Skip to main content
Top

2016 | OriginalPaper | Hoofdstuk

6 Meetinstrumenten

B Meetinstrumenten voor kwaliteit van leven en competentiebeleving

Auteurs : S. M. van der Pal, M. Ketelaar, M. J. M. Volman, J. Bruil

Gepubliceerd in: Kinderfysiotherapie

Uitgeverij: Bohn Stafleu van Loghum

share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Samenvatting

Informatie over het functioneren van kinderen kan verkregen worden op verschillende niveaus van het ICF-CY-model. In hoofdstuk 6A zijn vooral instrumenten besproken die informatie geven over het functioneren op het niveau van activiteiten en participatie. In dit hoofdstuk gaat het om ‘generieke instrumenten’ die gebruikt kunnen worden om verschillende gezondheidsgerelateerde uitkomsten te meten. De instrumenten binnen dit hoofdstuk geven dus geen beeld van specifieke onderdelen van het functioneren binnen het ICF-CY-model, maar trachten juist een overkoepelend en multidimensionaal beeld te geven van het functioneren en de subjectieve waarde die de persoon hieraan verbindt.
Voetnoten
1
Onder kinderen wordt in dit hoofdstuk verstaan jeugdigen van 0-18 jaar.
 
Literatuur
go back to reference Verrips GH, Vogels AGC, Verloove-Vanhorick SP, et al. Measuring health-related quality of life in a child population. J Appl Ther. 1997;1:357-60. Verrips GH, Vogels AGC, Verloove-Vanhorick SP, et al. Measuring health-related quality of life in a child population. J Appl Ther. 1997;1:357-60.
go back to reference Vogels T, Verrips GH, Verloove-Vanhorick SP, et al. Measuring health-related quality of life in children: the development of the TACQOL parent form. Qual Life Res. 1998;7:457-65.CrossRefPubMed Vogels T, Verrips GH, Verloove-Vanhorick SP, et al. Measuring health-related quality of life in children: the development of the TACQOL parent form. Qual Life Res. 1998;7:457-65.CrossRefPubMed
go back to reference Bruil J. Development of a quality of life instrument for children with a chronic illness [thesis]. Leiden: University of Leiden, 1999. Bruil J. Development of a quality of life instrument for children with a chronic illness [thesis]. Leiden: University of Leiden, 1999.
go back to reference WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995;41:1403-9. WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995;41:1403-9.
go back to reference Davis E, Waters E, Mackinnon A, et al. Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes. Dev Med Child Neurol. 2006;48:311-8.CrossRefPubMed Davis E, Waters E, Mackinnon A, et al. Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes. Dev Med Child Neurol. 2006;48:311-8.CrossRefPubMed
go back to reference Solans M, Pane S, Estrada MD, et al. Health-related quality of life measurement in children and adolescents: a systematic review of generic and diseasespecific instruments. Value Health. 2008;11:742-64.CrossRefPubMed Solans M, Pane S, Estrada MD, et al. Health-related quality of life measurement in children and adolescents: a systematic review of generic and diseasespecific instruments. Value Health. 2008;11:742-64.CrossRefPubMed
go back to reference Rajmil L, Herdman M, Fernandez De Sanmamed MJ, et al. Generic health-related quality of life instruments in children and adolescents: a qualitative analysis of content. J Adolesc Health. 2004;34:37-45.CrossRefPubMed Rajmil L, Herdman M, Fernandez De Sanmamed MJ, et al. Generic health-related quality of life instruments in children and adolescents: a qualitative analysis of content. J Adolesc Health. 2004;34:37-45.CrossRefPubMed
go back to reference Koopman HM, Bruil J, Detmar SB, et al. Het meten van gezondheidsgerelateerde kwaliteit van leven van kinderen met een chronische ziekte. Tijdschr Kindergeneeskd. 2003;71:82-8.CrossRef Koopman HM, Bruil J, Detmar SB, et al. Het meten van gezondheidsgerelateerde kwaliteit van leven van kinderen met een chronische ziekte. Tijdschr Kindergeneeskd. 2003;71:82-8.CrossRef
go back to reference Detmar SB, Bruil J, Ravens-Sieberer U, et al.; European KIDSCREEN Group. The use of focus groups in the development of the KIDSCREEN HRQL questionnaire. Qual Life Res. 2006;15:1345-53.CrossRefPubMed Detmar SB, Bruil J, Ravens-Sieberer U, et al.; European KIDSCREEN Group. The use of focus groups in the development of the KIDSCREEN HRQL questionnaire. Qual Life Res. 2006;15:1345-53.CrossRefPubMed
