Skip to main content
Top
Gepubliceerd in:

01-08-2015

Validity of the 12-item World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) in individuals with Huntington disease (HD)

Auteurs: Noelle E. Carlozzi, Anna L. Kratz, Nancy R. Downing, Siera Goodnight, Jennifer A. Miner, Nicholas Migliore, Jane S. Paulsen

Gepubliceerd in: Quality of Life Research | Uitgave 8/2015

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

The reliability and construct validity of the 12-item World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) were examined in individuals with Huntington disease (HD).

Methods

We examined factor structure (confirmatory factor analysis), internal consistency reliability (Cronbach’s alpha), floor and ceiling effects, convergent validity (Pearson correlations), and known-groups validity (multivariate analysis).

Results

Results of a confirmatory factor analysis replicated the six-factor latent model that reflects the six separate scales within the WHODAS 2.0 (understanding and communicating; getting around; self-care; getting along with others; life activities; participation). Cronbach’s alpha for the scale was 0.94, suggesting good internal consistency reliability. The WHODAS demonstrated a ceiling effect for 19.5 % of participants; there were no floor effects. There was evidence for convergent validity; the WHODAS demonstrated moderate significant correlations with other general measures of health-related quality of life (HRQOL; i.e., RAND-12, EQ5D). Multivariate analyses indicated that late-stage HD participants indicated poorer HRQOL than both early-stage HD and prodromal HD participants for all HRQOL measures.

Conclusions

Findings provide support for both the reliability and validity of the WHODAS 2.0 in individuals with HD.
Literatuur
1.
go back to reference Ustun, T. B., Chatterji, S., Kostanjsek, N., Rehm, J., Kennedy, C., Epping-Jordan, J., et al. (2010). Developing the World Health Organization Disability Assessment Schedule 2.0. Bulletin of the World Health Organization, 88(11), 815–823.PubMedCentralPubMedCrossRef Ustun, T. B., Chatterji, S., Kostanjsek, N., Rehm, J., Kennedy, C., Epping-Jordan, J., et al. (2010). Developing the World Health Organization Disability Assessment Schedule 2.0. Bulletin of the World Health Organization, 88(11), 815–823.PubMedCentralPubMedCrossRef
2.
go back to reference Rehm, J., Ustun, B., Saxena, S., Nelson, C. B., Chatterji, S., Ivis, F., & Adlaf, E. (2006). On the development and psychometric testing of the WHO screening instrument to assess disablement in the general population. International Journal of Methods in Psychiatric Research, 8(2), 110–122.CrossRef Rehm, J., Ustun, B., Saxena, S., Nelson, C. B., Chatterji, S., Ivis, F., & Adlaf, E. (2006). On the development and psychometric testing of the WHO screening instrument to assess disablement in the general population. International Journal of Methods in Psychiatric Research, 8(2), 110–122.CrossRef
3.
go back to reference Scorza, P., Stevenson, A., Canino, G., Mushashi, C., Kanyanganzi, F., Munyanah, M., & Betancourt, T. (2013). Validation of the “World Health Organization Disability Assessment Schedule for children, WHODAS-Child” in Rwanda. PLoS ONE, 8(3), e57725.PubMedCentralPubMedCrossRef Scorza, P., Stevenson, A., Canino, G., Mushashi, C., Kanyanganzi, F., Munyanah, M., & Betancourt, T. (2013). Validation of the “World Health Organization Disability Assessment Schedule for children, WHODAS-Child” in Rwanda. PLoS ONE, 8(3), e57725.PubMedCentralPubMedCrossRef
4.
go back to reference Posl, M., Cieza, A., & Stucki, G. (2007). Psychometric properties of the WHODASII in rehabilitation patients. Quality of Life Research, 16(9), 1521–1531.PubMedCrossRef Posl, M., Cieza, A., & Stucki, G. (2007). Psychometric properties of the WHODASII in rehabilitation patients. Quality of Life Research, 16(9), 1521–1531.PubMedCrossRef
5.
