Background
Methods
Study design
Interview construction
Interview conduction
Health-care professionals’ survey
Statistics
Sample size
Weighted scoring procedure
Results
Patients and feasibility of the interview
Variable | N (50) | %100 |
---|---|---|
Age | ||
Mean (SD, range) | 56 (13, 30–79) | |
Gender | ||
Male | 35 | 70 |
Female | 15 | 30 |
Family situation | ||
Married/ in a relationship | 38 | 76 |
Divorced | 4 | 8 |
Widowed | 1 | 2 |
Single | 7 | 14 |
Living situation | ||
Living alone | 10 | 20 |
Living with others | 40 | 80 |
Working situation | ||
Employed | 12 | 24 |
Disability pension | 22 | 44 |
Retirement pension | 14 | 28 |
Homemaker | 2 | 4 |
Graduation | ||
Lower secondary school | 11 | 22 |
Intermediate secondary school | 20 | 40 |
High school | 19 | 38 |
Religion | ||
None | 10 | 20 |
Evangelic | 24 | 48 |
Catholic | 13 | 26 |
Muslim | 1 | 2 |
Free Church | 1 | 2 |
Other | 1 | 2 |
Side of tumor | ||
Right | 21 | 42 |
Left | 17 | 34 |
Midline | 5 | 10 |
Multifocal | 7 | 14 |
Last tumor resection prior to interview | ||
Gross total resection | 37 | 74 |
Sub total resection | 8 | 16 |
Biopsy | 5 | 10 |
Chemotherapy during the last six weeks prior to the Interview | ||
No | 30 | 60 |
Yes | 20 | 40 |
Histopathology | ||
Glioblastoma, WHO Grade IV, IDH wildtype | 23 | 46 |
Astrocytoma, WHO Grade III, IDH wildtype | 3 | 6 |
Astrocytoma, WHO Grade III, IDH mutated | 12 | 24 |
Astrocytoma, WHO Grade II, IDH mutated | 2 | 4 |
Anaplastic Oligoastrocytomaa, NOS | 3 | 6 |
Oligodendroglioma, WHO Grade III, IDH mutated | 5 | 10 |
Ependymoma WHO Grade II | 2 | 4 |
Localization of the tumor | ||
Frontal | 15 | 30 |
Occipital | 3 | 6 |
Parietal | 9 | 18 |
Temporal | 12 | 24 |
Others | 11 | 22 |
Disease stage | ||
First diagnosis | 31 | 62 |
Recurrence | 19 | 38 |
Karnofsky performance score | ||
≥ 70 | 42 | 84 |
< 70 | 8 | 16 |
ECOG performance score | ||
0 | 13 | 26 |
1 | 22 | 44 |
2 | 15 | 30 |
Household net income in €/month | ||
Mean (SD, range) | 2487.34 (1782.6; 400–8000) | |
Time since diagnosis (months) | ||
Mean (SD, range) | 62 (93; 0.7–369) | |
Age at diagnosis (years) | ||
Mean (SD, range) | 51 (16; 12–78) |
Health-care professionals’ survey
Selected screening and subordinate questions
Area | Final value (joint) | Patients only (step C of the scoring procedure) | Health-care professionals only (step F of the scoring procedure) |
---|---|---|---|
Psyche | 18.9 | 21.2 | 14.0 |
Cognition | 22.9 | 23.9 | 21.0 |
Body | 21.4 | 21.1 | 22.0 |
Role functioning | 18.3 | 21.4 | 12.2 |
Social support | 17.2 | 19.2 | 13.2 |
Unmet needs | 15.5 | 18.0 | 10.4 |
Unmet needs calculated only with the top 5 itemsa | 16.9 | 19.7 | 11.4 |