Skip to main content
Top
Gepubliceerd in: Tijdschrift voor Gerontologie en Geriatrie 2/2015

01-04-2015

Kwetsbaarheid bij ouderen met een verstandelijke beperking: operationalisering, risico en opsporing

Auteurs: Josje D. Schoufour, Michael A. Echteld, Heleen M. Evenhuis

Gepubliceerd in: Tijdschrift voor Gerontologie en Geriatrie | Uitgave 2/2015

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Samenvatting

Ondanks een toename in levensverwachting, is er in de oudere populatie met verstandelijke beperkingen nogal eens sprake van multipele gezondheidsproblemen en vroegtijdige functionele achteruitgang. Wij maakten gebruik van de data van de studie Gezond Ouder met een verstandelijke beperking (GOUD), om in deze populatie de kwetsbaarheid in kaart te brengen, geoperationaliseerd als een speciaal ontwikkelde kwetsbaarheidsindex van 50 items. Omdat nog niet eerder een kwetsbaarheidsindex was toegepast in een vroeg-gehandicapte populatie, moest vastgesteld worden of deze even voorspellend is voor achteruitgang van gezondheid en zelfstandigheid als in de algemene oudere populatie. In dit artikel geven wij een samenvatting van de opzet en resultaten. In een bijna-representatieve studiepopulatie van 982 50-plus cliënten van de verstandelijk gehandicaptenzorg bestudeerden wij cross-sectioneel de verdeling van kwetsbaarheid, en gedurende een follow-up van 3 jaar de predictieve validiteit. De resultaten tonen dat deze populatie gemiddeld eerder en ernstiger kwetsbaar is dan de algemene 50-plus populatie. Een hogere mate van kwetsbaarheid is voorspellend voor achteruitgang van (instrumentele) ADL en mobiliteit, toename van het medicijngebruik, hogere zorgbehoefte, en hogere sterfte, maar niet voor toename in ziekenhuisopnames. In een hypothetisch model van potentiële oorzaken van kwetsbaarheid maken wij duidelijk, waarop preventie en interventie zich moeten richten, om te komen tot meer gezonde, zelfstandige en kwalitatief bevredigende levensjaren voor deze groep.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
1.
go back to reference Coppus AM. People with intellectual disability: what do we know about adulthood and life expectancy? Dev Disabil Res Rev. 2013;18(1):6–16.CrossRefPubMed Coppus AM. People with intellectual disability: what do we know about adulthood and life expectancy? Dev Disabil Res Rev. 2013;18(1):6–16.CrossRefPubMed
2.
go back to reference Hilgenkamp TI, Wijck R van, Evenhuis HM. Low physical fitness levels in older adults with ID: results of the HA-ID study. Res Dev Disabil. 2012;33(4):1048–58.CrossRefPubMed Hilgenkamp TI, Wijck R van, Evenhuis HM. Low physical fitness levels in older adults with ID: results of the HA-ID study. Res Dev Disabil. 2012;33(4):1048–58.CrossRefPubMed
3.
go back to reference Wouw E van de, Evenhuis HM, Echteld MA. Objective assessment of sleep and sleep problems in older adults with intellectual disabilities. Res Dev Disabil. 2013;34(8):2291–303.CrossRefPubMed Wouw E van de, Evenhuis HM, Echteld MA. Objective assessment of sleep and sleep problems in older adults with intellectual disabilities. Res Dev Disabil. 2013;34(8):2291–303.CrossRefPubMed
4.
go back to reference Maaskant M, Wouw E van de, Wijck R van, Evenhuis HM, Echteld MA. Circadian sleep-wake rhythm of older adults with intellectual disabilities. Res Dev Disabil. 2013;34(4):1144–51.CrossRefPubMed Maaskant M, Wouw E van de, Wijck R van, Evenhuis HM, Echteld MA. Circadian sleep-wake rhythm of older adults with intellectual disabilities. Res Dev Disabil. 2013;34(4):1144–51.CrossRefPubMed
5.
go back to reference Bastiaanse LP, Hilgenkamp TI, Echteld MA, Evenhuis HM. Prevalence and associated factors of sarcopenia in older adults with intellectual disabilities. Res Dev Disabil. 2012;33(6):2004–12.CrossRefPubMed Bastiaanse LP, Hilgenkamp TI, Echteld MA, Evenhuis HM. Prevalence and associated factors of sarcopenia in older adults with intellectual disabilities. Res Dev Disabil. 2012;33(6):2004–12.CrossRefPubMed
