Uitgave 5/2015
Inhoudsopgave (25 Artikelen)
Introduction to special section on patient engagement
Carolyn E. Schwartz, Dennis A. Revicki
Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute
Lori Frank, Laura Forsythe, Lauren Ellis, Suzanne Schrandt, Sue Sheridan, Jason Gerson, Kristen Konopka, Sarah Daugherty
Data collection challenges in community settings: insights from two field studies of patients with chronic disease
Richard J. Holden, Amanda M. McDougald Scott, Peter L. T. Hoonakker, Ann S. Hundt, Pascale Carayon
Building new roles and relationships in research: a model of patient engagement research
Nancy Marlett, Svetlana Shklarov, Deborah Marshall, Maria Jose Santana, Tracy Wasylak
Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium
Kirstie Haywood, Jo Brett, Sam Salek, Nancy Marlett, Colin Penman, Svetlana Shklarov, Colleen Norris, Maria Jose Santana, Sophie Staniszewska
Beyond lip service and box ticking: how effective patient engagement is integral to the development and delivery of patient-reported outcomes
K. Absolom, P. Holch, B. Woroncow, E. P. Wright, G. Velikova
Engaging patients to recover life projectuality: an Italian cross-disease framework
Serena Barello, Guendalina Graffigna
Engaging stakeholders to develop a depression management decision support tool in a tribal health system
Helene Starks, Jennifer L. Shaw, Vanessa Hiratsuka, Denise A. Dillard, Renee Robinson
Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial: Nueva Vida intervention
Christina L. Rush, Margaret Darling, Maria Gloria Elliott, Ivis Febus-Sampayo, Charlene Kuo, Juliana Muñoz, Ysabel Duron, Migdalia Torres, Claudia Campos Galván, Florencia Gonzalez, Larisa Caicedo, Anna Nápoles, Roxanne E. Jensen, Emily Anderson, Kristi D. Graves
Low-income minority patient engagement with automated telephonic depression assessment and impact on health outcomes
Irene Vidyanti, Brian Wu, Shinyi Wu
Obese subjects involvement in a population-based survey: the use of information and communication technologies (ICT) to avoid stigmatization
Benoit Pétré, Anne-Françoise Donneau, Céline Crutze, Eddy Husson, André Scheen, Michèle Guillaume
Gaps between patients’ reported current and preferred abilities versus clinicians’ emphases during an episode of care: Any agreement?
Diane D. Allen, Carolina Talavera, Stephen Baxter, Kimberly Topp
Embedding the perceptions of people with dementia into quantitative research design
Hannah M. O’Rourke, Wendy Duggleby, Kimberly D. Fraser
How recent health-related life events affected my perspective on quality-of-life research
Mirjam A. G. Sprangers
Genetic variations underlying self-reported physical functioning: a review
Melissa S. Y. Thong, Mirjam A. G. Sprangers, Jeff A. Sloan, Donald L. Patrick, Ping Yang, Cornelis J. F. van Noorden
Evaluation of cross-cultural adaptation and measurement properties of breast cancer-specific quality-of-life questionnaires: a systematic review
Indiara Soares Oliveira, Lucíola da Cunha Menezes Costa, Felipe Ribeiro Cabral Fagundes, Cristina Maria Nunes Cabral
“A gift wrapped in barbed wire” Positive and negative life changes after being diagnosed with inflammatory bowel disease
Rebecca Purc-Stephenson, Desirae Bowlby, S. T. Qaqish
Identifying changes in scores on the EORTC-QLQ-C30 representing a change in patients’ supportive care needs
Claire F. Snyder, Amanda L. Blackford, Jonathan Sussman, Daryl Bainbridge, Doris Howell, Hsien Y. Seow, Michael A. Carducci, Albert W. Wu
Predicting participation in meaningful activity for older adults with cancer
Mackenzi Pergolotti, Malcolm P. Cutchin, Hyman B. Muss
Insomnia, hypnotic use, and health-related quality of life in a nationally representative sample
Julieta Scalo, Pooja Desai, Karen Rascati
Health-related quality of life in women referred for bone density assessment: relationships with bone mineral density, fracture and co-morbidity
Sally Wilson, Christopher A. Sharp, Michael W. J. Davie
A confirmatory factor analysis of the Resilience Scale adapted to chronic pain (RS-18): new empirical evidence of the protective role of resilience on pain adjustment
Gema T. Ruiz-Párraga, Alicia E. López-Martínez, Rosa Esteve, Carmen Ramírez-Maestre, Gail Wagnild
Measuring caregiver outcomes in palliative care: a construct validation study of two instruments for use in economic evaluations
Renske Hoefman, Hareth Al-Janabi, Nikki McCaffrey, David Currow, Julie Ratcliffe
Cultural adaptation and psychometric assessment of Pain Catastrophizing Scale among young healthy Malay-speaking adults in military settings
F. H. Mohd Din, Victor C. W. Hoe, C. K. Chan, M. A. Muslan
Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS)
J. E. Lutomski, N. J. A. van Exel, G. I. J. M. Kempen, E. P. Moll van Charante, W. P. J. den Elzen, A. P. D. Jansen, P. F. M. Krabbe, B. Steunenberg, E. W. Steyerberg, M. G. M. Olde Rikkert, R. J. F. Melis