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Gepubliceerd in: Quality of Life Research 7/2018

12-04-2018

Evaluation of options for presenting health-states from PROMIS® item banks for valuation exercises

Auteurs: Janel Hanmer, David Cella, David Feeny, Baruch Fischhoff, Ron D. Hays, Rachel Hess, Paul A. Pilkonis, Dennis Revicki, Mark Roberts, Joel Tsevat, Lan Yu

Gepubliceerd in: Quality of Life Research | Uitgave 7/2018

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Abstract

Purpose

Health status descriptive systems based on item response theory (IRT), such as the Patient-Reported Outcomes Measurement Information System (PROMIS®), have item banks to measure domains of health. We developed a method to present such banks for health-state valuation.

Methods

We evaluated four different presentation approaches: a single item (1S), 2 items presented separately (2S), 2 items presented together (2T), or 5 items presented together (5T). We evaluated these four approaches in three PROMIS item banks (depression, physical function, and sleep disturbance). Adult community members valued health-state descriptions using the visual analog scale and standard gamble methods. We compared the approaches by the range of item bank theta scores captured, participants’ assessments of difficulty (1 = very easy to 7 = very hard), and exit interviews.

Results

Participants (n = 118) ranged in age from 18 to 71; 63% were female and 54% were white. The 1S approach captured the smallest range of theta scores. A monotonic relationship between theta score and mean standard gamble estimate was found with all approaches except 2S. Across all 3 item banks, mean difficulty assessments were 2.35 (1S), 2.69 (2T), 2.78 (5T), and 2.80 (2S). In exit interviews, participants generally found all four approaches similarly meaningful and realistic.