6.
go back to reference Winter CF de, Bastiaanse LP, Hilgenkamp TI, Evenhuis HM, Echteld MA. Cardiovascular risk factors (diabetes, hypertension, hypercholesterolemia and metabolic syndrome) in older people with intellectual disability: results of the HA-ID study. Res Dev Disabil. 2012;33(6):1722–31.CrossRefPubMed Winter CF de, Bastiaanse LP, Hilgenkamp TI, Evenhuis HM, Echteld MA. Cardiovascular risk factors (diabetes, hypertension, hypercholesterolemia and metabolic syndrome) in older people with intellectual disability: results of the HA-ID study. Res Dev Disabil. 2012;33(6):1722–31.CrossRefPubMed
7.
go back to reference Winter CF de, Bastiaanse LP, Hilgenkamp TI, Evenhuis HM, Echteld MA. Overweight and obesity in older people with intellectual disability. Res Dev Disabil. 2012;33(2):398–405.CrossRefPubMed Winter CF de, Bastiaanse LP, Hilgenkamp TI, Evenhuis HM, Echteld MA. Overweight and obesity in older people with intellectual disability. Res Dev Disabil. 2012;33(2):398–405.CrossRefPubMed
8.
go back to reference Hermans H, Evenhuis HM. Multimorbidity in older adults with intellectual disabilities. Res Dev Disabil. 2014;35(4):776–83.CrossRefPubMed Hermans H, Evenhuis HM. Multimorbidity in older adults with intellectual disabilities. Res Dev Disabil. 2014;35(4):776–83.CrossRefPubMed
9.
go back to reference Evenhuis HM, Schoufour JD, Echteld MA. Frailty and intellectual disability: a different operationalization? Dev Disabil Res Rev. 2013;18(1):17–21.CrossRefPubMed Evenhuis HM, Schoufour JD, Echteld MA. Frailty and intellectual disability: a different operationalization? Dev Disabil Res Rev. 2013;18(1):17–21.CrossRefPubMed
10.
go back to reference Hilgenkamp TI, Bastiaanse LP, Hermans H, Penning C, Wijck R van, Evenhuis HM. Study healthy ageing and intellectual disabilities: recruitment and design. Res Dev Disabil. 2011;32(3):1097–106.CrossRefPubMed Hilgenkamp TI, Bastiaanse LP, Hermans H, Penning C, Wijck R van, Evenhuis HM. Study healthy ageing and intellectual disabilities: recruitment and design. Res Dev Disabil. 2011;32(3):1097–106.CrossRefPubMed
11.
go back to reference Rodriguez-Manas L, Feart C, Mann G, et al. Searching for an operational definition of frailty: a Delphi method based consensus statement: the frailty operative definition-consensus conference project. J Gerontol A Biol Sci Med Sci. 2013;68:62–7.CrossRefPubMedCentralPubMed Rodriguez-Manas L, Feart C, Mann G, et al. Searching for an operational definition of frailty: a Delphi method based consensus statement: the frailty operative definition-consensus conference project. J Gerontol A Biol Sci Med Sci. 2013;68:62–7.CrossRefPubMedCentralPubMed
12.
go back to reference Clegg A, Young J, Iliffe S, Olde Rikkert MGM, Rockwood K. Frailty in elderly people. Lancet. 2013;381(9868):752–62.CrossRefPubMed Clegg A, Young J, Iliffe S, Olde Rikkert MGM, Rockwood K. Frailty in elderly people. Lancet. 2013;381(9868):752–62.CrossRefPubMed
13.
go back to reference Brehmer B, Weber G. Frailty vs. disability distinctions in people with intellectual disabilities. J Policy Pract Intellect Disabil. 2010;7(1):9.CrossRef Brehmer B, Weber G. Frailty vs. disability distinctions in people with intellectual disabilities. J Policy Pract Intellect Disabil. 2010;7(1):9.CrossRef
14.
go back to reference Gobbens RJ, Luijkx KG, Wijnen-Sponselee MT, Schols JM. [Frail elderly. Identification of a population at risk] Fragiele ouderen: de identificatie van een risicovolle populatie. Tijdschr Gerontol Geriatr. 2007;38(2):65–76.CrossRefPubMed Gobbens RJ, Luijkx KG, Wijnen-Sponselee MT, Schols JM. [Frail elderly. Identification of a population at risk] Fragiele ouderen: de identificatie van een risicovolle populatie. Tijdschr Gerontol Geriatr. 2007;38(2):65–76.CrossRefPubMed
15.