go back to reference Garin, O., Ayuso-Mateos, J. L., Almansa, J., Nieto, M., Chatterji, S., Vilagut, G., et al. (2010). Validation of the “World Health Organization Disability Assessment Schedule, WHODAS-2” in patients with chronic diseases. Health Qual Life Outcomes, 8, 51.PubMedCentralPubMedCrossRef Garin, O., Ayuso-Mateos, J. L., Almansa, J., Nieto, M., Chatterji, S., Vilagut, G., et al. (2010). Validation of the “World Health Organization Disability Assessment Schedule, WHODAS-2” in patients with chronic diseases. Health Qual Life Outcomes, 8, 51.PubMedCentralPubMedCrossRef
6.
go back to reference Federici, S., Meloni, F., Mancini, A., Lauriola, M., & Olivetti Belardinelli, M. (2009). World Health Organisation Disability Assessment Schedule II: Contribution to the Italian validation. Disability and Rehabilitation, 31(7), 553–564.PubMedCrossRef Federici, S., Meloni, F., Mancini, A., Lauriola, M., & Olivetti Belardinelli, M. (2009). World Health Organisation Disability Assessment Schedule II: Contribution to the Italian validation. Disability and Rehabilitation, 31(7), 553–564.PubMedCrossRef
7.
go back to reference Kulnik, S. T., & Nikoletou, D. (2014). WHODAS 2.0 in community rehabilitation: A qualitative investigation into the validity of a generic patient-reported measure of disability. Disability and Rehabilitation, 36(2), 146–154.PubMedCrossRef Kulnik, S. T., & Nikoletou, D. (2014). WHODAS 2.0 in community rehabilitation: A qualitative investigation into the validity of a generic patient-reported measure of disability. Disability and Rehabilitation, 36(2), 146–154.PubMedCrossRef
8.
go back to reference McArdle, R., Chisolm, T. H., Abrams, H. B., Wilson, R. H., & Doyle, P. J. (2005). The WHO-DAS II: Measuring outcomes of hearing aid intervention for adults. Trends Amplif, 9(3), 127–143.PubMedCentralPubMedCrossRef McArdle, R., Chisolm, T. H., Abrams, H. B., Wilson, R. H., & Doyle, P. J. (2005). The WHO-DAS II: Measuring outcomes of hearing aid intervention for adults. Trends Amplif, 9(3), 127–143.PubMedCentralPubMedCrossRef
9.
go back to reference Chisolm, T. H., Abrams, H. B., McArdle, R., Wilson, R. H., & Doyle, P. J. (2005). The WHO-DAS II: Psychometric properties in the measurement of functional health status in adults with acquired hearing loss. Trends in Amplification, 9(3), 111–126.PubMedCentralPubMedCrossRef Chisolm, T. H., Abrams, H. B., McArdle, R., Wilson, R. H., & Doyle, P. J. (2005). The WHO-DAS II: Psychometric properties in the measurement of functional health status in adults with acquired hearing loss. Trends in Amplification, 9(3), 111–126.PubMedCentralPubMedCrossRef
10.
go back to reference Baron, M., Schieir, O., Hudson, M., Steele, R., Kolahi, S., Berkson, L., et al. (2008). The clinimetric properties of the World Health Organization Disability Assessment Schedule II in early inflammatory arthritis. Arthritis and Rheumatism, 59(3), 382–390.PubMedCrossRef Baron, M., Schieir, O., Hudson, M., Steele, R., Kolahi, S., Berkson, L., et al. (2008). The clinimetric properties of the World Health Organization Disability Assessment Schedule II in early inflammatory arthritis. Arthritis and Rheumatism, 59(3), 382–390.PubMedCrossRef
11.
go back to reference Meesters, J. J., Verhoef, J., Liem, I. S., Putter, H., & Vliet Vlieland, T. P. (2010). Validity and responsiveness of the World Health Organization Disability Assessment Schedule II to assess disability in rheumatoid arthritis patients. Rheumatology (Oxford), 49(2), 326–333.CrossRef Meesters, J. J., Verhoef, J., Liem, I. S., Putter, H., & Vliet Vlieland, T. P. (2010). Validity and responsiveness of the World Health Organization Disability Assessment Schedule II to assess disability in rheumatoid arthritis patients. Rheumatology (Oxford), 49(2), 326–333.CrossRef
12.
