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Quality of Life Research
Gepubliceerd in: Quality of Life Research 9/2011

01-11-2011

Perceptions of illness stigma in patients with inflammatory bowel disease and irritable bowel syndrome

Auteurs: Tiffany H. Taft, Laurie Keefer, Caroline Artz, Jason Bratten, Michael P. Jones

Gepubliceerd in: Quality of Life Research | Uitgave 9/2011

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Abstract

Purpose

To compare the experiences of perceived stigma (PS) in both patients with irritable bowel syndrome (IBS) and inflammatory bowel disease (IBD) and examine its relationship to patient-reported outcomes in both patient populations.

Methods

IBD and IBS patients were recruited from an outpatient gastroenterology clinic and online via support message boards and classifieds. Participants completed a series of questionnaires to measure the perception of illness stigma, psychological functioning, and clinical and demographic data.

Results

Two hundred and sixty-nine IBS and 227 IBD patients participated. IBS patients were more likely to report high levels of perceived stigma across a wider range of sources, with the largest difference being for health care providers. Twenty-seven percent of IBS patients reported moderate to high levels of perceived stigma, compared with 8% of IBD. While perception of stigma was correlated with poorer patient-reported outcomes in both patient groups, correlations were larger for IBD compared with IBS.

Conclusions

This study demonstrates that both IBD and IBS patients perceive stigma about their illness. As demonstrated by increased depression and anxiety, decreased self-esteem and self-efficacy, and lower quality of life in both patient groups, PS was shown to have a negative impact on clinical outcomes.
vorige artikel Eating disorder-specific health-related quality of life and exercise in college females
volgende artikel Ego defense mechanisms in COPD: impact on health-related quality of life and dyspnoea severity
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Metagegevens
Titel
Perceptions of illness stigma in patients with inflammatory bowel disease and irritable bowel syndrome
Auteurs
Tiffany H. Taft
Laurie Keefer
Caroline Artz
Jason Bratten
Michael P. Jones
Publicatiedatum
01-11-2011
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 9/2011
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-011-9883-x

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