Top

Gepubliceerd in:

01-06-2013

Development and psychometric evaluation of the Chronic Illness Anticipated Stigma Scale

Auteurs: Valerie A. Earnshaw, Diane M. Quinn, Seth C. Kalichman, Crystal L. Park

Gepubliceerd in: Journal of Behavioral Medicine | Uitgave 3/2013

Abstract

The Chronic Illness Anticipated Stigma Scale (CIASS) was developed to measure anticipated stigma (i.e., expectations of prejudice, stereotyping, and discrimination) among people living with chronic illnesses. The CIASS is a 12-item scale with three subscales differentiating among sources of anticipated stigma, including friends and family members, work colleagues, and healthcare workers. Results support the reliability, validity, and generalizability of the CIASS in two samples of people living with chronic illnesses. The CIASS was correlated with other stigma-related constructs as well as indicators of mental health, physical health, and health behaviors. The CIASS can help researchers gauge the degree to which people living with chronic illnesses anticipate stigma, better understand the processes by which anticipated stigma contributes to the health and behavior of people living with chronic illnesses, and compare the extent to which people living with different types of chronic illnesses anticipate stigma.

vorige artikel Attitudinal familism predicts weight management adherence in Mexican–American women

volgende artikel Using novel methods to examine stress among HIV-positive African American men who have sex with men and women

Acker, S. M. (2008). The doctor–patient relationship in the treatment of fibromyalgia. Dissertation abstracts international, 69, 4406.

Anderson, G. (2004). Chronic conditions: Making the case for ongoing care. Baltimore, MD: John Hopkins University.

Beatty, J. E., & Joffee, R. (2006). An overlooked dimension of diversity: The career effects of chronic illness. Organizational Dynamics, 35, 182–195. doi:10.1016/j.orgdyn.2006.03.006.CrossRef

Berger, B. E., Ferrans, C. E., & Lashley, F. R. (2001). Measuring stigma in people with HIV: Psychometric assessment of the HIV stigma scale. Research in Nursing & Health, 24, 518–529. doi:10.1002/nur.10011.CrossRef

Chan, F., McMahon, B. T., Cheing, G., Bezyak, J., & Rosenthal, D. A. (2005). Drivers of workplace discrimination against people with disabilities: The utility of attribution theory. Work: Journal of Prevention, Assessment & Rehabilitation, 25, 77–88.

Chapple, A., Ziebland, S., & McPherson, A. (2004). Stigma, shame, and blame experienced by patients with lung cancer: Qualitative study. BMJ: British Medical Journal, 328, 1470–1470. doi:10.1136/bmj.38111.639734.7C.PubMedCrossRef

Conrad, S., Garrett, L. E., Cooksley, W. G. E., MacDonald, G. A., & Dunne, M. P. (2006). Living with chronic hepatitis C means ‘you just haven’t got a normal life any more.’. Chronic Illness, 2, 121–131. doi:10.1179/174592006X110996.PubMed

DeVellis, R. F. (2003). Scale development: Theory and applications. Thousand Oaks, CA: Sage Publications.

Downey, G., & Feldman, S. I. (1996). Implications of rejection sensitivity for intimate relationships. Journal of Personality and Social Psychology, 70, 1327–1343. doi:10.1037/0022-3514.70.6.1327.PubMedCrossRef

Earnshaw, V. A., & Chaudoir, S. R. (2009). From conceptualizing to measuring HIV stigma: A review of HIV stigma mechanism measures. AIDS and Behavior, 13, 1160–1177. doi:10.1007/s10461-009-9593-3.PubMedCrossRef

Earnshaw, V. A., & Quinn, D. M. (2012). The impact of stigma in healthcare on people living with chronic illnesses. Journal of Health Psychology, 17, 157–168. doi:10.1177/1359105311414952.PubMedCrossRef

Fife, B. L., & Wright, E. R. (2000). The dimensionality of stigma: A comparison of its impact on the self of persons with HIV/AIDS and cancer. Journal of Health and Social Behavior, 41, 50–67. doi:10.2307/2676360.PubMedCrossRef

Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. New York, NY: Simon & Schuster.

Green, G. (2009). The end of stigma? Changes in the social experience of long-term illness. UK: T & F Books.

Hampel, P., Rudolph, H., Stachow, R., Petermann, F., & Laβ-Lentzsch, A. (2005). Coping among children and adolescents with chronic illness. Anxiety, Stress & Coping: An International Journal, 18, 145–155. doi:10.1080/10615800500134639.CrossRef

Henry, J. D., von Hippel, C., & Shapiro, L. (2010). Stereotype threat contributes to social difficulties in people with schizophrenia. British Journal of Clinical Psychology, 49, 31–41. doi:10.1348/014466509X421963.PubMedCrossRef

Joachim, G., & Acorn, S. (2000). Living with chronic illness: The interface of stigma and normalization. Canadian Journal of Nursing Research, 32, 37–48.PubMed

Jöreskog, K. G. (2006). Multiple group models for ordinal variables. Available at http://www.ssicentral.com/lisrel/techdocs/Session10.pdf.