go back to reference Kutlay, S., Kucukdeveci, A. A., Elhan, A. H., Oztuna, D., Koc, N., & Tennant, A. (2011). Validation of the World Health Organization disability assessment schedule II (WHODAS-II) in patients with osteoarthritis. Rheumatology International, 31(3), 339–346.PubMedCrossRef Kutlay, S., Kucukdeveci, A. A., Elhan, A. H., Oztuna, D., Koc, N., & Tennant, A. (2011). Validation of the World Health Organization disability assessment schedule II (WHODAS-II) in patients with osteoarthritis. Rheumatology International, 31(3), 339–346.PubMedCrossRef
13.
go back to reference Hudson, M., Steele, R., Taillefer, S., & Baron, M. (2008). Quality of life in systemic sclerosis: Psychometric properties of the World Health Organization Disability Assessment Schedule II. Arthritis and Rheumatism, 59(2), 270–278.PubMedCrossRef Hudson, M., Steele, R., Taillefer, S., & Baron, M. (2008). Quality of life in systemic sclerosis: Psychometric properties of the World Health Organization Disability Assessment Schedule II. Arthritis and Rheumatism, 59(2), 270–278.PubMedCrossRef
14.
go back to reference Noonan, V. K., Kopec, J. A., Noreau, L., Singer, J., Masse, L. C., & Dvorak, M. F. (2010). Comparing the reliability of five participation instruments in persons with spinal conditions. Journal of Rehabilitation Medicine, 42(8), 735–743.PubMedCrossRef Noonan, V. K., Kopec, J. A., Noreau, L., Singer, J., Masse, L. C., & Dvorak, M. F. (2010). Comparing the reliability of five participation instruments in persons with spinal conditions. Journal of Rehabilitation Medicine, 42(8), 735–743.PubMedCrossRef
15.
go back to reference Wolf, A. C., Tate, R. L., Lannin, N. A., Middleton, J., Lane-Brown, A., & Cameron, I. D. (2012). The World Health Organization Disability Assessment Scale, WHODAS II: Reliability and validity in the measurement of activity and participation in a spinal cord injury population. Journal of Rehabilitation Medicine, 44(9), 747–755.PubMedCrossRef Wolf, A. C., Tate, R. L., Lannin, N. A., Middleton, J., Lane-Brown, A., & Cameron, I. D. (2012). The World Health Organization Disability Assessment Scale, WHODAS II: Reliability and validity in the measurement of activity and participation in a spinal cord injury population. Journal of Rehabilitation Medicine, 44(9), 747–755.PubMedCrossRef
16.
go back to reference Noonan, V. K., Kopec, J. A., Noreau, L., Singer, J., Masse, L. C., Zhang, H., & Dvorak, M. F. (2010). Comparing the validity of five participation instruments in persons with spinal conditions. Journal of Rehabilitation Medicine, 42(8), 724–734.PubMedCrossRef Noonan, V. K., Kopec, J. A., Noreau, L., Singer, J., Masse, L. C., Zhang, H., & Dvorak, M. F. (2010). Comparing the validity of five participation instruments in persons with spinal conditions. Journal of Rehabilitation Medicine, 42(8), 724–734.PubMedCrossRef
17.
go back to reference Schlote, A., Richter, M., Wunderlich, M. T., Poppendick, U., Moller, C., Schwelm, K., & Wallesch, C. W. (2009). WHODAS II with people after stroke and their relatives. Disability and Rehabilitation, 31(11), 855–864.PubMedCrossRef Schlote, A., Richter, M., Wunderlich, M. T., Poppendick, U., Moller, C., Schwelm, K., & Wallesch, C. W. (2009). WHODAS II with people after stroke and their relatives. Disability and Rehabilitation, 31(11), 855–864.PubMedCrossRef
18.
