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06-04-2023 | Review

Patient-reported outcomes and patient-reported outcome measures in liver transplantation: a scoping review

Auteurs: Ali Vedadi, Roula Khairalla, Adrian Che, Ahsas Nagee, Mohammed Saqib, Ali Ayub, Aghna Wasim, Sara Macanovic, Ani Orchanian-Cheff, Nazia Selzner-Malekkiani, Susan Bartlett, Istvan Mucsi

Gepubliceerd in: Quality of Life Research | Uitgave 9/2023

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Abstract

Introduction

Generic or condition-specific Patient-reported Outcome Measures (PROMs) are used to measure physical, mental, and social aspects of health to promote patient-centered care. This scoping review aims to identify and summarize generic and condition-specific PRO domains and PROMs that have been assessed and used in liver transplant (LT) candidates and recipients.

Methods

We searched Medline, Embase, Cochrane Database of Systematic Reviews and Register of Trials, PsychInfo, and CINAHL from inception to 08/26/2020. Included studies addressed a PRO or PROM in LT candidates or recipients.

Results

After screening, 341 studies yielded 189 unique PRO domains. Mental health domains (depression, anxiety, and guilt) were most frequently assessed, followed by domains of physical and social health. Fifty-one generic and three condition-specific unique PROMs were identified, with only 13% (n = 45) of studies including condition-specific tools.

Discussion

The most frequent PROMs were the SF-36, Nottingham Health Profile, Hospital Anxiety and Depression Scale, followed by the Liver Disease Quality of Life (LDQoL). Very few studies used transplant-specific PROMs, which may partly be related to the scarcity of LT-specific instruments. We will use these results in future qualitative research to identify PROs and PROMs to build an electronic PROM toolkit to facilitate patient-centered LT care.
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Metagegevens
Titel
Patient-reported outcomes and patient-reported outcome measures in liver transplantation: a scoping review
Auteurs
Ali Vedadi
Roula Khairalla
Adrian Che
Ahsas Nagee
Mohammed Saqib
Ali Ayub
Aghna Wasim
Sara Macanovic
Ani Orchanian-Cheff
Nazia Selzner-Malekkiani
Susan Bartlett
Istvan Mucsi
Publicatiedatum
06-04-2023
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 9/2023
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-023-03405-1

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