go back to reference Evenhuis HM, Hermans H, Hilgenkamp TI, Bastiaanse LP, Echteld MA. Kwetsbaarheid bij ouderen met een verstandelijke handicap. Ned Tijdschr Geneeskd. 2012;156:A4808. Evenhuis HM, Hermans H, Hilgenkamp TI, Bastiaanse LP, Echteld MA. Kwetsbaarheid bij ouderen met een verstandelijke handicap. Ned Tijdschr Geneeskd. 2012;156:A4808.
16.
go back to reference Shamliyan T, Talley KM, Ramakrishnan R, Kane RL. Association of frailty with survival: a systematic literature review. Ageing Res Rev 2013;12(2):719–36. Shamliyan T, Talley KM, Ramakrishnan R, Kane RL. Association of frailty with survival: a systematic literature review. Ageing Res Rev 2013;12(2):719–36.
17.
go back to reference Evenhuis HM, Hermans H, Hilgenkamp TI, Bastiaanse LP, Echteld MA. Frailty and disability in the older population with intellectual disabilities: results from the Healthy Aging and Intellectual Disabilty study (HA-ID). J Am Geriatr Soc. 2012;60(5):934–8.CrossRefPubMed Evenhuis HM, Hermans H, Hilgenkamp TI, Bastiaanse LP, Echteld MA. Frailty and disability in the older population with intellectual disabilities: results from the Healthy Aging and Intellectual Disabilty study (HA-ID). J Am Geriatr Soc. 2012;60(5):934–8.CrossRefPubMed
19.
go back to reference Mitnitski A, Mogilner AJ, Rockwood K. Accumulation of deficits as a proxy measure of aging. ScientificWorldJournal. 2001;1:323–36.CrossRefPubMed Mitnitski A, Mogilner AJ, Rockwood K. Accumulation of deficits as a proxy measure of aging. ScientificWorldJournal. 2001;1:323–36.CrossRefPubMed
20.
go back to reference Schoufour JD, Mitnitski A, Rockwood K, Evenhuis HM, Echteld MA. Development of a frailty index for older people with intellectual disabilities: results from the HA-ID study. Res Dev Disabil. 2013;34(5):1541–55.CrossRefPubMed Schoufour JD, Mitnitski A, Rockwood K, Evenhuis HM, Echteld MA. Development of a frailty index for older people with intellectual disabilities: results from the HA-ID study. Res Dev Disabil. 2013;34(5):1541–55.CrossRefPubMed
21.
go back to reference Romero-Ortuno R, Kenny RA. The frailty index in Europeans: association with age and mortality. Age Ageing. 2012;41:684–9. Romero-Ortuno R, Kenny RA. The frailty index in Europeans: association with age and mortality. Age Ageing. 2012;41:684–9.
22.
go back to reference Schoufour JD, Mitnitski A, Rockwood K, Evenhuis HM, Echteld MA. Predicting 3-year survival in older people with intellectual disabilities using a frailty index. J Am Geriatri Soc. In press 2015.published: 2015 Mar 6. doi: 10.1111/jgs.13239. [Epub ahead of print] Schoufour JD, Mitnitski A, Rockwood K, Evenhuis HM, Echteld MA. Predicting 3-year survival in older people with intellectual disabilities using a frailty index. J Am Geriatri Soc. In press 2015.published: 2015 Mar 6. doi: 10.1111/jgs.13239. [Epub ahead of print]
23.
go back to reference Schoufour JD, Mitnitski A, Rockwood K, Hilgenkamp TI, Evenhuis HM, Echteld MA. Predicting disabilities in daily functioning in older people with intellectual disabilities using a frailty index. Res Dev Disabil. 2014;35(10):2267–77.CrossRefPubMed Schoufour JD, Mitnitski A, Rockwood K, Hilgenkamp TI, Evenhuis HM, Echteld MA. Predicting disabilities in daily functioning in older people with intellectual disabilities using a frailty index. Res Dev Disabil. 2014;35(10):2267–77.CrossRefPubMed
24.
go back to reference Daniels R, Rossum E van, Beurskens A, Heuvel W van den, Witte L de. The predictive validity of three self-report screening instruments for identifying frail older people in the community. BMC Public Health. 2012;12:69.CrossRefPubMedCentralPubMed Daniels R, Rossum E van, Beurskens A, Heuvel W van den, Witte L de. The predictive validity of three self-report screening instruments for identifying frail older people in the community. BMC Public Health. 2012;12:69.CrossRefPubMedCentralPubMed
25.