go back to reference Kucukdeveci, A. A., Kutlay, S., Yildizlar, D., Oztuna, D., Elhan, A. H., & Tennant, A. (2013). The reliability and validity of the World Health Organization Disability Assessment Schedule (WHODAS-II) in stroke. Disability and Rehabilitation, 35(3), 214–220.PubMedCrossRef Kucukdeveci, A. A., Kutlay, S., Yildizlar, D., Oztuna, D., Elhan, A. H., & Tennant, A. (2013). The reliability and validity of the World Health Organization Disability Assessment Schedule (WHODAS-II) in stroke. Disability and Rehabilitation, 35(3), 214–220.PubMedCrossRef
19.
go back to reference Zhao, H. P., Liu, Y., Li, H. L., Ma, L., Zhang, Y. J., & Wang, J. (2013). Activity limitation and participation restrictions of breast cancer patients receiving chemotherapy: Psychometric properties and validation of the Chinese version of the WHODAS 2.0. Quality of Life Research, 22(4), 897–906.PubMedCrossRef Zhao, H. P., Liu, Y., Li, H. L., Ma, L., Zhang, Y. J., & Wang, J. (2013). Activity limitation and participation restrictions of breast cancer patients receiving chemotherapy: Psychometric properties and validation of the Chinese version of the WHODAS 2.0. Quality of Life Research, 22(4), 897–906.PubMedCrossRef
20.
go back to reference Downing, N. R., Kim, J. I., Williams, J. K., Long, J. D., Mills, J. A., & Paulsen, J. S. (2014). WHODAS 2.0 in prodromal Huntington disease: Measures of functioning in neuropsychiatric disease. European Journal of Human Genetics, 22, 958–963. Downing, N. R., Kim, J. I., Williams, J. K., Long, J. D., Mills, J. A., & Paulsen, J. S. (2014). WHODAS 2.0 in prodromal Huntington disease: Measures of functioning in neuropsychiatric disease. European Journal of Human Genetics, 22, 958–963.
21.
go back to reference Guilera, G., Gomez-Benito, J., Pino, O., Rojo, J. E., Cuesta, M. J., Martinez-Aran, A., et al. (2012). Utility of the World Health Organization Disability Assessment Schedule II in schizophrenia. Schizophrenia Research, 138(2–3), 240–247.PubMedCrossRef Guilera, G., Gomez-Benito, J., Pino, O., Rojo, J. E., Cuesta, M. J., Martinez-Aran, A., et al. (2012). Utility of the World Health Organization Disability Assessment Schedule II in schizophrenia. Schizophrenia Research, 138(2–3), 240–247.PubMedCrossRef
22.
go back to reference Schippers, G. M., Broekman, T. G., Buchholz, A., Koeter, M. W., & van den Brink, W. (2010). Measurements in the Addictions for Triage and Evaluation (MATE): An instrument based on the World Health Organization family of international classifications. Addiction, 105(5), 862–871.PubMedCrossRef Schippers, G. M., Broekman, T. G., Buchholz, A., Koeter, M. W., & van den Brink, W. (2010). Measurements in the Addictions for Triage and Evaluation (MATE): An instrument based on the World Health Organization family of international classifications. Addiction, 105(5), 862–871.PubMedCrossRef
23.
go back to reference Kim, J. I., Long, J. D., Mills, J. A., Downing, N., Williams, J. K., Paulsen, J. S., the Predict-HD Investigators, & Group, t. C. o. t. H. S. (in press). Performance of the 12-item WHODAS 2.0 in prodromal Huntingon disease. European Journal of Human Genetics. Kim, J. I., Long, J. D., Mills, J. A., Downing, N., Williams, J. K., Paulsen, J. S., the Predict-HD Investigators, & Group, t. C. o. t. H. S. (in press). Performance of the 12-item WHODAS 2.0 in prodromal Huntingon disease. European Journal of Human Genetics.
