options. Journal of the American Geriatrics Society, 64(1), 174–180.CrossRefPubMedPubMedCentral Phillips, S. S., Ragas, D. M., Hajjar, N., Tom, L. S., Dong, X., & Simon, M. A. (2016). Leveraging the experiences of informal caregivers to create future healthcare workforce options. Journal of the American Geriatrics Society, 64(1), 174–180.CrossRefPubMedPubMedCentral
go back to reference Preyde, M., & Ardal, F. (2003). Effectiveness of a parent “buddy” program for mothers of very preterm infants in a neonatal intensive care unit. Canadian Medical Association Journal, 168(8), 969–973.PubMedPubMedCentral Preyde, M., & Ardal, F. (2003). Effectiveness of a parent “buddy” program for mothers of very preterm infants in a neonatal intensive care unit. Canadian Medical Association Journal, 168(8), 969–973.PubMedPubMedCentral
go back to reference Reinhard, S. C., Given, B., Petlick, N. H., & Bemis, A. (2008). Supporting family caregivers in providing care. In R. G. Hughes (Ed.), Patient safety and quality: An evidence-based handbook for nurses (Chapter 14). Rockville, MD: Agency for Healthcare Research and Quality. Reinhard, S. C., Given, B., Petlick, N. H., & Bemis, A. (2008). Supporting family caregivers in providing care. In R. G. Hughes (Ed.), Patient safety and quality: An evidence-based handbook for nurses (Chapter 14). Rockville, MD: Agency for Healthcare Research and Quality.
go back to reference Schulz, R., & Martire, L. M. (2004). Family caregiving of persons with dementia: Prevalence, health effects, and support strategies. The American Journal of Geriatric Psychiatry, 12(3), 240–249.CrossRefPubMed Schulz, R., & Martire, L. M. (2004). Family caregiving of persons with dementia: Prevalence, health effects, and support strategies. The American Journal of Geriatric Psychiatry, 12(3), 240–249.CrossRefPubMed
go back to reference Sullivan-Bolyai, S., Bova, C., Leung, K., Trudeau, A., Lee, M., & Gruppuso, P. (2010). Social support to empower parents (STEP) An intervention for parents of young children newly diagnosed with type 1 diabetes. The Diabetes Educator, 36(1), 88–97.CrossRefPubMed Sullivan-Bolyai, S., Bova, C., Leung, K., Trudeau, A., Lee, M., & Gruppuso, P. (2010). Social support to empower parents (STEP) An intervention for parents of young children newly diagnosed with type 1 diabetes. The Diabetes Educator, 36(1), 88–97.CrossRefPubMed
go back to reference Tam, V. V., Larsson, M., Pharris, A., Diedrichs, B., Nguyen, H. P., & Nguyen, C. T. K., et al. (2012). Peer support and improved quality of life among persons living with HIV on antiretroviral treatment: A randomised controlled trial from north-eastern Vietnam. Health and Quality of Life Outcomes, 10(1), 1.CrossRef Tam, V. V., Larsson, M., Pharris, A., Diedrichs, B., Nguyen, H. P., & Nguyen, C. T. K., et al. (2012). Peer support and improved quality of life among persons living with HIV on antiretroviral treatment: A randomised controlled trial from north-eastern Vietnam. Health and Quality of Life Outcomes, 10(1), 1.CrossRef
Metagegevens
Titel
Peer-Delivered Models for Caregivers of Children and Adults with Health Conditions: A Review
Auteurs
Mary Acri
Shirley Zhang
Joshua G. Adler
Geetha Gopalan
Publicatiedatum
25-11-2016
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 2/2017
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-016-0616-1

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