Katz, D. A., & McHorney, C. A. (2002). The relationship between insomnia and health-related quality of life in patients with chronic illness. The Journal of Family Practice, 51, 229–235.PubMed

Kessler, R. C., Mickelson, K. D., & Williams, D. R. (1999). The prevalence, distribution, and mental health correlates of perceived discrimination in the United States. Journal of Health and Social Behavior, 40, 208–230. doi:10.2307/2676349.PubMedCrossRef

Kleinman, A. (1988). The illness narratives: Suffering, healing, and the human condition. University of Michigan: Basic Books.

Kline, R. B. (2005). Principles and practice of structural equation modeling. New York, NY: Guilford Press.

Kurzban, R., & Leary, M. R. (2001). Evolutionary origins of stigmatization: The functions of social exclusion. Psychological Bulletin, 127, 187–208. doi:10.1037/0033-2909.127.2.187.PubMedCrossRef

Leventhal, H., Ethan, H., Horowitz, C., Leventhal, E., & Ozakinci, G. (2004). Living with chronic illness: A contextualized, self-regulation approach. In S. Sutton, A. Baum, & M. Johnston (Eds.), The SAGE handbook of health psychology. London: SAGE.

Link, B. G. (1987). Understanding labeling effects in the area of mental disorders: An assessment of the effects of expectations of rejection. American Sociological Review, 52, 96–112. doi:10.2307/2095395.CrossRef

Link, B. G., & Phelan, J. C. (2001). Conceptualizing stigma. Annual Review of Sociology, 27, 363–385. doi:10.1146/annurev.soc.27.1.363.CrossRef

Mendoza-Denton, R., Downey, G., Purdie, V. J., Davis, A., & Pietrzak, J. (2002). Sensitivity to status-based rejection: Implications for African American students’ college experience. Journal of Personality and Social Psychology, 83, 896–918. doi:10.1037/0022-3514.83.4.896.PubMedCrossRef

Meyer, I. H. (1995). Minority stress and mental health in gay men. Journal of Health and Social Behavior, 36, 38–56. doi:10.2307/2137286.PubMedCrossRef

Parker, R., & Aggleton, P. (2003). HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action. Social Science Medicine, 57(1), 13. doi: 10.1016/S0277-9536(02)00304-0.

Pennebaker, J. W. (1982). The psychology of physical symptoms. New York: Springer.CrossRef

Phelan, J. C., Link, B. G., & Dovidio, J. F. (2008). Stigma and prejudice: One animal or two? Social Science and Medicine, 67, 358–367. doi:10.1016/j.socscimed.2008.03.022.PubMedCrossRef

Pinel, E. C. (1999). Stigma consciousness: The psychological legacy of social stereotypes. Journal of Personality and Social Psychology, 76, 114–128. doi:10.1037/0022-3514.76.1.114.PubMedCrossRef

Pinel, E. C. (2002). Stigma consciousness in intergroup contexts: The power of conviction. Journal of Experimental Social Psychology, 38, 178–185. doi:10.1006/jesp.2001.1.1498.CrossRef

Quinn, D. M., & Chaudoir, S. R. (2009). Living with a concealable stigmatized identity: The impact of anticipated stigma, centrality, salience, and cultural stigma on psychological distress and health. Journal of Personality and Social Psychology, 97, 634–651. doi:10.1037/a0015815.PubMedCrossRef

Quinn, D. M., & Earnshaw, V. A. (2011). Understanding concealable stigmatized identities: The role of identity in psychological, physical, and behavioral outcomes. Social Issues and Policy Review, 5, 160–190.CrossRef

Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401. doi:10.1177/014662167700100306.CrossRef

Rao, D., Choi, S. W., Victorson, D., Bode, R., Peterman, A., Heinemann, A., et al. (2009). Measuring stigma across neurological conditions: The development of the stigma scale for chronic illness (SSCI). Quality of Life Research, 18, 585–595. doi:10.1007/s11136-009-9475-1.PubMedCrossRef

Rogge, M. M., Greenwald, M., & Golden, A. (2004). Obesity, stigma, and civilized oppression. Advances in Nursing Science, 27, 301–315.PubMed

Sayles, J. N., Ryan, G. W., Silver, J. S., Sarkisian, C. A., & Cunningham, W. E. (2007). Experiences of social stigma and implications for healthcare among a diverse population of HIV positive adults. Journal of Urban Health, 84, 814–828. doi:10.1007/s11524-007-9220-4.PubMedCrossRef

Sontag, S. (1991). Illness as metaphor and AIDS and its metaphors. London: Penguin.