24.
go back to reference Sousa, R. M., Dewey, M. E., Acosta, D., Jotheeswaran, A. T., Castro-Costa, E., Ferri, C. P., et al. (2010). Measuring disability across cultures–the psychometric properties of the WHODAS II in older people from seven low- and middle-income countries. The 10/66 Dementia Research Group population-based survey. International Journal of Methods in Psychiatric Research, 19(1), 1–17.PubMedCentralPubMed Sousa, R. M., Dewey, M. E., Acosta, D., Jotheeswaran, A. T., Castro-Costa, E., Ferri, C. P., et al. (2010). Measuring disability across cultures–the psychometric properties of the WHODAS II in older people from seven low- and middle-income countries. The 10/66 Dementia Research Group population-based survey. International Journal of Methods in Psychiatric Research, 19(1), 1–17.PubMedCentralPubMed
25.
go back to reference Andrews, G., Kemp, A., Sunderland, M., Von Korff, M., & Ustun, T. B. (2009). Normative data for the 12 item WHO Disability Assessment Schedule 2.0. PLoS ONE, 4(12), e8343.PubMedCentralPubMedCrossRef Andrews, G., Kemp, A., Sunderland, M., Von Korff, M., & Ustun, T. B. (2009). Normative data for the 12 item WHO Disability Assessment Schedule 2.0. PLoS ONE, 4(12), e8343.PubMedCentralPubMedCrossRef
26.
go back to reference Pringsheim, T., Wiltshire, K., Day, L., Dykeman, J., Steeves, T., & Jette, N. (2012). The incidence and prevalence of Huntington’s disease: A systematic review and meta-analysis. Movement Disorders, 27(9), 1083–1091.PubMedCrossRef Pringsheim, T., Wiltshire, K., Day, L., Dykeman, J., Steeves, T., & Jette, N. (2012). The incidence and prevalence of Huntington’s disease: A systematic review and meta-analysis. Movement Disorders, 27(9), 1083–1091.PubMedCrossRef
27.
go back to reference Ho, L. W., Carmichael, J., Swartz, J., Wyttenbach, A., Rankin, J., & Rubinsztein, D. C. (2001). The molecular biology of Huntington’s disease. Psychological Medicine, 31(1), 3–14.PubMedCrossRef Ho, L. W., Carmichael, J., Swartz, J., Wyttenbach, A., Rankin, J., & Rubinsztein, D. C. (2001). The molecular biology of Huntington’s disease. Psychological Medicine, 31(1), 3–14.PubMedCrossRef
28.
go back to reference Paulsen, J. S., Hayden, M., Stout, J. C., Langbehn, D. R., Aylward, E., Ross, C. A., et al. (2006). Preparing for preventive clinical trials: The predict-HD study. Archives of Neurology, 63(6), 883–890.PubMedCrossRef Paulsen, J. S., Hayden, M., Stout, J. C., Langbehn, D. R., Aylward, E., Ross, C. A., et al. (2006). Preparing for preventive clinical trials: The predict-HD study. Archives of Neurology, 63(6), 883–890.PubMedCrossRef
29.
go back to reference Paulsen, J. S., Langbehn, D. R., Stout, J. C., Aylward, E., Ross, C. A., Nance, M., et al. (2008). Detection of Huntington’s disease decades before diagnosis: The Predict-HD study. Journal of Neurology, Neurosurgery and Psychiatry, 79(8), 874–880.PubMedCentralPubMedCrossRef Paulsen, J. S., Langbehn, D. R., Stout, J. C., Aylward, E., Ross, C. A., Nance, M., et al. (2008). Detection of Huntington’s disease decades before diagnosis: The Predict-HD study. Journal of Neurology, Neurosurgery and Psychiatry, 79(8), 874–880.PubMedCentralPubMedCrossRef
30.
go back to reference Shoulson, I., & Fahn, S. (1979). Huntington Disease—Clinical Care and Evaluation. Neurology, 29(1), 1–3.PubMedCrossRef Shoulson, I., & Fahn, S. (1979). Huntington Disease—Clinical Care and Evaluation. Neurology, 29(1), 1–3.PubMedCrossRef
31.