Conclusions

Creating health descriptions by presenting 2 items maximized the range of theta while minimizing difficulty and maintaining a monotonic relationship with utility estimates. We recommend this approach for valuation of IRT-based descriptive systems such as PROMIS.
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Literatuur
1.
go back to reference McHorney, C. A. (1999). Health status assessment methods for adults: Past accomplishments and future challenges. Annual Review of Public Health, 20, 309–335. CrossRefPubMed McHorney, C. A. (1999). Health status assessment methods for adults: Past accomplishments and future challenges. Annual Review of Public Health, 20, 309–335. CrossRefPubMed
2.
go back to reference Torrance, G. W. (1986). Measurement of health state utilities for economic appraisal: a review. Journal of health economics, 5(1), 1–30. CrossRefPubMed Torrance, G. W. (1986). Measurement of health state utilities for economic appraisal: a review. Journal of health economics, 5(1), 1–30. CrossRefPubMed
3.
go back to reference Drummond, M. F., Sculpher, M. J., Torrance, G. W., O’Brien, B. J., & Stoddart, G. L. (2005). Methods for the economic evaluation of health care programmes (3rd ed.). Oxford: Oxford University Press. Drummond, M. F., Sculpher, M. J., Torrance, G. W., O’Brien, B. J., & Stoddart, G. L. (2005). Methods for the economic evaluation of health care programmes (3rd ed.). Oxford: Oxford University Press.
4.
go back to reference Neumann, P. J., Sanders, G. D., Russell, L. B., Siegel, J. E., & Ganiats, T. G. (Eds.). (2016). Cost-effectiveness in health and medicine (2nd ed.). Oxford: Oxford University Press. Neumann, P. J., Sanders, G. D., Russell, L. B., Siegel, J. E., & Ganiats, T. G. (Eds.). (2016). Cost-effectiveness in health and medicine (2nd ed.). Oxford: Oxford University Press.
5.
go back to reference Brooks, R., Rabin, R., & de Charro, F. (2003). The measurement and valuation of health status using EQ-5D: A European perspective. Dordrecht: Kluwer. CrossRef Brooks, R., Rabin, R., & de Charro, F. (2003). The measurement and valuation of health status using EQ-5D: A European perspective. Dordrecht: Kluwer. CrossRef
6.
go back to reference Feeny, D., Furlong, W., Torrance, G. W., et al. (2002). Multiattribute and singleattribute utility functions for the health utilities index mark 3 system. Medical Care, 40, 113–128. CrossRefPubMed Feeny, D., Furlong, W., Torrance, G. W., et al. (2002). Multiattribute and singleattribute utility functions for the health utilities index mark 3 system. Medical Care, 40, 113–128. CrossRefPubMed
7.
go back to reference Feeny, D., Torrance, G., & Furlong, W. (1996). Health utilities index. In B. Spilker (Ed.), Quality of life and pharmacoeconomics in clinical trials. Philadelphia: Lippincott-Raven Press. Feeny, D., Torrance, G., & Furlong, W. (1996). Health utilities index. In B. Spilker (Ed.), Quality of life and pharmacoeconomics in clinical trials. Philadelphia: Lippincott-Raven Press.
8.
go back to reference Kaplan, R. M., & Anderson, J. P. (1988). A general health policy model: Update and applications. Health Services Research, 23, 203–234. PubMedPubMedCentral Kaplan, R. M., & Anderson, J. P. (1988). A general health policy model: Update and applications. Health Services Research, 23, 203–234. PubMedPubMedCentral
9.
go back to reference Brazier, J. E., & Roberts, J. (2004). The estimation of a preference-based measure of health from the SF-12. Medical Care, 42, 851–859. CrossRefPubMed Brazier, J. E., & Roberts, J. (2004). The estimation of a preference-based measure of health from the SF-12. Medical Care, 42, 851–859. CrossRefPubMed
10.
go back to reference Brazier, J., Roberts, J., & Deverill, M. (2002). The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics, 21, 271–292. CrossRefPubMed Brazier, J., Roberts, J., & Deverill, M. (2002). The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics, 21, 271–292. CrossRefPubMed
11.
go back to reference Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., et al. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH roadmap cooperative group during its first two years. Medical Care, 45(5), S3-11. Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., et al. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH roadmap cooperative group during its first two years. Medical Care, 45(5), S3-11.
12.
go back to reference Cella, D., Riley, W., Reeve, B., Stone, A., Young, S., Rothrock, N., et al. (2010). Initial item banks and first wave testing of the Patient-Reported Outcomes Measurement Information System (PROMIS) network: 2005–2008. Journal of Clinical Epidemiology, 63(11), 1179–1194. CrossRefPubMedPubMedCentral Cella, D., Riley, W., Reeve, B., Stone, A., Young, S., Rothrock, N., et al. (2010). Initial item banks and first wave testing of the Patient-Reported Outcomes Measurement Information System (PROMIS) network: 2005–2008. Journal of Clinical Epidemiology, 63(11), 1179–1194. CrossRefPubMedPubMedCentral
13.
go back to reference Embretson, S. E., & Reise, S. P. (2000). Item response theory for psychologists. New York: Psychology Press. Embretson, S. E., & Reise, S. P. (2000). Item response theory for psychologists. New York: Psychology Press.
14.
go back to reference Cook, K. F., Victorson, D. E., Cella, D., Schalet, B. D., & Miller, D. (2015). Creating meaningful cut-scores for Neuro-QOL measures of fatigue, physical functioning, and sleep disturbance using standard setting with patients and providers. Quality of Life Research, 24(3), 575–589. CrossRefPubMed Cook, K. F., Victorson, D. E., Cella, D., Schalet, B. D., & Miller, D. (2015). Creating meaningful cut-scores for Neuro-QOL measures of fatigue, physical functioning, and sleep disturbance using standard setting with patients and providers. Quality of Life Research, 24(3), 575–589. CrossRefPubMed
