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Gepubliceerd in: Quality of Life Research 8/2020

07-03-2020

Can a combination of mental health services and ADL therapies improve quality of life in families of children with autism spectrum disorder?

Auteurs: Vanessa Clarisse Fong, Emily Gardiner, Grace Iarocci

Gepubliceerd in: Quality of Life Research | Uitgave 8/2020

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Abstract

Purpose

Due to the nature and complexity of autism spectrum disorder (ASD), which typically requires coordination among various treatments targeting different areas of need, the entire family is impacted. Family quality of life (FQOL) research has emerged to address the range of adaptation families experience when raising a child with ASD. One factor that is likely to impact FQOL relates to families’ service use to support their child’s needs. The goal of the present study was to examine the relations between specific domains of FQOL and service usage type among families of children with ASD.

Methods

A total of 164 caregivers of children diagnosed with ASD were asked which autism services they were currently using and completed the Beach Center Family Quality of Life Scale and the Nisonger Child Behaviour Rating Form.

Results

Findings revealed that service usage type significantly predicted families’ satisfaction with their emotional well-being, physical/material well-being, and disability-related support. Specifically, families using a combination of mental health services and ADL therapies reported greater satisfaction in these FQOL domains.

Conclusion

Present findings underscore that families need access to a sufficiently broad range of child services and supports in order to benefit their FQOL.
Voetnoten
1
Educational supports were included in the second category given that mental health services tended to be delivered through the school.
 
Literatuur
1.
go back to reference Aman, M. G., Tasse, M. J., Rojahn, J., & Hammer, D. (1996). The Nisonger CBRF: A child behavior rating form for children with developmental disabilities. Research in Developmental Disabilities,17(1), 41–57.CrossRef Aman, M. G., Tasse, M. J., Rojahn, J., & Hammer, D. (1996). The Nisonger CBRF: A child behavior rating form for children with developmental disabilities. Research in Developmental Disabilities,17(1), 41–57.CrossRef
3.
go back to reference Cadman, T., Eklund, H., Howley, D., Hayward, H., Clarke, H., Findon, J., et al. (2012). Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom. Journal of the American Academy of Child and Adolescent Psychiatry,51(9), 879–888. https://doi.org/10.1016/j.jaac.2012.06.017.CrossRefPubMed Cadman, T., Eklund, H., Howley, D., Hayward, H., Clarke, H., Findon, J., et al. (2012). Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom. Journal of the American Academy of Child and Adolescent Psychiatry,51(9), 879–888. https://​doi.​org/​10.​1016/​j.​jaac.​2012.​06.​017.CrossRefPubMed
4.
9.
go back to reference Gillberg, C., & Billstedt, E. (2000). Autism and Asperger syndrome: coexistence with other clinical disorders. Acta Psychiatrica Scandinavica,102(5), 321–330.CrossRef Gillberg, C., & Billstedt, E. (2000). Autism and Asperger syndrome: coexistence with other clinical disorders. Acta Psychiatrica Scandinavica,102(5), 321–330.CrossRef
11.
go back to reference Hoffman, L., Marquis, J., Poston, D., Summers, J., & Turnbull, A. (2006). Assessing family outcomes: psychometric evaluation of the beach center family quality of life scale. Journal of Marriage and the Family,68(4), 1069–1083.CrossRef Hoffman, L., Marquis, J., Poston, D., Summers, J., & Turnbull, A. (2006). Assessing family outcomes: psychometric evaluation of the beach center family quality of life scale. Journal of Marriage and the Family,68(4), 1069–1083.CrossRef
13.
go back to reference Lai, J. K. Y., & Weiss, J. A. (2017). Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder. Autism Research : Official Journal of the International Society for Autism Research,10(8), 1436–1447. https://doi.org/10.1002/aur.1786.CrossRef Lai, J. K. Y., & Weiss, J. A. (2017). Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder. Autism Research : Official Journal of the International Society for Autism Research,10(8), 1436–1447. https://​doi.​org/​10.​1002/​aur.​1786.CrossRef
16.
go back to reference Maddox, B. B., White, S. W. (2015). Comorbid social anxiety disorder in adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(12), 3949–3960.CrossRef Maddox, B. B., White, S. W. (2015). Comorbid social anxiety disorder in adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(12), 3949–3960.CrossRef
17.
18.
go back to reference Ono, E., Friedlander, R., & Salih, T. (2019). Falling through the cracks: How service gaps leave children with neurodevelopmental disorders and mental health difficulties without the care they need. BCMJ,61(3), 114–124. Ono, E., Friedlander, R., & Salih, T. (2019). Falling through the cracks: How service gaps leave children with neurodevelopmental disorders and mental health difficulties without the care they need. BCMJ,61(3), 114–124.
19.
go back to reference Park, J., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., Mannan, H., et al. (2003). Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47(Pt 4–5), 367–384.CrossRef Park, J., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., Mannan, H., et al. (2003). Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47(Pt 4–5), 367–384.CrossRef
26.
go back to reference Volkmar, F., Cook, E. H. J., Pomeroy, J., Realmuto, G., & Tanguay, P. (1999). Practice parameters for the assessment and treatment of children, adolescents, and adults with autism and other pervasive developmental disorders. American Academy of Child and Adolescent Psychiatry Working Group on Quality Issues. Journal of the American Academy of Child and Adolescent Psychiatry, 38(12 Suppl), 32S–54S. Volkmar, F., Cook, E. H. J., Pomeroy, J., Realmuto, G., & Tanguay, P. (1999). Practice parameters for the assessment and treatment of children, adolescents, and adults with autism and other pervasive developmental disorders. American Academy of Child and Adolescent Psychiatry Working Group on Quality Issues. Journal of the American Academy of Child and Adolescent Psychiatry, 38(12 Suppl), 32S–54S.
Metagegevens
Titel
Can a combination of mental health services and ADL therapies improve quality of life in families of children with autism spectrum disorder?
Auteurs
Vanessa Clarisse Fong
Emily Gardiner
Grace Iarocci
Publicatiedatum
07-03-2020
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 8/2020
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-020-02440-6

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