go back to reference Gobbens RJ, Assen MA van, Luijkx KG, Schols JM. The predictive validity of the tilburg frailty indicator: disability, health care utilization, and quality of life in a population at risk. Gerontologist. 2012;52(5):619–31. Gobbens RJ, Assen MA van, Luijkx KG, Schols JM. The predictive validity of the tilburg frailty indicator: disability, health care utilization, and quality of life in a population at risk. Gerontologist. 2012;52(5):619–31.
26.
go back to reference Woo J, Goggins W, Sham A, Ho SC. Public health significance of the frailty index. Disabil Rehabil. 2006;28(8):515–21.CrossRefPubMed Woo J, Goggins W, Sham A, Ho SC. Public health significance of the frailty index. Disabil Rehabil. 2006;28(8):515–21.CrossRefPubMed
27.
go back to reference Schoufour JD, Echteld MA, Bastiaanse LP, Evenhuis HM. The use of a frailty index to predict adverse health outcomes (falls, fractures, hospitalization, medication use, comorbid conditions) in people with intellectual disabilities. Res Dev Disabil. 2014;38:39–47. Schoufour JD, Echteld MA, Bastiaanse LP, Evenhuis HM. The use of a frailty index to predict adverse health outcomes (falls, fractures, hospitalization, medication use, comorbid conditions) in people with intellectual disabilities. Res Dev Disabil. 2014;38:39–47.
28.
go back to reference Hogan DB, Freiheit EA, Strain LA, et al. Comparing frailty measures in their ability to predict adverse outcome among older residents of assisted living. BMC Geriatr. 2012;12:56.CrossRefPubMedCentralPubMed Hogan DB, Freiheit EA, Strain LA, et al. Comparing frailty measures in their ability to predict adverse outcome among older residents of assisted living. BMC Geriatr. 2012;12:56.CrossRefPubMedCentralPubMed
29.
go back to reference Fang X, Shi J, Song X, et al. Frailty in relation to the risk of falls, fractures, and mortality in older Chinese adults: results from the Beijing longitudinal study of aging. J Nutr Health Aging. 2012;16(10):903–7.CrossRefPubMed Fang X, Shi J, Song X, et al. Frailty in relation to the risk of falls, fractures, and mortality in older Chinese adults: results from the Beijing longitudinal study of aging. J Nutr Health Aging. 2012;16(10):903–7.CrossRefPubMed
30.
go back to reference Crentsil V, Ricks MO, Xue QL, Fried LP. A pharmacoepidemiologic study of community-dwelling, disabled older women: factors associated with medication use. Am J Geriatr Pharmacother. 2010;8(3):215–24.CrossRefPubMed Crentsil V, Ricks MO, Xue QL, Fried LP. A pharmacoepidemiologic study of community-dwelling, disabled older women: factors associated with medication use. Am J Geriatr Pharmacother. 2010;8(3):215–24.CrossRefPubMed
31.
go back to reference Gnjidic D, Hilmer SN, Blyth FM, et al. High-risk prescribing and incidence of frailty among older community-dwelling men. Clin Pharmacol Ther. 2012;91(3):521–8.CrossRefPubMed Gnjidic D, Hilmer SN, Blyth FM, et al. High-risk prescribing and incidence of frailty among older community-dwelling men. Clin Pharmacol Ther. 2012;91(3):521–8.CrossRefPubMed
32.
go back to reference Schoufour JD, Evenhuis HM, Echteld MA. The impact of frailty on care intensity in older people with intellectual disabilities. Res Dev Disabil. 2014;35(12):3455–61.CrossRefPubMed Schoufour JD, Evenhuis HM, Echteld MA. The impact of frailty on care intensity in older people with intellectual disabilities. Res Dev Disabil. 2014;35(12):3455–61.CrossRefPubMed
33.
go back to reference Faber MJ, Bosscher RJ, Chin APMJ, Wieringen PC van. Effects of exercise programs on falls and mobility in frail and pre-frail older adults: a multicenter randomized controlled trial. Arch Phys Med Rehabil. 2006;87(7):885–96.CrossRefPubMed Faber MJ, Bosscher RJ, Chin APMJ, Wieringen PC van. Effects of exercise programs on falls and mobility in frail and pre-frail older adults: a multicenter randomized controlled trial. Arch Phys Med Rehabil. 2006;87(7):885–96.CrossRefPubMed