go back to reference Detmar SB, Muller MJ, Schornagel JH, et al. Healthrelated quality-of-life assessments and patient-physician communication: a randomized controlled trial. JAMA. 2002;288:3027-34.CrossRefPubMed Detmar SB, Muller MJ, Schornagel JH, et al. Healthrelated quality-of-life assessments and patient-physician communication: a randomized controlled trial. JAMA. 2002;288:3027-34.CrossRefPubMed
go back to reference Baars RM, Pal SM van der, Koopman HM, Wit JM. Clinicians’ perspective on quality of life assessment in paediatric clinical practice. Acta Paediatr. 2004;93:1356-62.CrossRefPubMed Baars RM, Pal SM van der, Koopman HM, Wit JM. Clinicians’ perspective on quality of life assessment in paediatric clinical practice. Acta Paediatr. 2004;93:1356-62.CrossRefPubMed
go back to reference Zekovic B, Renwick R. Quality of life for children and adolescents with developmental disabilities: a review of conceptual and methodological issues relevant to public policy. Disabil Soc. 2003;18:19-34.CrossRef Zekovic B, Renwick R. Quality of life for children and adolescents with developmental disabilities: a review of conceptual and methodological issues relevant to public policy. Disabil Soc. 2003;18:19-34.CrossRef
go back to reference Starfield B. Child health status and outcome of care: a commentary on measuring the impact of medical care on children. J Chronic Dis. 1987;40:109s-115s.CrossRef Starfield B. Child health status and outcome of care: a commentary on measuring the impact of medical care on children. J Chronic Dis. 1987;40:109s-115s.CrossRef
go back to reference Mulhern RK, Ochs J, Armstrong FD, et al. Assessment of quality of life among pediatric patients with cancer. Psychol Assess. 1989;1:130-8.CrossRef Mulhern RK, Ochs J, Armstrong FD, et al. Assessment of quality of life among pediatric patients with cancer. Psychol Assess. 1989;1:130-8.CrossRef
go back to reference Pal SM van der, Maguire CM, Bruil J, et al. Healthrelated quality of life of very preterm infants at 1 year of age after two developmental care-based interventions. Child Care Health Dev. 2008;34:619-25.CrossRefPubMed Pal SM van der, Maguire CM, Bruil J, et al. Healthrelated quality of life of very preterm infants at 1 year of age after two developmental care-based interventions. Child Care Health Dev. 2008;34:619-25.CrossRefPubMed
go back to reference Eiser C, Morse R. Can parents rate their child’s healthrelated quality of life? Results of a systematic review. Qual Life Res. 2001;10:347-57.CrossRefPubMed Eiser C, Morse R. Can parents rate their child’s healthrelated quality of life? Results of a systematic review. Qual Life Res. 2001;10:347-57.CrossRefPubMed
go back to reference Theunissen NC, Vogels TG, Koopman HM, et al. The proxy problem: child report versus parent report in health-related quality of life research. Qual Life Res. 1998;7:387-97.CrossRefPubMed Theunissen NC, Vogels TG, Koopman HM, et al. The proxy problem: child report versus parent report in health-related quality of life research. Qual Life Res. 1998;7:387-97.CrossRefPubMed
go back to reference Stone WL, Lemanek KL. Developmental issues in children’s self-reports. In: La Greca AM, ed. Through the eyes of the child: obtaining self-reports from children and adolescents. Boston: Allyn and Bacon, 1990. p. 19-56. Stone WL, Lemanek KL. Developmental issues in children’s self-reports. In: La Greca AM, ed. Through the eyes of the child: obtaining self-reports from children and adolescents. Boston: Allyn and Bacon, 1990. p. 19-56.
go back to reference Landgraf JM, Maunsell E, Speechley KN, et al. Canadian-French, German and UK versions of the Child Health Questionnaire: methodology and preliminary item scaling results. Qual Life Res. 1998;7:433-45.CrossRefPubMed Landgraf JM, Maunsell E, Speechley KN, et al. Canadian-French, German and UK versions of the Child Health Questionnaire: methodology and preliminary item scaling results. Qual Life Res. 1998;7:433-45.CrossRefPubMed