15.
go back to reference Thissen, D., Liu, Y., Magnus, B., Quinn, H., Gipson, D. S., Dampier, C., … Gross, H. E. (2016). Estimating minimally important difference (MID) in PROMIS pediatric measures using the scale-judgment method. Quality of Life Research, 25(1), 13–23. CrossRefPubMed Thissen, D., Liu, Y., Magnus, B., Quinn, H., Gipson, D. S., Dampier, C., … Gross, H. E. (2016). Estimating minimally important difference (MID) in PROMIS pediatric measures using the scale-judgment method. Quality of Life Research, 25(1), 13–23. CrossRefPubMed
16.
go back to reference Pilkonis, P. A., Choi, S. W., Reise, S. P., Stover, A. M., Riley, W. T., & Cella, D. (2011). Item banks for measuring emotional distress from the Patient-Reported Outcomes Measurement Information System (PROMIS®): Depression, anxiety, and anger. Assessment, 18(3), 263–283. CrossRefPubMedPubMedCentral Pilkonis, P. A., Choi, S. W., Reise, S. P., Stover, A. M., Riley, W. T., & Cella, D. (2011). Item banks for measuring emotional distress from the Patient-Reported Outcomes Measurement Information System (PROMIS®): Depression, anxiety, and anger. Assessment, 18(3), 263–283. CrossRefPubMedPubMedCentral
17.
go back to reference Rose, M., Bjorner, J. B., Gandek, B., Bruce, B., Fries, J. F., & Ware, J. E. (2014). The PROMIS Physical Function item bank was calibrated to a standardized metric and shown to improve measurement efficiency. Journal of Clinical Epidemiology, 67(5), 516–526. CrossRefPubMedPubMedCentral Rose, M., Bjorner, J. B., Gandek, B., Bruce, B., Fries, J. F., & Ware, J. E. (2014). The PROMIS Physical Function item bank was calibrated to a standardized metric and shown to improve measurement efficiency. Journal of Clinical Epidemiology, 67(5), 516–526. CrossRefPubMedPubMedCentral
18.
go back to reference Buysse, D. J., Yu, L., Moul, D. E., Germain, A., Stover, A., Dodds, N. E., … Pilkonis, P. A. (2010). Development and validation of patient-reported outcome measures for sleep disturbance and sleep-related impairments. Sleep, 33(6), 781–792. CrossRefPubMedPubMedCentral Buysse, D. J., Yu, L., Moul, D. E., Germain, A., Stover, A., Dodds, N. E., … Pilkonis, P. A. (2010). Development and validation of patient-reported outcome measures for sleep disturbance and sleep-related impairments. Sleep, 33(6), 781–792. CrossRefPubMedPubMedCentral
19.
go back to reference McNaughton, C. D., Cavanaugh, K. L., Kripalani, S., Rothman, R. L., & Wallston, K. A. (2015). Validation of a short, 3-item version of the Subjective Numeracy Scale. Medical Decision Making, 35(8), 932–936. CrossRefPubMedPubMedCentral McNaughton, C. D., Cavanaugh, K. L., Kripalani, S., Rothman, R. L., & Wallston, K. A. (2015). Validation of a short, 3-item version of the Subjective Numeracy Scale. Medical Decision Making, 35(8), 932–936. CrossRefPubMedPubMedCentral
20.
go back to reference Ironson, G., Solomon, G. F., Balbin, E. G., O’Cleirigh, C., George, A., Kumar, M., … Woods, T. E. (2002). The Ironson-Woods Spirituality/Religiousness Index is associated with long survival, health behaviors, less distress, and low cortisol in people with HIV/AIDS. Annals of Behavioral Medicine, 24(1), 34–48. CrossRefPubMed Ironson, G., Solomon, G. F., Balbin, E. G., O’Cleirigh, C., George, A., Kumar, M., … Woods, T. E. (2002). The Ironson-Woods Spirituality/Religiousness Index is associated with long survival, health behaviors, less distress, and low cortisol in people with HIV/AIDS. Annals of Behavioral Medicine, 24(1), 34–48. CrossRefPubMed
24.
go back to reference Liu, H., Cella, D., Gershon, R., Shen, J., Morales, L. S., Riley, W., & Hays, R. D. (2010). Representativeness of the Patient-Reported Outcomes Measurement Information System internet panel. Journal of Clinical Epidemiology, 63(11), 1169–1178. CrossRefPubMedPubMedCentral Liu, H., Cella, D., Gershon, R., Shen, J., Morales, L. S., Riley, W., & Hays, R. D. (2010). Representativeness of the Patient-Reported Outcomes Measurement Information System internet panel. Journal of Clinical Epidemiology, 63(11), 1169–1178. CrossRefPubMedPubMedCentral
25.
go back to reference Dobrez, D., Cella, D., Pickard, A. S., Lai, J. S., & Nickolov, A. (2007). Estimation of patient preference-based utility weights from the functional assessment of cancer therapy—General. Value in Health, 10(4), 266–272. CrossRefPubMed Dobrez, D., Cella, D., Pickard, A. S., Lai, J. S., & Nickolov, A. (2007). Estimation of patient preference-based utility weights from the functional assessment of cancer therapy—General. Value in Health, 10(4), 266–272. CrossRefPubMed
26.
go back to reference Hanmer, J., Feeny, D., Fischhoff, B., Hays, R. D., Hess, R., Pilkonis, P. A., … Yu, L. (2015). The PROMIS of QALYs. Health and Quality of Life Outcomes, 13(1), 122. CrossRefPubMedPubMedCentral Hanmer, J., Feeny, D., Fischhoff, B., Hays, R. D., Hess, R., Pilkonis, P. A., … Yu, L. (2015). The PROMIS of QALYs. Health and Quality of Life Outcomes, 13(1), 122. CrossRefPubMedPubMedCentral
Metagegevens
Titel
Evaluation of options for presenting health-states from PROMIS® item banks for valuation exercises
Auteurs
Janel Hanmer
David Cella
David Feeny
Baruch Fischhoff
Ron D. Hays
Rachel Hess
Paul A. Pilkonis
Dennis Revicki
Mark Roberts
Joel Tsevat
Lan Yu
Publicatiedatum
12-04-2018
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 7/2018
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-018-1852-1