go back to reference Paulsen, J. S., Hayden, M., Stout, J. C., Langbehn, D. R., Aylward, E., Ross, C. A., et al. (2006). Preparing for preventive clinical trials—The Predict-HD study. Archives of Neurology, 63(6), 883–890.PubMedCrossRef Paulsen, J. S., Hayden, M., Stout, J. C., Langbehn, D. R., Aylward, E., Ross, C. A., et al. (2006). Preparing for preventive clinical trials—The Predict-HD study. Archives of Neurology, 63(6), 883–890.PubMedCrossRef
32.
go back to reference Hays, R. D., Sherbourn, C. D., & Mazel, R. (1995). User’s manual for the Medical Outcomes Study (MOS) core measures of health-related quality of life. Santa Monica, CA: RAND corporation. Hays, R. D., Sherbourn, C. D., & Mazel, R. (1995). User’s manual for the Medical Outcomes Study (MOS) core measures of health-related quality of life. Santa Monica, CA: RAND corporation.
33.
go back to reference Feeny, D., Farris, K., Cote, I., Johnson, J. A., Tsuyuki, R. T., & Eng, K. (2005). A cohort study found the RAND-12 and Health Utilities Index Mark 3 demonstrated construct validity in high-risk primary care patients. Journal of Clinical Epidemiology, 58(2), 138–141.PubMedCrossRef Feeny, D., Farris, K., Cote, I., Johnson, J. A., Tsuyuki, R. T., & Eng, K. (2005). A cohort study found the RAND-12 and Health Utilities Index Mark 3 demonstrated construct validity in high-risk primary care patients. Journal of Clinical Epidemiology, 58(2), 138–141.PubMedCrossRef
34.
go back to reference Johnson, J. A., & Maddigan, S. L. (2004). Performance of the RAND-12 and SF-12 summary scores in type 2 diabetes. Quality of Life Research, 13(2), 449–456.PubMedCrossRef Johnson, J. A., & Maddigan, S. L. (2004). Performance of the RAND-12 and SF-12 summary scores in type 2 diabetes. Quality of Life Research, 13(2), 449–456.PubMedCrossRef
35.
go back to reference Maddigan, S. L., Feeny, D. H., Johnson, J. A., & Investigators, D. (2004). Construct validity of the RAND-12 and Health Utilities Index Mark 2 and 3 in type 2 diabetes. Quality of Life Research, 13(2), 435–448.PubMedCrossRef Maddigan, S. L., Feeny, D. H., Johnson, J. A., & Investigators, D. (2004). Construct validity of the RAND-12 and Health Utilities Index Mark 2 and 3 in type 2 diabetes. Quality of Life Research, 13(2), 435–448.PubMedCrossRef
36.
go back to reference Selim, A. J., Rogers, W., Fleishman, J. A., Qian, S. X., Fincke, B. G., Rothendler, J. A., & Kazis, L. E. (2009). Updated U.S. population standard for the Veterans RAND 12-item Health Survey (VR-12). Quality of Life Research, 18(1), 43–52.PubMedCrossRef Selim, A. J., Rogers, W., Fleishman, J. A., Qian, S. X., Fincke, B. G., Rothendler, J. A., & Kazis, L. E. (2009). Updated U.S. population standard for the Veterans RAND 12-item Health Survey (VR-12). Quality of Life Research, 18(1), 43–52.PubMedCrossRef
37.
go back to reference Rabin, R., & de Charro, F. (2001). EQ-5D: A measure of health status from the EuroQol Group. Annals of Medicine, 33(5), 337–343.PubMedCrossRef Rabin, R., & de Charro, F. (2001). EQ-5D: A measure of health status from the EuroQol Group. Annals of Medicine, 33(5), 337–343.PubMedCrossRef
38.
go back to reference Brazier, J. E., Walters, S. J., Nicholl, J. P., & Kohler, B. (1996). Using the SF-36 and Euroqol on an elderly population. Quality of Life Research, 5(2), 195–204.PubMedCrossRef Brazier, J. E., Walters, S. J., Nicholl, J. P., & Kohler, B. (1996). Using the SF-36 and Euroqol on an elderly population. Quality of Life Research, 5(2), 195–204.PubMedCrossRef
39.