go back to reference Raat H, Bonsel GJ, Essink-Bot ML, et al. Reliability and validity of comprehensive health status measures in children: The Child Health Questionnaire in relation to the Health Utilities Index. J Clin Epidemiol. 2002;55:67-76.CrossRefPubMed Raat H, Bonsel GJ, Essink-Bot ML, et al. Reliability and validity of comprehensive health status measures in children: The Child Health Questionnaire in relation to the Health Utilities Index. J Clin Epidemiol. 2002;55:67-76.CrossRefPubMed
go back to reference Aaronson NK, Muller M, Cohen PD, et al. Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations. J Clin Epidemiol. 1998;51:1055-68.CrossRefPubMed Aaronson NK, Muller M, Cohen PD, et al. Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations. J Clin Epidemiol. 1998;51:1055-68.CrossRefPubMed
go back to reference Raat H, Botterweck AM, Landgraf JM, et al. Reliability and validity of the short form of the child health questionnaire for parents (CHQ-PF28) in large random school based and general population samples. J Epidemiol Community Health. 2005;59:75-82.CrossRefPubMedPubMedCentral Raat H, Botterweck AM, Landgraf JM, et al. Reliability and validity of the short form of the child health questionnaire for parents (CHQ-PF28) in large random school based and general population samples. J Epidemiol Community Health. 2005;59:75-82.CrossRefPubMedPubMedCentral
go back to reference Raat H, Landgraf JM, Bonsel GJ, et al. Reliability and validity of the child health questionnaire-child form (CHQ-CF87) in a Dutch adolescent population. Qual Life Res. 2002;11:575-81.CrossRefPubMed Raat H, Landgraf JM, Bonsel GJ, et al. Reliability and validity of the child health questionnaire-child form (CHQ-CF87) in a Dutch adolescent population. Qual Life Res. 2002;11:575-81.CrossRefPubMed
go back to reference Klassen AF, Landgraf JM, Lee SK, et al. Health related quality of life in 3 and 4 year old children and their parents: preliminary findings about a new questionnaire. Health Qual Life Outcomes. 2003;1:81.CrossRefPubMedPubMedCentral Klassen AF, Landgraf JM, Lee SK, et al. Health related quality of life in 3 and 4 year old children and their parents: preliminary findings about a new questionnaire. Health Qual Life Outcomes. 2003;1:81.CrossRefPubMedPubMedCentral
go back to reference Raat H, Landgraf JM, Oostenbrink R, et al. Reliability and validity of the Infant and Toddler Quality of Life Questionnaire (ITQOL) in a general population and respiratory disease sample. Qual Life Res. 2007;16:445-60.CrossRefPubMed Raat H, Landgraf JM, Oostenbrink R, et al. Reliability and validity of the Infant and Toddler Quality of Life Questionnaire (ITQOL) in a general population and respiratory disease sample. Qual Life Res. 2007;16:445-60.CrossRefPubMed
go back to reference Spuijbroek AT, Oostenbrink R, Landgraf JM, et al. Health-related quality of life in preschool children in five health conditions. Qual Life Res. 2011;20:779-86.CrossRefPubMed Spuijbroek AT, Oostenbrink R, Landgraf JM, et al. Health-related quality of life in preschool children in five health conditions. Qual Life Res. 2011;20:779-86.CrossRefPubMed
go back to reference Landgraf JM, Vogel I, Oostenbrink R, et al. Parentreported health outcomes in infants/toddlers: measurement properties and clinical validity of the ITQOL-SF47. Qual Life Res. 2013;22:635-46.CrossRefPubMed Landgraf JM, Vogel I, Oostenbrink R, et al. Parentreported health outcomes in infants/toddlers: measurement properties and clinical validity of the ITQOL-SF47. Qual Life Res. 2013;22:635-46.CrossRefPubMed
go back to reference Varni JW, Burwinkle TM, Seid M. The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validity. Qual Life Res. 2006;15:203-15.CrossRefPubMed Varni JW, Burwinkle TM, Seid M. The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validity. Qual Life Res. 2006;15:203-15.CrossRefPubMed
go back to reference Bastiaansen D, Koot HM, Bongers IL, et al. Measuring quality of life in children referred for psychiatric problems: psychometric properties of the PedsQL 4.0 generic core scales. Qual Life Res. 2004;13:489-95.CrossRefPubMed Bastiaansen D, Koot HM, Bongers IL, et al. Measuring quality of life in children referred for psychiatric problems: psychometric properties of the PedsQL 4.0 generic core scales. Qual Life Res. 2004;13:489-95.CrossRefPubMed
