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12-01-2018 | Original Paper | Uitgave 5/2018

Managing Fatigue in Parents with Multiple Sclerosis

Tijdschrift:: Journal of Child and Family Studies > Uitgave 5/2018

Auteurs:: Darbi Haynes-Lawrence, Adam R. West

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Abstract

The purpose of this study was to examine fatigue and how it affects the lives of families with Multiple Sclerosis (MS). The overarching goal was to determine ways to better support parents who are experiencing MS fatigue. Qualitative surveys were used to collect data from 181 participants on the impacts of MS and parenting over a 3-month time period. Findings include three themes: (1) Description of Fatigue, focused on the intense definition and description of how fatigue is experienced by participants; (2) Fatigue Impacts Parenting, described the views of parental challenges; and (3) Managing Fatigue, centered on the methods used by participants to control their fatigue. Discussion of findings, conclusions, and recommendations for practice for social workers and future studies are presented.

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Meer informatie

Asano, M., & Finlayson, M. L. (2014). Meta-analysis of three different types of fatigue management interventions for people with multiple sclerosis: exercise, education, and medication. Multiple Sclerosis International, 2014, 1–12. https://doi.org/10.1155/2014/798285 CrossRef

Blikman, L. J., Huisstede, B. M., Kooijmans, H., Stam, H. J., Bussmann, J. B., & van Meeteren, J. (2013). Effectiveness of energy conservation treatment in reducing fatigue in multiple sclerosis: a systematic review and meta-analysis. Archives of Physical Medicine and Rehabilitation, 94, 1360–1376. https://doi.org/10.1016/j.apmr.2013.01.025. CrossRefPubMed

Bogdan, R. C., & Biklen, S. K. (1998). Qualitative research in education: an introduction to theory and methods (3rd ed.). Needham Heights, MA: Allyn & Bacon.

Bradley, T. J., & Cherin, R. D. (2010). Fatigue in multiple sclerosis: mechanisms, evaluation, and treatment. Sleep, 33(8), 1061–1067. CrossRef

Bradley, T. J., Cherin, R. D., & Segal, B. M. (2012). Fatigue, tiredness, lack of energy, and sleepiness in multiple sclerosis patients referred for clinical polysomnography. Multiple Sclerosis International, 2012. https://doi.org/10.1155/2014/872732.

Cameron, M. H., Peterson, V., Boudreau, E. A., Downs, A., Lovera, J., Kim, E., McMillan, G. P., Turner, A. P., Haselkorn, J. K., & Bourdette, D. (2014). Fatigue is associated with poor sleep in people with multiple sclerosis and cognitive impairment. Multiple Sclerosis International, 2014, 1–5. http://dx.doi.org/10.1155/2014/872732.

Cardoff, E., Murray, S. A., & Kendall, M. (2015). Methodological developments in qualitative longitudinal research: The advantages and challenges of regular telephone contact with participants in a qualitative longitudinal interview study. BioMed Central Research Notes, 8(142), 1–10. https://doi.org/10.1186/s13104-015-1107-y.

Castro-Sanchez, A. M., Mataran-Penarrocha, G. A., Lara-Palomo, I., Saavadra-Hernandez, M., Arroyo-Morales, M., & Moreno-Lorenzo, C. (2012). Hydrotherapy for the treatment of pain in people with multiple sclerosis: a randomized controlled trial. Evidence Based Complementary and Alternative Medicine, 2012. https://doi.org/10.1155/2012/473963.

Charvet, L., Serafin, D., & Krupp, L. B. (2014). Fatigue in multiple sclerosis. Biomedicine, Health & Behavior, 2(1), 3–13. https://doi.org/10.1080/21641846.2013.8343812. CrossRef

Claros-Salinas, D., Dittmer, N., Neumann, M., Sehle, A., Spiteri, S., Willmes, K., Schoenfeld, M. A., & Dettmers, C. (2013). Induction of cognitive fatigue in MS patients through cognitive and physical load. Neuropsychological Rehabilitation, 23(2), 182–201. https://doi.org/10.1080/09602011.2012.726925.

