Quality of Life Research 5/2015

01-05-2015 | Editorial

Introduction to special section on patient engagement

Carolyn E. Schwartz, Dennis A. Revicki

Open Access 01-05-2015 | Patient Engagement Special Section

Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

Lori Frank, Laura Forsythe, Lauren Ellis, Suzanne Schrandt, Sue Sheridan, Jason Gerson, Kristen Konopka, Sarah Daugherty

Naar de volledige tekst

01-05-2015 | Patient Engagement Special Section

Data collection challenges in community settings: insights from two field studies of patients with chronic disease

Richard J. Holden, Amanda M. McDougald Scott, Peter L. T. Hoonakker, Ann S. Hundt, Pascale Carayon

01-05-2015 | Patient Engagement Special Section

Building new roles and relationships in research: a model of patient engagement research

Nancy Marlett, Svetlana Shklarov, Deborah Marshall, Maria Jose Santana, Tracy Wasylak

01-05-2015 | Patient Engagement Special Section

Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium

Kirstie Haywood, Jo Brett, Sam Salek, Nancy Marlett, Colin Penman, Svetlana Shklarov, Colleen Norris, Maria Jose Santana, Sophie Staniszewska

01-05-2015 | Patient Engagement Special Section

Beyond lip service and box ticking: how effective patient engagement is integral to the development and delivery of patient-reported outcomes

K. Absolom, P. Holch, B. Woroncow, E. P. Wright, G. Velikova

01-05-2015 | Patient Engagement Special Section

Engaging patients to recover life projectuality: an Italian cross-disease framework

Serena Barello, Guendalina Graffigna

01-05-2015 | Patient Engagement Special Section

Engaging stakeholders to develop a depression management decision support tool in a tribal health system

Helene Starks, Jennifer L. Shaw, Vanessa Hiratsuka, Denise A. Dillard, Renee Robinson

01-05-2015 | Patient Engagement Special Section

Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial: Nueva Vida intervention

Christina L. Rush, Margaret Darling, Maria Gloria Elliott, Ivis Febus-Sampayo, Charlene Kuo, Juliana Muñoz, Ysabel Duron, Migdalia Torres, Claudia Campos Galván, Florencia Gonzalez, Larisa Caicedo, Anna Nápoles, Roxanne E. Jensen, Emily Anderson, Kristi D. Graves

Open Access 01-05-2015 | Patient Engagement Special Section

Low-income minority patient engagement with automated telephonic depression assessment and impact on health outcomes

Irene Vidyanti, Brian Wu, Shinyi Wu

Naar de volledige tekst

01-05-2015 | Patient Engagement Special Section

Obese subjects involvement in a population-based survey: the use of information and communication technologies (ICT) to avoid stigmatization

Benoit Pétré, Anne-Françoise Donneau, Céline Crutze, Eddy Husson, André Scheen, Michèle Guillaume

01-05-2015 | Patient Engagement Special Section

Gaps between patients’ reported current and preferred abilities versus clinicians’ emphases during an episode of care: Any agreement?

Diane D. Allen, Carolina Talavera, Stephen Baxter, Kimberly Topp

01-05-2015 | Patient Engagement Special Section

Embedding the perceptions of people with dementia into quantitative research design

Hannah M. O’Rourke Ph.D., R.N., Wendy Duggleby Ph.D., R.N., Kimberly D. Fraser Ph.D., R.N.

01-05-2015 | Commentary

How recent health-related life events affected my perspective on quality-of-life research

Mirjam A. G. Sprangers

01-05-2015 | Review

Genetic variations underlying self-reported physical functioning: a review

Melissa S. Y. Thong, Mirjam A. G. Sprangers, Jeff A. Sloan, Donald L. Patrick, Ping Yang, Cornelis J. F. van Noorden

01-05-2015 | Review

Evaluation of cross-cultural adaptation and measurement properties of breast cancer-specific quality-of-life questionnaires: a systematic review

Indiara Soares Oliveira, Lucíola da Cunha Menezes Costa, Felipe Ribeiro Cabral Fagundes, Cristina Maria Nunes Cabral

01-05-2015

“A gift wrapped in barbed wire” Positive and negative life changes after being diagnosed with inflammatory bowel disease