go back to reference Luo, N., Johnson, J. A., Shaw, J. W., Feeny, D., & Coons, S. J. (2005). Self-reported health status of the general adult U.S. population as assessed by the EQ-5D and Health Utilities Index. Medical Care, 43(11), 1078–1086.PubMedCrossRef Luo, N., Johnson, J. A., Shaw, J. W., Feeny, D., & Coons, S. J. (2005). Self-reported health status of the general adult U.S. population as assessed by the EQ-5D and Health Utilities Index. Medical Care, 43(11), 1078–1086.PubMedCrossRef
40.
go back to reference Fryback, D. G., Dunham, N. C., Palta, M., Hanmer, J., Buechner, J., Cherepanov, D., et al. (2007). US norms for six generic health-related quality-of-life indexes from the National Health Measurement study. Medical Care, 45(12), 1162–1170.PubMedCentralPubMedCrossRef Fryback, D. G., Dunham, N. C., Palta, M., Hanmer, J., Buechner, J., Cherepanov, D., et al. (2007). US norms for six generic health-related quality-of-life indexes from the National Health Measurement study. Medical Care, 45(12), 1162–1170.PubMedCentralPubMedCrossRef
41.
go back to reference Johnson, J. A., & Coons, S. J. (1998). Comparison of the EQ-5D and SF-12 in an adult US sample. Quality of Life Research, 7(2), 155–166.PubMedCrossRef Johnson, J. A., & Coons, S. J. (1998). Comparison of the EQ-5D and SF-12 in an adult US sample. Quality of Life Research, 7(2), 155–166.PubMedCrossRef
42.
go back to reference Dyer, M. T., Goldsmith, K. A., Sharples, L. S., & Buxton, M. J. (2010). A review of health utilities using the EQ-5D in studies of cardiovascular disease. Health Qual Life Outcomes, 8, 13.PubMedCentralPubMedCrossRef Dyer, M. T., Goldsmith, K. A., Sharples, L. S., & Buxton, M. J. (2010). A review of health utilities using the EQ-5D in studies of cardiovascular disease. Health Qual Life Outcomes, 8, 13.PubMedCentralPubMedCrossRef
43.
go back to reference Calvert, M. J., Freemantle, N., & Cleland, J. G. (2005). The impact of chronic heart failure on health-related quality of life data acquired in the baseline phase of the CARE-HF study. European Journal of Heart Failure, 7(2), 243–251.PubMedCrossRef Calvert, M. J., Freemantle, N., & Cleland, J. G. (2005). The impact of chronic heart failure on health-related quality of life data acquired in the baseline phase of the CARE-HF study. European Journal of Heart Failure, 7(2), 243–251.PubMedCrossRef
44.
go back to reference Dorman, P., Slattery, J., Farrell, B., Dennis, M., & Sandercock, P. (1998). Qualitative comparison of the reliability of health status assessments with the EuroQol and SF-36 questionnaires after stroke. United Kingdom Collaborators in the International Stroke Trial. Stroke, 29(1), 63–68.PubMedCrossRef Dorman, P., Slattery, J., Farrell, B., Dennis, M., & Sandercock, P. (1998). Qualitative comparison of the reliability of health status assessments with the EuroQol and SF-36 questionnaires after stroke. United Kingdom Collaborators in the International Stroke Trial. Stroke, 29(1), 63–68.PubMedCrossRef
45.
go back to reference Hurst, N. P., Kind, P., Ruta, D., Hunter, M., & Stubbings, A. (1997). Measuring health-related quality of life in rheumatoid arthritis: Validity, responsiveness and reliability of EuroQol (EQ-5D). British Journal of Rheumatology, 36(5), 551–559.PubMedCrossRef Hurst, N. P., Kind, P., Ruta, D., Hunter, M., & Stubbings, A. (1997). Measuring health-related quality of life in rheumatoid arthritis: Validity, responsiveness and reliability of EuroQol (EQ-5D). British Journal of Rheumatology, 36(5), 551–559.PubMedCrossRef
46.
