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Gepubliceerd in:

03-01-2024

Development of the PROMIS pediatric stigma and extension to the PROMIS pediatric stigma: skin item banks

Auteurs: Jin-Shei Lai, Cindy Nowinski, Stephanie M. Rangel, Shalini Thareja Batra, Kelly Mueller, Sarah Chamlin, Vitali Ustsinovich, David Cella, Maxwell Mansolf, Amy S. Paller

Gepubliceerd in: Quality of Life Research | Uitgave 3/2024

Abstract

Purpose

To develop the PROMIS Pediatric Stigma (PPS) and Skin (PPS-Skin) by constructing a common metric for measuring stigma in children with various conditions, while capturing the unique features of each condition.

Methods

Data from 860 children, ages 8–17, with a diagnosis of epilepsy, pNF (neurofibromatosis type 1 associated neurofibroma plexform), MD (muscular dystrophy), cancer, or skin conditions recruited from three projects were analyzed. Children with epilepsy, pNF and MD (sample-1) completed the original 18-item Neuro-QoL Stigma, while children with cancer and skin conditions (e.g., atopic dermatitis, psoriasis, and genetic skin disorders; sample-2) completed a 16-item version and 6 additional skin related items. Exploratory factor analysis (EFA) and confirmatory analysis (CFA) were used to evaluate unidimensionality of 24 stigma items. Differential item functioning (DIF) was used to evaluate measurement equivalence on group, gender, age, and conditions. Item response theory model (IRT) was used to construct the final measure.

Results

Sufficient unidimensionality was supported by both EFA and CFA. No items showed significant DIF indicating stable measurement properties across groups of comparison. All items fit the IRT model and were able to be calibrated together to form the PPS which consists of 18 core items. The PPS-Skin (18 cores items + 6 skin items) was developed by calibrating 6 skin items onto the common metric as the PPS.

Conclusions

We used IRT techniques to successfully develop the PPS and the PPS-Skin, which share a common metric and account for unique and common concerns related to chronic conditions.

vorige artikel Unsupervised item response theory models for assessing sample heterogeneity in patient-reported outcomes measures

volgende artikel Using parameter perturbation to facilitate transparency in measure development

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Titel: Development of the PROMIS pediatric stigma and extension to the PROMIS pediatric stigma: skin item banks
Auteurs: Jin-Shei Lai
Cindy Nowinski
Stephanie M. Rangel
Shalini Thareja Batra
Kelly Mueller
Sarah Chamlin
Vitali Ustsinovich
David Cella
Maxwell Mansolf
Amy S. Paller
Publicatiedatum: 03-01-2024
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 3/2024
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-023-03574-z

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Abstract

Purpose

Methods

Results

Conclusions

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