Creswell, J. W., & Miller, D. L. (2000). Determining validity in qualitative inquiry. Theory into Practice, 39(3), 124–130. CrossRef

Da Silva, A. M., Cavaco, S., Moreira, I., Bettencourt, A., Santos, E., Pinto, C., & Montalban, X. (2015). Cognitive reserve in multiple sclerosis: protective effects of education. Multiple Sclerosis Journal, 21(10), 1312–1321. https://doi.org/10.1177/1352458515581874. CrossRefPubMed

Elbers, R. G., Rietberg, M. B., van Wegen, E. H., Verhoef, J., Kramer, S., Terwee, C. B., & Kwakkel, G. (2012). Self-report fatigue questionnaires in multiple sclerosis, Parkinson’s disease and stroke: a systematic review of measurement properties. Quality of Life Research, 21(6), 925–944. https://doi.org/10.1007/s11136-011-0009-2. CrossRefPubMed

Multiple Sclerosis Foundation Medical Advisory Board (2009). Fighting fatigue. http://msfocus.org/article-details.aspx?articleID=48.

Garg, H., Bush, S., & Gappmaier, E. (2016). Associations between fatigue and disability, functional mobility, depression, and quality of life in people with multiple sclerosis. International Journal of MS Care, 18(2), 71–77. https://doi.org/10.7224/1537-2073.2015-013. CrossRefPubMedPubMedCentral

Harrington, M. (2012). Neurobiological studies of fatigue. Progress in Neurobiology, 99(2), 93–105. https://doi.org/10.1016/j.pneurobio.2012.07.004. CrossRefPubMedPubMedCentral

Haynes-Lawrence, D. J. (2014). Supporting families experiencing chronic illness. Childcare Exchange, 37(3), 90–93.

Holberg, C., & Finlayson, M. (2007). Factors influencing the use of energy conservationstrategies by persons with multiple sclerosis. American Journal of Occupational Therapy, 61(1), 96–107. CrossRefPubMed

Holland, J., Thomson, R., & Henderson, S. (2006). Qualitative longitudinal research: a discussion paper. Families and Social Capital ESRC Research Group, 21, 1–60.

Khan, F., Amatya, B., & Galea, M. (2014). Management of fatigue in persons with multiple sclerosis. Frontiers in Neurology, 5(177), 1–15. https://doi.org/10.3389/fneur.2014.00177.

King, M. (1995). Fatigue: a medical overview shows the many aspects of this problem. Inside MS, 13(3), 4–6.

Koch, M. W., Patten, S., Berzins, S., Zhornitsky, S., Greenfield, J., Wall, W., & Metz, L. M. (2015). Depression in multiple sclerosis: a long-term longitudinal study. Multiple Sclerosis Journal, 21(1), 76–83. https://doi.org/10.1177/1352458514536086. CrossRefPubMed

Kos, D., Kerckhofs, E., Nagels, G., D’hooghe, B., & Ilsbroukx, S. (2008). Origin of fatigue in multiple sclerosis: review of the literature. The American Society of Neurorehabilitation, 22, 91–100. https://doi.org/10.1177/1545968306298934.

Krupp, L. (2006). Editorial. Multiple Sclerosis, 12(4), 367–368. CrossRefPubMed

LeCompte, M. D. (2000). Analyzing qualitative data. Theory into Practice, 39(3), 146–155. CrossRef

Lewis, J. (2009). Redefining qualitative methods: believability in the fifth moment. International Journal of Qualitative Methods, 8(2), 1–14. CrossRef

Lysandropoulus, A. P., & Havrdova, E. (2015). ‘Hidden’ factors influencing quality of life in patients with multiple sclerosis. European Journal of Neurology, 22(2), 28–33. https://doi.org/10.1111/ene.12801. CrossRef

Manconi, M., Fabrrini, M., Bonanni, E., Filippi, M., Rocca, M., Murri, L., & Ferini-Strambi, L. (2007). High prevalence of restless legs syndrome in multiple sclerosis. European Journal of Neurology, 14, 534–539. https://doi.org/10.1111/j.1468-1331.2007.01740.x. CrossRefPubMed

Marshall, C., & Rossman, G. B. (2006). Designing qualitative research (4th ed.). Thousand Oaks, CA: Sage Publications.

Miserandino, C. (2003). The spoon theory. http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory.