34.
go back to reference Tieland M, Rest O van de, Dirks ML, et al. Protein supplementation improves physical performance in frail elderly people: a randomized, double-blind, placebo-controlled trial. J Am Med Dir Assoc. 2012;13(8):720–6.CrossRefPubMed Tieland M, Rest O van de, Dirks ML, et al. Protein supplementation improves physical performance in frail elderly people: a randomized, double-blind, placebo-controlled trial. J Am Med Dir Assoc. 2012;13(8):720–6.CrossRefPubMed
35.
go back to reference Mitnitski A, Song X, Rockwood K. Trajectories of changes over twelve years in the health status of Canadians from late middle age. Exp Gerontol. 2012;47(12):893–9.CrossRefPubMed Mitnitski A, Song X, Rockwood K. Trajectories of changes over twelve years in the health status of Canadians from late middle age. Exp Gerontol. 2012;47(12):893–9.CrossRefPubMed
36.
go back to reference Schoufour JD, Wijngaarden J van, Mitnitski A, Rockwood K, Evenhuis HM, Echteld MA. Characteristics of the least frail adults with intellectual disabilities: a positive biology perspective. Res Dev Disabil. 2014;35(1):127–36.CrossRefPubMed Schoufour JD, Wijngaarden J van, Mitnitski A, Rockwood K, Evenhuis HM, Echteld MA. Characteristics of the least frail adults with intellectual disabilities: a positive biology perspective. Res Dev Disabil. 2014;35(1):127–36.CrossRefPubMed
37.
go back to reference Schijndel-Speet M van, Evenhuis HM, Empelen P van, Wijck R van, Echteld MA. Development and evaluation of a structured programme for promoting physical activity among seniors with intellectual disabilities: a study protocol for a cluster randomized trial. BMC Public Health. 2013;13:746.CrossRefPubMedCentralPubMed Schijndel-Speet M van, Evenhuis HM, Empelen P van, Wijck R van, Echteld MA. Development and evaluation of a structured programme for promoting physical activity among seniors with intellectual disabilities: a study protocol for a cluster randomized trial. BMC Public Health. 2013;13:746.CrossRefPubMedCentralPubMed
38.
go back to reference Hermans H, Evenhuis H. Life events and their associations with depression and anxiety in older people with intellectual disabilities: results of the HA-ID study. J Affect Disord. 2012; 138(1–2):79–85.CrossRefPubMed Hermans H, Evenhuis H. Life events and their associations with depression and anxiety in older people with intellectual disabilities: results of the HA-ID study. J Affect Disord. 2012; 138(1–2):79–85.CrossRefPubMed
39.
go back to reference Evenhuis HM. [Poor health at an earlier age: frailty in people with intellectual disabilities] Niet eerder oud, maar eerder ongezond. Ned Tijdschr Geneeskd. 2014;158(0):A8016.PubMed Evenhuis HM. [Poor health at an earlier age: frailty in people with intellectual disabilities] Niet eerder oud, maar eerder ongezond. Ned Tijdschr Geneeskd. 2014;158(0):A8016.PubMed
40.
go back to reference Carmeli E, Imam B, Bachar A, Merrick J. Inflammation and oxidative stress as biomarkers of premature aging in persons with intellectual disability. Res Dev Disabil. 2012;33(2):369–75.CrossRefPubMed Carmeli E, Imam B, Bachar A, Merrick J. Inflammation and oxidative stress as biomarkers of premature aging in persons with intellectual disability. Res Dev Disabil. 2012;33(2):369–75.CrossRefPubMed
Metagegevens
Titel
Kwetsbaarheid bij ouderen met een verstandelijke beperking: operationalisering, risico en opsporing
Auteurs
Josje D. Schoufour
Michael A. Echteld
Heleen M. Evenhuis
Publicatiedatum
01-04-2015
Uitgeverij
Bohn Stafleu van Loghum
Gepubliceerd in
Tijdschrift voor Gerontologie en Geriatrie / Uitgave 2/2015
Print ISSN: 0167-9228
Elektronisch ISSN: 1875-6832
DOI
https://doi.org/10.1007/s12439-015-0126-4

Andere artikelen Uitgave 2/2015

Tijdschrift voor Gerontologie en Geriatrie 2/2015 Naar de uitgave

Announcement

Congresagenda

Signalementen

Signalementen