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Quality of Life Research

Gepubliceerd in:

11-07-2022

"I feel like my body is broken": exploring the experiences of people living with long COVID

Auteurs: Amanda Wurz, S. Nicole Culos-Reed, Kelli Franklin, Jessica DeMars, James G. Wrightson, Rosie Twomey

Gepubliceerd in: Quality of Life Research | Uitgave 12/2022

Abstract

Purpose

Long COVID, an illness affecting a subset of individuals after COVID-19, is distressing, poorly understood, and reduces quality of life. The objective of this sub-study was to better understand and explore individuals' experiences with long COVID and commonly reported symptoms, using qualitative data collected from open-ended survey responses.

Methods

Data were collected from adults living with long COVID who participated in a larger observational online survey. Participants had the option of answering seven open-ended items. Data from the open-ended items were analyzed following guidelines for reflective thematic analysis.

Results

From 213 participants who were included in the online survey, 169 participants who primarily self-identified as women (88.2%), aged 40–49 (33.1%), who had been experiencing long COVID symptoms for ≥ 6 months (74%) provided open-ended responses. Four overlapping and interconnected themes were identified: (1) Long COVID symptoms are numerous and wearing, (2) The effects of long COVID are pervasive, (3) Physical activity is difficult and, in some cases, not possible, and (4) Asking for help when few are listening, and little is working.

Conclusion

Findings reaffirm prior research, highlighting the complex nature of long COVID. Further, results show the ways individuals affected by the illness are negatively impacted and have had to alter their daily activities. Participants recounted the challenges faced when advocating for themselves, adapting to new limitations, and navigating healthcare systems. The varied relapsing–remitting symptoms, unknown prognosis, and deep sense of loss over one's prior identity suggest interventions are needed to support this population.

vorige artikel Health-related quality of life analysis in ovarian cancer clinical trials involving PARP inhibitors: a critical methodological perspective

volgende artikel How important is subjective well-being for patients? A qualitative interview study of people with psoriasis

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Titel: "I feel like my body is broken": exploring the experiences of people living with long COVID
Auteurs: Amanda Wurz
S. Nicole Culos-Reed
Kelli Franklin
Jessica DeMars
James G. Wrightson
Rosie Twomey
Publicatiedatum: 11-07-2022
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 12/2022
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-022-03176-1

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Abstract

Purpose

Methods

Results

Conclusion

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