Rebecca Purc-Stephenson, Desirae Bowlby, S. T. Qaqish

01-05-2015

Identifying changes in scores on the EORTC-QLQ-C30 representing a change in patients’ supportive care needs

Claire F. Snyder, Amanda L. Blackford, Jonathan Sussman, Daryl Bainbridge, Doris Howell, Hsien Y. Seow, Michael A. Carducci, Albert W. Wu

01-05-2015

Predicting participation in meaningful activity for older adults with cancer

Mackenzi Pergolotti, Malcolm P. Cutchin, Hyman B. Muss

01-05-2015

Insomnia, hypnotic use, and health-related quality of life in a nationally representative sample

Julieta Scalo, Pooja Desai, Karen Rascati

01-05-2015

Health-related quality of life in women referred for bone density assessment: relationships with bone mineral density, fracture and co-morbidity

Sally Wilson, Christopher A. Sharp, Michael W. J. Davie

01-05-2015

A confirmatory factor analysis of the Resilience Scale adapted to chronic pain (RS-18): new empirical evidence of the protective role of resilience on pain adjustment

Gema T. Ruiz-Párraga, Alicia E. López-Martínez, Rosa Esteve, Carmen Ramírez-Maestre, Gail Wagnild

01-05-2015

Measuring caregiver outcomes in palliative care: a construct validation study of two instruments for use in economic evaluations

Renske Hoefman, Hareth Al-Janabi, Nikki McCaffrey, David Currow, Julie Ratcliffe

01-05-2015 | Brief Communication

Cultural adaptation and psychometric assessment of Pain Catastrophizing Scale among young healthy Malay-speaking adults in military settings

F. H. Mohd Din, Victor C. W. Hoe, C. K. Chan, M. A. Muslan

01-05-2015

Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS)

J. E. Lutomski, N. J. A. van Exel, G. I. J. M. Kempen, E. P. Moll van Charante, W. P. J. den Elzen, A. P. D. Jansen, P. F. M. Krabbe, B. Steunenberg, E. W. Steyerberg, M. G. M. Olde Rikkert, R. J. F. Melis

Bohn Stafleu van Loghum

Quality of Life Research

Uitgave 5/2015

Inhoudsopgave (25 Artikelen)

Introduction to special section on patient engagement

Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

Data collection challenges in community settings: insights from two field studies of patients with chronic disease

Building new roles and relationships in research: a model of patient engagement research

Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium

Beyond lip service and box ticking: how effective patient engagement is integral to the development and delivery of patient-reported outcomes

Engaging patients to recover life projectuality: an Italian cross-disease framework

Engaging stakeholders to develop a depression management decision support tool in a tribal health system

Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial: Nueva Vida intervention

Low-income minority patient engagement with automated telephonic depression assessment and impact on health outcomes

Obese subjects involvement in a population-based survey: the use of information and communication technologies (ICT) to avoid stigmatization

Gaps between patients’ reported current and preferred abilities versus clinicians’ emphases during an episode of care: Any agreement?

Embedding the perceptions of people with dementia into quantitative research design

How recent health-related life events affected my perspective on quality-of-life research

Genetic variations underlying self-reported physical functioning: a review

Evaluation of cross-cultural adaptation and measurement properties of breast cancer-specific quality-of-life questionnaires: a systematic review

“A gift wrapped in barbed wire” Positive and negative life changes after being diagnosed with inflammatory bowel disease

Identifying changes in scores on the EORTC-QLQ-C30 representing a change in patients’ supportive care needs

Predicting participation in meaningful activity for older adults with cancer

Insomnia, hypnotic use, and health-related quality of life in a nationally representative sample

Health-related quality of life in women referred for bone density assessment: relationships with bone mineral density, fracture and co-morbidity

A confirmatory factor analysis of the Resilience Scale adapted to chronic pain (RS-18): new empirical evidence of the protective role of resilience on pain adjustment

Measuring caregiver outcomes in palliative care: a construct validation study of two instruments for use in economic evaluations

Cultural adaptation and psychometric assessment of Pain Catastrophizing Scale among young healthy Malay-speaking adults in military settings

Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS)

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