Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 9/2023

11-07-2022 | Original Paper

Finding Benefit and Feeling Strain in Parenting a Child with Autism Spectrum Disorder

Auteurs: Haley C. Adams, Kimberly R. Zlomke, Kristina G. Rossetti

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2023

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Female caregivers of children with autism spectrum disorder (ASD) often report higher levels of psychological distress related to increased levels of caregiver strain, as well as frequency and severity of child problem behaviors (CPB). However, despite reported distress, caregivers have also reported benefits. A sample of n = 259 female caregivers of children with ASD completed online surveys assessing CPB, caregiver strain, psychological distress, and benefit finding. Results suggest that objective caregiver strain is a significant mediator between CPB and caregiver distress. Benefit finding, however, was not found to be a significant moderator. These findings inform theoretical applications and provide implications for future research in the development of interventions to enhance functioning in female caregivers.
Literatuur
go back to reference Amtmann, D., Liljenquist, K. S., Bamer, A., Gammaitoni, A. R., Aron, C. R., Galer, B. S., & Jensen, M. P. (2020). Development and validation of the University of Washington caregiver stress and benefit scales for caregivers of children with or without serious health conditions. Quality of Life Research, 29(5), 1361–1371. https://doi.org/10.1007/s11136-019-02409-0CrossRefPubMed Amtmann, D., Liljenquist, K. S., Bamer, A., Gammaitoni, A. R., Aron, C. R., Galer, B. S., & Jensen, M. P. (2020). Development and validation of the University of Washington caregiver stress and benefit scales for caregivers of children with or without serious health conditions. Quality of Life Research, 29(5), 1361–1371. https://​doi.​org/​10.​1007/​s11136-019-02409-0CrossRefPubMed
go back to reference Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107(6), 433–444.CrossRefPubMed Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107(6), 433–444.CrossRefPubMed
go back to reference Bickman, L., Riemer, M., Lambert, W., Kelley, S. D., Breda, C., Dew, S. E., Brannan, A. M., & Vides de Andrade, A. R. (2007). Caregiver strain questionnaire short form. In Manual of the peabody treatment progress battery (pp. 145–159). Vanderbilt University. Bickman, L., Riemer, M., Lambert, W., Kelley, S. D., Breda, C., Dew, S. E., Brannan, A. M., & Vides de Andrade, A. R. (2007). Caregiver strain questionnaire short form. In Manual of the peabody treatment progress battery (pp. 145–159). Vanderbilt University.
go back to reference Bradshaw, J., Gillespie, S., Mccracken, C., King, B. H., Mccracken, J. T., Johnson, C. R., Lecavalier, L., Smith, T., Swiezy, N., Bearss, K., Sikich, L., Donnelly, C., Hollander, E., McDougle, C., & Scahill, L. (2021). Predictors of caregiver strain for parents of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 51(9), 3039–3049. https://doi.org/10.1007/s10803-020-04625-xCrossRefPubMed Bradshaw, J., Gillespie, S., Mccracken, C., King, B. H., Mccracken, J. T., Johnson, C. R., Lecavalier, L., Smith, T., Swiezy, N., Bearss, K., Sikich, L., Donnelly, C., Hollander, E., McDougle, C., & Scahill, L. (2021). Predictors of caregiver strain for parents of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 51(9), 3039–3049. https://​doi.​org/​10.​1007/​s10803-020-04625-xCrossRefPubMed
go back to reference Emser, T. S., Mazzucchelli, T. G., Christiansen, H., & Sanders, M. R. (2016). Child Adjustment and Parent Efficacy Scale-Developmental Disability (CAPES-DD): First psychometric evaluation of a new child and parenting assessment tool for children with a developmental disability. Research in Developmental Disabilities, 53–54, 158–177. https://doi.org/10.1016/j.ridd.2015.09.006CrossRefPubMed Emser, T. S., Mazzucchelli, T. G., Christiansen, H., & Sanders, M. R. (2016). Child Adjustment and Parent Efficacy Scale-Developmental Disability (CAPES-DD): First psychometric evaluation of a new child and parenting assessment tool for children with a developmental disability. Research in Developmental Disabilities, 53–54, 158–177. https://​doi.​org/​10.​1016/​j.​ridd.​2015.​09.​006CrossRefPubMed
go back to reference Hayes, A. F. (2017). Introduction to mediation, moderation, and conditional process analysis: A regression-based approach (2nd ed.). The Guilford Press. Hayes, A. F. (2017). Introduction to mediation, moderation, and conditional process analysis: A regression-based approach (2nd ed.). The Guilford Press.
go back to reference Lee, H., Marvin, A. R., Watson, T., Piggot, J., Kiely Law, J., Law, P. A., Constantino, J. N., & Nelson, S. F. (2010). Accuracy of phenotyping of autistic children based on internet implemented parent report. American Journal of Medical Genetics Part b: Neuropsychiatric Genetics, 153B(6), 1119–1126. https://doi.org/10.1002/ajmg.b.31103CrossRef Lee, H., Marvin, A. R., Watson, T., Piggot, J., Kiely Law, J., Law, P. A., Constantino, J. N., & Nelson, S. F. (2010). Accuracy of phenotyping of autistic children based on internet implemented parent report. American Journal of Medical Genetics Part b: Neuropsychiatric Genetics, 153B(6), 1119–1126. https://​doi.​org/​10.​1002/​ajmg.​b.​31103CrossRef
go back to reference Lovibond, S. H., & Lovibond, P. F. (1995). Manual for the Depression Anxiety Stress Scales (2nd ed.). Psychology Foundation. Lovibond, S. H., & Lovibond, P. F. (1995). Manual for the Depression Anxiety Stress Scales (2nd ed.). Psychology Foundation.
go back to reference Mazzucchelli, T. G., Sanders, M. R., & Morawska, A. (2016). Child Adjustment and Parent Efficacy Scale-Developmental Disability (CAPES-DD): First psychometric evaluation of a new child and parenting assessment tool for children with a developmental disability. Research in Developmental Disabilities, 53–54, 158–177. https://doi.org/10.1016/j.ridd.2015.09.006CrossRefPubMed Mazzucchelli, T. G., Sanders, M. R., & Morawska, A. (2016). Child Adjustment and Parent Efficacy Scale-Developmental Disability (CAPES-DD): First psychometric evaluation of a new child and parenting assessment tool for children with a developmental disability. Research in Developmental Disabilities, 53–54, 158–177. https://​doi.​org/​10.​1016/​j.​ridd.​2015.​09.​006CrossRefPubMed
go back to reference Rezendes, D. L., & Scarpa, A. (2011). Associations between parental anxiety/depression and child behavior problems related to autism spectrum disorders: The roles of parenting stress and parenting self-efficacy. Autism Research and Treatment, 2011, 1–10. https://doi.org/10.1155/2011/395190CrossRef Rezendes, D. L., & Scarpa, A. (2011). Associations between parental anxiety/depression and child behavior problems related to autism spectrum disorders: The roles of parenting stress and parenting self-efficacy. Autism Research and Treatment, 2011, 1–10. https://​doi.​org/​10.​1155/​2011/​395190CrossRef
Metagegevens
Titel
Finding Benefit and Feeling Strain in Parenting a Child with Autism Spectrum Disorder
Auteurs
Haley C. Adams
Kimberly R. Zlomke
Kristina G. Rossetti
Publicatiedatum
11-07-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 9/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-022-05663-3

Andere artikelen Uitgave 9/2023

Journal of Autism and Developmental Disorders 9/2023 Naar de uitgave

EditorialNotes

Editorial