Spielberger, C., Vagg, P. R., Barker, L., Donham, G. W., & Westberry, L. G. (1980). The factor structure of the state-trait anxiety inventory. In I. G. Sarason & C. Spielberger (Eds.), Stress and anxiety (Vol. 7). Washington: Hemisphere.

Stanton, A. L., Revenson, T. A., & Tennen, H. (2007). Health psychology: Psychological adjustment to chronic disease. Annual Review of Psychology, 58, 565–592. doi:10.1146/annurev.psych.58.110405.085615.PubMedCrossRef

Steward, W. T., Herek, G. M., Ramakrishna, J., Bharat, S., Chandy, S., Wrubel, J., et al. (2008). HIV-related stigma: Adapting a theoretical framework for use in India. Social Science and Medicine, 67, 1225–1235. doi:10.1016/j.socscimed.2008.05.032.PubMedCrossRef

Stutterheim, S. E., Pryor, J. B., Bos, A. E., Hoogendijk, R., Muris, P., & Schaalma, H. P. (2009). HIV-related stigma and psychological distress: The harmful effects of specific stigma manifestations in various social settings. AIDS, 23, 2353–2357. doi:10.1097.qad.0b013e3283320dce.PubMedCrossRef

Taft, T. H., Keefer, L., Artz, C., Bratten, J., & Jones, M. P. (2011). Perceptions of illness stigma in patients with inflammatory bowel disease and irritable bowel syndrome. Quality of Life Research, 20, 1391–1399. doi:10.1007/s11136-011-9883-x.PubMedCrossRef

Taft, T. H., Keefer, L., Leonhard, C., & Nealon-Woods, M. (2009). Impact of perceived stigma on inflammatory bowel disease patient outcomes. Inflammatory Bowel Disease, 15, 1224–1232. doi:10.1002/ibd.20864.CrossRef

Thoits, P. A. (2010). Stress and health: Major findings and policy implications. Journal of Health and Social Behavior, 51(S), S41–S53. doi:10.1177/0022146510383499.

Thorne, S., & Paterson, B. (1998). Shifting images of chronic illness. Journal of Nursing Scholarship, 30, 173–178. doi:10.1111/j.1547-5069.1998.tb01275.x.CrossRef

van Brakel, W. H. (2006). Measuring health-related stigma—a literature review. Psychology, Health, & Medicine, 11, 307–334. doi:10.1080/13548500600595160.CrossRef

van Rie, A., Sengupta, S., Pungrassami, P., Balthip, Q., Choonuan, S., Kasetjaroen, Y., et al. (2008). Measuring stigma associated with tuberculosis and HIV/AIDS in southern Thailand: Exploratory and confirmatory factor analyses of two new scales. Tropical Medicine & International Health, 13, 21–30. doi:10.1111/j.1365-3156.2007.01971.x.CrossRef

West, M. D., Dye, A. N., & McMahon, B. T. (2006). Epilepsy and workplace discrimination: Population characteristics and trends. Epilepsy & Behavior, 9, 101–105. doi:10.1016/j.yebeh.2006.03.011.CrossRef

Wu, S. Y., & Green, A. (2000). Projection of chronic illness prevalence and cost inflation. Santa Monica, CA: RAND Health.

Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52, 30–41. doi:10.1207/s15327752jpa5201_2.CrossRef

Zumbo, B. D., Gadermann, A. M., & Zeisser, C. (2007). Ordinal versions of coefficients alpha and theta for Likert rating scales. Journal of Modern Applied Statistical Methods, 6, 21–29.

Titel: Development and psychometric evaluation of the Chronic Illness Anticipated Stigma Scale
Auteurs: Valerie A. Earnshaw
Diane M. Quinn
Seth C. Kalichman
Crystal L. Park
Publicatiedatum: 01-06-2013
Uitgeverij: Springer US
Gepubliceerd in: Journal of Behavioral Medicine / Uitgave 3/2013
Print ISSN: 0160-7715
Elektronisch ISSN: 1573-3521
DOI: https://doi.org/10.1007/s10865-012-9422-4

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 3/2013

Mother-daughter communication about breast cancer risk: interpersonal and biological stress processes

Diabetes management and glycemic control in youth with type 1 diabetes: test of a predictive model

Using novel methods to examine stress among HIV-positive African American men who have sex with men and women

The patient–physician relationship in patients with chronic low back pain as a predictor of outcomes after rehabilitation

Joint trajectories of victimization and marijuana use and their health consequences among urban African American and Puerto Rican young men

Gender-based violence, alcohol use, and sexual risk among female patrons of drinking venues in Cape Town, South Africa