go back to reference Haverman L, Engelen V, Rossum MA van, et al. Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application. BMC Pediatr. 2011;11:3.CrossRefPubMedPubMedCentral Haverman L, Engelen V, Rossum MA van, et al. Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application. BMC Pediatr. 2011;11:3.CrossRefPubMedPubMedCentral
go back to reference Engelen V, Haverman L, Koopman H, et al. Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice. Patient Educ Couns. 2010;81:235-44.CrossRefPubMed Engelen V, Haverman L, Koopman H, et al. Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice. Patient Educ Couns. 2010;81:235-44.CrossRefPubMed
go back to reference Fekkes M, Bruil J, Vogels T. TAPQOL manual. Leiden: Leiden Center for Child Health and Pediatrics LUMCTNO, 2004. Fekkes M, Bruil J, Vogels T. TAPQOL manual. Leiden: Leiden Center for Child Health and Pediatrics LUMCTNO, 2004.
go back to reference Fekkes M, Theunissen NC, Brugman E, et al. Development and psychometric evaluation of the TAPQOL: a health-related quality of life instrument for 1-5-year-old children. Qual Life Res. 2000;9:961-72.CrossRefPubMed Fekkes M, Theunissen NC, Brugman E, et al. Development and psychometric evaluation of the TAPQOL: a health-related quality of life instrument for 1-5-year-old children. Qual Life Res. 2000;9:961-72.CrossRefPubMed
go back to reference Vogels T, Bruil J, Koopman HM, et al. TACQOL CF 12-15 manual. Leiden: Leiden Center for Child Health and Pediatrics LUMC-TNO, 2004. Vogels T, Bruil J, Koopman HM, et al. TACQOL CF 12-15 manual. Leiden: Leiden Center for Child Health and Pediatrics LUMC-TNO, 2004.
go back to reference Vogels T, Verrips GH, Koopman Hm, et al. TACQOL manual parent form and child form 6-11 years. Leiden: Leiden Center for Child Health and Pediatrics LUMCTNO, 1999. Vogels T, Verrips GH, Koopman Hm, et al. TACQOL manual parent form and child form 6-11 years. Leiden: Leiden Center for Child Health and Pediatrics LUMCTNO, 1999.
go back to reference Ravens-Sieberer U, Erhart M, Rajmil L, et al.; European KIDSCREEN Group. Reliability, construct and criterion validity of the KIDSCREEN-10 score: a short measure for children and adolescents’ well-being and healthrelated quality of life. Qual Life Res. 2010;19:1487-500.CrossRefPubMedPubMedCentral Ravens-Sieberer U, Erhart M, Rajmil L, et al.; European KIDSCREEN Group. Reliability, construct and criterion validity of the KIDSCREEN-10 score: a short measure for children and adolescents’ well-being and healthrelated quality of life. Qual Life Res. 2010;19:1487-500.CrossRefPubMedPubMedCentral
go back to reference Ravens-Sieberer U, Gosch A, Abel T, et al. Quality of life in children and adolescents: a European public health perspective. Soz Praventivmed. 2001;46:294-302.CrossRefPubMed Ravens-Sieberer U, Gosch A, Abel T, et al. Quality of life in children and adolescents: a European public health perspective. Soz Praventivmed. 2001;46:294-302.CrossRefPubMed
go back to reference Ravens-Sieberer U, Gosch A, Rajmil L, et al. KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert Rev Pharmacoecon Outcomes Res. 2005;5:353-64.CrossRefPubMed Ravens-Sieberer U, Gosch A, Rajmil L, et al. KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert Rev Pharmacoecon Outcomes Res. 2005;5:353-64.CrossRefPubMed
go back to reference Baars RM, Atherton CI, Koopman HM, et al. The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes. 2005;3:70.CrossRefPubMedPubMedCentral Baars RM, Atherton CI, Koopman HM, et al. The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes. 2005;3:70.CrossRefPubMedPubMedCentral
go back to reference Stein RE, Jessop DJ. Functional status II(R). A measure of child health status. Med Care. 1990;28:1041-55.CrossRefPubMed Stein RE, Jessop DJ. Functional status II(R). A measure of child health status. Med Care. 1990;28:1041-55.CrossRefPubMed
go back to reference Post MWM, Kuyvenhoven MM, Verheij ThJM, et al. De Nederlandse ‘Functional status II(R)’: een vragenlijst voor het meten van de functionele gezondheidstoestand van kinderen. Ned Tijdschr Geneeskd. 1998;142:2675-9.PubMed Post MWM, Kuyvenhoven MM, Verheij ThJM, et al. De Nederlandse ‘Functional status II(R)’: een vragenlijst voor het meten van de functionele gezondheidstoestand van kinderen. Ned Tijdschr Geneeskd. 1998;142:2675-9.PubMed