Mollaoglu, M., & Üstün, E. (2009). Fatigue in multiple sclerosis patients. Journal of Clinical Nursing, 18, 1231–1238. CrossRefPubMed

Morrow, S. A., Rosehart, H., & Johnson, A. M. (2015). Diagnosis and quantification of cognitive fatigue in multiple sclerosis. Cognitive & Behavioral Neurology, 28(1), 27–32. CrossRef

Neutens, J. J., & Rubinson, L. (2014). Research techniques for the health sciences (5th ed.). San Francisco, CA: Pearson Education.

Paturel, A. (2009). Hitting the mattress with MS. Neurology Now, 5(1), 24–28. CrossRef

Roehrs, T. G., & Karst, G. M. (2004). Effects of an aquatics exercise program on quality of life measures for individuals with progressive multiple sclerosis. Journal of Neurologic Physical Therapy, 28(2), 63–71. https://doi.org/10.1097/01.NPT.0000281186.94382.90. CrossRef

Rubin, H. J., & Rubin, I. S. (2005). Qualitative interviewing: the art of hearing data (2nd ed.). Thousand Oaks, CA: Sage. CrossRef

Rumrill, P. D. (2009). Multiple sclerosis: medical and psychosocial aspects, etiology, incidence and prevalence. Journal of Vocational Rehabilitation, 31, 75–82. https://doi.org/10.3233/JVR-2009-0476.

Sauter, C., Zebenholzer, K., Hisakawa, J., Zeitlhofer, J., & Vass, K. (2008). A longitudinal study on effects of a six-week course for energy conservation for multiple sclerosis patients. Multiple Sclerosis, 14, 500–505. https://doi.org/10.1177/1352458507084649. CrossRefPubMed

Schwid, S. R., Covington, M., Segal, B. M., & Goodman, A. D. (2002). Fatigue in multiple sclerosis: current understanding and future directions. Journal of Rehabilitation Research and Development, 39(2), 211–224. PubMed

Schwid, S. R., Petrie, M. D., Murray, R., Leitch, J., Bowen, J., & Alquist, A., NASA/MS Cooling Study Group. (2003). A randomized controlled study of the acute and chronic effects of cooling therapy for MS. Neurology, 60(12), 1955–1960. CrossRefPubMed

Sumowski, J. F., Rocca, M. A., Leavitt, V. M., Dackovic, J., Mesaros, S., Drulovic, J., Filippi, M. (2014). Brain reserve and cognitive reserve protect against cognitive decline over 4.5 years in MS. American Academy of Neurology, 82(20), 1776–1783. https://doi.org/1.1212/WNL.0000000000000433.

Sumowski, J. F., Rocca, M. A., Leavitt, V. M., Riccitelli, G., Comi, G., DeLuca, J., & Filippi, M. (2013). Brain reserve and cognitive reserve in multiple sclerosis: what you’ve got and how you use it. American Academy of Neurology, 80(24), 2186–2193. https://doi.org/10.1212/WNL.0b013e3182a0ef3d. CrossRef

Walker, L. A. S., Berard, J. A., Berrigan, L. I., Rees, L. M., & Freedman, M. S. (2012). Detecting cognitive fatigue in multiple sclerosis: method matters. Journal of the Neurological Sciences, 316, 86–92. https://doi.org/10.106/j.jns.2012.01.021. CrossRefPubMed

White, C. P., White, M. B., & Fox, M. A. (2009). Maternal fatigue and its relationship to the caregiving environment. Families, Systems, & Health, 27(4), 325–345. https://doi.org/10.1037/a0018284. CrossRef

Wood, B., van der Mei, I. A. F., Ponsonby, A. L., Pittas, F., Quinn, S., Dwyer, T., Lucas, R. M., & Taylor, B. V. (2013). Prevalence and concurrence of anxiety, depression and fatigue over time in multiple sclerosis. Multiple Sclerosis Journal, 19(2), 217–224. https://doi.org/10.1177/1352458512450351. CrossRefPubMed

Titel: Managing Fatigue in Parents with Multiple Sclerosis
Auteurs:: Darbi Haynes-Lawrence
Adam R. West
Publicatiedatum: 12-01-2018
DOI: https://doi.org/10.1007/s10826-017-1007-y
Uitgeverij: Springer US
Tijdschrift: Journal of Child and Family Studies
Uitgave 5/2018
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843

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Managing Fatigue in Parents with Multiple Sclerosis

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