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12-10-2019 Open Access

Capturing the patient voice: implementing patient-reported outcomes across the health system

Tijdschrift:
Quality of Life Research
Auteurs:
Elizabeth Austin, Cynthia LeRouge, Andrea L. Hartzler, Courtney Segal, Danielle C. Lavallee
Belangrijke opmerkingen

Electronic supplementary material

The online version of this article (https://​doi.​org/​10.​1007/​s11136-019-02320-8) contains supplementary material, which is available to authorized users.
The authors presented portions of this work at the 2017 Academy Health Annual Research Meeting (June 25–27, 2017; New Orleans, LA) and 2018 Academy Health Annual Research Meeting (June 23–26, 2018; Seattle, WA).

Publisher's Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Abstract

Purpose

Supporting the capture and use of patient-reported outcomes (PROs) at the point-of-care enriches information about important clinical and quality of life outcomes. Yet the ability to scale PROs across healthcare systems has been limited by knowledge gaps around how to manage the diversity of PRO uses and leverage health information technology. In this study, we report learnings and practice insights from UW Medicine’s practice transformation efforts to incorporate patient voice into multiple areas of care.

Methods

Using a participatory, action research approach, we engaged with UW Medicine clinical and administrative stakeholders experienced with PRO implementation to inventory PRO implementations across the health system, characterize common clinical uses for PROs, and develop recommendations for system-wide governance and implementation of PROs.

Results

We identified a wide breadth of PRO implementations (n = 14) in practice and found that nearly half (47%) of employed PRO measures captured shared clinical domains (e.g., depression). We developed three vignettes (use cases) that illustrate how users interact with PROs, characterize common ways PRO implementations support clinical care across the health system (1) Preventive care, (2) Chronic/Specialty care, and (3) Surgical/Interventional care), and elucidate opportunities to enhance efficient PRO implementations through system-level standards and governance.

Conclusions

Practice transformation efforts increasingly require integration of the patient voice into clinical care, often through the use of PROs. Learnings from our work highlight the importance of proactively considering how PROs will be used across the layers of healthcare organizations to optimize the design and governance of PROs.

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Extra materiaal
Supplementary material 1 (DOCX 15 kb)
11136_2019_2320_MOESM1_ESM.docx
Literatuur
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