go back to reference Kolsteren MM, Koopman HM, Schalekamp G, Mearin ML. Health-related quality of life in children with celiac disease. J Pediatr. 2001;138:593-5.CrossRefPubMed Kolsteren MM, Koopman HM, Schalekamp G, Mearin ML. Health-related quality of life in children with celiac disease. J Pediatr. 2001;138:593-5.CrossRefPubMed
go back to reference Harter S. Effectance motivation reconsidered: Toward a developmental model. Hum Dev. 1978;21:34-64.CrossRef Harter S. Effectance motivation reconsidered: Toward a developmental model. Hum Dev. 1978;21:34-64.CrossRef
go back to reference Harter S. The perceived competence scale for children. Child Dev. 1982;53:87-97.CrossRef Harter S. The perceived competence scale for children. Child Dev. 1982;53:87-97.CrossRef
go back to reference Verhagen WYJM, Vermeer A. Samenhang tussen zelfwaargenomen competentie en gedrag: een literatuur overzicht. Bewegen Hulpverlening. 1997;14:2-34. Verhagen WYJM, Vermeer A. Samenhang tussen zelfwaargenomen competentie en gedrag: een literatuur overzicht. Bewegen Hulpverlening. 1997;14:2-34.
go back to reference Veerman JW. De Competentiebelevingsschaal voor Kinderen: Theoretische uitgangspunten en enkele onderzoeksgegevens. Tijdschr Orthopedagogiek. 1989;28:286-301. Veerman JW. De Competentiebelevingsschaal voor Kinderen: Theoretische uitgangspunten en enkele onderzoeksgegevens. Tijdschr Orthopedagogiek. 1989;28:286-301.
go back to reference Veerman JW, Straathof MAE, Treffers PhDA, et al. De Competentiebelevingsschaal voor Kinderen, CBSK. Handleiding. Lisse: Swets & Zeitlinger, 1997. Veerman JW, Straathof MAE, Treffers PhDA, et al. De Competentiebelevingsschaal voor Kinderen, CBSK. Handleiding. Lisse: Swets & Zeitlinger, 1997.
go back to reference Evers A, Vliet-Mulder JC van, Groot CJ. Documentatie van tests en testresearch in Nederland. Assen: Van Gorcum, 2000. Evers A, Vliet-Mulder JC van, Groot CJ. Documentatie van tests en testresearch in Nederland. Assen: Van Gorcum, 2000.
go back to reference Veerman JW, Brink LT ten, Straathof MA, Treffers PD. Measuring children’s self-concept with a Dutch version of the ‘self-perception profile for children’: factorial validity and invariance across a nonclinic and a clinic group. J Pers Assess. 1996;67:142-54.CrossRefPubMed Veerman JW, Brink LT ten, Straathof MA, Treffers PD. Measuring children’s self-concept with a Dutch version of the ‘self-perception profile for children’: factorial validity and invariance across a nonclinic and a clinic group. J Pers Assess. 1996;67:142-54.CrossRefPubMed
go back to reference Calame E, Reinders H, Smits B, et al. Motorische Competentiebeleving vragenlijst voor Kinderen: ‘Hoe ik vind dat ik het doe’. Den Haag: Sophia Revalidatiecentrum, 2009. Calame E, Reinders H, Smits B, et al. Motorische Competentiebeleving vragenlijst voor Kinderen: ‘Hoe ik vind dat ik het doe’. Den Haag: Sophia Revalidatiecentrum, 2009.
go back to reference Volman MJM, Calame E, Gijzen R, et al. ‘How am i doing’, a new pictorial scale for perceived motor competence for children aged 6 to 12 years. VIII International Conference on DCD, Baltimore, 2009. Volman MJM, Calame E, Gijzen R, et al. ‘How am i doing’, a new pictorial scale for perceived motor competence for children aged 6 to 12 years. VIII International Conference on DCD, Baltimore, 2009.
go back to reference Harter S. Manual for the self perception profile for children: Revision of the Perceived Competence Scale for Children. Denver: University of Denver, 1985. Harter S. Manual for the self perception profile for children: Revision of the Perceived Competence Scale for Children. Denver: University of Denver, 1985.
go back to reference Harter S. The determinants and mediational role of global self-worth in children. In: Eisenberg N, ed. Contemporary issues in developmental psychology. New York: Wiley, 1987. p. 219-42. Harter S. The determinants and mediational role of global self-worth in children. In: Eisenberg N, ed. Contemporary issues in developmental psychology. New York: Wiley, 1987. p. 219-42.
Metagegevens
Titel
6 Meetinstrumenten
Auteurs
S. M. van der Pal
M. Ketelaar
M. J. M. Volman
J. Bruil
Copyright
2016
Uitgeverij
Bohn Stafleu van Loghum
DOI
https://doi.org/10.1007/978-90-368-1592-5_13