go back to reference Carlozzi, N. E., Miciura, A., Migliore, N., & Dayalu, P. (2014). Understanding the outcomes measures used in Huntington disease pharmacological trials: A systematic review. Journal of Huntington’s Disease, 3(3), 233–252.PubMedCentralPubMed Carlozzi, N. E., Miciura, A., Migliore, N., & Dayalu, P. (2014). Understanding the outcomes measures used in Huntington disease pharmacological trials: A systematic review. Journal of Huntington’s Disease, 3(3), 233–252.PubMedCentralPubMed
47.
go back to reference Kline, R. B. (2005). Principles and practice of structural equation modeling (2nd ed.). New York: Guilford Press. Kline, R. B. (2005). Principles and practice of structural equation modeling (2nd ed.). New York: Guilford Press.
48.
go back to reference Bentler, P. M. (1990). Comparative fit indexes in structural models. Psychological Bulletin, 107(2), 238–246.PubMedCrossRef Bentler, P. M. (1990). Comparative fit indexes in structural models. Psychological Bulletin, 107(2), 238–246.PubMedCrossRef
49.
go back to reference Hu, L. T., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling-A Multidisciplinary Journal, 6(1), 1–55.CrossRef Hu, L. T., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling-A Multidisciplinary Journal, 6(1), 1–55.CrossRef
50.
go back to reference Hatcher, L. (1994). A step-by-step approach to using SAS for factor analysis and structural equation modeling. Cary, NC: SAS Institute Inc. Hatcher, L. (1994). A step-by-step approach to using SAS for factor analysis and structural equation modeling. Cary, NC: SAS Institute Inc.
51.
go back to reference Campbell, D. T., & Fiske, D. W. (1959). Convergent and discriminant validation by the multitrait-multimethod matrix. Psychological Bulletin, 56(2), 81–105.PubMedCrossRef Campbell, D. T., & Fiske, D. W. (1959). Convergent and discriminant validation by the multitrait-multimethod matrix. Psychological Bulletin, 56(2), 81–105.PubMedCrossRef
52.
go back to reference Buist-Bouwman, M. A., Ormel, J., De Graaf, R., Vilagut, G., Alonso, J., Van Sonderen, E., & Vollebergh, W. A. (2008). Psychometric properties of the World Health Organization Disability Assessment Schedule used in the European Study of the Epidemiology of Mental Disorders. International Journal of Methods in Psychiatric Research, 17(4), 185–197.PubMedCrossRef Buist-Bouwman, M. A., Ormel, J., De Graaf, R., Vilagut, G., Alonso, J., Van Sonderen, E., & Vollebergh, W. A. (2008). Psychometric properties of the World Health Organization Disability Assessment Schedule used in the European Study of the Epidemiology of Mental Disorders. International Journal of Methods in Psychiatric Research, 17(4), 185–197.PubMedCrossRef
53.
go back to reference Carlozzi, N. E., & Tulsky, D. S. (2013). Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease. Journal of Health Psychology, 18(2), 212–225. Carlozzi, N. E., & Tulsky, D. S. (2013). Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease. Journal of Health Psychology, 18(2), 212–225.
54.
go back to reference Downing, N. R., Williams, J. K., & Paulsen, J. S. (2010). Couples’ attributions for work function changes in prodromal Huntington disease. Journal of Genetic Counseling, 19(4), 343–352.PubMedCentralPubMedCrossRef Downing, N. R., Williams, J. K., & Paulsen, J. S. (2010). Couples’ attributions for work function changes in prodromal Huntington disease. Journal of Genetic Counseling, 19(4), 343–352.PubMedCentralPubMedCrossRef
Metagegevens
Titel
Validity of the 12-item World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) in individuals with Huntington disease (HD)
Auteurs
Noelle E. Carlozzi
Anna L. Kratz
Nancy R. Downing
Siera Goodnight
Jennifer A. Miner
Nicholas Migliore
Jane S. Paulsen
Publicatiedatum
01-08-2015
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 8/2015
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-0930-x

Andere artikelen Uitgave 8/2015

Quality of Life Research 8/2015 Naar de uitgave